RCI Caregiving

What RCI Caregiving does

The Rosalynn Carter Institute for Caregivers (RCI) is a 501(c)(3) nonprofit founded in 1987 by former First Lady Rosalynn Carter to drive systems-level change supporting the 105 million family caregivers in the United States who care for aging, ill, or disabled individuals. Headquartered in Americus, Georgia and originally established at Georgia Southwestern State University, RCI merged with The Carter Center in 2024 and now operates as the Rosalynn Carter Mental Health and Caregiver Program within the Carter Center's Mental Health Program, with a small staff of 11-50 employees. RCI delivers a portfolio of programs including the Data Platform (a three-pillar data asset combining 37 years of internal program data, external research datasets, and real-time caregiver perspectives), the trademarked Caregiver Profiles© (developed with Duke University from over 10,000 research papers), the Working While Caring employer initiative, FEMA/VA emergency preparedness toolkits, the John and Betty Pope Caregivers Scholarship, the RCI Impact Papers research publication series, and federal policy advocacy including a proposed Office of Caregiver Health.

RCI reports quantifiable program outcomes including a 19% average reduction in caregiver burden on the Zarit Scale, a 25% increase in participants' confidence in finding respite, and that 66% of its direct-program participants are underserved. The organization's revenue model is donation-driven: it is a registered 501(c)(3) that accepts tax-deductible individual donations, foundation grants, and corporate support (including via Melinda French Gates' Pivoval GivingTuesday match), and provides all programs and resources free of charge to caregivers. GTM is community-led and direct-to-consumer, with employer engagement as a secondary channel through Working While Caring and corporate partnership with Sharecare for a mental wellbeing mini-course.

RCI's competitive position rests on three pillars: a unique brand and founder legacy, a longitudinal data asset no other caregiver organization has assembled, and an ecosystem of federal, academic, and corporate partnerships spanning FEMA, the VA, Duke University, Georgia Southwestern State University, AARP, the National Alliance for Caregiving, Sharecare, and The Carter Center. The organization does not appear to use AI/ML capabilities and has no disclosed API, SDK, or mobile application infrastructure; technology differentiation today is centered on data curation and research synthesis rather than software or AI.

Name

RCI Caregiving

Legal name

Rosalynn Carter Institute for Caregivers

Website

https://rosalynncarter.org

Company type

Private

Founded year

1987

Operating status

Operating

Headcount range

11–50 employees

Short description

The Rosalynn Carter Institute for Caregivers is a 501(c)(3) nonprofit founded in 1987 that drives systems-level change to support the 105 million U.S. family caregivers through research, advocacy, employer programs, and federal partnerships, now operating as a program within The Carter Center.

Ownership category

akta.pro rank

Product category

Family Caregiver Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Other Individual and Family Services (624190), Social Assistance (624)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industry

Disability Services & Independent Living Support (BPAGAEAG)

Keywords

• Family caregiver support
• Caregiver advocacy services
• Caregiver research data
• Nonprofit caregiver programs
• Caregiver policy advocacy

Headquarters

HQ city

Americus

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Donations: As a registered 501c3 charitable organization, RCI generates revenue primarily through individual donations. The organization states all donations are tax deductible.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels5 records

Core offering

RCI is a nonprofit organization that delivers a portfolio of caregiver-support programs free of charge to family caregivers in the United States. Its offerings include the Caregiver Data Platform, trademarked Caregiver Profiles©, the Working While Caring employer initiative, FEMA/VA-co-developed Emergency Preparedness resources, the John and Betty Pope Caregivers Scholarship, RCI Impact Papers, and federal policy advocacy. Programs are funded primarily by individual donations and foundation grants, and the organization now operates under The Carter Center's Mental Health Program following a 2024 merger.

Product overview

The Rosalynn Carter Institute for Caregivers (RCI) operates as a nonprofit organization focused on driving transformative systems change to improve the strength, health, and resilience of family caregivers. Rather than a unified software platform, RCI offers a portfolio of programs and initiatives including the Data Platform (a three-pillar data resource), Caregiver Profiles© (research-informed caregiving experience profiles developed with Duke University), Working While Caring (employer engagement program), Emergency Preparedness resources (developed with FEMA and VA), the John and Betty Pope Caregivers Scholarship, Policy and Advocacy initiatives (including the Office of Caregiver Health proposal), and RCI Impact Papers (research publications). These offerings work together to support, research, and advocate for family caregivers across various needs.

Differentiator

Problem solved

Functional benefit

Products and services

• Caregiver Data Platform A first-of-its-kind data platform built around three pillars: RCI's own 37-year historical program data, external research datasets from universities and community organizations, and real-time caregiver perspectives from online support communities. It enables analysis of caregiver characteristics and needs to inform evidence-based solutions.
• Caregiver Profiles© A trademarked framework of 10 research-informed profiles of caregiving experiences that organizes the complexity of caregiving and centers the caregiver's experience. Developed in partnership with Duke University.
• Working While Caring (WWC)

Quantifiable outcome

• 19% average reduction in caregiver burden (measured using Zarit Scale)
• +3 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Nine partnerships are on record, tiered core and flagship.

• FEMA (Federal Emergency Management Agency)coreStrategic or Co-development PartnerRCI partnered with FEMA to develop disaster preparedness resources for family caregivers, including the 'Disaster Preparedness Guide for Caregivers' developed with direct input from family caregivers.
• Department of Veterans AffairscoreStrategic or Co-development PartnerRCI partnered with the Department of Veterans Affairs to develop the 'Prepared Military Caregivers' disaster relief toolkit, designed to support caregivers of Veterans with unique challenges in times of disaster.
• SharecarecoreStrategic or Co-development PartnerRCI partnered with Sharecare to offer a mini course through their mental wellbeing app 'Unwinding with Sharecare,' available to all caregivers for mental health support and stress management.
• Georgia Southwestern State UniversitycoreStrategic or Co-development PartnerRCI partners with Georgia Southwestern State University to administer the John and Betty Pope Caregivers Scholarship, supporting students balancing school and caregiving responsibilities.
• Duke UniversitycoreStrategic or Co-development PartnerRCI partnered with Duke University to develop the Caregiver Profiles©, informed by a review of over 10,000 research papers and caregiver focus groups to create 10 core profiles of caregiving experiences.
• The Carter CenterflagshipStrategic or Co-development PartnerRCI has formally merged with The Carter Center and is now functioning under its Mental Health Program, continuing its mission to support caregivers while expanding support for individuals facing mental health challenges.
• Melinda French Gates' Organization (Pivotal)coreGTM or Marketing PartnerRCI was selected as one of two national nonprofits for Pivotal's GivingTuesday donation match, providing increased visibility and fundraising support.
• AARPcoreStrategic or Co-development PartnerRCI references data from 'Caregiving in the U.S. 2020' by AARP & National Alliance for Caregiving, indicating collaborative research and data sharing.
• National Alliance for CaregivingcoreStrategic or Co-development PartnerRCI references data from 'Caregiving in the U.S. 2020' by AARP & National Alliance for Caregiving, indicating collaborative research and data sharing.

Scale indicators11 records

Recent moves7 records

Expansion highlights5 records

Broad incumbents

• AARP: Largest U.S. advocacy organization for older adults and a co-publisher of 'Caregiving in the U.S. 2020,' which RCI references as primary data. AARP operates broad family caregiver support programs and policy advocacy, making it the most established incumbent in RCI's category with comparable (though much larger-scale) mission.
• AARP Foundation: Charitable affiliate of AARP focused on low-income older adults and family caregivers. Operates direct programs including Connect2Affect and family caregiver support programs, with significant scale advantage and similar policy focus on caregiver financial security and workplace accommodation.
• Alzheimer's Association: Largest nonprofit funder of Alzheimer's research and provider of caregiver support programs for dementia caregivers. While disease-specific, the Alzheimer's Association serves a substantial subset of RCI's target caregiver population (those caring for individuals with cognitive decline) and operates national 24/7 helplines and care consultation services.

Direct peers

• Family Caregiver Alliance: National nonprofit providing direct services, research, and policy advocacy for family caregivers of adults with chronic, disabling health conditions. Founded in 1977, FCA is one of the longest-standing direct peer organizations to RCI, with overlapping caregiver services, research, and policy focus areas.
• National Alliance for Caregiving: National nonprofit coalition conducting research and advocacy on family caregiving, co-author of the flagship 'Caregiving in the U.S.' report with AARP. Operates as a peer organization to RCI in mission, audience, and policy approach, though with stronger research orientation and no direct program delivery.
• Caregiver Action Network: National nonprofit providing education, peer support, and resources for family caregivers across all conditions. Operates the Family Caregiver Forum and provides direct resources similar to RCI's profile-based approach, with comparable mission, audience, and direct-to-consumer distribution model.

Emerging players

• WellMed Charitable Foundation: Nonprofit operating caregiver support programs including the 'Caring for the Caregiver' program in Texas. Comparable to RCI in offering direct programs and resources to family caregivers, though with regional Texas concentration and a clinical/health system sponsor rather than federal recognition.
• Adira Foundation: National nonprofit supporting family caregivers of loved ones with neurodegenerative diseases, focused on rare and young-onset dementia populations. Operates as a more specialized, newer peer in the caregiver advocacy space with overlapping donor base and policy orientation.
• ARCH National Respite Network and Resource Center: National nonprofit focused on respite care for family caregivers, helping states and organizations build respite programs. Operates in an adjacent niche to RCI, focused on the specific caregiver support intervention of respite, with overlapping target audience and policy advocacy on caregiver support infrastructure.

Others

• The Carter Center: RCI's parent organization following the 2024 merger, operating global health and peace programs. The Carter Center provides institutional infrastructure and mental health program alignment but does not directly compete with RCI; rather, the merger positions The Carter Center as the umbrella under which RCI's caregiver work continues.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/rcicaregiving
• LinkedInlinkedin.com/company/rcicaregiving
• Instagraminstagram.com/rcicaregiving
• Xx.com/rcicaregiving

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about RCI Caregiving