National Society of Genetic Counselors

What National Society of Genetic Counselors does

The National Society of Genetic Counselors (NSGC) is a nonprofit professional membership organization founded circa 1970 (with one source citing 1979) and headquartered at 330 North Wabash Avenue, Suite 2000, Chicago, Illinois. NSGC represents more than 5,000 masters-level genetic counselors across the United States and positions itself as the leading voice, authority, and advocate for the genetic counseling profession. Its core mission is to ensure public access to genetic counseling and genetic testing through education, research support, advocacy, and professional development.

NSGC's product surface is structured as a platform-based ecosystem rather than a single software product. Core offerings include the nsgc.org website portal, the public-facing Find a Genetic Counselor directory at findageneticcounselor.nsgc.org, an Annual Conference (44th edition held November 2025 in Seattle), an Online Education Center delivering continuing education units (CEUs), two publications (the peer-reviewed Journal of Genetic Counseling and Perspectives in Genetic Counseling), a Career Center, an Expert Media Panel spokesperson network, the Jane Engelberg Memorial Fellowship (JEMF) endowed with $1.5 million, Practice Guidelines, State Chapters, Special Interest Groups (SIGs), and the NSGConnect Mentor Program. Underlying technology is conventional web delivery (website and data hosting handled by vendor Socious based in Mesa, Arizona) with no proprietary technology, patents, or trademarks disclosed.

NSGC operates a four-stream revenue model: (1) recurring annual membership dues providing access to professional resources, SIGs, state chapters, and the Career Center; (2) annual conference registration, CEU fees, and event sponsorship revenue; (3) publication subscriptions and submissions; and (4) advertising and sponsorship income via Premier Sponsor packages and Industry Council membership. Specific pricing is not publicly disclosed; contact is via [email protected] or 312.321.6834. The customer base is primarily individual genetic counselors, with secondary revenue from genomic diagnostics and sequencing firms (named examples include GeneDx and Baylor Genetics as exhibitors and presenters), healthcare providers, research institutions, and patients reached through the Find a Genetic Counselor tool. Federal advocacy, particularly the Access to Genetic Counselor Services Act (H.R. 6280) and the 2025 CPT billing code change, is a strategic lever aiming to expand the addressable market for the profession.

Name

National Society of Genetic Counselors

Legal name

National Society of Genetic Counselors, Inc.

Website

https://nsgc.org

Company type

Private

Founded year

1970

Operating status

Operating

Headcount range

11–50 employees

Short description

The National Society of Genetic Counselors (NSGC) is a U.S.-based nonprofit professional membership organization serving more than 5,000 masters-level genetic counselors through education, advocacy, research support, annual conferences, publications, and a public Find a Genetic Counselor directory, headquartered in Chicago, Illinois.

Ownership category

akta.pro rank

Headquarters

HQ city

Chicago

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Dues: Annual membership fees providing access to professional resources, networking, advocacy, and member benefits including career center, SIGs, and state chapters
2. Conference and Events: Annual conference registration fees, continuing education units, and event sponsorship opportunities
3. Publications: Journal of Genetic Counseling and Perspectives in Genetic Counseling publication access and submissions
4. Advertising and Sponsorship: Premier sponsorships, industry council membership, advertising in publications and at conferences

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

NSGC is a nonprofit professional membership association that serves more than 5,000 masters-level genetic counselors through annual membership, the Annual Conference with continuing education, an Online Education Center offering webinars and CEU credits, peer-reviewed Journal of Genetic Counseling and Perspectives in Genetic Counseling publications, career resources, advocacy for federal Medicare billing access and state licensure, and the permanently endowed Jane Engelberg Memorial Fellowship research awards. Core deliverables also include the public Find a Genetic Counselor directory that connects patients and families with member genetic counselors by location and specialty.

Product overview

NSGC is a professional membership organization serving over 5,000 masters-level genetic counselors, operating as a platform-based ecosystem of interconnected services rather than a single unified software product. The core offerings include the public-facing website portal with the Find a Genetic Counselor directory, the annual professional conference with continuing education, an online education center with webinars and recorded content, and peer-reviewed publications (Journal of Genetic Counseling and Perspectives newsletter). Additional services encompass the Career Center job board, Expert Media Panel spokesperson network, the Jane Engelberg Memorial Fellowship research awards program, Practice Guidelines, and member benefits including state chapters and the NSGConnect mentor program. These services work together to advance the genetic counseling profession through education, advocacy, research support, and public access to genetic counseling services.

Differentiator

Problem solved

Functional benefit

Products and services

• NSGC Website Portal and Membership Primary membership portal providing access to genetic counseling resources, professional development, advocacy tools, and member services for more than 5,000 genetic counselors.
• NSGC Annual Conference Annual professional education event featuring research presentations, continuing education, networking, and exhibitor showcases for genetic counseling professionals.
• NSGC Online Education Center Digital learning platform offering webinars, conference recordings, and continuing education units for genetic counseling professionals.
• Find a Genetic Counselor Directory Public-facing search tool enabling individuals to locate genetic counselors by location and specialty area for patient referrals.
• Perspectives in Genetic Counseling NSGC's official publication featuring articles on AI/ML in genomics, professional insights, and genetic counseling practice perspectives.
• Journal of Genetic Counseling Peer-reviewed academic journal publishing research on genetic counseling theory, practice, and education.
• NSGC Career Center Job board and career development resources connecting genetic counselors with employment opportunities.
• Jane Engelberg Memorial Fellowship (JEMF) Prestigious research award program funding innovative genetic counseling research, service delivery models, and professional development, permanently endowed with $1.5 million.
• NSGC Practice Guidelines Evidence-based clinical guidelines and position statements supporting genetic counseling practice standards.
• NSGC Podcast Series Audio educational content covering topics relevant to the genetic counseling profession and genomic healthcare.
• Expert Media Panel A spokesperson network of NSGC member genetic counselors available for media interviews on genetics and genomics topics.

Quantifiable outcome

• NSGC in the News section shows regular media coverage including major outlets like Washington Post, NPR, Newsweek, Health.com
• +1 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered minor and core.

• GeneDxminorGTM or Marketing Partner · 6 November 2025GeneDx announced participation at NSGC 2025 Annual Meeting to present research on gene-disease discovery, long-read sequencing, and GeneDx Infinity dataset, showcasing advancements in precision medicine diagnostics.
• Baylor GeneticsminorGTM or Marketing Partner · 4 November 2025Baylor Genetics exhibited and presented three poster sessions at NSGC 44th Annual Conference covering rare disease research, whole exome and genome sequencing utility, neurodevelopmental syndrome identification, and RNA-seq evidence of pathogenicity.
• NSGC Premier SponsorscoreGTM or Marketing PartnerNSGC Premier Sponsors program provides industry partners with visibility and access to NSGC members through sponsorship packages at conferences and events.
• Industry CouncilcoreStrategic or Co-development PartnerNSGC Industry Council provides a forum for collaboration between genetic counseling professionals and industry partners, with dedicated resources and engagement opportunities.
• Public Communications Inc.minorGTM or Marketing PartnerPublic Communications Inc. (PCI PR) serves as NSGC's public relations firm, handling media inquiries and interview requests with NSGC spokespersons (contact: [email protected]).

Scale indicators5 records

Recent moves6 records

Expansion highlights6 records

Market position

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/geneticcouns
• Facebookfacebook.com/geneticcounselors

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about National Society of Genetic Counselors