Sickle Cell Foundation
Sickle Cell Foundation is an organization that empowers the well-being of individuals with sickle cell anemia.
- Company typePrivate
- Founded-
- HeadquartersTallahassee, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Sickle Cell Foundation does
Sickle Cell Foundation, Inc. is a 501(c)(3) nonprofit community health organization headquartered at 1336 Vickers Road in Tallahassee, Florida, serving individuals and families affected by sickle cell disease in Leon County and surrounding areas. The foundation operates a direct-service delivery model rather than a technology platform, providing free sickle cell trait screenings via finger-stick blood tests with results in under five minutes, client advocacy interviews, genetic and family planning counseling, peer support through the Defier's Club, transportation coordination to medical appointments, prescription medication assistance, and limited financial aid for utilities, rent, food, and children's clothing. It also runs an annual summer camp program for children with sickle cell anemia and conducts community education and health fair presentations across the region.
The foundation's revenue model is donations-based, supported by individual contributions, corporate and community sponsorships, and recurring fundraising events including annual 5K runs/walks, bowling fundraisers, and a yearly conference. Distribution is regional and largely in-person, augmented by a digital footprint comprising the sicklecellfoundation.org website, Facebook, YouTube, Instagram, an email newsletter, and a recurring Zoom webinar series covering treatment access, mental health, and pharmaceutical education (including sessions featuring Emmaus Life Sciences/Endari). Strategic partners include OneBlood, Florida State University, and a roster of pharmaceutical and gene therapy companies (Pfizer, Novo Nordisk, Bluebird Bio, Emmaus Life Sciences), alongside local Greek-letter organizations, civic groups, and professional services firms. The organization is governed by a board of directors, with Dr. Mildred D. Fennal — inducted into the American Academy of Nursing in 2025 — serving as a board member.
Sickle Cell Foundation firmographics
Firmographics- Name
- Sickle Cell Foundation
- Legal name
- Sickle Cell Foundation, Inc.
- Website
- https://sicklecellfoundation.org
- Company type
- Private
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Sickle Cell Foundation is an organization that empowers the well-being of individuals with sickle cell anemia.
- Ownership category
- akta.pro rank
Sickle Cell Foundation industry classification
Industry- Product category
- Community Health Services
- NAICS
- Voluntary Health Organizations (813212), Individual and Family Services (6241)
- SIC
- Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
Keywords
Where Sickle Cell Foundation is headquartered
LocationHeadquarters
- HQ city
- Tallahassee
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Sickle Cell Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Fundraising: The foundation relies on donations from individuals, corporations, and community members. They conduct fundraising events including 5K runs/walks, bowling fundraisers, and other community events to support their operations and services.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Monthly | Free Services - No cost to clients |
Distribution channels3 records
Marketing channels8 records
Sickle Cell Foundation product offering
Product offeringCore offering
The Sickle Cell Foundation provides free direct services to individuals and families affected by sickle cell disease, including sickle cell trait screenings via finger-stick blood tests with results in under five minutes, client advocacy interviews, peer support groups (Defier's Club), genetic counseling, prescription medication assistance, transportation coordination, financial assistance with utilities, rent, food, and children's clothing, and summer camp opportunities for children with sickle cell anemia. All services are delivered at no cost and are supplemented by community education presentations and health fair outreach across Leon County and surrounding areas.
Product overview
The Sickle Cell Foundation of Leon County, Florida is a non-profit community service organization providing a comprehensive range of services to individuals and families affected by sickle cell disease. The foundation operates a service delivery model rather than a technology platform, offering direct client services including advocacy, education, support groups, screenings, medication assistance, transportation, financial aid, counseling, and summer camps for children. These services are provided directly to the community and do not constitute a software product or technology platform.
Differentiator
Problem solved
Functional benefit
Products and services
- Client Advocacy Personal interview services providing support and guidance to clients affected by sickle cell disease.
- Sickle Cell Screening Free sickle cell trait screenings using finger-stick blood tests with results available in under five minutes, targeting people of childbearing age and the broader community.
- Defier's Club Support Group Peer support group for clients to explore feelings and personal problems related to sickle cell disease, meeting the fourth Friday of each month at noon.
- Counseling Services Free sickle cell screenings and counseling provided at convenient times and locations for interested persons.
- Prescription Medication Assistance Financial assistance with prescription medications for sickle cell-related illnesses for clients who cannot afford them.
- Transportation Services Transportation assistance for sickle cell-related doctor and emergency room visits via independent contractor drivers and gas vouchers.
- Financial Assistance Limited financial assistance with utilities, gas, rent, food, gas mileage, and children's clothing for eligible clients.
- Summer Camps Annual program providing children with sickle cell anemia the opportunity to attend summer camp, with fees and transportation costs covered.
- Health Fair Presentations On-site presentations at health fairs providing sickle cell education and screenings to community members and partner organizations.
- Public Education Community outreach and awareness programs that educate the public about sickle cell anemia, its inheritance, and the difference between sickle cell trait and sickle cell anemia.
- Employment Assistance Employment opportunities posted when available with the Sickle Cell Foundation for clients.
- Sickle Cell Community Education Project Community education initiative presented at the Westchester Sickle Cell Outreach Symposium to spread awareness about sickle cell disease.
Companies that use Sickle Cell Foundation
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles3 records
Sickle Cell Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Sickle Cell Foundation partnerships and signals
Strategic signalPartnerships
15 partnerships are on record, tiered core and minor.
- OneBloodcorePartnership with OneBlood for blood donation drives. The partnership aims to collect blood donations to honor Devaughn Darling's jersey number 53. The collaboration includes community blood drives and events.
- Florida State University (FSU)coreFSU hosts the annual commemoration event for Devaughn Darling, partnering with OneBlood and Sickle Cell Foundation for community blood drives and awareness events.
- Novo NordiskminorPharmaceutical company partner supporting sickle cell awareness and services.
- PfizerminorPharmaceutical company partner supporting sickle cell disease initiatives through Sickle Cell Speaks survey.
- Bluebird BiominorGene therapy company partner for sickle cell disease treatment awareness.
- Emmaus Life SciencesminorMaker of Endari treatment, partnered for educational events and awareness.
- 100 Black Men of Tallahassee AreaminorCommunity organization partner for 5K events and awareness activities.
- Delta Sigma Theta (Tallahassee Alumna Chapter)minorSorority partnership for community events and fundraising.
- Phi Beta Sigma (Chi Phi Chapter)minorFraternity partnership for 5K events and community outreach.
- Alpha Kappa AlphaminorSorority partnership for community events and awareness.
- Chi Eta Phi SororityminorNursing sorority partnership for Sickle Cell Community Education Project.
- Lamar AdvertisingminorBillboards and outdoor advertising for 5K events and awareness campaigns.
- First Commerce CUminorCredit union partner supporting foundation events.
- SmartBankminorBanking partner for foundation support.
- KPMGminorProfessional services firm partnership for Tallahassee location.
Scale indicators2 records
Recent moves6 records
Expansion highlights5 records
Sickle Cell Foundation competitors and assessment
Company assessmentDirect peers
- Sickle Cell Disease Association of America: National umbrella organization serving individuals and families affected by sickle cell disease through education, advocacy, and member chapter support. Directly comparable to the Sickle Cell Foundation in mission (community-based education, screening, and support) and target population (sickle cell patients and carriers).
- Sickle Cell Disease Foundation: California-based community sickle cell organization providing education, counseling, screening, and patient support services. Directly comparable in service model (screening, counseling, advocacy) and beneficiary population, with a larger geographic footprint that the Sickle Cell Foundation could aspire to replicate.
- American Sickle Cell Anemia Association: Northeast Ohio-based sickle cell nonprofit providing screening, education, support groups, and patient services. Operates a near-identical service mix to the Sickle Cell Foundation, with the same community-based, donor-supported model serving sickle cell patients and trait carriers.
- Sickle Cell Foundation of Georgia: Statewide sickle cell organization providing education, screening, counseling, and patient support across Georgia. Directly comparable in mission and services; serves as a model of how the Sickle Cell Foundation could expand into statewide reach from its current regional scope.
- Martin Center Sickle Cell Initiative: Indianapolis-based sickle cell organization offering education, screening, case management, and emergency assistance. Operates a wraparound service model that closely mirrors the Sickle Cell Foundation's bundle of screening plus financial and medication assistance plus advocacy.
- Sickle Cell Coalition: Coalition of sickle cell-focused organizations, clinicians, and patient advocates working to amplify the sickle cell community's policy and research voice. Comparable as a peer organization representing collective sickle cell interests, complementing the foundation's grassroots focus.
Emerging players
- Sick Cells: Patient advocacy organization focused on elevating the voices of sickle cell patients through storytelling, policy advocacy, and awareness campaigns. Comparable in focus on sickle cell awareness and patient advocacy, with a more digital-first and media-driven execution that represents how patient engagement is evolving.
Broad incumbents
- National Organization for Rare Disorders (NORD): Largest U.S. rare disease umbrella organization representing approximately 300 patient communities including sickle cell disease. Provides policy advocacy, research funding, and patient assistance programs across many rare diseases, making it the broad incumbent whose scope encompasses the foundation's niche.
Regional players
- Cayenne Wellness Center: California-based sickle cell nonprofit focused on education, advocacy, and life quality improvements for patients and families. Directly comparable in mission, though serving a different geography; represents how regional sickle cell foundations scale campaigns and partnerships in their territories.
Others
- Be The Match: National Marrow Donor Program operated by NMDP, managing the largest bone marrow registry in the world - critical for sickle cell patients needing matched stem cell donors. Ecosystem peer given overlap in serving sickle cell patients who need curative transplants, with overlapping blood donation partnerships via OneBlood.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat3 records
Key risks5 records
Key highlights7 records
Customer concentration
Sickle Cell Foundation social profiles
Digital presenceSickle Cell Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Sickle Cell Foundation leadership team
Management profileNumber of profiles
Profiles1 record
Sickle Cell Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Sickle Cell Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Sickle Cell Foundation
What does Sickle Cell Foundation do?
The Sickle Cell Foundation provides free direct services to individuals and families affected by sickle cell disease, including sickle cell trait screenings via finger-stick blood tests with results in under five minutes, client advocacy interviews, peer support groups (Defier's Club), genetic counseling, prescription medication assistance, transportation coordination, financial assistance with utilities, rent, food, and children's clothing, and summer camp opportunities for children with sickle cell anemia. All services are delivered at no cost and are supplemented by community education presentations and health fair outreach across Leon County and surrounding areas.
Is Sickle Cell Foundation a public or private company?
Sickle Cell Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Sickle Cell Foundation founded?
Sickle Cell Foundation was founded in -1. It employs 11 to 50 people.
Where is Sickle Cell Foundation based?
Sickle Cell Foundation is headquartered in Tallahassee, United States, in the North America region.
How does Sickle Cell Foundation make money?
One revenue line is on record: donations and Fundraising.
Who are Sickle Cell Foundation's main competitors?
Direct peers on record are Sickle Cell Disease Association of America, Sickle Cell Disease Foundation, American Sickle Cell Anemia Association, Sickle Cell Foundation of Georgia, Martin Center Sickle Cell Initiative and Sickle Cell Coalition. Sick Cells is listed as an emerging player. National Organization for Rare Disorders (NORD) is listed as a broad incumbent. Cayenne Wellness Center is listed as a regional player. Be The Match is listed as an others.
Does Sickle Cell Foundation have an API?
No public API is recorded for Sickle Cell Foundation.
What industry is Sickle Cell Foundation in?
Sickle Cell Foundation's product category is Community Health Services. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations. Its NAICS code is 813212 and its SIC code is 8300.