Musella Foundation

What Musella Foundation does

The Musella Foundation For Brain Tumor Research & Information, Inc. is a 501(c)(3) nonprofit organization headquartered in Hewlett, New York, founded by Al Musella, DPM in 1993 and incorporated in 1999. The foundation operates virtualtrials.org, a comprehensive information and patient-support platform for brain tumor patients, caregivers, and healthcare professionals in the United States. Core products and technology include a clinical trials database (originating in 1993 on Compuserve, and later partially modeled into clinicaltrials.gov by the NCI), a 13th-edition High Grade Brain Tumor Guide, a 1st-edition Low Grade Brain Tumor Guide, an extensive video library of medical webinars (2020–2026 series), a Checklist for Newly Diagnosed patients, expanded access program directories, and a co-payment assistance program. The Virtual Trial project is a longitudinal patient registry and outcomes data initiative operated in collaboration with xCures and Cancer Commons. A separate Patient Navigation Program is delivered jointly with Cancer Commons and Head For The Cure under the Brain Cancer Support and Solutions Alliance, in which multi-disciplinary navigation and science teams evaluate patient medical records to identify diagnostic and treatment options.

The foundation's business model is donation- and grant-driven. All services are provided free to patients and caregivers; the organization is funded through public donations (PayPal/credit card), unrestricted educational grants from pharmaceutical and medical-device companies with products serving the brain tumor community, and website sponsorship/advertising. Named sponsors include Genentech, xCures, Novocure, Cleveland Clinic, GammaTile, Ivy, Imvax, and Jazz Pharmaceuticals. Content is produced under stated editorial independence policies. The customer base is segmented into three primary user groups: brain tumor patients (the principal segment), caregivers/families, and healthcare professionals such as neuro-surgeons and oncologists. Geographic scope is US-only. The foundation maintains a 16+ member medical advisory board drawn from institutions including Duke, Cedars-Sinai, UCLA, Mt. Sinai, and Dana Farber.

Name

Musella Foundation

Legal name

The Musella Foundation For Brain Tumor Research & Information, Inc

Website

https://virtualtrials.org

Company type

Private

Founded year

1999

Operating status

Operating

Headcount range

11–50 employees

Short description

The Musella Foundation is a 501(c)(3) nonprofit operating virtualtrials.org, providing free brain tumor clinical trial listings, educational guides, patient navigation, and treatment information to US brain tumor patients, caregivers, and healthcare professionals, funded by donations and unrestricted educational grants.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Cancer Support Services

NAICS

Grantmaking Foundations (813211), Grantmaking and Giving Services (8132)

SIC

Services-Social Services (8300)

akta.pro primary industry

Private Foundations (BPAGAKAA)

akta.pro secondary industry

Mental Health & Crisis Support Services (BPAGACAD)

Keywords

• Brain tumor information
• Clinical trials database
• Patient navigation services
• Cancer support nonprofit
• Patient advocacy resources

Headquarters

HQ city

Hewlett

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales

Revenue model

1. Donations and Fundraising: The foundation relies on donations from the public and fundraising activities to support its mission. Donors can contribute via the website using PayPal credit card processing.
2. Sponsorships and Advertising: The foundation accepts sponsorships and advertising on its website and newsletters in the form of unrestricted educational grants from companies that make products needed by the brain tumor community. This offsets the costs of providing free services to patients.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels4 records

Core offering

The Musella Foundation is a 501(c)(3) nonprofit that provides free brain tumor information, a clinical trials database, and patient navigation services to patients and caregivers. It is funded by charitable donations and sponsorships and operates primarily as an information and support resource rather than a clinical care provider.

Product overview

The Musella Foundation operates Virtualtrials.org as a comprehensive brain tumor information and patient support platform. The core offering consists of educational guides (13th Edition High Grade Guide and 1st Edition Low Grade Guide), an extensive video library of medical webinars, and a patient navigation program delivered in partnership with Cancer Commons and Head For The Cure. The platform also provides a directory of expanded access programs, treatment information resources (including DCVax-L, Optune, GammaTile, Temodar, and Onc-201), and financial assistance programs (co-payment assistance and drug discount cards). The Virtual Trial Project enables patient data collection and clinical trial matching. All services are free to patients, funded through sponsorships and donations.

Differentiator

Problem solved

Functional benefit

Brands

• Brain Cancer Support and Solutions Alliance: Collaboration between Musella Foundation, Cancer Commons, and Head For The Cure forming a cancer learning network

Products and services

• Brain Tumor Information Resources

Named customers3 records

Segments3 records

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Three partnerships are on record, tiered core.

• Cancer CommonscoreStrategic or Co-development PartnerCollaboration with Cancer Commons as part of the Brain Cancer Support and Solutions Alliance. The navigation and science teams evaluate patient medical records to help identify and access the best diagnostic and treatment options. Patient deidentified data becomes part of a learning system to help current and future patients.
• Head For The TestcoreStrategic or Co-development PartnerPartnership forming the Brain Cancer Support and Solutions Alliance along with Cancer Commons. Provides patient navigation services and science team evaluation of medical records.
• xCurescoreTechnology or IntegrationCollaboration for the Virtual Trial project. xCures helps analyze patient data collected from participants. Personal information is shared with xCures for data analysis purposes. Deidentified analysis may be published or sold.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• National Organization for Rare Disorders (NORD): Broad rare-disease umbrella organization that supports patients with rare conditions including rare brain tumors. Comparable in offering patient education, financial assistance programs, and advocacy at greater scale.
• American Cancer Society: Largest US cancer nonprofit providing patient services, research grants, and information across all cancer types including brain tumors. Overlaps with Musella on patient education and clinical trial navigation but at far greater scale and scope.
• Livestrong Foundation: Cancer survivorship nonprofit offering patient navigation, financial support, and education. Comparable in operating model — free patient services funded through donations and corporate partnerships — though broader in cancer type.

Emerging players

• xCures: Technology partner of Musella for the Virtual Trial project. Comparable in collecting and analyzing patient outcome data to inform treatment decisions and clinical trial matching for advanced cancer patients.
• Pediatric Brain Tumor Foundation: Focused on pediatric brain tumors, with similar patient support and research funding models. Overlapping audience in brain tumor patient education, but narrower pediatric scope.

Direct peers

• Head For The Cure: Brain tumor nonprofit that funds research and provides patient support. Active partner in the Brain Cancer Support and Solutions Alliance alongside Musella, with overlapping navigation and awareness programs.
• Brain Tumor Network: Provides personalized one-on-one navigation and support for brain tumor patients — directly overlapping with Musella's Patient Navigation Program delivered in partnership with Cancer Commons and Head For The Cure.
• National Brain Tumor Society: The largest US nonprofit dedicated to brain tumor research, advocacy, and patient support. Direct peer because it pursues an overlapping mission — brain tumor patient services, research funding, and policy advocacy — competing for the same donor base.
• American Brain Tumor Association: Founded in 1973, the ABTA provides brain tumor patient education, support, and research funding. Direct peer due to nearly identical mission scope: education, navigation, clinical trial information, and caregiver resources.
• Cancer Commons: Direct peer and active partner of Musella through the Brain Cancer Support and Solutions Alliance. Both organizations provide patient navigation, clinical trial matching, and outcome data collection for cancer patients.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/virtualtrials

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Musella Foundation