Crohn's & Colitis Foundation

What Crohn's & Colitis Foundation does

The Crohn's & Colitis Foundation is a 501(c)(3) non-profit organization founded in 1967 and headquartered in New York, dedicated to finding cures for Crohn's disease and ulcerative colitis and improving quality of life for patients and families affected by inflammatory bowel disease (IBD). It serves approximately 1.6 million Americans with IBD through a comprehensive ecosystem that spans patient education, peer and community support, clinical trial participation, advocacy, and professional training, delivered via 40+ local chapters, a 24/7 multilingual IBD Help Center (170 languages), the We Can't Wait restroom-finder app, Camp Oasis youth programs, and the Power of Two peer mentoring network.

The Foundation's research infrastructure includes the IBD Plexus Database & Biobank and quality-of-care programs such as IBD Qorus, SPARC IBD, CAPTURE IBD, and IBD SIRQC, which collectively support data-driven research and care improvement. Through the IBD Ventures program, it deploys strategic equity investments (up to $500,000 per company) into clinical-stage IBD therapeutics, exemplified by its 2026 commitment to Palisade Bio. It has funded 299 research projects, and Foundation advocacy has influenced step therapy legislation in 38 states.

The Foundation generates revenue primarily through individual and corporate donations, community fundraising events such as Take Steps (24,000+ annual participants) and Team Challenge, professional and individual membership programs, and corporate sponsorships from major pharmaceutical and advertising partners. Its go-to-market motion is community-led: digital platforms (website, apps, social media) acquire and engage constituents, local chapters and volunteer networks deepen relationships, and large-scale events convert engagement into donations and advocacy participation. Patient services, educational content, and clinical trial resources are provided free of charge to patients and caregivers.

Name

Crohn's & Colitis Foundation

Legal name

Crohn's & Colitis Foundation

Website

https://crohnscolitisfoundation.org

Company type

Private

Founded year

1967

Operating status

Operating

Headcount range

501–1,000 employees

Short description

The Crohn's & Colitis Foundation is a 501(c)(3) non-profit founded in 1967 that funds IBD research, operates the IBD Plexus Database & Biobank, and delivers patient support, advocacy, and clinical trial resources to the 1.6 million Americans living with Crohn's disease and ulcerative colitis.

Ownership category

akta.pro rank

Product category

Nonprofit Health Foundation

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211)

SIC

Services-Membership Organizations (8600), Services-Commercial Physical & Biological Research (8731)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Inflammatory Bowel Disease (IBD) Care (HLAKAEAD), Clinical CROs (Phase I–IV) (HLAGAAAA)

Keywords

• IBD research funding
• Patient support services
• Nonprofit health foundation
• Disease advocacy programs
• Clinical trial resources

Headquarters

HQ city

New York

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Individual and Corporate Donations: The Foundation generates revenue primarily through donations from individuals, corporations, and foundations supporting its mission to find cures for Crohn's disease and ulcerative colitis.
2. Community Fundraising Events: Revenue generated from events such as Take Steps walks, Team Challenge endurance events, and DIY fundraising campaigns.
3. Membership Programs: Individual and professional membership programs providing benefits and supporting Foundation activities.
4. IBD Ventures Strategic Investments: The Foundation makes strategic equity investments in IBD-focused biotech companies through its IBD Ventures program, investing up to $500,000 in promising therapeutic candidates.

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

The Crohn's & Colitis Foundation is a 501(c)(3) non-profit that funds IBD research, delivers patient and caregiver support services (IBD Help Center, support groups, peer mentoring, Camp Oasis), runs disease advocacy campaigns, operates research infrastructure (IBD Plexus Database & Biobank, IBD Qorus), and provides clinical trial matching and professional education resources for the Crohn's disease and ulcerative colitis community.

Product overview

The Crohn's & Colitis Foundation is a non-profit organization offering a comprehensive ecosystem of patient support programs and resources rather than a unified software product. The portfolio includes mobile applications (We Can't Wait App for restroom access), digital education platforms (IBD Medication Guide, Gut Friendly Recipes, MyIBD Learning, IBD & Me Activity Center, Just Like Me for teens), peer support programs (Power of Two mentoring, Support Groups network), youth programs (Camp Oasis summer camp), clinical trial resources (Clinical Trials Community), research infrastructure (IBD Plexus Database & Biobank, IBD Qorus, SPARC IBD, CAPTURE IBD, IBD SIRQC), and the IBD Help Center for personalized assistance. These offerings work together to support patients from diagnosis through ongoing disease management, with supplementary programs for specific populations including veterans, young adults (Campus Connection), women, and children.

Differentiator

Problem solved

Functional benefit

Brands

• IBD Plexus: A database and biobank initiative that collects and shares IBD research data to accelerate scientific discovery.
• IBD Qorus
• SPARC IBD
• CAPTURE IBD
• Camp Oasis
• Take Steps
• Team Challenge
• We Can't Wait
• Power of Two
• MyIBD Learning
• Crohn's & Colitis Congress
• IBD Innovate

Products and services

• We Can't Wait App

Quantifiable outcome

• 85% of surveyed individuals say the Foundation has positively impacted their IBD journey
• +3 more outcomes

Named customers2 records

Segments6 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Eleven partnerships are on record, tiered minor and core.

• IDI ConsultingminorGTM or Marketing Partner · 22 June 2026IDI Consulting, a Pittsburgh-based IT consulting firm, serves as a Silver Level Sponsor for the Crohn's & Colitis Foundation's Pittsburgh Take Steps Walk on June 28, 2026. The annual event draws more than 24,000 participants nationwide. This sponsorship aligns with IDI Consulting's commitment to community involvement and corporate responsibility.
• Olixir NYcoreStrategic or Co-development Partner · 10 June 2026Advertising agency partner for the 2026 'Spill Your Guts' PSA campaign, which features individuals living with Crohn's disease and ulcerative colitis sharing their experiences to break stigma around IBD. The campaign aims to encourage people experiencing symptoms to seek medical guidance.
• Colitis & Crohn's Foundation of India (CCFI)minorOthers · 27 March 2026The Colitis & Crohn's Foundation of India (CCFI) launched its Tamil Nadu chapter to raise awareness and improve diagnosis and support for IBD in the region, mirroring the US Foundation's model. The chapter focuses on public campaigns, research, medical education, and patient support.
• PhaseVcoreStrategic or Co-development Partner · 22 January 2026Strategic partnership using PhaseV's AI-driven ClinOps Optimizer platform to improve IBD clinical trial efficiency. The platform integrates data from the Crohn's & Colitis Foundation's IBD Plexus and uses causal machine learning to optimize site selection and trial execution.
• AlimentivcoreStrategic or Co-development Partner · 22 January 2026Strategic partnership expanding PhaseV's gastrointestinal research footprint. Alimentiv collaborates with PhaseV and the Crohn's & Colitis Foundation to support global pharma, biotech sponsors, and CROs in IBD clinical trials.
• Port Jersey Logistics NetworkminorGTM or Marketing Partner · 17 January 2026Partnership with PGA TOUR golfer Hank Lebioda as brand ambassador for the 2026 season. The collaboration features the company's logo on Lebioda's apparel and includes charitable initiatives with the Crohn's and Colitis Foundation.
• Critical Path Institute (C-Path)coreStrategic or Co-development Partner · 16 October 2025Collaboration on the Critical Path Disease Modeling Coalition (CP-DMC) for pediatric inflammatory bowel disease (pIBD), focusing on developing regulatory-grade models to improve drug development for pediatric Crohn's disease and ulcerative colitis.
• FCB HealthminorGTM or Marketing PartnerGenerous supporter of the Foundation's Spill Your Guts campaign, helping to fund public service announcements that feature real IBD stories to break stigma.
• Takeda PharmaceuticalsminorGTM or Marketing PartnerCorporate sponsor supporting Foundation programs and patient education initiatives including Gut Friendly Recipes.
• AbbVieminorGTM or Marketing PartnerCorporate sponsor supporting Foundation education programs and resources for patients and caregivers.
• GenentechminorGTM or Marketing PartnerSponsor of the Pain and Fatigue Initiative supporting resources for IBD patients experiencing pain and fatigue symptoms.

Scale indicators7 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• American Cancer Society: The largest US voluntary health organization, operating the same disease-specific nonprofit model: research funding, patient support, advocacy, and community fundraising walks (Relay For Life) — directly comparable scale and structure to the Crohn's & Colitis Foundation.
• Juvenile Diabetes Research Foundation (JDRF): Disease-specific health nonprofit funding research and patient support for Type 1 diabetes; closest analog in mission, scale, community walks, advocacy focus, and venture-style research investment program model.
• Cystic Fibrosis Foundation: Disease-focused nonprofit that pioneered venture philanthropy through its therapeutics accelerator, similar to the Foundation's IBD Ventures program; comparable mission arc from research funding to drug pipeline influence.
• Alzheimer's Association: Major voluntary health organization combining research funding, patient/caregiver support, advocacy, and clinical resources; directly comparable in structure and revenue scale to the Crohn's & Colitis Foundation.
• National Multiple Sclerosis Society: Disease-specific nonprofit funding MS research and providing patient support programs including walks, peer mentoring, and clinical trial resources; structurally and operationally similar to the IBD-focused Foundation.
• Arthritis Foundation: Voluntary health organization focused on arthritis and related autoimmune conditions; shares the disease-specific research, patient support, advocacy, and community fundraising event model used by the Crohn's & Colitis Foundation.
• Lupus Foundation of America: Disease-specific nonprofit supporting research, patient services, and advocacy for lupus, an autoimmune condition with overlapping patient support and research infrastructure needs comparable to the IBD-focused Foundation.

Broad incumbents

• American Heart Association: One of the largest US voluntary health organizations, operating the same integrated model of research funding, patient education, advocacy, and community events, but at a much larger scale and broader disease scope.
• Susan G. Komen: Large disease-specific nonprofit with similar infrastructure — research grants, community walks (Race for the Cure), patient support services, and advocacy; broader awareness scale but identical operational model.

Emerging players

• Asthma and Allergy Foundation of America: Smaller-scale voluntary health organization combining patient support, research funding, and advocacy; a useful structural analog though operating at a smaller budget footprint than the Crohn's & Colitis Foundation.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/CampOasisIBD
• LinkedInlinkedin.com/company/crohns-colitis-foundation
• Instagraminstagram.com/camp_oasis_ibd
• Xx.com/CrohnsColitisFn

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments7 records

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Frequently asked questions about Crohn's & Colitis Foundation