Epilepsy

What Epilepsy does

The Epilepsy Foundation of America, founded in 1968 and headquartered in Bowie, Maryland, is a 501(c)(3) national non-profit serving the more than 3.4 million people in the United States — and 65 million worldwide — living with epilepsy. The foundation operates a horizontal service model across six stakeholder groups: patients, caregivers, healthcare providers, schools, first responders, and the general public. Its primary distribution platform is epilepsy.com, supported by a toll-free bilingual helpline, 47 affiliated local chapters, camps, support groups, and national awareness events including Walks for Epilepsy and campaigns such as National Epilepsy Awareness Month, Purple Day, and the GIVE26 initiative.

The foundation's core product portfolio spans educational content, interactive tools, and support programs. Educational assets include the Seizure Medication List, Epilepsy Device Wiki, Epilepsy Pipeline Tracker, and Seizure Diary, plus free training programs such as the Epilepsy Learning Portal and Seizure First Aid Training, through which more than 1.6 million people have been trained. The foundation's notable technology component is the SAGE AI Assistant, a text-based NLP chatbot launched site-wide on epilepsy.com, enhanced to twice its prior speed in August 2025, which provides 24/7 responses drawn from a medically-reviewed editorial corpus. Research funding is institutionalized through the annual Shark Tank Competition, which awarded $250,000 in its 14th annual iteration, and the foundation has cumulatively raised more than $68 million for epilepsy research.

The foundation operates a donation-funded revenue model with three primary streams: individual and corporate donations, corporate partnerships and event sponsorships, and research grants. All services are provided free of charge to the public. GTM motion is community-led and event-driven, anchored by the 47-affiliate local chapter network, a 100,000-strong ambassador and advocate base, nationwide Walks and camps, and newly added channels including a podcast series (February 2026) and a national PSA campaign in AMC Theatres (March 2026). CEO is Bernice Martin Lee.

Name

Epilepsy

Legal name

Epilepsy Foundation of America

Website

https://epilepsy.com

Company type

Private

Founded year

1968

Operating status

Operating

Headcount range

251–500 employees

Short description

The Epilepsy Foundation of America is a national 501(c)(3) non-profit that provides free education, AI-powered support, helpline services, and community programs to the 3.4 million-plus people in the U.S. living with epilepsy, their caregivers, healthcare providers, and first responders.

Ownership category

akta.pro rank

Product category

Nonprofit Health Advocacy and Patient Services

NAICS

Educational Support Services (611710)

SIC

Services-Educational Services (8200)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

akta.pro secondary industry

Special Education, Disability Support & Inclusive Education Nonprofits (BPAGADAH)

Keywords

• Epilepsy education services
• Seizure first aid training
• Patient advocacy nonprofit
• Epilepsy research funding
• Neurological support resources

Headquarters

HQ city

Bowie

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The foundation receives donations from individuals, corporations, and charitable organizations through its website donation portal and planned giving programs.
2. Corporate Partnerships: The foundation generates revenue through corporate partnerships and sponsorship arrangements for events and programs.
3. Research Funding Grants: The foundation has raised over $68 million for epilepsy research, indicating significant grant and fundraising revenue for research initiatives.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

The Epilepsy Foundation of America delivers free epilepsy education, support, and advocacy services to people living with epilepsy, caregivers, healthcare providers, schools, and first responders, primarily through epilepsy.com, the SAGE AI Assistant, the Epilepsy & Seizures Helpline, the Epilepsy Learning Portal, Seizure First Aid Training, and a network of 47 affiliated local chapters nationwide. The foundation also funds epilepsy research, having raised over $68 million for that purpose.

Product overview

The Epilepsy Foundation of America operates epilepsy.com as its primary digital platform—a comprehensive health information portal offering educational content, AI-powered assistance, and community resources for the epilepsy community. The core product portfolio includes: the main epilepsy.com website serving as the #1 trusted site for epilepsy information; SAGE AI Assistant for 24/7 AI-powered Q&A support; the Epilepsy & Seizures Helpline staffed by trained specialists; and specialized tools including the Seizure Medication List, Epilepsy Device Wiki, Epilepsy Pipeline Tracker, and Seizure Diary. Educational offerings include Seizure First Aid Training, the Epilepsy Learning Portal, and downloadable Forms & Resources. Support programs include SUDEP awareness initiatives, the Shark Tank research competition, local chapter network, and camps for children and teens. The organization serves more than 3.4 million people living with epilepsy nationwide, with over 1.6 million trained in seizure first aid.

Differentiator

Problem solved

Functional benefit

Products and services

• epilepsy.com Primary digital platform and the #1 trusted site for epilepsy and seizure news, providing comprehensive information about epilepsy types, causes, diagnosis, treatment, and resources for patients, caregivers, and providers.
• SAGE AI Assistant AI-powered chatbot available on any page of epilepsy.com that provides 24/7 compassionate answers to questions about epilepsy and seizures, based on information reviewed by a trusted medical editorial board.
• Epilepsy & Seizures Helpline Toll-free helpline (1-800-332-1000 English; 1-866-748-8008 Spanish) staffed by trained information specialists Monday–Friday 8AM–8PM EST, providing help, hope, support, guidance, and access to national and local resources.
• Epilepsy Device Wiki Searchable catalog of devices and apps developed for epilepsy management, helping users learn about various devices and how they can be used to manage their condition.
• Epilepsy Pipeline Tracker Community-supported tool providing updates on new drugs, supplements, devices, and tools in development for epilepsy treatment.
• Seizure Medication List Comprehensive list of anti-seizure medications with in-depth information on how each works based on seizure type and medical history, helping patients and healthcare teams choose appropriate treatments.
• Seizure Diary Digital tool that helps patients record, track, and manage their seizures and epilepsy over time.
• Seizure First Aid Training Online training courses teaching how to recognize seizures and respond with proper first aid, designed for people living with epilepsy, caregivers, healthcare providers, and the general public.
• Epilepsy Learning Portal Learning platform offering free on-demand trainings about epilepsy and seizures, including courses for patients, caregivers, nurses, and other healthcare providers.
• SUDEP Program Program dedicated to spreading awareness about sudden unexpected death in epilepsy (SUDEP), helping people learn prevention methods, supporting those who have lost loved ones, and accelerating research.
• Shark Tank Competition Annual competition that awards funding to innovative epilepsy research and projects; the 14th annual competition awarded $250,000.
• Epilepsy Centers and Specialist Finder Referral tool that helps patients find epilepsy specialists and epilepsy centers with experts in diagnosis, evaluation, and treatment.
• Local Chapter Network Network of local Epilepsy Foundation offices across the United States that provide support, resources, and community connections for people affected by epilepsy.

Quantifiable outcome

• 1.6 million+ people trained in seizure recognition and first aid
• +4 more outcomes

Named customers5 records

Segments6 records

Ideal customer profiles5 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

AI capability2 records

Feature1 record

Partnerships

Four partnerships are on record, tiered core and minor.

• SeizeSensecoreGTM or Marketing Partner · 6 March 2026The Epilepsy Foundation of America announced a partnership with SeizeSense, a youth-founded nonprofit dedicated to seizure education. The partnership launched a national seizure safety public service announcement campaign in AMC Theatres across the United States. The animated PSA was developed by SeizeSense in collaboration with Blancolorenz.com and runs on National CineMedia screens from March 6 through April 2, 2026, and on Screenvision screens from March 9 through April 5, 2026.
• Blancolorenz.comminorStrategic or Co-development PartnerCollaborated with SeizeSense to develop the animated PSA campaign for the Epilepsy Foundation's national seizure safety awareness initiative.
• AMC Theatres / National CineMediacoreGTM or Marketing PartnerThe campaign runs on National CineMedia screens in AMC Theatres nationwide and on Screenvision screens, providing broad public awareness reach for seizure safety education.
• ScreenvisioncoreGTM or Marketing PartnerSecondary theatrical advertising partner for the national seizure safety PSA campaign running March 9 through April 5, 2026.

Scale indicators8 records

Recent moves5 records

Expansion highlights6 records

Market position

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/epilepsyfdn
• YouTubeyoutube.com/user/EpilepsyFoundation
• Facebookfacebook.com/epilepsyfoundationofamerica
• LinkedInlinkedin.com/company/epilepsy-foundation
• Instagraminstagram.com/epilepsyfoundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments3 records

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy