Tourette Association of America

What Tourette Association of America does

The Tourette Association of America (TAA) is a 501(c)(3) nonprofit organization founded in 1972 and headquartered in Bellerose, New York, that serves as the only national entity dedicated exclusively to Tourette Syndrome and Tic Disorders. The organization delivers a unified portfolio of support and educational resources rather than a traditional product platform, including the Find a Provider directory for locating specialists, Toolkits and Guides for comprehensive education, monthly educational webinars, and CBIT (Comprehensive Behavioral Intervention for Tics) treatment resources. Additional offerings include a Local Chapter network, a Youth Ambassador Program for advocacy, and a merchandise store. TAA serves multiple stakeholder segments: patients across all life stages (youth, teens, young adults, adults), family members and caregivers, healthcare providers and medical practitioners, educators and school staff, employers and co-workers, and law enforcement and first responders.

The organization's business model is donation-driven, with revenue generated through charitable contributions from individuals, corporations, and foundations, supplemented by merchandise sales and fundraising events. All resources, support services, and educational materials are provided free of charge to patients and families, with donations being voluntary. The TAA operates a network of Centers of Excellence and maintains a multi-channel distribution approach including organic social media, email newsletters, webinars, in-person events, community and ambassador programs, earned media partnerships, and a comprehensive content library on its website. The organization is governed by a Board of Directors and operates without any parent company, private equity backing, or institutional investors.

Operationally, TAA employs 11-50 staff and maintains a national footprint across the United States through its chapter network and digital presence. The organization marked its 50th anniversary in 2022 and launched its inaugural 5-year Strategic Plan covering FY2023 through FY2028, signaling formalization of long-term objectives. The annual flagship event TIC-CON26 is scheduled in Nashville, TN, continuing a tradition of national in-person conferences. No AI/ML capabilities, APIs, or technology products are disclosed; the organization operates as a traditional nonprofit focused on advocacy, research advancement, and community-based support.

Name

Tourette Association of America

Legal name

Tourette Association of America

Website

https://tsa-usa.org

Company type

Private

Founded year

1972

Operating status

Operating

Headcount range

11–50 employees

Short description

The Tourette Association of America is a 501(c)(3) nonprofit founded in 1972 that serves as the only national organization dedicated to Tourette Syndrome and Tic Disorders, providing free educational resources, advocacy, research support, and community programs to patients, families, healthcare providers, educators, and employers across the United States.

Ownership category

akta.pro rank

Headquarters

HQ city

Bayside

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: As a 501(c)(3) nonprofit organization, the Tourette Association of America generates revenue primarily through charitable donations from individuals, corporations, and foundations. The organization conducts regular fundraising campaigns and events to support its mission of raising awareness, advancing research, and providing ongoing support to patients and families impacted by Tourette Syndrome and Tic Disorders.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels7 records

Core offering

The Tourette Association of America is a 501(c)(3) nonprofit that provides free educational resources, support services, and advocacy for individuals and families affected by Tourette Syndrome and Tic Disorders. Its core offerings include a Find a Provider directory, educational toolkits and guides, free monthly webinars, CBIT treatment resources, a national network of local support chapters, and a Youth Ambassador advocacy program serving patients, families, educators, healthcare providers, employers, and first responders nationwide.

Product overview

The Tourette Association of America offers a unified portfolio of support and educational resources rather than a traditional product platform. The core offerings include the Find a Provider tool for locating specialists, Toolkits & Guides for comprehensive education, monthly Webinars for ongoing learning, and CBIT Resources for treatment information. Additional support is provided through Local Chapter networks, the Youth Ambassador Program for advocacy, and a Merchandise Store. These resources collectively serve patients, families, educators, medical practitioners, and the broader community impacted by Tourette Syndrome and Tic Disorders.

Differentiator

Problem solved

Functional benefit

Products and services

• Find a Provider A searchable online directory that helps patients and families locate healthcare providers who specialize in Tourette Syndrome and Tic Disorders. Designed for patients, families, and referring medical practitioners.
• Toolkits & Guides Comprehensive educational materials and guides covering Tourette Syndrome management and support for patients, families, educators, and medical practitioners.
• Educational Webinars Free monthly educational webinars providing information about Tourette Syndrome, treatment options, and community support for patients, families, and professionals.
• CBIT Resources Information and resources about Comprehensive Behavioral Intervention for Tics (CBIT), the first-line non-medication treatment for Tourette Syndrome, available to patients, families, and healthcare providers.
• Local Chapter Support Network Network of local chapters and support groups providing in-person community connection for children, families, and adults affected by Tourette Syndrome and Tic Disorders.
• Youth Ambassador Program A program that engages young people in advocacy efforts to raise awareness and provide peer support for Tourette Syndrome in their communities.
• TAA Merchandise Store Online merchandise store selling branded apparel and accessories to support the Tourette Syndrome and Tic Disorder community while generating revenue.

Segments6 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat5 records

Customer concentration

• Xx.com/touretteassn
• YouTubeyoutube.com/channel/UC91zpIYK_8Pwu48EZkLetUg
• Facebookfacebook.com/TouretteAssociation
• LinkedInlinkedin.com/company/tourette-association-of-america
• Instagraminstagram.com/touretteassociation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Tourette Association of America