Parkinson's Resource Organization

What Parkinson's Resource Organization does

Parkinson's Resource Organization (PRO) is a U.S. nonprofit founded in 1990 and headquartered in Coachella Valley, California, that delivers free services, education, and resources to people living with Parkinson's disease, their caregivers, and families. Its core offerings include virtual and in-person support groups (20–25 per month) covering caregiver support, grief, round-table discussions, chair yoga, and movement sessions; the monthly Newsworthy Notes newsletter; the Together In Parkinson's podcast; and The Wellness Village Resource Directory — described as a free, vetted, video-driven online directory of professionals, services, and products for the Parkinson's community, with a stated goal of covering providers in every U.S. state. In-person groups meet across Southern California in Palm Springs, Palm Desert, Woodland Hills, Yucca Valley, and Sherman Oaks, while virtual Zoom groups extend reach nationally.

PRO operates on a donation-and-grant revenue model. All services are provided at no cost to beneficiaries; the organization is primarily sponsored by the H.N. & Frances C. Berger Foundation, which contributed a $25,000 grant in June 2023 and is hosting PRO's new headquarters at the Berger Foundation Building in Palm Desert effective August 2026. The team is small (1–10 employees, including Executive Director Eileen Lynch and Operations Manager Michelle White) and is currently hiring additional operations and program staff. Distribution combines self-serve digital channels (website, directory, Zoom groups, podcast, newsletter) with in-person community meetings, supported by active social media presence on Facebook, Twitter/X, LinkedIn, YouTube, and Instagram.

The organization's go-to-market is community-led: trust is built through 30+ years of service, recognition as a Candid/GuideStar Gold Participant (2022) and Great Nonprofits Top-Rated Nonprofit, and participation in events such as the 7th Annual World Parkinson's Congress. Service providers (e.g., physical therapists, home health, senior living) are onboarded into The Wellness Village directory as a secondary audience, giving the organization a tri-sided ecosystem of patients, caregivers, and providers.

Name

Parkinson's Resource Organization

Legal name

Parkinson's Resource Organization

Website

https://parkinsonsresource.org

Company type

Private

Founded year

1990

Operating status

Operating

Headcount range

1–10 employees

Short description

Parkinson's Resource Organization (PRO) is a U.S. nonprofit founded in 1990 that provides free support groups, educational resources, and a vetted online resource directory (The Wellness Village) to people living with Parkinson's, their caregivers, and families, primarily across Southern California and virtually nationwide.

Ownership category

akta.pro rank

Product category

Neurological Disease Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Parkinson’s & Movement-Disorder Personal Care Support (HSABABAJ)

akta.pro secondary industry

Disability Services & Independent Living Support (BPAGACAG)

Keywords

• Parkinson's support services
• Caregiver support groups
• Neurological disorder resources
• Nonprofit health support
• Wellness resource directory

Headquarters

HQ city

Palm Desert

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Charitable Donations and Grants: Revenue generated through tax-deductible charitable contributions from individual donors and institutional grants. The organization received a $25,000 grant from the H.N. and Frances C. Berger Foundation to support free online support groups and workshops. All services are provided free of charge to beneficiaries.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels8 records

Core offering

Parkinson's Resource Organization is a nonprofit charitable organization that provides free support groups, educational resources, and curated referrals to people living with Parkinson's disease, their caregivers, and associated professionals. Its anchor offering is The Wellness Village Resource Directory—a free, vetted, video-driven online directory of professionals, services, and products for people with Parkinson's and other neurological disorders—complemented by recurring virtual and in-person support groups, a podcast, and a monthly newsletter.

Product overview

Parkinson's Resource Organization (PRO) operates as a nonprofit support organization offering a unified suite of services centered on the digital Wellness Village Resource Directory — a free, video-driven directory of vetted professionals, services, and products for the Parkinson's community. This core platform is complemented by virtual support groups (20–25 per month covering caregiver support, grief groups, round tables, and movement therapies), the Together In Parkinson's Podcast, and the monthly Newsworthy Notes newsletter. All programs are provided free of charge to people with Parkinson's and their caregivers, with services sponsored by the H.N. & Frances C. Berger Foundation.

Differentiator

Problem solved

Functional benefit

Brands

• The Wellness Village: A comprehensive, video-driven, online directory of professionals, services, and products for people with Parkinson's, their families, and caregivers. The first free, vetted, and video-driven resource directory of services and solutions for living well with Parkinson's and other neurological disorders.
• Newsworthy Notes
• Together In Parkinson's Podcast
• Things To Know RIGHT NOW

Products and services

• The Wellness Village Resource Directory A free, video-driven, online directory of vetted professionals, services, and products for people living with Parkinson's and other neurological disorders, designed to make important resources available to the Parkinson's community with a single click.
• Virtual Support Groups Free virtual (Zoom) support groups covering caregiver support, grief, round table discussions, and movement-based sessions for people with Parkinson's disease and their caregivers.
• Together In Parkinson's Podcast A podcast series featuring conversations, research updates, and topical discussions for the Parkinson's community.
• Newsworthy Notes Newsletter A monthly newsletter providing updates on Parkinson's research, PRO events, and community resources for the Parkinson's community.

Quantifiable outcome

• Provides 20-25 support groups per month including virtual and in-person sessions
• +2 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

One partnership is on record.

• ICBII (International Center for Biotherapeutic Imaging)minorStrategic or Co-development PartnerPRO shares research updates from ICBII on 'Road to the Cure' regarding their work on blood-brain barrier drug delivery for neurological diseases including Parkinson's. ICBII has developed methods to breach the blood-brain barrier for therapeutic drug delivery.

Scale indicators4 records

Recent moves7 records

Expansion highlights3 records

Direct peers

• Brian Grant Foundation: Parkinson's nonprofit providing wellness, exercise, and nutrition programs as well as community-building initiatives — overlapping with PRO's wellness and quality-of-life programming.
• Parkinson's Foundation: Large U.S. nonprofit focused on Parkinson's disease, providing educational resources, support, research funding, and a helpline — directly overlapping with PRO's mission of supporting people with Parkinson's and caregivers.
• American Parkinson Disease Association: National nonprofit providing support groups, educational materials, and a helpline for people with Parkinson's — a closely comparable service model to PRO including regional support group infrastructure.
• Michael J. Fox Foundation for Parkinson's Research: The largest Parkinson's-focused nonprofit, funding research and providing extensive patient education and community resources — competes for donor mindshare and offers overlapping support services to PRO's audience.
• Davis Phinney Foundation: Parkinson's-focused nonprofit offering educational programs, webinars, and resources to help people live well with Parkinson's — closely comparable in mission and delivery (virtual education, community programs).
• Parkinson's Movement Disorder Alliance: Nonprofit offering education, empowerment programs, and community connection for people with movement disorders including Parkinson's — directly overlapping with PRO's support group and education offerings.

Emerging players

• Family Caregiver Alliance: National nonprofit supporting caregivers, including those caring for people with Parkinson's and other chronic conditions — overlaps meaningfully with PRO's caregiver-focused support programs (e.g., Partner in Care).

Regional players

• Northwest Parkinson's Foundation: Regional Parkinson's nonprofit serving the Pacific Northwest with support groups, education, and resources — a comparable regional peer to PRO's Southern California footprint.
• Cure Parkinson's: UK-based Parkinson's research and advocacy charity with similar community- and information-driven mission — comparable organizational model and audience, though operating in a different geography.

Broad incumbents

• Alzheimer's Association: Much larger national nonprofit addressing a related neurodegenerative condition, with a comparable model of free support groups, education, and a 24/7 helpline — illustrates the scale-up pathway and incumbent dynamics PRO faces.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/parkinsonspro
• YouTubeyoutube.com/user/ParkinsonsPRO
• Facebookfacebook.com/Parkinsonsresourceorganization
• LinkedInlinkedin.com/company/parkinsonsresources
• Instagraminstagram.com/parkinsonsresourceorg

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Parkinson's Resource Organization