Young Epilepsy

What Young Epilepsy does

Young Epilepsy, legally The National Centre for Young People with Epilepsy Charitable Trust, is a UK-registered charity (no. 311877) and the only organisation in the country dedicated exclusively to children and young people aged 0–25 living with epilepsy. Operating since around 1897–1900 from its Lingfield, Surrey campus, it delivers a vertically integrated service stack spanning specialist residential and day education (St Piers School and College), paediatric diagnostic services at the Neville Childhood Epilepsy Centre, applied research in partnership with UCL, Great Ormond Street Hospital, and the University of Nottingham, and a national information, advocacy, and youth-support programme that includes The Channel digital platform, the Youth Voice Network, and 24/7 text crisis support.

The organisation's most distinctive technical asset is the OPM-MEG (Optically Pumped Magnetometer Magnetoencephalography) system — launched in September 2021 as the world's first clinical wearable MEG brain scanner for children — co-developed with Cerca Magnetics, Magnetic Shields, the University of Nottingham, and UCL. The wearable helmet design and a custom light Mu-Room magnetically shielded environment allow children to move during scanning without cryogenic cooling or sedation, materially differentiating the platform from conventional MEG. Diagnostic, education, and digital services are delivered alongside campaigning activity (#OnTopOfEpilepsy, #UnderstandMyEpilepsy, Purple Day, National Epilepsy Week) and a broad portfolio of challenge events, corporate partnerships, lottery income, and legacy giving.

Name

Young Epilepsy

Legal name

The National Centre for Young People with Epilepsy Charitable Trust

Website

https://youngepilepsy.org.uk

Company type

Private

Founded year

1900

Operating status

Operating

Headcount range

501–1,000 employees

Short description

Young Epilepsy is the only UK charity dedicated to children and young people aged 0–25 with epilepsy, delivering specialist education, paediatric diagnostics, applied research, and a national digital support and advocacy programme from its Lingfield, Surrey campus.

Ownership category

akta.pro rank

Product category

Charitable Paediatric Epilepsy Support Services

NAICS

Child and Youth Services (62411), Educational Support Services (611710), Elementary and Secondary Schools (6111), Child Care Services (62441), All Other Schools and Instruction (61169)

SIC

Services-Social Services (8300), Services-Educational Services (8200), Electromedical & Electrotherapeutic Apparatus (3845), Services-Child Day Care Services (8351)

akta.pro primary industry

Inclusion, Special Needs & Early Intervention Training (IEPs/IFSPs, Neurodiversity) (EDACAIAF)

akta.pro secondary industries

Down Syndrome & Intellectual/Developmental Disabilities (IDD) Childcare (HSAAAIAC), Youth-to-Adult Transition & Life Skills (Independent Living, Soft Skills) (EDAAAFAN), Social-Emotional Learning (SEL) & Behavior Support Apps (EDACANAD)

Keywords

• Epilepsy support services
• Pediatric epilepsy charity
• Specialist education disability
• Epilepsy diagnostic services
• Childhood epilepsy research

Headquarters

HQ city

Lingfield

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Infrastructure, Others

Revenue model

1. Donations and Fundraising: Individual donations through the website, fundraising events, and appeals. Donors can give one-time or recurring donations.
2. Lottery: The Tandridge Together Lottery raises money for Young Epilepsy and other good causes in the Tandridge district.
3. Challenge Event Registration Fees: Registration fees for challenge events like skydiving, bungee jumping, running events, walking challenges. Example: Skydive requires £50 deposit with £395 minimum sponsorship.
4. Corporate Partnerships: Partnerships with companies like Epilepsy Alarms UK for corporate fundraising and awareness raising.
5. Legacies and Gifts in Wills: Donors can leave gifts in their will to support future work.
6. Purple Day and Campaign Merchandise: Fundraising through Purple Day events and campaign activities.

Pricing tiers

Go-to-market motion2 records

Distribution channels6 records

Marketing channels8 records

Core offering

Young Epilepsy is a UK charity that delivers health, research, education and youth support services for children and young people aged 0–25 living with epilepsy. Its offering spans wearable MEG diagnostic scanning (OPM-MEG) at the Neville Childhood Epilepsy Centre, the Channel online youth platform, 24/7 text crisis support, youth voice and advocacy, specialist residential and day education at St Piers School and College, eLearning for educators, and information resources for families, schools and clinicians.

Product overview

Young Epilepsy is a charity offering a coordinated suite of services for children and young people with epilepsy. The core offering includes The Channel online support platform, OPM-MEG diagnostic technology, Youth Support Services, Youth Voice Network, and 24/7 text support. These are complemented by educational resources including eLearning for professionals and a Guide for Schools, plus specialist education through St Piers School and College. Research capabilities and diagnostic services at the Neville Centre round out the portfolio, all focused on improving diagnosis, treatment, and daily support for young people with epilepsy.

Differentiator

Problem solved

Functional benefit

Brands

• The Channel: A digital platform for young people with epilepsy providing trusted advice, honest answers, real stories, and information to help them manage their condition.
• St Piers School and College

Products and services

• The Channel Online platform providing trusted advice, mental health and wellbeing resources, education, work and travel guidance, and real stories for young people aged 13+ with epilepsy.
• OPM-MEG Wearable Magnetoencephalography Diagnostic Service World-first clinical wearable MEG brain scanning system that lets children move during scans via a fitted helmet, delivered inside a Light Mu-Room magnetically shielded suite at the Neville Childhood Epilepsy Centre for paediatric epilepsy diagnosis.
• Youth Support Services One-to-one support, virtual youth clubs, meet-ups, social events, exam support groups and revision groups for young people with epilepsy.
• Youth Voice Network Community of young people with epilepsy that informs Young Epilepsy's work, enabling youth participation, advocacy and peer engagement.
• Let's Talk About Epilepsy Podcast Podcast featuring real stories, expert tips and honest conversations about epilepsy for young people and their supporters.
• 24/7 Text Support via Shout Free, confidential 24/7 text-based crisis support service where young people text PURPLE to 85258.
• eLearning for Educators Online training courses for educators and professionals supporting children and young people with epilepsy.
• St Piers School and College Specialist residential and day education for children and young people with special educational needs and disabilities including epilepsy, autism and severe learning difficulties, located in Lingfield, Surrey.
• Neville Childhood Epilepsy Centre Diagnostic Services Comprehensive diagnostic assessment, EEG and telemetry for children and young people with epilepsy in a non-hospital setting at the Lingfield campus.

Quantifiable outcome

• 77% of young people with epilepsy report significant mental health impact from their condition
• +3 more outcomes

Named customers1 record

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Eleven partnerships are on record, tiered minor and core.

• Epilepsy Alarms UKminorGTM or Marketing Partner · 1 February 2022Corporate partnership where Epilepsy Alarms UK chose Young Epilepsy as their charity partner for 2022, encouraging colleagues to participate in Purple Day and Epilepsy Awareness Week.
• Cerca Magnetics LtdcoreTechnology or Integration · 30 September 2021Technology partnership to develop the OPM-MEG wearable magnetoencephalography system for pediatric epilepsy diagnosis. Cerca provided expertise in optically pumped magnetometer sensor technology.
• Magnetic Shields LtdcoreTechnology or Integration · 30 September 2021Partner in developing the light Mu-Room magnetically shielded room for OPM-MEG system. Built the innovative shielded room that is a fraction of the weight and cost of traditional MEG rooms.
• University of NottinghamcoreStrategic or Co-development Partner · 30 September 2021Research partnership in the development of OPM-MEG technology. Contributed expertise in magnetometer sensor development and neuroimaging research.
• University College London (UCL) Institute of NeurologycoreStrategic or Co-development Partner · 30 September 2021Collaboration on OPM-MEG development bringing clinical expertise in epilepsy and neuroimaging from the UCL Wellcome Centre for Human Neuroimaging.
• Great Ormond Street Hospital (GOS ICH)coreStrategic or Co-development Partner · 30 September 2021Long-standing research partnership coordinating and funding research into causes, treatments and impact of childhood epilepsy. Hosts annual Research Retreat.
• AutisticacoreStrategic or Co-development Partner · 22 September 2021Partnership with UK's national autism research charity to fund research on co-occurring autism and epilepsy, led by UCL Great Ormond Street Institute of Child Health.
• Epilepsy Research UKcoreStrategic or Co-development Partner · 22 September 2021Joint partnership funding research on co-occurring autism and epilepsy. Also collaborated on the £300,000 Fellowship Award for research into childhood epilepsy.
• Ultra Challenge SeriesminorGTM or Marketing PartnerOfficial associate partner on the Ultra Challenge Series 2026, providing 25% discount on registration fees for Young Epilepsy supporters.
• Autism Education Trust (AET)minorStrategic or Co-development PartnerSt Piers School and College delivers the AET post-16 programme in West Sussex and Kent.
• The ChannelcoreStrategic or Co-development PartnerDigital platform for young people with epilepsy providing trusted advice, honest answers, and connection to peers. Developed with young people.

Scale indicators9 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat6 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/YoungEpilepsy
• LinkedInlinkedin.com/company/young-epilepsy
• Instagraminstagram.com/youngepilepsy
• TikToktiktok.com/@youngepilepsy
• Xx.com/youngepilepsy

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Subsidiaries1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Young Epilepsy