What Crohn's & Colitis UK does

Crohn's & Colitis UK is a UK-registered charity (England & Wales 1117148; Scotland SC038632) and company limited by guarantee (5973370), headquartered in Hatfield, founded in 1979 and operating with 51–100 staff. It is the leading national charity dedicated to Crohn's Disease, Ulcerative Colitis and other forms of Inflammatory Bowel Disease (IBD), serving an estimated 500,000 people in the UK with the conditions and approximately 25,000 newly diagnosed each year. The organization delivers a portfolio of support services — a telephone/email/LiveChat helpline (0300 222 5700), 47 volunteer-led Local Networks, virtual social events, and downloadable health information in six languages — alongside digital tools including a Symptom Checker and a searchable IBD Services Map. It also operates a healthcare-professional portal providing clinical guidance, training and patient resources, and funds an IBD research and evidence program.

The underlying technology stack is a standard non-profit digital platform: a content-managed public website enhanced with accessiBe accessibility tooling, ReadSpeaker text-to-speech and CookieFirst consent management; supporter engagement via Dotdigital email and Eventbrite event registration; analytics through Google Analytics, Hotjar and Ruler Analytics; and advertising pixels on Facebook and LinkedIn. Editorial production follows a documented 10-step PIF TICK certified process with input from Information Feedback Volunteers living with Crohn's or Colitis; AI tools (Grammarly, Mendeley Cite, occasional Copilot/ChatGPT) are used only for language polishing, never for generating health content. No proprietary AI models, APIs or mobile applications are disclosed.

Crohn's & Colitis UK is funded primarily through a diversified donation-based revenue model: one-off and monthly recurring donations (£10–£60 suggested monthly tiers), annual membership, in-memory donations, corporate and high-net-worth philanthropy partnerships, fundraising events (marathons, cycling, the Big Summer Skip Challenge), and local network activities. Pricing is donation-suggested rather than fixed. There is no commercial pricing, no shareholders, and no equity-style investors; governance is by a volunteer Board of Trustees, and operations are run by a paid senior leadership team headed by CEO Marianne Radcliffe.

Name

Crohn's & Colitis UK

Legal name

Crohn's & Colitis UK

Website

https://crohnsandcolitis.org.uk

Company type

Private

Founded year

1979

Operating status

Operating

Headcount range

51–100 employees

Short description

Crohn's & Colitis UK is the leading UK charity supporting people with Crohn's Disease and Ulcerative Colitis, delivering a national helpline, 47 Local Networks, virtual peer events, PIF TICK certified health information, a Symptom Checker and IBD Services Map, funded through donations, membership and fundraising.

Ownership category

akta.pro rank

Product category

Patient Support Services (IBD Charity)

NAICS

Individual and Family Services (6241)

SIC

Services-Health Services (8000), Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Inflammatory Bowel Disease (IBD) Care (HLAKAEAD)

Keywords

• Inflammatory bowel disease support
• Patient health information
• Chronic illness advocacy
• IBD research funding
• Community healthcare charity

Headquarters

HQ city

Hatfield

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Supply Chain, Others

Revenue model

1. Donations: One-off and monthly monetary donations from supporters. Suggested amounts include £25, £50, £75 one-off donations and £10, £25, £60 monthly recurring donations.
2. Membership: Annual membership program offering supporters exclusive benefits and ongoing engagement with the charity's activities and mission.
3. Fundraising Events: Revenue generated from events including challenges (Big Summer Skip Challenge), marathons, cycling events, triathlons, and local network activities.
4. In Memory Donations: Donations made in memory of loved ones affected by Crohn's or Colitis.
5. Philanthropy & Partnerships: Corporate and individual philanthropy partnerships with organizations and high-net-worth supporters.

Pricing tiers

Go-to-market motion1 record

Distribution channels6 records

Marketing channels11 records

Core offering

Crohn's & Colitis UK is a registered charity that provides information, support, and community services for people affected by Crohn's Disease, Ulcerative Colitis, and other forms of Inflammatory Bowel Disease. Its core offerings include a Helpline Service, 47 volunteer-run Local Networks, Virtual Social Events, downloadable PIF TICK certified health information in multiple languages, a Symptom Checker, an IBD Services Map, and resources for healthcare professionals.

Product overview

Crohn's & Colitis UK operates as a charitable organization offering a comprehensive suite of support services and digital tools for people affected by inflammatory bowel disease. The core offering centers on the Helpline Service (telephone/email/live chat support), Local Networks (47 volunteer-run regional groups), and Virtual Social Events providing peer connection. Digital tools include a Symptom Checker and IBD Services Map. The organization produces extensive downloadable health information resources in multiple languages covering disease management, treatments, mental health, and lifestyle. Additional services include healthcare professional resources, research programs, advocacy campaigns, membership, and volunteer opportunities including the Young Adults Advisory Panel.

Differentiator

Problem solved

Functional benefit

Brands

• Young Adults Advisory Panel: A panel providing strategic input and recommendations on issues where a young adult's voice is required to understand and meet the needs of young adults with Crohn's and Colitis.
• Local Networks

Products and services

• Helpline Service

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration11 records

AI capability2 records

Feature4 records

Partnerships

One partnership is on record.

• IBD UK AlliancecoreStrategic or Co-development Partner · 10 June 2026Crohn's & Colitis UK is part of the IBD UK Alliance, a collaborative initiative bringing together organizations working in inflammatory bowel disease. Professor Chris Lamb, Consultant and Professor of Gastroenterology based in Newcastle, was appointed as the new Chair of the IBD UK Alliance in June 2026.

Scale indicators6 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Versus Arthritis: UK charity for people with arthritis, providing information, helpline, local groups, and research. Comparable broad-incumbent chronic-condition health charity with overlapping operating model (local networks, helpline, research grants).
• Macmillan Cancer Support: Large UK disease charity providing information, financial support, and a national helpline. Comparable as a broad-incumbent UK health charity operating the same model at significantly larger scale and budget.
• Diabetes UK: Major UK charity for diabetes with information, helpline, local groups, research funding, and advocacy. Comparable as a broad-incumbent chronic-disease charity using the same community-and-information model across the UK.

Direct peers

• EFCCA (European Federation of Crohn's & Ulcerative Colitis Associations): European umbrella body for national IBD patient associations, of which CCUK is a member. Direct peer as the continent-level coordination point for IBD advocacy, information sharing, and research participation.
• Crohn's & Colitis Foundation: US-based IBD charity (Crohn's, ulcerative colitis, microscopic colitis). Direct peer: same disease focus, same patient-support, information, advocacy, and research-funding model, but operating in North America at much larger scale.
• British Liver Trust: UK charity supporting people with liver disease, offering information, helpline, and patient networks. Direct peer in the UK digestive/gastroenterology nonprofit space with overlapping patient navigation and policy remit.
• Bowel Cancer UK: UK charity focused on bowel cancer awareness, support, and research, with overlap in patient information, helpline services, and clinician engagement. Compares because it serves the same anatomical area and uses a similar health-charity model in the UK.
• Core (formerly Core Digestive Diseases): UK charity funding research and patient information across all digestive diseases. Direct peer covering adjacent GI conditions with a comparable information and research-funding model.
• Guts UK: UK charity funding research and providing information on the digestive system including IBS, IBD, and GI cancers. Direct peer serving the same UK patient population across overlapping disease areas, with comparable information and awareness remit.
• CICRA (Crohn's in Childhood Research Association): UK charity dedicated to children and young people with Crohn's, colitis, and IBD. Direct peer on disease focus and patient population (the under-30 cohort that CCUK also specifically addresses via its Young Adults Advisory Panel).

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/ccfa
• YouTubeyoutube.com/user/crohnsandcolitisuk
• Facebookfacebook.com/crohnsandcolitisuk
• LinkedInlinkedin.com/company/crohn's-and-colitis-uk
• Instagraminstagram.com/crohnsandcolitisuk

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments1 record

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Crohn's & Colitis UK