Amputee Coalition

What Amputee Coalition does

The Amputee Coalition (legal name: Amputee Coalition of America, Inc.) is a 501(c)(3) nonprofit organization founded in 1986 and headquartered in Washington, D.C., serving the 5.6 million Americans living with limb loss or limb difference. It is the only national nonprofit exclusively representing this community in Washington, D.C., and operates the only federally funded National Limb Loss Resource Center (NLLRC) under Administration for Community Living grants. Its core service portfolio includes a network of 300+ support groups, a Certified Peer Visitor (CPV) Program with 800+ trained volunteers, a Youth Engagement Program anchored by the Paddy Rossbach YEP Youth Camp, Healthcare Navigation for insurance and appeals support, a national annual conference (ACNC), and the AC Connect digital community forum. Content and education assets include 40+ guides in English and Spanish, 70+ fact sheets, the inMotion magazine (returning to print in 2026), and the weekly Thrive e-Newsletter reaching 39,000+ subscribers.

The organization runs a community-led go-to-market model with no member fees: all core services are provided free of charge to individuals, families, and caregivers. Revenue is generated through diversified streams including federal grants (ACL's NLLRC designation), individual donations via PayPal and direct donation pages, corporate sponsorships (national program tiers), foundation and grant partnerships, and advertising in inMotion and Thrive at disclosed rates of $475-$4,010 per print insertion and $490-$2,750 for 12-month newsletter placements. Distribution is direct-to-beneficiary through the website (1.3M annual visitors), toll-free phone line, peer visitor network, and a network of hospital partners. The organization is governed by a Board of Directors led by Board Chair William Passig Perno, under President & CEO Cass Isidro, with a disclosed 11-50 employee headcount. There is no proprietary technology platform; the operating model is service- and community-driven rather than product- or AI-driven.

The 2024 operating environment reflects a transitional posture: the organization published a landmark Avalere-collaborated prevalence study, launched the So Every BODY Can Move 28-state advocacy initiative targeting the 2028 Paralympics, and is simultaneously executing staff reductions and a fundraising campaign to stabilize operations. The organization holds Platinum-level GuideStar transparency status, a 100/100 Charity Navigator accountability and finance score, and National Health Council Standards of Excellence Certification, signaling institutional credibility even amid the restructuring.

Name

Amputee Coalition

Legal name

Amputee Coalition of America, Inc.

Website

https://amputee-coalition.org

Company type

Private

Founded year

1986

Operating status

Operating

Headcount range

11–50 employees

Short description

The Amputee Coalition is a 501(c)(3) nonprofit founded in 1986 that supports the 5.6 million Americans with limb loss or limb difference through free peer support, healthcare navigation, advocacy, and the federally funded National Limb Loss Resource Center.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Voluntary Health Organizations (813212), Services for the Elderly and Persons with Disabilities (62412), Vocational Rehabilitation Services (62431), Other Individual and Family Services (624190), Social Advocacy Organizations (8133)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090), Services-Membership Organizations (8600)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Amputee & Prosthetic Rehabilitation Programs (HLAFAFAL), Human Rights & Anti-Discrimination Organizations (BPAGAFAB), Prosthetics/Orthotics Rehab & Amputee Rehabilitation (HSADAIAN)

Keywords

• Disability support services
• Limb loss advocacy
• Peer support programs
• Nonprofit resource center
• Community health support

Headquarters

HQ city

Manassas

HQ country

United States

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Charitable Contributions: Individual donations from supporters who contribute to fund programs and services. The organization operates donation pages through PayPal and accepts contributions through its website.
2. Corporate Sponsorships: Corporate sponsors support key events, educational programs, and advocacy initiatives. Companies can become national sponsors with varying levels of engagement.
3. Foundation and Grant Partnerships: Direct funding from foundations and grants to sustain and expand programs. The organization receives federal grants from the Administration for Community Living.
4. Advertising and Sponsorships in Publications: The organization sells advertising space in inMotion magazine and the THRIVE eNewsletter. Display advertising rates range from $475 to $4,010 per insertion depending on size and frequency. E-newsletter advertising ranges from $490 to $2,750 for 12-month placements.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

The Amputee Coalition is a national nonprofit organization that provides free peer support, educational resources, healthcare navigation, and advocacy services to individuals with limb loss and limb difference, their caregivers, and healthcare professionals. It operates the federally funded National Limb Loss Resource Center (NLLRC), a Certified Peer Visitor Program, a national network of 300+ support groups, the Youth Engagement Program, and publishes inMotion Magazine and the Thrive E-Newsletter.

Product overview

The Amputee Coalition is a nonprofit organization offering a comprehensive suite of support services for individuals with limb loss and limb difference. Its core offerings include the federally-funded National Limb Loss Resource Center (NLLRC) providing guides and fact sheets; the Certified Peer Visitor Program connecting trained volunteers with those new to amputation; the Youth Engagement Program (YEP) with mentorship and summer camp; Healthcare Navigation for insurance guidance; a network of 300+ support groups; and the annual National Conference. The organization also publishes inMotion Magazine and the Thrive E-Newsletter, operates the AC Connect digital community forum, and runs advocacy initiatives including So Every BODY Can Move and the annual Limb Loss and Limb Difference Awareness Month campaign.

Differentiator

Problem solved

Functional benefit

Products and services

• National Limb Loss Resource Center (NLLRC) The only federally funded resource center dedicated to providing reliable information, support, and assistance to individuals with limb loss and limb difference, offering 40+ guides in English and Spanish and over 70 fact sheets.
• Certified Peer Visitor Program Matches trained and certified volunteer peers with people new to amputation or limb difference and their caregivers, offering one-to-one support, information, and resources during recovery and readjustment.
• Youth Engagement Program (YEP) Program for youth ages 10-19 focusing on mentorship, skills training, and career development, including the Paddy Rossbach YEP Youth Camp for ages 10-17.
• Healthcare Navigation Provides guidance on insurance, appeals, and finding the right care providers for individuals with limb loss and limb difference.
• Support Groups Network National network of over 300 support groups fostering community, connection, and shared experiences for individuals at all stages of their journey.
• National Conference (ACNC) The largest gathering of the limb loss and limb difference community, featuring workshops, mobility clinics, expert discussions, and networking opportunities.
• inMotion Magazine Trusted source for information about living well with limb loss and limb difference, available in print and digital formats, featuring articles, personal stories, and research.
• Thrive E-Newsletter Weekly e-newsletter delivering timely news, updates, policies, regulations, and stories about limb loss and limb difference to over 39,000 subscribers.
• AC Connect Digital forum for community members to share experiences and find support from peers.
• Staff Reductions and Operational Refocusing Initiative to refocus the organization on core services while stabilizing operations through fundraising.

Quantifiable outcome

• Served over 5.6 million Americans with limb loss and limb difference
• +2 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered minor and core.

• Phantom NeurominorGTM or Marketing PartnerLogo partner displayed on the Partner With Us page, indicating partnership in the Amputee Coalition's ecosystem of supporters.
• AtriCureminorGTM or Marketing PartnerLogo partner supporting Amputee Coalition programs and initiatives.
• The Academy (AAOP)coreStrategic or Co-development PartnerAmerican Academy of Orthotists and Prosthetists - strategic partner in education and professional standards for the limb loss community.
• American Orthotic & Prosthetic Association (AOPA)coreStrategic or Co-development PartnerStrategic partnership with the leading orthotic and prosthetic association for industry collaboration.
• Click MedicalminorGTM or Marketing PartnerLogo partner supporting Amputee Coalition initiatives.
• IntegrumminorGTM or Marketing PartnerLogo partner supporting Amputee Coalition initiatives.
• FillauerminorGTM or Marketing PartnerLogo partner supporting Amputee Coalition initiatives.
• ALPSminorGTM or Marketing PartnerLogo partner supporting Amputee Coalition initiatives.
• AvalerecoreStrategic or Co-development PartnerCollaborated with Avalere Health to conduct analysis of insurance claims data for the landmark prevalence study on limb loss and limb difference. Published study titled 'Prevalence of Limb Loss and Limb Difference in the United States: Implications for Public Policy'.
• AbbottcoreStrategic or Co-development PartnerPartnership for educational webinar on chronic pain relief options following limb loss. Dr. Denis Patterson presented on Proclaim DRG Therapy for post-amputation pain.
• National Health CouncilcoreStrategic or Co-development PartnerStandards of Excellence Certification Program participant, demonstrating adherence to highest standards of accountability and transparency for patient advocacy organizations.

Scale indicators9 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Christopher & Dana Reeve Foundation: National nonprofit dedicated to spinal cord injury community providing peer mentoring, advocacy, and resource navigation. Directly comparable as a single-condition disability health nonprofit with federal funding, peer visitor programs, and policy advocacy focus.
• National Multiple Sclerosis Society: Large national health nonprofit serving people with MS through peer support, healthcare navigation, advocacy, and research funding. Comparable mission-driven nonprofit model with similar program mix (peer support, advocacy, navigation, research).
• Paralyzed Veterans of America: National nonprofit serving veterans with spinal cord injury and disabilities including limb loss, providing advocacy, benefits navigation, and peer support. Highly comparable given shared veteran population, federal funding, and disability advocacy focus.
• Muscular Dystrophy Association: Voluntary health organization serving people with neuromuscular diseases through research funding, care center network, and advocacy. Directly comparable as a single-condition voluntary health organization with federal-grade accountability and corporate sponsorship model.

Broad incumbents

• American Cancer Society: Largest US voluntary health organization providing research funding, patient services, and advocacy. Comparable as a broad-incumbent voluntary health organization operating across multiple conditions with national infrastructure and donor-supported model.
• American Heart Association: Large national voluntary health organization providing research, advocacy, and patient support across cardiovascular conditions. Comparable scale of operations, federal advocacy presence in Washington DC, and multi-stakeholder corporate partnership model.
• National Kidney Foundation: National voluntary health organization providing patient education, peer support, advocacy, and research. Comparable mid-sized voluntary health nonprofit with similar program mix and federal advocacy footprint.
• Leukemia & Lymphoma Society: Large voluntary health organization providing patient services, research grants, and advocacy. Comparable as a condition-specific voluntary health nonprofit with similar revenue mix (corporate sponsorships, individual donations, planned giving).

Others

• Avalere Health: Healthcare consultancy that collaborated with the Amputee Coalition on the landmark prevalence study. Relevant as an ecosystem partner/consultant supporting research-driven advocacy rather than a direct competitor.

Emerging players

• National Organization for Disability: National nonprofit focused broadly on disability inclusion and employment. Comparable in cross-disability advocacy scope but lacks the condition-specific peer infrastructure of Amputee Coalition.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/user/AmputeeCoalition
• Facebookfacebook.com/AmputeeUSA
• LinkedInlinkedin.com/company/amputee-coalition-of-america
• Instagraminstagram.com/amputeecoalition
• Xx.com/amputeesusa

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Amputee Coalition