National Cancer Registry Ireland

What National Cancer Registry Ireland does

National Cancer Registry Ireland (NCRI) is Ireland's statutory population-based cancer registry, established by the Irish government in 1991 and operating its data-collection programme since 1994. NCRI collects, analyses, and disseminates comprehensive information on all cancer cases in Ireland — covering approximately 41,700 tumours and 9,800 cancer deaths per year (2020-2022 averages) — and serves as the authoritative national source for cancer incidence, survival, and mortality statistics used by the Health Service Executive, the Department of Health, academic researchers, clinicians, advocacy organisations (notably the Irish Cancer Society), and the general public.

NCRI's product surface comprises six core offerings: an interactive data dashboard for browsing and downloading cancer statistics; a publications programme (annual statistical reports, trend reports, factsheets, infographics, peer-reviewed articles); a structured custom data-request service; an EU-compliant open data portal; county-level cancer incidence maps; and a Secure Data Environment (SDE) launched in June 2026 in partnership with Aridhia. The SDE provides approved researchers with controlled, auditable access to anonymised or pseudonymised cancer data under FAIR data principles, and is positioned for alignment with the European Health Data Space. NCRI participates in European cancer-data initiatives including ENCR, ECIS, CancerWatch Joint Action, and Orion Joint Action.

As a publicly appointed state body, NCRI's revenue model is dominated by direct government funding allocations rather than commercial sales; core data access is free to all users, and revenue-generating activities are limited to commercial data-request fees (€100/hour), FOI internal review fees (€30 / €10 reduced), Information Commissioner review fees (€50 / €15 reduced), and capped search/retrieval charges (€20/hour, €0.04/sheet, ceiling €500-€700). The go-to-market motion is mandate-driven rather than sales-led: engagement is structured through open publication, webinars, European consortium participation, and earned media rather than commercial sales cycles.

Name

National Cancer Registry Ireland

Legal name

National Cancer Registry Ireland

Website

https://ncri.ie

Company type

Private

Founded year

1991

Operating status

Operating

Headcount range

11–50 employees

Short description

National Cancer Registry Ireland (NCRI) is Ireland's statutory population-based cancer registry, established in 1991, collecting and publishing comprehensive data on cancer incidence, survival, and mortality for the entire Irish population.

Ownership category

akta.pro rank

Product category

Cancer Registry Services

NAICS

Information (51)

akta.pro primary industry

Chronic Disease & NCD Program Evaluation (e.g., diabetes/CVD/cancer) (HLAJANAG)

akta.pro secondary industries

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI), Data Privacy, Confidentiality & Statistical Disclosure Control (HLAJAJAN), Data Governance, Standards & Interoperability (ICD, HL7/FHIR, LOINC, SNOMED) (HLAJAJAM)

Keywords

• Cancer registry services
• Cancer surveillance data
• Population health data
• Epidemiology research data
• Cancer statistics reporting

Headquarters

HQ city

Cork

HQ country

Ireland

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations

Revenue model

1. Government Funding: NCRI is a publicly appointed body established in 1991, funded through government allocations as a statutory body. Core operations are supported by public sector funding rather than commercial revenue generation.
2. Data Request Fees: Charges of €100 per hour apply for commercial companies requesting data not routinely published by NCRI. FOI internal review fees of €30 (standard) or €10 (medical card holders) apply. Information Commissioner review fees are €50 (standard) or €15 (medical card holders/third parties). Search, retrieval and photocopying fees apply above €101 threshold, capped at €500 (or €700 upper limit).

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

National Cancer Registry Ireland (NCRI) is a statutory public body that collects, classifies, analyses, and disseminates comprehensive population-based cancer data for Ireland. Its core offerings include interactive data dashboards, cancer incidence and survival statistics, annual statistical reports, cancer factsheets, downloadable incidence maps, open data, a formal data request service for custom queries, and a Secure Data Environment (SDE) for approved researcher access to anonymised individual-level cancer data.

Product overview

National Cancer Registry Ireland operates as a public health data collection and reporting organization rather than a traditional software company. Its product portfolio centers on cancer surveillance data services, comprising an interactive data dashboard for browsing and downloading cancer statistics, published reports and publications (including annual statistical reports, cancer trend reports, factsheets, and infographics), a data request service for custom data queries, an open data initiative compliant with EU Open Data Directive, interactive cancer incidence maps at county level, and a Secure Data Environment (SDE) delivered in partnership with Aridhia for secure researcher access to sensitive cancer data. The offerings range from freely accessible public statistics to controlled-access research platforms, serving public health officials, researchers, clinicians, and the general public.

Differentiator

Problem solved

Functional benefit

Products and services

• Interactive Data Dashboard

Quantifiable outcome

• Cancer diagnosis data collected for an average of 41,700 tumours per year (2020-2022), with national coverage of all cancer cases in Ireland
• +6 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

One partnership is on record.

• AridhiacoreTechnology or Integration · 30 June 2026NCRI partnered with Aridhia to deliver a Secure Data Environment (SDE) for cancer research in Ireland. The SDE provides approved researchers with access to anonymised or pseudonymised cancer data within a secure, controlled digital setting. Aridhia brings advanced technology and expertise supporting a modern, scalable infrastructure for secure research collaboration. The initiative represents a significant step forward in how sensitive health data is accessed and used for research in Ireland.

Scale indicators12 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• National Cancer Institute (NCI): The US federal government's principal agency for cancer research and surveillance (via its SEER program). Directly comparable as a national-level statutory cancer data and research authority, though far larger and operating across research, treatment, and policy.
• International Agency for Research on Cancer (IARC): WHO's specialised cancer research agency that coordinates global cancer surveillance (CI5, GLOBOCAN) and hosts the European Network of Cancer Registries (ENCR) that NCRI participates in. Comparable as the international coordinating body for cancer registry data and methods.

Direct peers

• National Cancer Registration and Analysis Service (NCRAS), NHS England: England's population-based cancer registry within NHS Digital. Most direct functional peer to NCRI — collects, analyses, and disseminates cancer incidence, survival, and treatment data for the entire English population, with similar statutory mandate and European comparability.
• Swedish National Cancer Registry: One of the world's oldest population-based cancer registries (since 1958), operated by Sweden's National Board of Health and Welfare. Comparable scope (national coverage, statutory mandate) and co-participation in European cancer data networks (ENCR, ECIS).
• Cancer Registry of Norway: Norway's population-based cancer registry with national coverage, statutory mandate, and active role in Nordic and European cancer data collaboration. Operates at similar organisational scale and shares NCRI's ENCR/ECIS integration.
• Canadian Cancer Registry (Statistics Canada): Statistics Canada's national cancer registry that compiles population-level incidence and survival data from provincial registries. Comparable as a federally-coordinated population cancer surveillance system, with similar mandate to support research and policy.
• Australian Institute of Health and Welfare (AIHW) — Cancer Database: Australia's national cancer statistics authority (under AIHW), covering incidence, mortality, and survival for the entire Australian population. Comparable as a publicly-funded national cancer surveillance body with similar data dissemination functions.

Others

• European Cancer Information System (ECIS): JRC-operated European cancer data dissemination platform to which NCRI contributes Ireland's data. Comparable as the supranational aggregation/distribution layer that NCRI feeds into, and a key benchmark for cross-country cancer indicator reporting.
• Aridhia: Health-data analytics platform provider that partnered with NCRI in 2026 to deliver its Secure Data Environment. Comparable as the technology ecosystem partner enabling NCRI's secure researcher-access platform and similar SDE deployments for other public-sector health bodies.

Regional players

• Irish Health Service Executive (HSE): Ireland's national health service delivery body and primary NCRI customer. Not a registry peer in the strict sense, but a critical institutional partner for cancer data — comparable as the principal downstream consumer of NCRI's surveillance data for service planning and policy.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/irishcancerreg
• LinkedInlinkedin.com/company/national-cancer-registry-ireland

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about National Cancer Registry Ireland