What Lymphoma Research Foundation does

Lymphoma Research Foundation (LRF) is the largest U.S. nonprofit dedicated exclusively to lymphoma, founded in 1992 and headquartered in New York City. The Foundation operates a vertically integrated platform spanning patient education, peer support, financial assistance, and research funding. Core products include the Lymphoma Resource Center (helpline 800-500-9976, email [email protected]), Treatment Navigation Services (personalized clinical trial searches), the Lymphoma Support Network (one-to-one peer matching), Patient Aid Grants for uninsured/underinsured patients, and a suite of education programs (Ask the Doctor, Lymphoma Talks, Educational Forum, webinars, bilingual publications). Its research engine funds competitive grants — Postdoctoral Fellowships, the Clinical Investigator Career Development Award, and the Lymphoma Scientific Research Mentoring Program — guided by a 45-member Scientific Advisory Board and executed through consortia including the Mantle Cell Lymphoma Consortium (~150 researchers globally) and the AYA Lymphoma Consortium. To date, LRF has awarded 500+ research grants totaling more than $86.4M and reaches more than 2 million people annually through programs and services.

LRF is a 501c3 nonprofit that generates revenue through a diversified mix of individual donations (including the Circle of Hope monthly giving society), event-based fundraising (Lymphoma Walks in major metros, Annual Gala, golf invitationals, endurance events, DIY fundraisers), corporate partnerships with multiple pharmaceutical sponsors (Pfizer, AstraZeneca, BeiGene, BeOne Medicines, Incyte), planned giving (legacy gifts, cryptocurrency, donor-advised funds, IRA distributions, workplace giving), and Patient Aid Grants funded 100% by donor support. All programs are provided free of charge to patients, caregivers, and healthcare professionals. The Foundation is governed by a Board of Directors, employs 11–50 staff, and holds a 100% Charity Navigator rating plus the Platinum Seal of Transparency from Candid/GuideStar.

Name

Lymphoma Research Foundation

Legal name

Lymphoma Research Foundation

Website

https://lymphoma.org

Company type

Private

Founded year

1992

Operating status

Operating

Headcount range

11–50 employees

Short description

The Lymphoma Research Foundation is the largest U.S. nonprofit dedicated exclusively to lymphoma, funding over $86.4M in research while delivering free patient education, peer support, treatment navigation, and financial assistance to lymphoma patients, caregivers, survivors, and clinicians.

Ownership category

akta.pro rank

Product category

Cancer Research Nonprofit / Patient Support Services

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Health & Medical Research Grantmaking Foundations (BPAGAKAL)

akta.pro secondary industries

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Research & Science Grantmaking Foundations (BPAGAKAI)

Keywords

• Lymphoma research funding
• Cancer patient education
• Peer support services
• Nonprofit health advocacy
• Medical research grants

Headquarters

HQ city

New York

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Others, Personnel, Marketing or Sales, Operations

Revenue model

1. Individual Donations: One-time and monthly donations from individuals, including Circle of Hope monthly giving society members. Donations are tax-deductible (Federal tax ID: 95-4335088).
2. Event Fundraising: Revenue from ticketed events including Annual Gala, golf invitationals, Partners in Purpose scientific socials, Lymphoma Walks, endurance events, and DIY fundraisers.
3. Corporate Partnerships: Sponsorship revenue from cause marketing campaigns, event and program sponsorship, and employee/consumer engagement initiatives. Corporate partners include pharmaceutical companies supporting research and patient programs.
4. Planned Giving: Legacy gifts included in estate planning, cryptocurrency donations, donor-advised funds, gifts of stock, IRA charitable distributions, and workplace giving programs.
5. Patient Aid Grants: Privately funded grants for lymphoma patients provided 100% through donor support. One hundred percent of Patient Aid Grants are privately funded by individuals and foundations.

Go-to-market motion3 records

Distribution channels6 records

Marketing channels10 records

Core offering

The Lymphoma Research Foundation is a 501c3 nonprofit that funds lymphoma-specific research through competitive grants and scientific consortia, while delivering free patient education programs, peer support, financial assistance (Patient Aid Grants), and treatment navigation services to people affected by Hodgkin and non-Hodgkin lymphoma, including patients, caregivers, and clinicians across the United States.

Product overview

The Lymphoma Research Foundation is a nonprofit patient support organization offering a comprehensive suite of programs and services for lymphoma patients, survivors, care partners, and researchers. The Foundation operates through several interconnected service pillars: (1) the Lymphoma Resource Center providing personalized support including peer connections, financial assistance, and treatment navigation; (2) Education Programs including Ask the Doctor About Lymphoma webinars, Lymphoma Talks, Educational Forums, and publications covering lymphoma subtypes and treatments; (3) Community Support through the Lymphoma Support Network peer matching and Stories of Hope storytelling platform; (4) Financial Support through Patient Aid Grants; and (5) Research Programs including competitive grants (LSRMP, Postdoctoral Fellowships, Clinical Investigator Career Development Awards) and scientific consortia/workshops. Events include Lymphoma Walks, Annual Galas, and Endurance Events for fundraising. The organization reaches over 3 million people annually and has awarded over $86.4 million in lymphoma-specific research grants since inception.

Differentiator

Problem solved

Functional benefit

Brands

• Lymphoma Support Network (LSN): A nationwide peer-to-peer support program that matches patients and care partners with volunteers who have had similar experiences.
• Lymphoma Resource Center
• Ask the Doctor About Lymphoma
• Lymphoma Talks
• Educational Forum on Lymphoma
• Ambassador Program
• Circle of Hope
• Mantle Cell Lymphoma Consortium

Products and services

• Lymphoma Resource Center

Quantifiable outcome

• More than $86.4 million awarded in lymphoma-specific research since inception
• +5 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles6 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Six partnerships are on record, tiered core.

• PfizercoreGTM or Marketing PartnerNational Presenting Sponsor for Lymphoma Walks, supporting community fundraising events across the country to raise money for lymphoma research and patient resources.
• AstraZenecacoreGTM or Marketing PartnerCorporate sponsor for the Ambassador Program, supporting volunteer spokespeople who raise awareness about lymphoma and the Foundation's resources.
• BeiGenecoreGTM or Marketing PartnerCorporate sponsor for the Ambassador Program, supporting patient and survivor ambassadors who share their stories to raise lymphoma awareness.
• BeOne MedicinescoreGTM or Marketing PartnerCorporate sponsor for the Ambassador Program, supporting the network of volunteer ambassadors who represent the Foundation at community events and in media.
• IncytecoreGTM or Marketing PartnerCorporate sponsor for the Ambassador Program, supporting volunteer spokespeople who raise awareness of lymphoma and the Foundation's mission.
• Corporate PartnerscoreStrategic or Co-development PartnerThe Foundation's corporate partners support research breakthroughs that cure blood cancers and directly support cancer patients. Partnership opportunities include cause marketing campaigns, event and program sponsorship, and employee/consumer engagement.

Scale indicators12 records

Recent moves6 records

Others

• National Cancer Institute: The U.S. federal government's principal agency for cancer research, including lymphoma. LRF's SAB and advocacy network actively engage with NCI on federal funding priorities, making it an ecosystem partner rather than a direct competitor.

Broad incumbents

• Stand Up To Cancer: A high-profile cancer research fundraising nonprofit supporting collaborative translational research teams, including lymphoma. Competes for general cancer donor mindshare and corporate sponsorship.
• Cancer Research Institute: A nonprofit funding immunotherapy and immunology research across cancers, including lymphoma. Comparable on the research-grant-funding side but with a broader scientific mandate.
• American Cancer Society: The largest U.S. cancer nonprofit, funding research across all cancer types including lymphoma, with patient support and advocacy programs. Overlaps with LRF on lymphoma research funding and patient services but competes for general cancer philanthropy.
• V Foundation for Cancer Research: A major cancer research grantmaking nonprofit funding research across cancer types, including lymphoma research grants. Comparable as a research-grant competitor for philanthropic and corporate sponsorship dollars.

Direct peers

• The Leukemia & Lymphoma Society: The largest U.S. nonprofit focused on blood cancers, including lymphoma, providing research funding, patient education, and financial assistance. Directly competes for the same donor, sponsor, and patient mindshare as LRF, with a much broader disease mandate.
• International Waldenstrom's Macroglobulinemia Foundation: A disease-specific nonprofit supporting patients with Waldenström macroglobulinemia, a rare lymphoma subtype. Operates a similar model of patient education, peer support, and research funding for a defined lymphoma subtype.
• Lymphoma Coalition: A worldwide network of lymphoma patient organizations, harmonizing patient education and advocacy resources across geographies. Direct peer in lymphoma-specific patient support and global lymphoma community building.
• Cutaneous Lymphoma Foundation: A nonprofit dedicated to cutaneous (skin) lymphoma, one of the lymphoma subtypes covered by LRF. Comparable model of disease-specific patient education, peer support, and research funding.

Emerging players

• CLL Society: A nonprofit focused specifically on chronic lymphocytic leukemia (CLL), a lymphoma subtype explicitly covered by LRF. Overlaps on patient education, treatment navigation, and clinical trial information for CLL/SLL patients.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/lymphoma
• YouTubeyoutube.com/user/lymphomaresearch
• Facebookfacebook.com/lymphomacommunity
• LinkedInlinkedin.com/company/lymphoma-research-foundation
• Instagraminstagram.com/lymphomacommunity

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Lymphoma Research Foundation