Dup15q Alliance

What Dup15q Alliance does

Dup15q Alliance is a small medical-advocacy organization founded in 1994 and headquartered in Fayetteville, United States, focused on promoting awareness, research, and treatments for chromosome 15q11.2-13.1 duplication syndrome (commonly known as Dup15q syndrome), a rare chromosomal disorder. Its publicly stated mission is community-and-science oriented — advancing understanding and therapeutic options for affected individuals — rather than commercial in framing, and it operates from the dedicated domain dup15q.org. Despite a 'for_profit' tag in the source firmographics, the 'Alliance' designation, awareness/research mission, and absence of any disclosed revenue mechanics or commercial products strongly indicate a mission-driven patient-advocacy non-profit.

The organization operates at micro-scale, with a disclosed headcount band of 1-10 employees and no subsidiary structure, parent company, or international operating footprint. No products, services, pricing, distribution channels, customer logos, partnerships, awards, certifications, patents, funding rounds, M&A activity, regulatory actions, or leadership changes are documented in the available source material — a firmographic and operating-data block that is largely empty beyond the basic profile. The website itself returned only a loader/verification page in the source scrape, so no on-site content (programs, research portfolio, community size) was retrievable.

From a business-model standpoint, no revenue model is disclosed: there is no pricing, no GTM motion, no customer segmentation, no app, no API, no integrations, and no social-media presence captured in the source data. This leaves Dup15q Alliance effectively a single-domain, low-headcount advocacy entity whose operating economics — donor base, grant funding, event revenue, memberships — are entirely unobservable from the input, which materially limits any conventional investment-analysis signal extraction.

Name

Dup15q Alliance

Website

https://dup15q.org

Company type

Private

Founded year

1994

Operating status

Operating

Headcount range

1–10 employees

Short description

Dup15q Alliance is a small Fayetteville, US-based medical advocacy organization, founded in 1994, that promotes awareness, research, and treatments for chromosome 15q11.2-13.1 duplication syndrome and serves affected families, clinicians, and researchers.

Ownership category

akta.pro rank

Product category

Rare Disease Patient Advocacy

NAICS

Individual and Family Services (6241), Child and Youth Services (624110), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

akta.pro secondary industries

Global Health Research, Clinical Trials & Product Development Partnerships (PDPs) (HLAJAOAM), Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK)

Keywords

• Rare disease advocacy
• Genetic disorder support
• Patient community services
• Medical research promotion
• Chromosome 15q duplication

Headquarters

HQ city

Fayetteville

HQ country

United States

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Others

Core offering

Dup15q Alliance is a medical alliance that promotes awareness, research, and treatments for chromosome 15q11.2-13.1 duplication syndrome (Dup15q syndrome). The organization supports affected families and individuals through advocacy, education, and research-funding activities related to this rare genetic disorder.

Differentiator

Problem solved

Functional benefit

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Broad incumbents

• National Organization for Rare Disorders (NORD): Umbrella advocacy organization covering all rare diseases in the U.S.; provides overlapping research-grant and patient-support services that partially substitute for what condition-specific groups like Dup15q Alliance offer.
• Global Genes: Large rare-disease advocacy umbrella that supports hundreds of condition-specific patient communities; competes for donor mindshare and offers programs that overlap with single-disease alliances.

Others

• International Dup15q Alliance / Dup15q clinical research consortia: The Alliance's own international research and clinical network (e.g., collaborators at academic medical centers); included as ecosystem participants that the Alliance engages with rather than competes against.
• Simons Foundation (SFARI): Large private foundation funding autism and neurodevelopmental disorder research; an important potential funder and research-partner counterpart rather than a direct competitor, given that Dup15q syndrome often presents with autism-spectrum features.

Direct peers

• Angelman Syndrome Foundation: Patient-advocacy organization for Angelman syndrome, another rare neurodevelopmental disorder caused by a chromosomal 15q abnormality; highly comparable in mission, patient population profile, and research-promotion activities.
• Chromosome Disorder Outreach: Nonprofit dedicated to supporting families affected by rare chromosomal abnormalities; comparable in awareness, family-support, and research-promotion activities for the same patient population.
• Cure SMA: Highly effective rare-disease patient advocacy organization (spinal muscular atrophy) that pioneered the research-to-treatment-to-access continuum; widely cited as the gold-standard model that newer rare-disease groups like Dup15q Alliance are seeking to emulate.
• Phelan-McDermid Syndrome Foundation: Foundation serving individuals with Phelan-McDermid syndrome, a rare chromosomal deletion disorder overlapping significantly with Dup15q in clinical presentation (autism, intellectual disability, seizures); comparable disease-specific advocacy model.
• Prader-Willi Syndrome Association (USA): Advocacy and research-support organization for Prader-Willi syndrome, which is caused by abnormalities on the same chromosome 15q region affected in Dup15q; directly comparable in target population, structure, and mission.
• Unique (Understanding Chromosome Disorders): UK-based charity supporting individuals and families affected by rare chromosome disorders, directly comparable to Dup15q Alliance's condition-specific advocacy model across a portfolio of rare chromosomal conditions.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks4 records

Key highlights4 records

Customer concentration

• Xx.com/dup15q
• Facebookfacebook.com/245152512165738
• LinkedInlinkedin.com/company/dup15q-alliance

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Dup15q Alliance