Institute of Myology

What Institute of Myology does

The Institute of Myology is a French non-profit founded in 1996 under the initiative of AFM-Téléthon and headquartered at the Pitié-Salpêtrière Hospital in Paris. It uniquely integrates clinical care, fundamental research, clinical research, and teaching in myology within a single site, serving patients with neuromuscular diseases, healthcare professionals, and pharmaceutical/biotech sponsors developing rare-disease therapies. Its operations span two clinical trial platforms (I-Motion Pediatric and I-Motion Adult) running 30+ concurrent sponsored trials across 28+ disease categories, five shared expertise platforms (MyoImage, MyoLine, MyoVector, MyoMolBio, MyoDATA), and dedicated laboratories including the Neuromuscular Physiology and Evaluation Laboratory (NeuPEL), the Morphological Unit, and the NMR Laboratory.

Core products and technology include the patented MyoTools family of assessment devices (MyoGrip, MyoPinch, MyoQuad, MyoWrist, MyoAnkle, MoviPlate, Grip-Ball, ELAPS high-resolution EMG, ElecMyo bioimpedancemetry, RespiMyo multi-parametric ultrasound, and the Grip Test), the Myobank-AFM biological resources center, the Muscle Atlas image database (6,000+ biopsy photographs, the first of its kind globally), and the EDS MyoData certified health data repository aggregating 34,000 patient files. Education is delivered through AcadeMYO Summer School (27th edition in 2026, 800+ alumni since 1998), AcadeMYO Winter School, and the Doctoral School Life Science Complexity.

The business model combines grant and institutional funding (primarily AFM-Téléthon plus four public partners — AP-HP, INSERM, Sorbonne Université, and CNRS) with commercial-style revenue streams including sponsored clinical trials, MyoTools device distribution through manufacturer partners (Ateliers Laumonier, Valotec), consultancy services from NeuPEL, and training programs for international healthcare professionals. A dedicated Fondation de Myology is in preparation to broaden the funding base and ensure long-term sustainability.

Name

Institute of Myology

Legal name

Association Institut de Myologie

Website

https://www.institut-myologie.org

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

101–250 employees

Short description

Institute of Myology is a nonprofit company promoting the existence, recognition, and development of myology, muscle science, and medicine.

Ownership category

akta.pro rank

Product category

Neuromuscular Disease Research Services

NAICS

Medical Laboratories (621511), Research and Development in Biotechnology (except Nanobiotechnology) (541714), Research and Development in the Physical, Engineering, and Life Sciences (54171)

SIC

Services-Medical Laboratories (8071), Services-Commercial Physical & Biological Research (8731)

akta.pro industry

PRIMARYHLAKAIAD

Neuromuscular Medicine (ALS, Myasthenia, Neuropathy)

Healthcare & Life Sciences/Specialist Medical Practice/Neurology

SECONDARYHLAKAIAO

Neurogenetics & Rare Neurologic Diseases

Healthcare & Life Sciences/Specialist Medical Practice/Neurology

SECONDARYHLAGAEAB

Specialty & Biomarker Laboratory Services (Immunoassays/Flow/Cytometry)

Healthcare & Life Sciences/Life Science Tools & Services (CRO/CDMO/Lab Services)/Central Labs & Clinical Diagnostics Services (Trial Support)

SECONDARYHLAFAMAL

Clinical Research & Trial Central Laboratories

Healthcare & Life Sciences/Healthcare Providers & Systems/Clinical Laboratories

Keywords

• Neuromuscular disease research
• Clinical trial services
• Muscle pathology diagnostics
• Myology education programs
• Biological sample repository

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Infrastructure, Operations, Others

Revenue model

1. Clinical Trial Sponsorship: The Institute conducts sponsored clinical trials as a research center, working with pharmaceutical companies, biotech firms, and academic sponsors for drug development in neuromuscular diseases.
2. AFM-Téléthon Funding: Primary founding organization providing ongoing financial support. The Institute was created in 1996 under the initiative of AFM-Téléthon, an association of patients and parents of patients.
3. Public Partnership Funding: Partnership with four public institutions: AP-HP, INSERM, Sorbonne Université, and CNRS provides institutional support and research funding.
4. Consultancy Services: The Neuromuscular Physiology and Evaluation Laboratory provides consultancy to academic and industrial clients including study design, clinical metrology, and training services.
5. Device Training and Support: Training services for MyoTools devices (MyoGrip, MyoPinch, MoviPlate) via videoconference or on-site, along with user manuals and data collection software.

Go-to-market motion3 records

Distribution channels5 records

Marketing channels6 records

Core offering

The Institute of Myology is a non-profit research and clinical center in Paris that coordinates fundamental research, applied research, clinical research, and teaching in myology. It operates two clinical trial platforms (I-Motion Pediatric and I-Motion Adults), specialized diagnostic laboratories (Morphological Unit, NMR Lab, NeuPEL), biological and data repositories (Myobank-AFM, EDS MyoData, Muscle Atlas), proprietary muscle assessment devices (MyoTools), and educational programs (AcadeMYO Summer and Winter Schools, Doctoral School).

Product overview

The Institute of Myology operates as a unified research and clinical centre offering products and services organized around three pillars: clinical care (via I-Motion Paediatric and I-Motion Adult clinical trial platforms), research infrastructure (through five shared expertise platforms: MyoImage, MyoLine, MyoVector, MyoMolBio, and MyoData, plus the Neuromuscular Investigation Center with Morphological Unit, NMR Laboratory, and NeuPEL laboratory), and education (AcadeMYO Summer/Winter Schools and Doctoral School). Core products include MyoTools (specialized dynamometers for muscle assessment), Myobank-AFM (biological sample repository), the Muscle Atlas (image database of 6,000+ muscle biopsies), and EDS MyoData (health data repository). The Institute was created in 1996 and is supported by the Association Institut de Myologie established in 2005.

Differentiator

Problem solved

Functional benefit

Brands

• I-Motion: Clinical trials platform for neuromuscular diseases in adults and children, conducting clinical research and managing patient consultations
• Myobank-AFM
• MyoTools
• MyoData
• EDS MyoData

Products and services

• I-Motion Clinical Trial Platforms Two dedicated clinical trial platforms (I-Motion Pediatric at Trousseau Hospital and I-Motion Adults at Pitié-Salpêtrière) conducting sponsored clinical trials in children and adults with neuromuscular diseases, including Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, Myasthenia Gravis, Myotonic Dystrophies, Pompe disease, and other rare diseases for pharmaceutical, biotech, and academic sponsors.
• Myobank-AFM Biological Resources Centre Biological resources center for the collection, preparation, storage, and distribution of human biological resources (fluids and tissues from surgical residues) from patients with neuromuscular diseases, available to researchers worldwide for scientific research purposes.
• MyoTools Assessment Devices A collection of proprietary devices for non-invasive neuromuscular assessment including MyoGrip (high-precision grip strength dynamometer 0-90kg), MyoPinch (pinch strength 0-18kg), MyoQuad (knee extensor strength), MyoWrist, MyoAnkle, MoviPlate (upper limb motor function), MyoTone Test, ELAPS high spatial resolution EMG system, Grip-Ball (connected pressure/temperature sensor), ElecMyo bioimpedancemetry, and RespiMyo multi-parametric ultrasound. Devices include standardized procedures, quality assurance, training services, and consultancy for academic and industrial clients.
• Muscle Atlas (Atlas du Muscle) An exhaustive image database containing over 6,000 photos of muscle biopsies from patients and animals (treated and untreated), representing the first database of its kind in the world. Accessible through a partnership with Zegami, it enables researchers to access and analyze muscle biopsy images for diagnostic and research purposes.
• EDS MyoData Health Data Repository A centralized health data warehouse system certified for health data hosting that stores, organizes, and exploits health data securely for research projects, epidemiological studies, AI studies, and patient cohort follow-up in the field of myology.
• Neuromuscular Physiology and Evaluation Laboratory (NeuPEL) A multidisciplinary laboratory developing innovative non-invasive approaches for assessing the neuromuscular system, motor performance, and physical activity. Provides consultancy services to academic and industrial clients including study design, clinical metrology, training services, and the Grip Test for metabolic muscular disease diagnosis with 100% sensitivity for GSD5 (McArdle disease) and 99.7% specificity.
• Morphological Unit A laboratory dedicated to morphological identification and characterization of genetic neuromuscular diseases through histo-enzymological analyses, immunocytochemical analyses, ultrastructural analyses, and Western blot analysis of muscle biopsies from patients.
• NMR Laboratory A laboratory for imaging and spectroscopy by nuclear magnetic resonance, developing quantitative MRI and spectroscopy methods for muscle evaluation in neuromuscular disease patients.
• Myocare Department A department dedicated to developing clinical assessment, clinical research, producing recommendations, and training healthcare professionals in neuromuscular assessment and rehabilitation.
• AcadeMYO Summer School An annual condensed training course in myology for French and foreign healthcare professionals, covering diagnosis, genetics, therapy, and clinical management of muscle diseases. Has trained over 800 students since 1998 with the 27th edition held in 2026.
• AcadeMYO Winter School An online winter session of the Myology training program held in December, providing condensed myology training for international healthcare professionals.
• Doctoral School Life Science Complexity (ED394) A doctoral school hosted at the Institute of Myology providing PhD programs in physiology and pathophysiology.
• Service of Neuro-Myology Consultations Multidisciplinary consultations for adults with neuromuscular diseases, including two reference centers for muscular canalopathies and neuromuscular diseases. Provides expert diagnosis, therapeutic management, genetic counseling, and patient support for those with genetic and acquired neuromuscular conditions.

Quantifiable outcome

• Grip Test achieves 100% sensitivity and 99.7% specificity for glycogen storage disease 5 (McArdle disease) diagnosis
• +4 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles4 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration1 record

AI capability5 records

Feature11 records

Partnerships

Nine partnerships are on record, tiered major, core and minor.

• GenoThermajorStrategic or Co-development Partner · 9 July 2026European consortium focused on accelerating advances in genetic medicine. The Institute is engaged in GenoTher to contribute its expertise in myology and neuromuscular diseases to the consortium's research objectives.
• AP-HP (Assistance Publique - Hôpitaux de Paris)coreStrategic or Co-development PartnerPublic hospital system partner providing clinical infrastructure and institutional affiliation for the Institute's activities at Pitié-Salpêtrière and Trousseau hospitals.
• INSERMcoreStrategic or Co-development PartnerFrench National Institute of Health and Medical Research providing research framework and scientific expertise for the Institute's research programs.
• Sorbonne UniversitécoreStrategic or Co-development PartnerUniversity partner providing academic affiliation, doctoral school connections (ED394 Physiology Pathophysiology), and research collaboration framework.
• CNRScoreStrategic or Co-development PartnerFrench National Centre for Scientific Research providing additional research framework and scientific collaboration opportunities.
• European Reference Network EURO-NMDmajorStrategic or Co-development PartnerEU-funded network connecting expert centers for rare neuromuscular diseases. The Institute collaborates with EURO-NMD for the AcadeMYO Summer School and shares expertise across the European network.
• Troyes Technology UniversityminorStrategic or Co-development PartnerAcademic partner for Grip-Ball development, contributing to connected rehabilitation device innovation.
• Biomaps Laboratory (Paris-Sud University - CEA)minorStrategic or Co-development PartnerResearch collaboration for RespiMyo project on multi-parametric ultrasound imaging of muscles.
• Radboud-UMC University Hospital (Netherlands)minorStrategic or Co-development PartnerInternational research partner for RespiMyo diaphragm assessment project.

Scale indicators7 records

Recent moves7 records

Expansion highlights6 records

Others

• AFM-Téléthon: Parent organisation and primary funder of the Institute of Myology; French patient-association for neuromuscular diseases that also controls affiliated entities (Généthon, I-Stem). Comparable as ecosystem orchestrator but is a funder/parent, not a direct operational peer.
• Atamyo Therapeutics: Clinical-stage gene-therapy company developing AAV treatments for NMDs (façioscapulohumeral and limb-girdle muscular dystrophies) and a named sponsor of trials at I-Motion. Comparable as a customer/partner inside the institute's clinical-trial ecosystem.
• Sarepta Therapeutics: Commercial-stage biotech developing DMD therapeutics (Elevidys and follow-on programs) and a named clinical-trial sponsor at I-Motion. Comparable as a customer/partner and as the kind of gene-therapy sponsor the institute supports through MyoTools outcome measures.

Emerging players

• Généthon: Sister AFM-Téléthon laboratory developing gene-therapy products for neuromuscular diseases and a named clinical-trial sponsor of the Institute (referenced in I-Motion trials). Highly comparable as a translational myology/gene-therapy organisation under the same parent.
• I-Stem: Sister AFM-Téléthon institute focused on stem-cell therapies for monogenic diseases including neuromuscular disorders. Comparable as a non-profit translational research centre under the same parent ecosystem, with overlapping rare-disease focus.
• Parent Project Muscular Dystrophy: US non-profit focused on Duchenne muscular dystrophy, funding research, care, and advocacy. Comparable as a patient-organisation-funded specialist in a single NMD indication.
• CureDuchenne: US non-profit focused exclusively on Duchenne muscular dystrophy funding research and clinical-trial advancement. Comparable niche non-profit operating in the same neuromuscular space.

Broad incumbents

• MDA (Muscular Dystrophy Association): Large US non-profit funding neuromuscular disease research, care, and advocacy with a national network of MDA Care Centers. Overlaps with the Institute on neuromuscular disease expertise, clinical care networks, and research funding.

Direct peers

• TREAT-NMD Alliance: Global network coordinating neuromuscular disease research infrastructure, outcome measures, and patient registries. Directly comparable to the Institute's coordinating role for French NMD consultations and clinical-trial readiness.
• ERN EURO-NMD: European Reference Network for rare neuromuscular diseases, of which the Institute is a member node. Directly comparable as a coordinating reference network for NMD diagnostics and clinical research across Europe.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/Inst_Myologie
• Facebookfacebook.com/186193561422693
• LinkedInlinkedin.com/company/institut-de-myologie

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles11 records

Subsidiaries4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Institute of Myology