Facial Pain Association

What Facial Pain Association does

The Facial Pain Association is a 501(c)(3) non-profit organization headquartered in Suwanee, Georgia, that provides education, peer support, advocacy, and research facilitation for individuals affected by neuropathic facial pain conditions, including trigeminal neuralgia and related disorders. Founded in 1990, the organization has operated for over three decades as a central hub connecting patients with peer mentors, medical experts, and educational resources. Its offerings include a patient-facing website, regional support groups, an annual conference, webinars, a quarterly journal, a printed patient guide, a peer mentor program, a facial pain patient registry, an active Facebook forum, and a podcast series.

The Association's revenue model is multi-channel and donation-driven, relying on individual contributions, corporate sponsorships, fundraising events, and merchandise sales through an online shop. It maintains formal research and clinical partnerships with leading academic medical centers, including Mayo Clinic, Johns Hopkins, Columbia University, Stanford, and the University of Minnesota, as well as commercial partnerships with pharmaceutical sponsors such as NOEMA Pharma. The organization is led by CEO Melissa Baumbick with David Meyers serving as Board Chairman, and operates with a lean staff of 1–10 employees.

From a technology standpoint, the Association's offerings are primarily content and community-based rather than software-centric: its platforms consist of a website, social forums, and data-collection instruments (notably the facial pain registry) but show no disclosed AI/ML capability, proprietary algorithms, or advanced technical infrastructure. The 35+ year operating history, dominant share-of-voice within its specific patient niche, and deep ties to academic neurology and pain medicine communities function as the principal durable assets of the organization.

Name

Facial Pain Association

Legal name

The Facial Pain Association

Website

https://facepain.org

Company type

Private

Founded year

2002

Operating status

Operating

Headcount range

1–10 employees

Short description

The Facial Pain Association is a 501(c)(3) non-profit that provides education, peer support, advocacy, and research facilitation for patients with neuropathic facial pain conditions such as trigeminal neuralgia.

Ownership category

akta.pro rank

Headquarters

HQ city

Suwanee

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Charitable Contributions: The primary revenue source comes from donations from individuals, corporations, and foundations. The organization is a recognized nonprofit with Tax ID 22-3071645. They operate online donation portals through GiveCloud and DonorPerfect platforms.
2. Corporate Sponsorships: Healthcare organizations and pharmaceutical companies sponsor the organization and its events, including conferences and educational content. Sponsors include medical institutions (Mayo Clinic, Johns Hopkins, Columbia Neurological Surgery) and pharma companies (NOEMA Pharma).
3. Shop and Merchandise: The organization operates an e-commerce shop through GiveCloud for merchandise and educational materials.
4. Fundraising Events: Organized fundraising campaigns including GivingTuesday and other campaigns to generate voluntary contributions from supporters.

Go-to-market motion3 records

Distribution channels5 records

Marketing channels10 records

Core offering

The Facial Pain Association is a nonprofit patient advocacy organization that provides education, peer support, and community resources for individuals affected by neuropathic facial pain conditions such as trigeminal neuralgia, TMJ disorders, and occipital neuralgia. Its core offerings include free educational content via its website and Patient Guide, virtual and in-person support groups, a peer mentor program, an annual conference, webinars, a quarterly journal, a Facial Pain Registry, and a podcast series, all delivered free of charge to patients and caregivers.

Product overview

The Facial Pain Association operates primarily as an educational and support organization rather than a traditional software product company. Their core offering is a comprehensive digital platform providing information about neuropathic facial pain conditions including trigeminal neuralgia, TMJ disorders, and related conditions. The organization delivers services through multiple channels: a website with educational resources and patient guides; virtual and in-person support groups; an annual conference with expert presentations; a video series/webinars; a quarterly journal publication; peer mentor matching; a patient registry for research; and community forums via Facebook. These services work together to provide education, emotional support, and community connection for patients and caregivers affected by facial pain.

Differentiator

Problem solved

Functional benefit

Products and services

• FPA Annual Conference Annual in-person conferences that bring together the worldwide facial pain community with expert presentations on diagnosis, treatment, and research, including educational tracks, expert speakers, and networking opportunities for patients and caregivers.
• Virtual Support Groups Online support group meetings hosted via Zoom that connect patients with facial pain to share experiences, receive guidance, and build community across various geographic regions.
• Peer Mentor Program One-on-one support program that connects patients with trained peer mentors who have lived experience with facial pain conditions, accessible by contacting the FPA National Office.
• Patient Guide Free downloadable guidebook providing information about neuropathic facial pain, diagnosis processes, treatment options, and management strategies for patients and caregivers.
• Quarterly Journal Quarterly publication featuring medical articles, Medical Advisory Board corner updates, sponsor spotlights, and research insights related to facial pain conditions and treatments.
• FPA Video Series/Webinars On-demand video presentations featuring medical experts discussing facial pain topics including treatment options, research updates, and patient experiences, derived from conference presentations.
• Facial Pain Registry Patient registry collecting data to advance understanding of facial pain conditions and support research initiatives.
• Podcast Series Audio content featuring discussions about facial pain topics, patient stories, and expert insights available for streaming.
• FPA Facebook Forum Online community forum allowing patients to discuss facial pain issues, share remedies, and provide mutual support through Facebook's platform.

Quantifiable outcome

• The Facial Pain Registry collects patient data to advance research and understanding of facial pain conditions
• +1 more outcomes

Named customers4 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

19 partnerships are on record, tiered minor and core.

• CuronixminorGTM or Marketing Partner · 7 June 2025Medical device company. Sponsors lunch at the 2025 FPA In-Person Conference. Develops products for pain management.
• Mayo CliniccoreStrategic or Co-development PartnerMajor medical institution partner. Mayo Clinic neurosurgeons and specialists participate in FPA conferences and educational programs. Dr. Richard Zimmerman serves as Professor of Neurosurgery at Mayo Clinic and serves on the Medical Advisory Board. Mayo Clinic sponsors FPA events and programs.
• Johns Hopkins MedicinecoreStrategic or Co-development PartnerJohns Hopkins neurosurgeons including Dr. Michael Lim (Chair of Neurosurgery at Stanford, previously at Johns Hopkins) participate in FPA Medical Advisory Board and educational programs. Johns Hopkins is a corporate sponsor of FPA.
• Columbia University Neurological SurgerycoreStrategic or Co-development PartnerColumbia University Department of Neurological Surgery, led by Dr. Raymond F. Sekula, Jr. (Chair of FPA Medical Advisory Board), is a key partner. The department actively participates in research and patient care programs with FPA.
• Stanford University School of MedicinecoreStrategic or Co-development PartnerDr. Michael Lim serves as Professor and Chair of Neurosurgery at Stanford. Stanford specialists participate in FPA educational programs and Medical Advisory Board activities.
• University of MinnesotacoreStrategic or Co-development PartnerHost venue for the 2025 FPA Conference. Multiple University of Minnesota faculty including Dr. Andrew Grande, Dr. Donald Nixdorf, and Dr. Abby Metzler serve on FPA Medical Advisory Board and present at FPA events.
• AdventHealthminorGTM or Marketing PartnerAdventHealth Neuroscience Institute is a corporate sponsor of FPA. AdventHealth specialists participate in FPA conferences and educational webinars.
• Mayfield Brain and SpineminorGTM or Marketing PartnerMayfield Brain and Spine is a corporate sponsor of FPA. Cincinnati-based neurosurgery practice with specialists who participate in FPA educational programs.
• NOEMA PharmaminorGTM or Marketing PartnerNOEMA Pharma is a biopharmaceutical company developing therapeutics for trigeminal neuralgia and other neurological conditions. They are a corporate sponsor of FPA and FPA features their clinical trial information. Dr. Rob Lasser serves as CMO of NOEMA Pharma.
• NSPC Brain & Spine SurgeryminorGTM or Marketing PartnerNSPC Brain & Spine Surgery is a corporate sponsor of FPA. New York-based neurosurgery practice whose specialists present at FPA webinars.
• American Academy of Orofacial Pain (AAOP)coreStrategic or Co-development PartnerProfessional organization for orofacial pain specialists. AAOP is a corporate sponsor of FPA. FPA works with AAOP to provide accurate information about orofacial pain conditions and treatments.
• Regeneron PharmaceuticalscoreStrategic or Co-development PartnerDr. Wolfgang Liedtke serves as Executive with Regeneron Pharmaceuticals in Genetic Medicines. He is a member of FPA Medical Advisory Board and former Duke University professor. Regeneron is a major pharmaceutical company.
• Emory University School of MedicinecoreStrategic or Co-development PartnerDr. Nicolas Boulis is the Lerner Endowed Professor of Neurosurgery at Emory University. He serves on FPA Medical Advisory Board and presents at FPA conferences on neuromodulation and surgical treatments.
• ClusterbustersminorStrategic or Co-development PartnerNonprofit organization serving patients and caregivers of those experiencing cluster headaches. Anna Williams serves on the board of Clusterbusters and is active in FPA advocacy programs.
• Alliance for Headache Disorders Advocacy (AHDA/THA)minorStrategic or Co-development PartnerCoalition of organizations providing education in the headache space and planning advocacy events like Headache on the Hill. FPA participates in AHDA programming and advocacy efforts.
• CefalyminorGTM or Marketing PartnerMedical device company specializing in neuromodulation devices for headaches and facial pain. Corporate sponsor of FPA.
• NeuroOneminorGTM or Marketing PartnerMedical technology company. Corporate sponsor of FPA.
• Nura Precision Pain ManagementminorGTM or Marketing PartnerPain management clinic. Corporate sponsor of FPA.
• Every Life FoundationminorStrategic or Co-development PartnerNonprofit focused on rare disease advocacy. Corporate sponsor of FPA.

Scale indicators3 records

Recent moves5 records

Expansion highlights4 records

Broad incumbents

• National Organization for Rare Disorders (NORD): NORD is a large umbrella advocacy organization serving all rare disease patients with policy advocacy, research grants, and patient resources. It is comparable to FPA in patient-advocacy mission but operates at much greater scale across thousands of rare conditions rather than specializing in facial pain.

Direct peers

• National Headache Foundation: National Headache Foundation is a nonprofit dedicated to headache disorders, providing patient education, support, and awareness. It is closely comparable to FPA in mission and operating model, addressing overlapping cranial pain conditions from a broader headache lens.
• Migraine Research Foundation: Migraine Research Foundation is a nonprofit funding migraine research and providing patient education. Directly comparable to FPA in mission (research + education for a specific cranial pain condition), nonprofit revenue model, and grantmaking/awareness activities, though migraine is a broader condition.
• U.S. Pain Foundation: U.S. Pain Foundation is a larger nonprofit chronic-pain advocacy organization providing education, support, and policy advocacy. Comparable to FPA in mission and revenue model (donations/sponsorships), but serves a much broader pain population and has a significantly larger footprint.
• American Chronic Pain Association: The ACPA is a nonprofit patient-advocacy organization for people living with chronic pain, offering support groups, education, and resources. It is directly comparable to FPA in mission and operating model, though its scope is broader (general chronic pain vs. FPA's neuropathic facial pain focus).
• Alliance for Headache Disorders Advocacy: AHDA is a coalition of headache and facial pain advocacy organizations that runs advocacy events such as Headache on the Hill. It is an existing FPA partner and directly comparable in mission—policy advocacy for patients with cranial pain conditions.
• Clusterbusters: Clusterbusters is a nonprofit patient-advocacy organization for cluster headache patients and caregivers, providing education, support, and research advocacy. It is an existing FPA partner and is directly comparable in mission, scale, and operating model for an adjacent cranial-pain condition.
• Chronic Pain Research Alliance: The Chronic Pain Research Alliance is an advocacy and research organization advancing understanding of chronic overlapping pain conditions. Comparable to FPA in mission, research focus, and nonprofit operating model, with overlapping cranial pain conditions.

Regional players

• The Migraine Trust: The Migraine Trust is a UK-based nonprofit funding migraine research and providing patient information and support. Comparable to FPA in mission, scale, and operating model, but UK-focused rather than directly competing in the US market.
• Trigeminal Neuralgia Association UK: TNA UK is the UK-based counterpart to FPA, providing support and information for trigeminal neuralgia patients. It is the most directly comparable peer to FPA in disease focus but operates in a different geography, serving British patients rather than competing in FPA's US market.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/facialpainassoc
• YouTubeyoutube.com/c/FacialPainAssociation
• Facebookfacebook.com/facialpainassociation
• Instagraminstagram.com/facialpainassoc
• LinkedInlinkedin.com/company/facial-pain-association-inc

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Facial Pain Association