COPD Foundation
The COPD Foundation is a 501(c)(3) nonprofit that operates the integrated COPD360 platform—community, research registry, clinical accelerator, and education—to serve patients, caregivers, providers, and researchers affected by COPD, bronchiectasis, and NTM lung disease.
- Company typePrivate
- Founded2004
- HeadquartersMiami, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
What COPD Foundation does
The COPD Foundation is a 501(c)(3) nonprofit charitable organization founded in 2004 and headquartered in Miami, Florida, that operates a unified COPD360 platform serving patients, caregivers, healthcare providers, and researchers affected by COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease. The platform integrates four core products: COPD360social, a peer-to-peer online community with more than 50,000 members across 151+ countries; COPD360Net, a digital health and therapeutics accelerator network of accredited care centers designed to speed clinical trials; the COPD Patient-Powered Research Network (PPRN), a patient-governed research registry connected to PCORnet and PCORI; and the Bronchiectasis and NTM 360 initiative, which extends coverage into adjacent chronic lung conditions.
The foundation's technology stack includes the COPD360social community platform with activity feeds, Q&A forums, and gamified engagement, a peer-reviewed Journal of the COPD Foundation, the Lung Health Champion podcast, e-learning courses, and a COPD Risk Screener assessment tool. Research data is stored and transmitted via REDCap Cloud on AWS under HIPAA-compliant encryption, while the website uses Google Analytics, Google Tag Manager, and Google AdWords for digital engagement.
The foundation is funded by individual donations, monthly giving, planned/legacy giving, corporate sponsorships (including Novartis, Sanofi/Regeneron, and others), merchandise sales through its Online Education Store, and federal research pass-through funding via PCORI. Resources, community access, and core educational materials are provided free of charge, with the organization holding Charity Navigator 4-star, National Health Council Standards of Excellence, and GuideStar Platinum transparency certifications.
COPD Foundation firmographics
Firmographics- Name
- COPD Foundation
- Legal name
- COPD Foundation
- Website
- https://copdfoundation.org
- Company type
- Private
- Founded year
- 2004
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- The COPD Foundation is a 501(c)(3) nonprofit that operates the integrated COPD360 platform—community, research registry, clinical accelerator, and education—to serve patients, caregivers, providers, and researchers affected by COPD, bronchiectasis, and NTM lung disease.
- Ownership category
- akta.pro rank
COPD Foundation industry classification
Industry- Product category
- Respiratory and Chronic Lung Disease Patient Advocacy
- NAICS
- Research and Development in the Physical, Engineering, and Life Sciences (54171)
- SIC
- Services-Commercial Physical & Biological Research (8731)
- akta.pro primary industry
- COPD & Chronic Bronchitis Management (HLAKANAE)
- akta.pro secondary industries
- Chronic Disease Management Pathways (e.g., diabetes, CHF, COPD) (HLACAGAG), Chronic Disease & Health Promotion Program Funding (HLAJALAJ)
Keywords
Where COPD Foundation is headquartered
LocationHeadquarters
- HQ city
- Miami
- HQ country
- United States
- HQ region
- North America
Offices2 records
Markets served
COPD Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: The COPD Foundation operates as a 501(c)(3) nonprofit organization that raises funds through individual donations, monthly giving programs, tribute giving, and workplace giving campaigns. The organization also accepts cryptocurrency, stock donations, and vehicle donations.
- Corporate Sponsorship: Corporate partners sponsor COPD Foundation programs, events, and educational materials. Sponsors are featured on a dedicated page and receive recognition for supporting the foundation's mission.
- Merchandise and Online Store: The foundation operates a Merch for the Cause program and COPD Patient Education Online Store selling educational materials and branded merchandise.
- Planned Giving and Legacy Donations: The organization offers legacy and planned giving options including donor advised funds, qualified charitable distributions from IRAs, and estate gifts.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Others | Free membership and resources |
Go-to-market motion1 record
Distribution channels6 records
Marketing channels7 records
COPD Foundation product offering
Product offeringCore offering
The COPD Foundation is a nonprofit 501(c)(3) organization that provides free patient education, peer-support community, advocacy, and research infrastructure for people affected by COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease. Its core offering is the COPD360 digital ecosystem, including the COPD360social online community (50,000+ members across 151+ countries), the COPD360Net clinical research accelerator, the COPD PPRN patient-powered research network, and complementary educational resources such as the COPD Risk Screener, Pocket Consultant Guide, journal, podcast, and video library.
Product overview
The COPD Foundation offers a unified platform of products and services centered around its COPD360 technology ecosystem. The core offerings include COPD360social (an online patient community), COPD360Net (a digital health accelerator network), and the COPD PPRN (Patient-Powered Research Network). These are complemented by disease-specific initiatives like the Bronchiectasis and NTM 360 program, the Oxygen360 initiative for oxygen therapy support, and educational resources including the Lung Health Champion Podcast, video series, and the COPD Foundation Journal. The organization also provides tools like the COPD Risk Screener and The COPD Pocket Consultant Guide, all designed to support patients, caregivers, and healthcare providers throughout the COPD care journey.
Differentiator
Problem solved
Functional benefit
Brands
- COPD360social: Online peer-to-peer community platform connecting COPD patients, caregivers, and medical professionals with over 50,000 members from 151+ countries
- COPD360Net
- COPD360coach
- Oxygen360
- Lace Up for Lungs
- Journal of the COPD Foundation
- Bronchiectasis and NTM 360
- BronchandNTM360social
Products and services
- COPD360social Peer-to-peer online community platform where COPD, bronchiectasis, and NTM patients, caregivers, and healthcare professionals interact, ask questions, share information, and access community events, activity feeds, and engagement points/badges.
- COPD360Net Development Accelerator Digital Health and Therapeutics Accelerator Network comprising accredited care centers and experts in COPD and related lung diseases, designed to accelerate clinical trials, increase telehealth availability, and prevent disease progression.
- COPD PPRN (Patient-Powered Research Network) Patient-run research registry that allows participants to contribute health data, complete surveys, and be contacted for COPD and related lung disease research studies, connected to PCORnet and governed by a board of patients and researchers.
- Bronchiectasis and NTM 360 Initiative and online community (BronchandNTM360social) for individuals with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease, providing education, community feedback, and research opportunities.
- COPD Risk Screener Online screening tool that helps individuals assess their risk for COPD by answering a series of questions.
- The COPD Pocket Consultant Guide
- Lung Health Champion Podcast
- COPD Foundation Journal
- COPD Patient Education Online Store
Quantifiable outcome
- Over 50,000 community members from 151 countries engaged through COPD360social
- +1 more outcomes
Companies that use COPD Foundation
Customer profileNamed customers4 records
Segments5 records
Ideal customer profiles3 records
COPD Foundation technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration4 records
Feature5 records
COPD Foundation partnerships and signals
Strategic signalPartnerships
Seven partnerships are on record, tiered core and minor.
- Three Lakes FoundationcoreThe COPD Foundation partnered with Three Lakes Foundation on the PF Perspectives Project to improve the lives of individuals living with chronic lung diseases including pulmonary fibrosis, which sometimes co-occurs with COPD.
- NovartisminorNovartis collaborated with the COPD Foundation on creating 'A Child's Eye', an animated short film showing life with COPD from a loved one's perspective, developed with storytelling agency Make Believe UK.
- Village MedicalminorVillage Medical, a national primary care provider, partnered with the COPD Foundation to provide guidance and support on COPD flare-ups, contributing educational content about warning signs, prevention, and management.
- Sanofi and RegeneronminorSanofi and Regeneron provide sponsorship support for COPD Foundation educational content about biologics and severe COPD, helping fund resources for patients exploring new treatment options.
- Make Believe UKminorStorytelling agency partnered with COPD Foundation and Novartis to create 'A Child's Eye' animated short about COPD from a caregiver's perspective.
- Alpha-1 Antitrypsin Deficiency OrganizationsminorThe COPD Foundation website links to Alpha-1 antitrypsin deficiency resources at alpha1.org, recognizing the genetic connection between Alpha-1 and COPD.
- PCORnetcoreThe COPD PPRN is part of PCORnet, a national research network connecting patient-powered research networks and clinical data research networks created by PCORI.
Scale indicators5 records
Recent moves6 records
Expansion highlights6 records
COPD Foundation competitors and assessment
Company assessmentBroad incumbents
- Global Initiative for Chronic Obstructive Lung Disease (GOLD): International collaboration that produces the globally recognized GOLD COPD treatment guidelines and strategy reports. Comparable as the leading COPD-specific authority globally; the COPD Foundation's PRAXIS and Pocket Consultant Guide tools complement GOLD's clinical guidance work.
- Asthma and Allergy Foundation of America: Patient advocacy nonprofit for asthma and allergic diseases, another major respiratory condition. Comparable as a chronic respiratory advocacy organization with national footprint, patient education, and policy advocacy—though focused on obstructive airway disease driven by asthma rather than COPD.
- American Lung Association: Largest U.S. voluntary lung health organization with a much broader mandate covering all lung diseases, asthma, and tobacco control. Directly comparable as a respiratory advocacy and research nonprofit serving overlapping patient and donor constituencies.
- American Thoracic Society: Professional society for pulmonary and critical care clinicians, publishing major respiratory journals and setting clinical practice guidelines. Comparable as a peer in COPD research dissemination and provider education, though membership is clinician-focused rather than patient-focused.
Direct peers
- Alpha-1 Foundation: Nonprofit dedicated to Alpha-1 antitrypsin deficiency, a genetic cause of COPD. Directly comparable as a single-disease lung advocacy nonprofit with patient community and research funding focus; the COPD Foundation actively cross-links to Alpha-1 resources, signaling tight community overlap.
- Cystic Fibrosis Foundation: Leading U.S. nonprofit focused on a single chronic lung disease, with a highly developed patient registry, research funding model, and care center network. Directly comparable in mission structure (single-disease focus, research + advocacy + community) and approach to clinical trial acceleration.
- Pulmonary Fibrosis Foundation: Nonprofit focused on pulmonary fibrosis, a related interstitial lung disease. Directly comparable as a chronic lung disease advocacy nonprofit with patient community, research registry, and PFF Care Center Network. COPD Foundation partners with Three Lakes Foundation on the PF Perspectives Project.
Regional players
- European Lung Foundation: European counterpart organization linking patients and the public to respiratory professionals across Europe. Comparable in patient-education and lung-health advocacy mission, but primarily serves European geographies rather than competing directly in the U.S. COPD Foundation base.
- Asthma + Lung UK (formerly British Lung Foundation): U.K.-based charity dedicated to lung health including COPD. Comparable as a respiratory patient advocacy and research charity with similar patient education and support missions, but operates primarily in the U.K. rather than the U.S. market.
Others
- National Heart, Lung, and Blood Institute (NHLBI): U.S. NIH institute that funds the majority of federally funded COPD research. Comparable as the dominant COPD research funder that the COPD Foundation's advocacy and PPRN ecosystem supports and complements through clinical trial acceleration and patient recruitment.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks5 records
Key highlights7 records
Customer concentration
COPD Foundation social profiles
Digital presenceCOPD Foundation compliance and trust
Trust signalCompliance3 records
COPD Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
COPD Foundation leadership team
Management profileNumber of profiles
Profiles8 records
COPD Foundation subsidiaries and ownership
Company hierarchySubsidiaries3 records
COPD Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
COPD Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about COPD Foundation
What does COPD Foundation do?
The COPD Foundation is a nonprofit 501(c)(3) organization that provides free patient education, peer-support community, advocacy, and research infrastructure for people affected by COPD, bronchiectasis, and nontuberculous mycobacterial (NTM) lung disease. Its core offering is the COPD360 digital ecosystem, including the COPD360social online community (50,000+ members across 151+ countries), the COPD360Net clinical research accelerator, the COPD PPRN patient-powered research network, and complementary educational resources such as the COPD Risk Screener, Pocket Consultant Guide, journal, podcast, and video library.
Is COPD Foundation a public or private company?
COPD Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was COPD Foundation founded?
COPD Foundation was founded in 2004. It employs 11 to 50 people.
Where is COPD Foundation based?
COPD Foundation is headquartered in Miami, United States, in the North America region.
How does COPD Foundation make money?
Four revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are corporate Sponsorship, merchandise and Online Store and planned Giving and Legacy Donations.
Who are COPD Foundation's main competitors?
Broad incumbents on record are Global Initiative for Chronic Obstructive Lung Disease (GOLD), Asthma and Allergy Foundation of America, American Lung Association and American Thoracic Society. Direct peers are Alpha-1 Foundation, Cystic Fibrosis Foundation and Pulmonary Fibrosis Foundation. Regional players are European Lung Foundation and Asthma + Lung UK (formerly British Lung Foundation). National Heart, Lung, and Blood Institute (NHLBI) is listed as an others.
Does COPD Foundation have an API?
No public API is recorded for COPD Foundation.
What industry is COPD Foundation in?
COPD Foundation's product category is Respiratory and Chronic Lung Disease Patient Advocacy. Its primary akta.pro industry code is HLAKANAE, COPD & Chronic Bronchitis Management, with a secondary code of HLACAGAG, Chronic Disease Management Pathways (e.g., diabetes, CHF, COPD). Its NAICS code is 54171 and its SIC code is 8731.