European Patients Forum

What European Patients Forum does

European Patients' Forum (EPF) is a Brussels-based nonprofit umbrella organization founded in 2003 that represents 81 patient organizations across Europe, including disease-specific patient groups active at the EU level and national coalitions of patients. EPF's core function is policy advocacy, capacity building, and representation, with the goal of incorporating patient perspectives into EU health policy across areas including pharmaceutical legislation, health technology assessment, medical devices regulation, digital health, antimicrobial resistance, and AI in healthcare. Its portfolio comprises resource hubs (AI Knowledge Hub, HTA Info Point, AMR Info Point), the proprietary EPF Barometer benchmarking tool, a Capacity Building Programme launched in 2012, the EPF Youth Group and STYPA training course, a biennial EPF Congress, and advocacy campaigns such as the Patient Empowerment Campaign and the #Access2030 Universal Health Coverage campaign.

Name

European Patients Forum

Legal name

European Patients' Forum

Website

https://www.eu-patient.eu/

Company type

Private

Founded year

2003

Operating status

Operating

Headcount range

11–50 employees

Short description

European Patients' Forum is a Brussels-based nonprofit umbrella organization founded in 2003 that represents 81 patient organizations across Europe through EU-level policy advocacy, capacity building, and resource hubs covering AI, HTA, and antimicrobial resistance.

Ownership category

akta.pro rank

Headquarters

HQ city

Brussels

HQ country

Belgium

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership fees: EPF operates as an umbrella organization supported by membership contributions from patient organizations across Europe.
2. EU Funding and Operating Grants: EPF receives operating grants under EU4Health programme and other EU funding mechanisms for health-related projects and initiatives.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels5 records

Core offering

European Patients' Forum (EPF) is a Brussels-based nonprofit umbrella organisation that represents 81 patient organisations across Europe and disease areas. It delivers patient advocacy and policy representation at the EU level, capacity-building training, thematic resource hubs (EPF Barometer, AI Knowledge Hub, HTA Info Point, AMR Info Point), youth engagement (STYPA), the biennial EPF Congress, and advocacy campaigns such as Patient Empowerment and #Access2030.

Product overview

European Patients Forum (EPF) operates as an umbrella organisation representing 81 patient organisations across Europe. The organisation does not offer a single unified product but rather provides a portfolio of programmes, resource hubs, advocacy campaigns, and events. Key offerings include: the EPF Barometer (research assessment tool), the AI Knowledge Hub, HTA Info Point, and AMR Info Point (three thematic resource hubs), the Capacity Building Programme (training modules for patient organisations), the EPF Youth Group (with STYPA training), the EPF Congress (biennial conference), and advocacy campaigns including the Patient Empowerment Campaign and the #Access2030 Universal Health Coverage Campaign. These offerings are interconnected through EPF's policy and advocacy mission to ensure patient voices are incorporated into EU health policy.

Differentiator

Problem solved

Functional benefit

Brands

• EPF Barometer: First-of-its-kind initiative assessing how patient organisations are involved in health policymaking across Europe
• EPF Youth Group
• European Patients' Academy (EUPATI)
• EMPATHY
• STYPA

Products and services

• EPF Barometer A first-of-its-kind research assessment initiative evaluating how patient organisations are involved in health policymaking across Europe, offering benchmarking data for the patient advocacy community.
• AMR Info Point A dedicated resource providing extensive information on Antimicrobial Resistance (AMR) to improve awareness and understanding among patient communities.
• HTA Info Point A resource hub on Health Technology Assessment (HTA), a systematic evaluation process for assessing the properties, effects, and impacts of health technologies including medical devices, drugs, and healthcare policies.
• AI Knowledge Hub A dedicated platform helping patient organisations and stakeholders engage in debates, projects and initiatives on AI in healthcare at national and European levels.
• Capacity Building Programme A training programme for patient organisations covering leadership, governance, fundraising, and advocacy skills.
• EPF Youth Group A youth engagement initiative supporting young patient advocates through training, networking events, and the STYPA (Skills Training Course for Young Patient Advocates) programme.
• EPF Congress A European congress on patient involvement bringing together patient organisations, healthcare professionals, policymakers, and industry stakeholders to discuss digital transformation of healthcare and patient-centred care.
• Patient Empowerment Campaign A campaign focused on patient empowerment featuring the Patient Empowerment Charter with 10 fundamental principles and various advocacy initiatives.
• Access Campaign (#Access2030) A campaign focused on achieving Universal Health Coverage for All by 2030, developing a roadmap and advocacy strategies for equitable access to healthcare.
• European Patients' Academy (EUPATI) Patient education and training on medicines research and development, clinical trials, and regulatory processes, directed by EPF.
• STYPA (Skills Training Course for Young Patient Advocates) Skills training course for young patient advocates delivered through the EPF Youth Group.

Quantifiable outcome

• 81 patient organizations represented across Europe

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• European Medicines Agency (EMA)coreStrategic or Co-development PartnerEPF maintains formal representation on EMA's Management Board and participates in various EMA committees and working parties including the Patients' and Consumers' Working Party, contributing to regulatory discussions and patient involvement in medicine evaluation.
• EU4Health Civil Society AlliancecoreStrategic or Co-development PartnerEPF is a member of the EU4Health Civil Society Alliance, collaborating with other health NGOs to advocate for health as an EU policy priority and sustainable funding for civil society health organizations.
• European Alliance for Value in HealthcoreStrategic or Co-development PartnerEPF participates in this alliance focused on value-based healthcare approaches, contributing the patient perspective to discussions on health system effectiveness and sustainability.
• SDG Watch EuropeminorStrategic or Co-development PartnerEPF joined SDG Watch Europe as a member, engaging with broader sustainable development agenda alignment in health policy.
• EUPATI (European Patients' Academy on Therapeutic Innovation)coreStrategic or Co-development PartnerEPF directs EUPATI activities, providing patient education and training on medicines research and development, clinical trials, and regulatory processes.
• EURORDIS (European Organisation for Rare Diseases)coreStrategic or Co-development PartnerCollaborative partner on rare disease policy, joint statements on access to medicines, and shared advocacy efforts for patient-centered healthcare.
• European Federation of Pharmaceutical Industries and Associations (EFPIA)coreGTM or Marketing PartnerEPF participates in Patient-MedTech Dialogue workshops and EFPIA Think Tank events, providing patient perspective on pharmaceutical development and access.
• EUnetHTAcoreStrategic or Co-development PartnerEPF is invited to participate in EUnetHTA Stakeholder Forum, contributing to EU-level health technology assessment collaboration and patient involvement in HTA processes.

Scale indicators1 record

Recent moves9 records

Expansion highlights6 records

Direct peers

• EURORDIS - Rare Diseases Europe: Brussels-based umbrella of rare disease patient organizations across Europe. Operates the same membership-based, EU-policy advocacy model as EPF and is a direct peer in representing patient voices in EU health legislation and HTA.
• International Alliance of Patients' Organizations (IAPO): Global umbrella of patient organizations advocating for patient-centred healthcare worldwide. Mirrors EPF's advocacy and capacity-building mission at a global level and competes for the same WHO and multistakeholder engagement space.
• European Public Health Alliance (EPHA): Brussels-based alliance of public health NGOs engaging on EU health policy, including medicines access and digital health. Operates in the same Brussels advocacy ecosystem with overlapping policy areas but broader public-health framing than EPF's patient-centric focus.
• European Cancer Patient Coalition (ECPC): Europe-wide umbrella of cancer patient organizations. Runs the same membership-driven, EU-policy advocacy model as EPF but focused specifically on oncology; competes with EPF for cancer-related policy influence and EU grant funding.

Broad incumbents

• NCD Alliance: Global umbrella dedicated to non-communicable disease advocacy, with strong EU and UN policy engagement. Larger and more established than EPF, with overlapping patient-advocacy and policy-shaping capabilities across chronic disease areas.

Regional players

• European Heart Network (EHN): Brussels-based network of heart-focused patient organizations and foundations active in EU cardiovascular health policy. Same regional scope and umbrella structure as EPF, but narrower disease focus.
• Alzheimer Europe: European umbrella for Alzheimer and dementia patient organizations, based in Luxembourg. Compares to EPF in its membership model and EU-level advocacy focus, with deep engagement in HTA and medicines access — areas where EPF is also active.
• European Federation of Neurological Associations (EFNA): Brussels-based umbrella representing neurology patient groups across Europe. Operates a similar EU-policy advocacy and capacity-building model to EPF, with focus on brain and neurological conditions.

Emerging players

• European Patients' Academy on Therapeutic Innovation (EUPATI): Patient education programme on medicines R&D jointly run by EPF and other partners. Closely intertwined with EPF (EPF directs its activities) and competes for the same training, EU project, and patient-engagement funding streams.
• Health Action International (HAI): Amsterdam-based NGO advocating for medicines access, rational medicine use, and patient safety globally. Overlaps with EPF in EU medicines policy and access-to-healthcare advocacy (e.g., #Access2030), though with a more global footprint.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat5 records

Customer concentration

• Xx.com/eupatientsforum
• YouTubeyoutube.com/eupatient
• Facebookfacebook.com/EuropeanPatientsForum
• LinkedInlinkedin.com/company/about

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Subsidiaries1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about European Patients Forum