Endometriosis Association
The Endometriosis Association, founded in 1980 in Milwaukee, is the first and oldest nonprofit dedicated to endometriosis, providing education, peer support, advocacy, and research funding to women, teens, families, and healthcare professionals across 66 countries.
- Company typePrivate
- Founded1980
- HeadquartersMilwaukee, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Endometriosis Association does
The Endometriosis Association is a 501(c)(3) non-profit self-help organization founded in 1980 in Milwaukee, Wisconsin, by Mary Lou Ballweg and Carolyn Keith. It is the first and oldest organization in the world dedicated to endometriosis, and currently operates a network spanning 66 countries with educational content available in 30+ languages. The Association serves women and teens affected by endometriosis, their families and loved ones, healthcare professionals, and the general public, addressing a disease conservatively estimated to affect 89 million women and girls globally with an average 10-year delay from symptom onset to diagnosis.
The Association generates revenue through a diversified non-profit model including annual memberships at $35/year, tax-deductible donations, planned giving/legacy society contributions, and e-commerce sales. The proprietary product portfolio includes four educational books ($19.99-$27.95), the seven-product EA-Select supplement line formulated specifically for endometriosis ($11.63-$38.13), and two topical pain relief products (ProSirona and Neuroquell, $19.95 each) developed in partnership with ClaireEllen Topicals. Distribution channels include the Association's own e-commerce storefront, phone and mail orders, Amazon Smile, GoodShop, and iGive round-up programs, plus free bulk brochure distribution in 30+ languages to hospitals, physicians, pharmacies, libraries, and women's centers. Commemorative Garden of Hope bricks at $150-$225 generate incremental donations.
Endometriosis Association firmographics
Firmographics- Name
- Endometriosis Association
- Legal name
- Endometriosis Association, Inc.
- Website
- https://endometriosisassn.org
- Company type
- Private
- Founded year
- 1980
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- The Endometriosis Association, founded in 1980 in Milwaukee, is the first and oldest nonprofit dedicated to endometriosis, providing education, peer support, advocacy, and research funding to women, teens, families, and healthcare professionals across 66 countries.
- Ownership category
- akta.pro rank
Endometriosis Association industry classification
Industry- Product category
- Patient advocacy and chronic disease support services
- NAICS
- Individual and Family Services (6241), Social Assistance (624), Child and Youth Services (62411)
- SIC
- Services-Health Services (8000), Services-Social Services (8300)
- akta.pro primary industry
- Community Health, Prevention & Health Education (BPAGACAC)
- akta.pro secondary industries
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Women's Health & Life-Stage Wellness Education (Fertility, Pregnancy, Menopause) (EDAAAHAI), Menstrual Pain Relief & Period Care Supplements (CRABAIAJ)
Keywords
Where Endometriosis Association is headquartered
LocationHeadquarters
- HQ city
- Milwaukee
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Endometriosis Association business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Marketing or Sales, Supply Chain, Others
Revenue model
- Membership Dues: Annual membership starting at $35 per year, providing access to the online community, resources, discounts on supplements, and support services.
- Donations and Charitable Contributions: Tax-deductible donations accepted via credit/debit card, mail, phone, Amazon Smile, GoodShop, and iGive programs. The Association is a 501(c)(3) charitable organization in the US and registered Canadian charity.
- Product Sales: E-commerce sales of books, supplements, and topical products through the Association's online store. Products include EA-Select supplements ($11.63-$38.13), books ($19.99-$27.95), and topical pain relief products ($19.95).
- Planned Giving / Legacy Society: Estate planning options for supporters who wish to deepen their commitment to the fight against endometriosis through legacy gifts.
- Garden of Hope Brick Program: Engraved brick donations starting at $150 for 8x4 inch bricks and $225 for 8x8 inch bricks, installed in the Garden of Hope at the Association's headquarters.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Annual Membership - $35/year |
| Unit Pricing | One time/ perpetual license | EA-Select Supplements - $11.63 to $38.13 |
| Unit Pricing | One time/ perpetual license | Books - $19.99 to $27.95 |
| Unit Pricing | One time/ perpetual license | Topical Pain Relief - $19.95 |
| Unit Pricing | One time/ perpetual license | Garden of Hope Bricks - $150 to $225 |
| Freemium | One time/ perpetual license | Free Brochures and Resources |
Go-to-market motion2 records
Distribution channels6 records
Marketing channels7 records
Endometriosis Association product offering
Product offeringCore offering
The Endometriosis Association provides peer support, advocacy, education, and research funding for women, teens, and families affected by endometriosis. It sells educational books, the proprietary EA-Select dietary supplement line, and topical pain relief products, while distributing free multilingual brochures and educational resources to individuals, healthcare providers, and community institutions.
Product overview
The Endometriosis Association operates as a nonprofit health organization offering a portfolio of educational books, dietary supplements, and topical pain relief products for individuals managing endometriosis. The core product line includes four books (The Complete Reference, The Sourcebook, the Spanish-language Libro de Consulta, and Beating Endo) that provide comprehensive medical information and self-care guidance. The EA-Select supplement line consists of seven products (Fish Oil, Multiple Vitamin Formula, Magnesium Glycinate, Buffered C-Plus, Antiox-Detox Support, Maximum Probiotic Formula, and Resveratrol) designed to support immune function, reduce inflammation, and address nutritional needs specific to endometriosis. Two topical products (NEUROQUELL and ProSirona) provide natural pain relief through topical application. Additionally, the organization provides free educational resources including brochures in 30+ languages, symptom surveys, body pain charts, and medical professional education videos.
Differentiator
Problem solved
Functional benefit
Products and services
- Endometriosis: The Complete Reference For Taking Charge of Your Health Comprehensive guide covering symptoms, diagnosis, treatment options, lifestyle changes, and emotional support for those living with endometriosis, priced at $26.00.
- The Endometriosis Sourcebook Nearly 500-page authoritative resource on endometriosis covering treatment options, coping strategies, and latest research findings, priced at $22.95.
- Endometriosis: Libro de Consulta Spanish-language comprehensive guide covering treatment options, common myths, latest research, fertility guidance, and emotional well-being for those with endometriosis, priced at $27.95.
- Beating Endo: How to Reclaim Your Life from Endometriosis Groundbreaking guide by Dr. Iris Kerin Orbuch and Amy Stein presenting a multimodal approach combining medical treatment with lifestyle strategies, priced at $19.99 (special price while supplies last).
- EA-Select Fish Oil High-quality fish oil supplement providing omega-3 fatty acids (EPA and DHA) to support immune function, inflammation regulation, and hormonal balance, priced at $23.88.
- EA-Select Multiple Vitamin Formula Specially crafted multivitamin with 30 essential nutrients including vitamins, minerals, antioxidants, and natural carotenoids, priced at $34.13.
- EA-Select Magnesium Glycinate High-bioavailability magnesium supplement combining magnesium with glycine amino acid, formulated to support muscle relaxation, hormonal balance, and smooth muscle function, priced at $11.63.
- EA-Select Buffered C-Plus Specialized vitamin C supplement combining non-acidic buffered vitamin C with Pycnogenol bioflavonoid from pine bark extract, priced at $27.38.
- EA-Select Antiox-Detox Support Supplement featuring reduced glutathione, a potent antioxidant that aids in neutralizing environmental toxins like dioxins and PCBs linked to endometriosis, priced at $34.25.
- EA-Select Maximum Probiotic Formula Premium high-potency probiotic supplement with 12 probiotic strains and 25+ billion CFUs designed to support gut health, priced at $34.13.
- EA-Select Resveratrol Potent antioxidant supplement with demonstrated anti-inflammatory and anti-proliferative effects, priced at $38.13.
- NEUROQUELL All Natural Topical Pain Relief Natural topical pain relief formula created by ClaireEllen Topicals, applied to skin for fast and effective relief, containing calendula oil derived from marigold petals, priced at $19.95.
- ProSirona Natural topical product specifically designed to reduce pelvic pain associated with endometriosis and fibromyalgia, developed by the Endometriosis Association and ClaireEllen Topicals, priced at $19.95.
- Annual Membership One-year membership program providing access to the online member community, member discounts on supplements and products, free resources, and crisis call hotline support, priced at $35/year (qualifies as a tax-deductible donation).
- Garden of Hope Brick Program Engraved brick donation program at the Association's Milwaukee headquarters, with 8x4 inch bricks supporting up to 4 lines (18 characters each) priced at $150 and 8x8 inch bricks supporting up to 6 lines priced at $225.
Quantifiable outcome
- 89 million women and girls worldwide affected by endometriosis (conservative estimate)
- +3 more outcomes
Companies that use Endometriosis Association
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles4 records
Endometriosis Association technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature4 records
Endometriosis Association partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered notable, core and minor.
- Gynecare WorldwidenotableProvided an unrestricted educational grant enabling the production of video series for healthcare professionals covering endometriosis associated conditions, treatment options, and diagnosis challenges.
- The Alliance for EndometriosiscoreCoalition including AbbVie, American College of Obstetricians and Gynecologists (ACOG), Black Women's Health Imperative (BWHI), GE Healthcare, HealthyWomen, International Pelvic Pain Society (IPPS), and the Endometriosis Association working together to improve the lives of people with endometriosis through shared research and awareness initiatives.
- Massachusetts Health Quality Partners (MHQP)notableCollaborated with the Association on a project funded by PCORI to develop a roadmap for improving endometriosis care for Black women, addressing disparities in diagnosis and treatment.
- Vanderbilt University School of MedicinecorePartnered with Vanderbilt to create a dedicated research facility to address the mechanisms responsible for causing endometriosis. The Association funds and assists researchers at Vanderbilt.
- Amazon SmileminorAmazon Smile program where Amazon donates a percentage of profits to the Endometriosis Association when customers select them as their preferred charity.
- GoodShop and iGiveminorOnline shopping programs where retailers donate a portion of purchases to the Endometriosis Association when customers register the EA as their charity.
- ClaireEllen TopicalsnotableDeveloped topical pain relief products (ProSirona and Neuroquell) in partnership with ClaireEllen Topicals for temporary relief of discomfort associated with endometriosis.
- Oxford UniversitynotableSupported publicity and helped obtain patients and families for a genetic study conducted at Oxford University, England.
Scale indicators6 records
Recent moves6 records
Expansion highlights6 records
Endometriosis Association competitors and assessment
Company assessmentDirect peers
- RESOLVE: The National Infertility Association: A nonprofit focused on supporting individuals facing infertility, a frequent comorbidity of endometriosis (30-40% of patients); comparable in advocacy, peer support, and educational mission targeting the same patient population.
- PCOS Challenge: The National Polycystic Ovary Syndrome Association: A nonprofit supporting women affected by PCOS through awareness, education, research funding, and patient advocacy; comparable as a peer women's hormonal/reproductive health nonprofit with similar support, education, and research-funding models.
- Endometriosis Foundation of America: A leading U.S.-based nonprofit dedicated to increasing disease recognition, advancing research, and providing education and support for those with endometriosis; directly comparable as a peer disease-specific nonprofit with overlapping mission, awareness campaigns, and patient-support programs.
- Endo Warriors Foundation: A grassroots patient-advocacy nonprofit for those affected by endometriosis; comparable as a peer community-led organization offering support, advocacy, and awareness within the same disease niche.
Broad incumbents
- Black Women's Health Imperative: A national nonprofit advancing health equity and well-being for Black women through education, advocacy, and research; comparable as a peer women's-health advocacy nonprofit and an Alliance for Endometriosis partner.
- Susan G. Komen: A leading disease-specific health nonprofit driving awareness, patient support, and research funding; comparable as a benchmark for scaled category-building, cause-marketing, and research-funding operations in a disease niche.
- March of Dimes: A long-established women's and maternal health nonprofit with similar awareness, education, and research-funding model but operating at far greater scale across broader reproductive and maternal health issues; relevant as a larger incumbent in the same broader space.
- HealthyWomen: A national nonprofit providing education and advocacy on women's health issues across the lifespan; relevant as a peer awareness/advocacy nonprofit and an actual Alliance for Endometriosis partner with overlapping reach.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
Endometriosis Association social profiles
Digital presenceEndometriosis Association compliance and trust
Trust signalCompliance2 records
Endometriosis Association financial estimates
Financial estimateRevenue estimate
Valuation estimate
Endometriosis Association leadership team
Management profileNumber of profiles
Profiles8 records
Endometriosis Association funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Endometriosis Association M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Endometriosis Association
What does Endometriosis Association do?
The Endometriosis Association provides peer support, advocacy, education, and research funding for women, teens, and families affected by endometriosis. It sells educational books, the proprietary EA-Select dietary supplement line, and topical pain relief products, while distributing free multilingual brochures and educational resources to individuals, healthcare providers, and community institutions.
Is Endometriosis Association a public or private company?
Endometriosis Association is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Endometriosis Association founded?
Endometriosis Association was founded in 1980. It employs 1 to 10 people.
Where is Endometriosis Association based?
Endometriosis Association is headquartered in Milwaukee, United States, in the North America region.
How does Endometriosis Association make money?
Five revenue lines are on record. Membership Dues are the primary driver. The others are donations and Charitable Contributions, product Sales, planned Giving / Legacy Society and garden of Hope Brick Program.
Who are Endometriosis Association's main competitors?
Direct peers on record are RESOLVE: The National Infertility Association, PCOS Challenge: The National Polycystic Ovary Syndrome Association, Endometriosis Foundation of America and Endo Warriors Foundation. Broad incumbents are Black Women's Health Imperative, Susan G. Komen, March of Dimes and HealthyWomen.
Does Endometriosis Association have an API?
No public API is recorded for Endometriosis Association.
What industry is Endometriosis Association in?
Endometriosis Association's product category is Patient advocacy and chronic disease support services. Its primary akta.pro industry code is BPAGACAC, Community Health, Prevention & Health Education, with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 6241 and its SIC code is 8000.