Total Care RX

What Total Care RX does

Total Care RX, Inc. is an independently owned, full-service specialty pharmacy founded in 1988 and headquartered in Oakland Gardens, Queens, New York. The company dispenses and coordinates therapy for chronic, complex conditions that require difficult-to-obtain medications, special handling, complex dosing, insurance authorization, billing support, and controlled storage. Its clinical verticals include epilepsy, Tuberous Sclerosis Complex (TSC), cystic fibrosis, transplant care, pulmonology, and neurology. Beyond dispensing to individual patients, Total Care RX serves long-term care and residential facilities for clients with long-term care needs and developmental disabilities, providing institutional pharmacy services.

The technology stack is built around operational pharmacy platforms rather than AI-driven differentiation. Core proprietary capabilities include the WebConnect Portal (institutional access to patient profiles, prescription reordering, MAR tracking, drug-interaction checking, and 24-hour order status), the MARs/eMAR system that interfaces with most electronic Medication Administration Record applications, a Medication Synchronization Program that aligns refills to a single monthly cycle, unit dose packaging in proprietary blister packs, and an Online Refill Patient Portal. The Patient Management Program layers adherence support and monthly check-ins on top of dispensing. Integrations are limited to eMAR applications and the UserWay accessibility widget; there is no public API, no SDK, and no MCP server.

Total Care RX generates revenue primarily through prescription dispensing reimbursed via Medicare and major commercial insurance (transaction-fee model), supplemented by managed-services contracts with long-term care and residential facilities (medication synchronization, daily delivery, MARs management, unit dose packaging, Medicare Part D reviews). Financial guidance, copay navigation, and manufacturer assistance enrollment are bundled as professional services supporting dispensing volume. The go-to-market combines direct-to-patient fulfillment (phone, website, online refill portal, free shipping) with enterprise coordination through physicians, transplant centers, CF centers, and LTC facilities. Limited distribution agreements for restricted drugs such as HYFTOR and Epidiolex, alongside dual URAC and ACHC specialty pharmacy accreditation, position the company within narrow rare-disease categories protected by manufacturer distribution choices and payer credentialing requirements.

Name

Total Care RX

Legal name

Total Care RX, Inc.

Website

https://totalcarerx.com

Company type

Private

Founded year

1988

Operating status

Operating

Headcount range

51–100 employees

Short description

Total Care RX is an independently owned specialty pharmacy founded in 1988 and based in Queens, New York. It dispenses and manages therapy for complex chronic conditions including epilepsy, TSC, cystic fibrosis, transplant, pulmonology, and neurology, and serves long-term care facilities nationally.

Ownership category

akta.pro rank

Product category

Specialty Pharmacy

NAICS

Pharmacies and Drug Retailers (456110)

SIC

Services-Health Services (8000)

akta.pro primary industry

Specialty Pharmacy & Complex Therapy Management Platforms (HLACAKAG)

akta.pro secondary industries

Medication Therapy Management (MTM) & Clinical Pharmacy Services (HLAFALAH), Medication Therapy Management (MTM) & Clinical Pharmacy Services Tools (HLACAKAH)

Keywords

• Specialty pharmacy services
• Long-term care pharmacy
• Specialty medication dispensing
• Epilepsy and TSC pharmacy
• Cystic fibrosis pharmacy

Headquarters

HQ city

Flushing

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Supply Chain, Operations, Technology or R&D, Marketing or Sales, Infrastructure

Revenue model

1. Prescription Dispensing: Dispensing specialty medications for complex chronic conditions including epilepsy, TSC, transplant care, cystic fibrosis, pulmonology, and neurology. Medications are delivered directly to patients with free shipping for specialty patients.
2. Long-Term Care Pharmacy Services: Provides comprehensive pharmacy solutions to long-term care facilities and residential care facilities, including medication synchronization, MARs management, unit dose packaging, daily delivery, and nutritional supplements.
3. Insurance and Medicare Billing: Accepts Medicare and most major health insurance plans. Provides billing and financial assistance to patients, including help with co-pays, deductibles, and navigating Medicare Part D plans.
4. Financial Guidance and Support Services: Offers financial guidance to help patients reduce or eliminate copays, navigate insurance requirements, and identify financial assistance programs to ensure medication affordability.

Go-to-market motion3 records

Distribution channels5 records

Marketing channels7 records

Core offering

Total Care RX is a U.S. specialty pharmacy that dispenses complex and limited-distribution medications for chronic conditions such as epilepsy, tuberous sclerosis complex, cystic fibrosis, transplant care, pulmonology, and neurology, and delivers them directly to patients with adherence and financial-guidance support. It also operates a long-term care pharmacy division that provides medication synchronization, MARs/eMAR management, unit dose packaging, and daily delivery to residential facilities.

Product overview

Total Care RX is a progressive, independently owned specialty pharmacy operating since 1988. The company offers a unified specialty pharmacy platform with capacity comparable to major chains while maintaining personalized local service. The core offering is Specialty Pharmacy Services for chronic conditions, supported by specialized programs including Long-Term Care Pharmacy Services, Medication Synchronization, MARs/eMARS systems, WebConnect Portal, Patient Management Program, Financial Guidance, Medical Equipment Supplies, and disease-specific treatment services for Epilepsy, TSC, Cystic Fibrosis, Transplant Care, Pulmonology, and Neurology. Additional services include Online Prescription Refills, Free Shipping, Unit Dose Packaging, and 24/7 Pharmacist availability.

Differentiator

Problem solved

Functional benefit

Products and services

• Specialty Pharmacy Services Full-service specialty pharmacy dispensing and care coordination for patients with chronic/complex conditions including epilepsy, TSC, cystic fibrosis, transplant care, pulmonology, and neurology, with free shipping, online refills, and 24/7 support.
• Long-Term Care Pharmacy Services Specialized pharmacy services for long-term care and residential facilities serving patients with chronic needs and developmental disabilities, featuring medication synchronization, electronic MARs, monthly cycle fills, and daily delivery.
• Epilepsy Treatment Services Specialty services for epilepsy patients including access to advanced medications (Vimpat, Banzel, Keppra, Depakote), adherence optimization, dosage management, insurance coverage support, and co-pay card assistance.
• TSC Treatment Services Coordinated care for Tuberous Sclerosis Complex patients including FDA-approved therapies (HYFTOR, vigabatrin, everolimus), REMS oversight, prior-authorization support, and proactive care coordination.
• Cystic Fibrosis Treatment Services Specialized CF care including dispensing medications (Tobramycin, Kitabis Pak, Bethkis, Pulmozyme), nebulizer treatments, adherence support, and coordination with CF centers.
• Transplant Care Pharmacy Services Comprehensive transplant pharmacy services for lung, liver, heart, and kidney recipients, including pre- and post-transplant medication management, immunosuppressant monitoring, dialysis support, and Medicare Part B billing assistance.
• Pulmonology Specialty Pharmacy Services Specialty pharmacy services for chronic pulmonary conditions including dispensing and adherence support for inhaled and respiratory medications.
• Neurology Specialty Pharmacy Services Specialty pharmacy services for chronic neurological conditions beyond epilepsy, including dispensing, adherence support, and care coordination.

Quantifiable outcome

• 3.5 times higher refill rates in pediatric neurology programs compared to traditional pharmacy models
• +2 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration2 records

Feature5 records

Partnerships

13 partnerships are on record, tiered core and minor.

• Epilepsy Foundation of Metropolitan New York (EFMNY)coreStrategic or Co-development Partner · 22 September 2019Sponsorship of the 8th annual 'Into The Light Walk' for epilepsy awareness in September 2019. Collaboration on epilepsy awareness events and community support.
• TSC AlliancecoreStrategic or Co-development PartnerPartnership with the TSC Alliance for Tuberous Sclerosis Complex patient support and advocacy. Total Care RX is a sponsor and attendee of the 2026 TSC World Conference and collaborates on TSC patient care coordination.
• Cystic Fibrosis FoundationcoreStrategic or Co-development PartnerPartnership with Cystic Fibrosis Foundation to support CF patients. The foundation provides resources, support, and advocacy for cystic fibrosis patients, complementing Total Care RX's CF pharmacy services.
• Boomer Esiason FoundationminorStrategic or Co-development PartnerPartnership with Boomer Esiason Foundation to support CF patients with copay assistance and community support programs.
• Live2ThrivecoreStrategic or Co-development PartnerOfficial specialty pharmacy partner for Live2Thrive patient support group. Provides copay assistance, free vitamins/supplements, and ongoing support for CF and other specialty patients.
• Epilepsy FoundationcoreStrategic or Co-development PartnerPartnership with Epilepsy Foundation offering support groups for those suffering from epilepsy, run by local clinical social workers who specialize in treating people with epilepsy.
• National Multiple Sclerosis Society - Long Island ChapterminorStrategic or Co-development PartnerPartnership with National Multiple Sclerosis Society Long Island Chapter offering support groups and services for people with MS.
• TRIO (Transplant Recipient International Organization)minorStrategic or Co-development PartnerPartnership with TRIO committed to improving quality of life for transplant candidates through awareness, support, education and advocacy.
• United Network for Organ Sharing (UNOS)minorStrategic or Co-development PartnerPartnership with UNOS providing state-by-state listings of transplant support groups for pre- and post-transplant patients and families.
• American Transplant FoundationminorStrategic or Co-development PartnerPartnership with American Transplant Foundation providing three tiers of support for living donors, transplant recipients and their families.
• Nobelpharma America (NPA)coreTechnology or IntegrationLimited distribution partner for HYFTOR (sirolimus topical gel 0.2%), the only FDA-approved topical treatment for facial angiofibromas associated with TSC. Total Care RX is one of only two national specialty pharmacies distributing this medication.
• URACcoreOthersAccreditation body providing premier accreditation for specialty pharmacy to promote healthcare quality.
• ACHC (Accreditation Commission for Health Care)coreOthersThird-party accreditation organization developing highest national standards for healthcare providers. Provides specialty pharmacy and community retail pharmacy accreditation.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• PharmaCorr: PharmaCorr is a long-term care pharmacy providing institutional dispensing and medication management to correctional and LTC facilities. Closely comparable to Total Care RX's LTC pharmacy and unit-dose packaging business line.
• BioPlus Specialty Pharmacy: BioPlus is an independent specialty pharmacy providing high-touch therapy management for complex conditions including oncology, hepatitis, and autoimmune diseases. Comparable in mid-size independent specialty positioning and clinical adherence focus.
• PANTHERx Rare Pharmacy: PANTHERx Rare is a specialty pharmacy dedicated to rare disease therapies, operating limited distribution models comparable to Total Care RX's HYFTOR exclusivity. Similar adherence-driven, manufacturer-partnered model in high-complexity disease states.
• ExactCare Pharmacy: ExactCare Pharmacy specializes in medication management for complex, chronic, and LTC patients with multi-dose packaging and adherence support. Directly comparable to Total Care RX's LTC vertical and Patient Management Program.
• Amber Pharmacy: Amber Pharmacy is a specialty pharmacy serving patients with chronic, complex conditions including transplant, oncology, and hepatitis. Comparable independent specialty model with payer/clinical care coordination services.
• Avita Pharmacy: Avita is a national specialty pharmacy focused on HIV, hepatitis C, and behavioral health/PrEP, operating a similar dual-accreditation model with manufacturer limited distribution partnerships. Highly comparable in scale and patient-management service model.

Broad incumbents

• CVS Specialty: CVS Specialty is the specialty arm of CVS Health, combining retail pharmacy infrastructure with PBM (Caremark) ownership. Represents the integrated incumbent model against which Total Care RX competes for specialty patients and payer inclusion.
• Walgreens Specialty Pharmacy: Walgreens Specialty is the specialty division of Walgreens Boots Alliance, providing nationwide specialty dispensing and clinical services. Competes for manufacturer limited distribution contracts and represents the chain-incumbent competitive threat.
• Diplomat Specialty Pharmacy: Once the largest independent specialty pharmacy (now part of Optum/UnitedHealth), Diplomat offers a directly comparable set of specialty services. Provides a reference for both competitive dynamics and the consolidation trajectory independents face.
• Accredo (Express Scripts/ESI): Accredo is one of the largest US specialty pharmacies, owned by Express Scripts (Cigna). Competes directly for limited distribution contracts and payer network inclusion, and represents the vertically integrated incumbent Total Care RX must compete against.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds1 record

Investors3 records

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Total Care RX