Young Epilepsy
Young Epilepsy is the only UK charity dedicated to children and young people aged 0–25 with epilepsy, delivering specialist education, paediatric diagnostics, applied research, and a national digital support and advocacy programme from its Lingfield, Surrey campus.
- Company typePrivate
- Founded1900
- HeadquartersLingfield, United Kingdom
- Headcount501–1,000
- GTM typeB2C
- OfferingServices
What Young Epilepsy does
Young Epilepsy, legally The National Centre for Young People with Epilepsy Charitable Trust, is a UK-registered charity (no. 311877) and the only organisation in the country dedicated exclusively to children and young people aged 0–25 living with epilepsy. Operating since around 1897–1900 from its Lingfield, Surrey campus, it delivers a vertically integrated service stack spanning specialist residential and day education (St Piers School and College), paediatric diagnostic services at the Neville Childhood Epilepsy Centre, applied research in partnership with UCL, Great Ormond Street Hospital, and the University of Nottingham, and a national information, advocacy, and youth-support programme that includes The Channel digital platform, the Youth Voice Network, and 24/7 text crisis support.
The organisation's most distinctive technical asset is the OPM-MEG (Optically Pumped Magnetometer Magnetoencephalography) system — launched in September 2021 as the world's first clinical wearable MEG brain scanner for children — co-developed with Cerca Magnetics, Magnetic Shields, the University of Nottingham, and UCL. The wearable helmet design and a custom light Mu-Room magnetically shielded environment allow children to move during scanning without cryogenic cooling or sedation, materially differentiating the platform from conventional MEG. Diagnostic, education, and digital services are delivered alongside campaigning activity (#OnTopOfEpilepsy, #UnderstandMyEpilepsy, Purple Day, National Epilepsy Week) and a broad portfolio of challenge events, corporate partnerships, lottery income, and legacy giving.
Young Epilepsy firmographics
Firmographics- Name
- Young Epilepsy
- Legal name
- The National Centre for Young People with Epilepsy Charitable Trust
- Website
- https://youngepilepsy.org.uk
- Company type
- Private
- Founded year
- 1900
- Operating status
- Operating
- Headcount range
- 501–1,000 employees
- Short description
- Young Epilepsy is the only UK charity dedicated to children and young people aged 0–25 with epilepsy, delivering specialist education, paediatric diagnostics, applied research, and a national digital support and advocacy programme from its Lingfield, Surrey campus.
- Ownership category
- akta.pro rank
Young Epilepsy industry classification
Industry- Product category
- Charitable Paediatric Epilepsy Support Services
- NAICS
- Child and Youth Services (62411), Educational Support Services (611710), Elementary and Secondary Schools (6111), Child Care Services (62441), All Other Schools and Instruction (61169)
- SIC
- Services-Social Services (8300), Services-Educational Services (8200), Electromedical & Electrotherapeutic Apparatus (3845), Services-Child Day Care Services (8351)
- akta.pro primary industry
- Inclusion, Special Needs & Early Intervention Training (IEPs/IFSPs, Neurodiversity) (EDACAIAF)
- akta.pro secondary industries
- Down Syndrome & Intellectual/Developmental Disabilities (IDD) Childcare (HSAAAIAC), Youth-to-Adult Transition & Life Skills (Independent Living, Soft Skills) (EDAAAFAN), Social-Emotional Learning (SEL) & Behavior Support Apps (EDACANAD)
Keywords
Where Young Epilepsy is headquartered
LocationHeadquarters
- HQ city
- Lingfield
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
Young Epilepsy business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Marketing or Sales, Infrastructure, Others
Revenue model
- Donations and Fundraising: Individual donations through the website, fundraising events, and appeals. Donors can give one-time or recurring donations.
- Lottery: The Tandridge Together Lottery raises money for Young Epilepsy and other good causes in the Tandridge district.
- Challenge Event Registration Fees: Registration fees for challenge events like skydiving, bungee jumping, running events, walking challenges. Example: Skydive requires £50 deposit with £395 minimum sponsorship.
- Corporate Partnerships: Partnerships with companies like Epilepsy Alarms UK for corporate fundraising and awareness raising.
- Legacies and Gifts in Wills: Donors can leave gifts in their will to support future work.
- Purple Day and Campaign Merchandise: Fundraising through Purple Day events and campaign activities.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Pay-as-you-go | Skydive Challenge |
| Other | Pay-as-you-go | Bungee Jump - Battersea Park |
| Other | Pay-as-you-go | AJ Bell Great South Run |
| Other | Pay-as-you-go | London to Brighton Cycle Ride |
| Other | Pay-as-you-go | Royal Parks Half Marathon |
| Other | Pay-as-you-go | Ultra Challenge Events |
Go-to-market motion2 records
Distribution channels6 records
Marketing channels8 records
Young Epilepsy product offering
Product offeringCore offering
Young Epilepsy is a UK charity that delivers health, research, education and youth support services for children and young people aged 0–25 living with epilepsy. Its offering spans wearable MEG diagnostic scanning (OPM-MEG) at the Neville Childhood Epilepsy Centre, the Channel online youth platform, 24/7 text crisis support, youth voice and advocacy, specialist residential and day education at St Piers School and College, eLearning for educators, and information resources for families, schools and clinicians.
Product overview
Young Epilepsy is a charity offering a coordinated suite of services for children and young people with epilepsy. The core offering includes The Channel online support platform, OPM-MEG diagnostic technology, Youth Support Services, Youth Voice Network, and 24/7 text support. These are complemented by educational resources including eLearning for professionals and a Guide for Schools, plus specialist education through St Piers School and College. Research capabilities and diagnostic services at the Neville Centre round out the portfolio, all focused on improving diagnosis, treatment, and daily support for young people with epilepsy.
Differentiator
Problem solved
Functional benefit
Brands
- The Channel: A digital platform for young people with epilepsy providing trusted advice, honest answers, real stories, and information to help them manage their condition.
- St Piers School and College
Products and services
- The Channel Online platform providing trusted advice, mental health and wellbeing resources, education, work and travel guidance, and real stories for young people aged 13+ with epilepsy.
- OPM-MEG Wearable Magnetoencephalography Diagnostic Service World-first clinical wearable MEG brain scanning system that lets children move during scans via a fitted helmet, delivered inside a Light Mu-Room magnetically shielded suite at the Neville Childhood Epilepsy Centre for paediatric epilepsy diagnosis.
- Youth Support Services One-to-one support, virtual youth clubs, meet-ups, social events, exam support groups and revision groups for young people with epilepsy.
- Youth Voice Network Community of young people with epilepsy that informs Young Epilepsy's work, enabling youth participation, advocacy and peer engagement.
- Let's Talk About Epilepsy Podcast Podcast featuring real stories, expert tips and honest conversations about epilepsy for young people and their supporters.
- 24/7 Text Support via Shout Free, confidential 24/7 text-based crisis support service where young people text PURPLE to 85258.
- eLearning for Educators Online training courses for educators and professionals supporting children and young people with epilepsy.
- St Piers School and College Specialist residential and day education for children and young people with special educational needs and disabilities including epilepsy, autism and severe learning difficulties, located in Lingfield, Surrey.
- Neville Childhood Epilepsy Centre Diagnostic Services Comprehensive diagnostic assessment, EEG and telemetry for children and young people with epilepsy in a non-hospital setting at the Lingfield campus.
Quantifiable outcome
- 77% of young people with epilepsy report significant mental health impact from their condition
- +3 more outcomes
Companies that use Young Epilepsy
Customer profileNamed customers1 record
Segments5 records
Ideal customer profiles5 records
Young Epilepsy technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature3 records
Young Epilepsy partnerships and signals
Strategic signalPartnerships
Eleven partnerships are on record, tiered minor and core.
- Epilepsy Alarms UKminorCorporate partnership where Epilepsy Alarms UK chose Young Epilepsy as their charity partner for 2022, encouraging colleagues to participate in Purple Day and Epilepsy Awareness Week.
- Cerca Magnetics LtdcoreTechnology partnership to develop the OPM-MEG wearable magnetoencephalography system for pediatric epilepsy diagnosis. Cerca provided expertise in optically pumped magnetometer sensor technology.
- Magnetic Shields LtdcorePartner in developing the light Mu-Room magnetically shielded room for OPM-MEG system. Built the innovative shielded room that is a fraction of the weight and cost of traditional MEG rooms.
- University of NottinghamcoreResearch partnership in the development of OPM-MEG technology. Contributed expertise in magnetometer sensor development and neuroimaging research.
- University College London (UCL) Institute of NeurologycoreCollaboration on OPM-MEG development bringing clinical expertise in epilepsy and neuroimaging from the UCL Wellcome Centre for Human Neuroimaging.
- Great Ormond Street Hospital (GOS ICH)coreLong-standing research partnership coordinating and funding research into causes, treatments and impact of childhood epilepsy. Hosts annual Research Retreat.
- AutisticacorePartnership with UK's national autism research charity to fund research on co-occurring autism and epilepsy, led by UCL Great Ormond Street Institute of Child Health.
- Epilepsy Research UKcoreJoint partnership funding research on co-occurring autism and epilepsy. Also collaborated on the £300,000 Fellowship Award for research into childhood epilepsy.
- Ultra Challenge SeriesminorOfficial associate partner on the Ultra Challenge Series 2026, providing 25% discount on registration fees for Young Epilepsy supporters.
- Autism Education Trust (AET)minorSt Piers School and College delivers the AET post-16 programme in West Sussex and Kent.
- The ChannelcoreDigital platform for young people with epilepsy providing trusted advice, honest answers, and connection to peers. Developed with young people.
Scale indicators9 records
Recent moves6 records
Expansion highlights5 records
Young Epilepsy competitors and assessment
Company assessmentMarket position
Competitive moat6 records
Key highlights7 records
Customer concentration
Young Epilepsy social profiles
Digital presenceYoung Epilepsy compliance and trust
Trust signalCompliance1 record
Young Epilepsy financial estimates
Financial estimateRevenue estimate
Valuation estimate
Young Epilepsy leadership team
Management profileNumber of profiles
Profiles3 records
Young Epilepsy subsidiaries and ownership
Company hierarchySubsidiaries1 record
Young Epilepsy funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Young Epilepsy M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Young Epilepsy
What does Young Epilepsy do?
Young Epilepsy is a UK charity that delivers health, research, education and youth support services for children and young people aged 0–25 living with epilepsy. Its offering spans wearable MEG diagnostic scanning (OPM-MEG) at the Neville Childhood Epilepsy Centre, the Channel online youth platform, 24/7 text crisis support, youth voice and advocacy, specialist residential and day education at St Piers School and College, eLearning for educators, and information resources for families, schools and clinicians.
Is Young Epilepsy a public or private company?
Young Epilepsy is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Young Epilepsy founded?
Young Epilepsy was founded in 1900. It employs 501 to 1,000 people.
Where is Young Epilepsy based?
Young Epilepsy is headquartered in Lingfield, United Kingdom, in the Europe region.
How does Young Epilepsy make money?
Six revenue lines are on record. Donations and Fundraising is the primary driver. The others are lottery, challenge Event Registration Fees, corporate Partnerships, legacies and Gifts in Wills and purple Day and Campaign Merchandise.
Does Young Epilepsy have an API?
No public API is recorded for Young Epilepsy.
What industry is Young Epilepsy in?
Young Epilepsy's product category is Charitable Paediatric Epilepsy Support Services. Its primary akta.pro industry code is EDACAIAF, Inclusion, Special Needs & Early Intervention Training (IEPs/IFSPs, Neurodiversity), with a secondary code of HSAAAIAC, Down Syndrome & Intellectual/Developmental Disabilities (IDD) Childcare. Its NAICS code is 62411 and its SIC code is 8300.