I AM ALS.
- Company typePrivate
- Founded2019
- HeadquartersWashington, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
I AM ALS. firmographics
Firmographics- Name
- I AM ALS.
- Legal name
- I AM ALS
- Website
- https://iamals.org
- Company type
- Private
- Founded year
- 2019
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Ownership category
- akta.pro rank
I AM ALS. industry classification
Industry- Product category
- Nonprofit Patient Advocacy and ALS Support Services
- NAICS
- Business, Professional, Labor, Political, and Similar Organizations (8139)
- SIC
- Services-Membership Organizations (8600)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where I AM ALS. is headquartered
LocationHeadquarters
- HQ city
- Washington
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
I AM ALS. business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Individual Donations: One-time and recurring donations from individual supporters; monthly recurring gift program available with flexible amounts
- Peer-to-Peer Fundraising: Community members can create personal fundraising pages through DonorDrive platform to raise funds on behalf of I AM ALS
- Employer Matching: Many employers match employee donations; platform provided to check eligibility and access forms
- Stock and Cryptocurrency Donations: Donors can give appreciated assets like stock or cryptocurrency, avoiding capital gains tax and receiving full fair market value deduction
- Foundation and Corporate Grants: Revenue from generous donors, foundation funders, and industry partners including a $2M reserve from 2024 Yield Giving grant
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Others | Free Support Services |
Go-to-market motion3 records
Distribution channels5 records
Marketing channels8 records
I AM ALS. product offering
Product offeringCore offering
I AM ALS is a patient-led nonprofit organization that provides free, personalized support services to people living with ALS, caregivers, veterans, and bereaved families — including one-on-one ALS Support Specialists, peer mentorship, virtual support groups, and educational programs. It also runs federal advocacy campaigns (Push for Progress and ACT for ALS reauthorization) to expand research funding and treatment access, and coordinates the Cures Collective coalition of 50+ neurodegenerative disease organizations.
Product overview
I AM ALS is a patient-led nonprofit organization operating as a community-driven movement rather than a traditional product company. The organization offers a coordinated suite of support services including personalized ALS Support Specialists, Peer Mentor and Peer Support Specialist Programs, virtual support groups categorized by audience (people with ALS, caregivers, veterans, those who have lost loved ones), an online resource center, and the Ask Me Anything ALS educational series. These services are complemented byALS Signal (a clinical research dashboard), veterans-specific resources, and community-building initiatives like the Cures Collective coalition. The organization also runs advocacy campaigns including Push for Progress (federal funding) and ACT for ALS reauthorization efforts, and maintains a donation/fundraising platform supporting multiple giving methods. Technology integrations include Zoom (support groups), SurveyMonkey (applications), EveryAction (donations), DonorDrive (peer-to-peer fundraising), Double the Donation (employer matching), PayPal, and FastAction/NGPVAN (advocacy actions).
Differentiator
Problem solved
Functional benefit
Brands
- Cures Collective: A coalition launched by I AM ALS in April 2024 to unify neurodegenerative diseases, accelerate the path to treatments, and improve access to care through collaboration. Represents more than 50 organizations across ALS, Parkinson's, Frontotemporal dementia, Huntington's, Alzheimer's, Multiple Sclerosis, and more.
Products and services
- ALS Support Services
Quantifiable outcome
- $1.6 billion in total federal funding secured since 2019
- +3 more outcomes
Companies that use I AM ALS.
Customer profileNamed customers5 records
Segments5 records
Ideal customer profiles4 records
I AM ALS. technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration7 records
Feature4 records
I AM ALS. partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core.
- Hummingbird FundcoreSteering committee member of Cures Collective, bringing expertise in caregiving and ALS patient support
- Huntington's Disease Youth OrganizationcoreSteering committee member representing youth and family perspectives in Huntington's disease within Cures Collective
- Les Turner ALS FoundationcoreSteering committee member bringing ALS patient support expertise to Cures Collective
- PD AvengerscoreParkinson's disease advocacy group serving on Cures Collective steering committee
- CureGRNcoreCoalition for GRIN disorders represented on Cures Collective steering committee
- Hop On A CurecorePediatric neurodegenerative disease advocacy organization on Cures Collective steering committee
- ALS AssociationcoreMember organization of Cures Collective representing largest ALS advocacy organization
- Michael J. Fox FoundationcoreMember organization of Cures Collective bringing Parkinson's disease research advocacy
- National MS SocietycoreMember organization representing multiple sclerosis community in Cures Collective
- Eric DanecoreActor and I AM ALS ambassador starring in "Ring Every Bell" documentary; raises awareness through celebrity platform
- Brian WallachcoreCo-founder of I AM ALS, diagnosed with ALS in 2019; leads patient advocacy movement
- Paralyzed Veterans of AmericacoreHelps veterans with ALS navigate VA benefits; PVA representatives expedite approval process for disability claims
- ACT for ALS CoalitioncoreLandmark legislation passed with bipartisan support providing $500M over five years for ALS research and Expanded Access Programs
Scale indicators7 records
Recent moves7 records
Expansion highlights6 records
I AM ALS. competitors and assessment
Company assessmentBroad incumbents
- National Organization for Rare Disorders (NORD): Umbrella advocacy organization for rare diseases including ALS. Comparable federal advocacy and patient support posture, but with broader disease portfolio and longer operating history.
- ALS Association: Largest ALS-focused nonprofit in the U.S., funding research, advocacy, and care services through 39 chapters. Directly comparable as a disease-specific advocacy and support organization for ALS, but with substantially larger budget and clinical infrastructure.
- Muscular Dystrophy Association (MDA): Large disease-specific nonprofit supporting research and care across neuromuscular diseases including ALS. Comparable patient services, advocacy, and research funding model, but with broader disease portfolio.
Direct peers
- Michael J. Fox Foundation for Parkinson's Research: Largest patient-led Parkinson's research and advocacy funder, known for aggressive federal funding advocacy. The most directly analogous patient-led movement model for a neurodegenerative disease, and a Cures Collective member.
- BrightFocus Foundation: Disease-specific nonprofit funding research and public education across Alzheimer's, macular degeneration, and glaucoma. Cures Collective sponsor with comparable disease-specific grant-making and advocacy posture.
- Answer ALS Foundation: ALS-focused research initiative providing patient-derived data and bio samples to researchers. Comparable ALS-specific mission with emphasis on accelerating precision medicine and clinical research infrastructure.
- ALS Therapy Development Institute: Boston-based biotech nonprofit dedicated to ALS drug discovery and preclinical research. Comparable ALS-specific mission with research funding focus, but distinct drug-development orientation.
- Les Turner ALS Foundation: Chicago-based ALS nonprofit providing support services, research funding, and advocacy since 1977. A Cures Collective steering committee member with overlapping patient support and ALS advocacy mission.
Emerging players
- Target ALS: ALS-focused nonprofit funding collaborative research and translational drug development. Comparable disease-specific research funding focus, but more narrowly oriented to academic-industry collaboration.
- EveryLife Foundation for Rare Diseases: Rare disease policy advocacy organization focused on accelerating FDA review of therapies. Comparable federal legislative advocacy orientation for underserved disease populations, including ALS-relevant policy work.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat6 records
Key risks5 records
Key highlights7 records
Customer concentration
I AM ALS. social profiles
Digital presenceI AM ALS. financial estimates
Financial estimateRevenue estimate
Valuation estimate
I AM ALS. leadership team
Management profileNumber of profiles
Profiles23 records
I AM ALS. funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
I AM ALS. M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about I AM ALS.
What does I AM ALS. do?
I AM ALS is a patient-led nonprofit organization that provides free, personalized support services to people living with ALS, caregivers, veterans, and bereaved families — including one-on-one ALS Support Specialists, peer mentorship, virtual support groups, and educational programs. It also runs federal advocacy campaigns (Push for Progress and ACT for ALS reauthorization) to expand research funding and treatment access, and coordinates the Cures Collective coalition of 50+ neurodegenerative disease organizations.
Is I AM ALS. a public or private company?
I AM ALS. is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was I AM ALS. founded?
I AM ALS. was founded in 2019. It employs 11 to 50 people.
Where is I AM ALS. based?
I AM ALS. is headquartered in Washington, United States, in the North America region.
How does I AM ALS. make money?
Five revenue lines are on record. Individual Donations are the primary driver. The others are peer-to-Peer Fundraising, employer Matching, stock and Cryptocurrency Donations and foundation and Corporate Grants.
Who are I AM ALS.'s main competitors?
Broad incumbents on record are National Organization for Rare Disorders (NORD), ALS Association and Muscular Dystrophy Association (MDA). Direct peers are Michael J. Fox Foundation for Parkinson's Research, BrightFocus Foundation, Answer ALS Foundation, ALS Therapy Development Institute and Les Turner ALS Foundation. Emerging players are Target ALS and EveryLife Foundation for Rare Diseases.
Does I AM ALS. have an API?
No public API is recorded for I AM ALS..
What industry is I AM ALS. in?
I AM ALS.'s product category is Nonprofit Patient Advocacy and ALS Support Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 8139 and its SIC code is 8600.