Chronic Disease Research Group

What Chronic Disease Research Group does

Chronic Disease Research Group (CDRG) is a Minneapolis-based biomedical research division of the Hennepin Healthcare Research Institute (HHRI), a non-profit academic research foundation affiliated with Hennepin Healthcare System. The organization administers two core national federal registries: the United States Renal Data System (USRDS), operated under contract with the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the NIH under Award Number 75N94024C00001, and the Scientific Registry of Transplant Recipients (SRTR), operated under contract with the Health Resources and Services Administration (HRSA). CDRG also runs the Living Donor Collective, a registry tracking long-term outcomes of living kidney and liver donors.

The organization's underlying technology stack consists of large-scale national healthcare data registries, epidemiological and biostatistical analysis infrastructure, and biostatistics/epidemiology pipelines that produce standardized annual data reports, program-specific transplant performance reports, and peer-reviewed publications. Research outputs are delivered as Excel workbooks with methodology and definitions tabs, Word reports with full methodological documentation, slide presentations for internal sponsor groups, and journal publications in outlets such as JASN, American Journal of Transplantation, and Transplantation.

CDRG's revenue model is 100% non-commercial, funded entirely through federal government contracts (HRSA for SRTR, NIDDK/NIH for USRDS) and ancillary NIH research grants. CDRG does not sell commercial products or services and has no public pricing. Its customer base is concentrated in federal healthcare agencies (HRSA, NIH/NIDDK, CMS, OPTN) and academic/clinical research collaborators, with applied research spanning nephrology, oncology, transplantation, bone & mineral, cardiology, hepatology, and inflammation.

Name

Chronic Disease Research Group

Legal name

Chronic Disease Research Group

Website

https://cdrg.org

Company type

Private

Founded year

1999

Operating status

Operating

Headcount range

51–100 employees

Short description

CDRG is a Minneapolis-based biomedical research division of Hennepin Healthcare Research Institute that administers two U.S. national registries—the USRDS for chronic kidney disease and the SRTR for solid organ transplantation—under federal contracts with NIH/NIDDK and HRSA.

Ownership category

akta.pro rank

Product category

Clinical Research Services

NAICS

Medical Laboratories (621511)

SIC

Services-Commercial Physical & Biological Research (8731)

akta.pro industry

PRIMARYHLACAIAH

Clinical Data Repositories (CDR) & Longitudinal Patient Records

Healthcare & Life Sciences/Digital Health & Health IT/Healthcare Data Platforms, Warehousing & Governance

Keywords

• Chronic disease research
• Kidney disease registry
• Transplant epidemiology
• Biostatistics services
• Healthcare data analytics

Headquarters

HQ city

Minneapolis

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations

Revenue model

1. Federal Government Contracts: CDRG operates under federal contracts with Health Resources and Services Administration (HRSA) for SRTR and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK/NIH) for USRDS. Funding is 100% supported by NIDDK/NIH (Award Number 75N94024C00001). The organization is a division of Hennepin Healthcare Research Institute, a non-profit academic research foundation.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

CDRG conducts observational, clinical, and epidemiological studies into chronic diseases—nephrology, oncology, transplantation, bone & mineral, cardiology, hepatology, and inflammation—using teams of biostatisticians, epidemiologists, physician investigators, and medical writers. It administers three national federal registries—USRDS (chronic kidney disease and ESRD surveillance), SRTR (solid organ transplant recipients, candidates, and donors), and the Living Donor Collective—and delivers outputs as Excel worksheets, Word reports, slide presentations, and peer-reviewed publications.

Product overview

CDRG operates as a research organization administering three major federal registry systems: the United States Renal Data System (USRDS) for kidney disease surveillance, the Scientific Registry of Transplant Recipients (SRTR) for organ transplant monitoring, and the Living Donor Collective for living donor tracking. These registries are supported by research and analytics services that produce annual data reports, program-specific analyses, and peer-reviewed publications on chronic diseases including nephrology, oncology, transplantation, bone & mineral, cardiology, hepatology, and inflammation. The organization delivers research outputs as Excel data files with tables of contents, Word reports with methodology documentation, and slide presentations.

Differentiator

Problem solved

Functional benefit

Products and services

• United States Renal Data System (USRDS) National registry administered by CDRG that collects, analyzes, and distributes information about chronic kidney disease (CKD) and end-stage renal disease (ESRD) in the United States, producing annual data reports on disease prevalence, treatment patterns, and outcomes for federal agencies, researchers, and policymakers.
• Scientific Registry of Transplant Recipients (SRTR) National registry of data on all solid organ transplant candidates, recipients, and deceased donors that monitors the performance of the U.S. transplant system, produces program-specific reports, and provides analytic support to OPTN for organ allocation policy.
• Living Donor Collective Registry administered through SRTR that evaluates participants to become living liver or kidney donors and studies long-term outcomes of living donors to inform the field of living organ donation.
• Research and Analytics Services Observational, clinical, and epidemiological studies examining patient outcomes, patterns of care, clinical practice changes, and health economics and policy implications, delivered as Excel worksheets, Word reports, and slide presentations to federal agencies, academic collaborators, and research partners.

Quantifiable outcome

• CDRG releases annual data reports tracking CKD and ESRD prevalence, treatment outcomes, and healthcare disparities affecting 37 million adults with CKD
• +1 more outcomes

Named customers5 records

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Eight partnerships are on record, tiered core, major, strategic and supporting.

• Health Resources and Services Administration (HRSA)coreStrategic or Co-development Partner · 21 September 2020HRSA awarded CDRG (through HHRI) the federal contract to operate the Scientific Registry of Transplant Recipients (SRTR). SRTR evaluates the status of the nation's solid organ transplant system and provides analytic support to the Organ Procurement and Transplantation Network (OPTN) for organ allocation policy. This was the third contract term; HHRI has operated SRTR since 2010.
• National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK/NIH)coreStrategic or Co-development Partner · 13 June 2019NIDDK/NIH awarded CDRG the United States Renal Data System (USRDS) federal contract. The USRDS is a national registry that collects, analyzes, and distributes information about chronic kidney disease (CKD) and end-stage renal disease (ESRD) in the United States. 100% of funding supported by NIDDK of the NIH under Award Number 75N94024C00001.
• Hennepin Healthcare Research Institute (HHRI)coreStrategic or Co-development PartnerCDRG is a division of HHRI, a non-profit academic research foundation headquartered in Minneapolis, MN. HHRI is the research arm and a non-profit subsidiary of Hennepin Healthcare System, Inc. HHRI ranks nationally in the top 10% of institutions receiving NIH funding.
• United Network for Organ Sharing (UNOS)majorTechnology or IntegrationUSRDS collaborates with UNOS, sharing datasets and actively working to improve the accuracy of information on patients with ESRD. SRTR also provides analytic support to OPTN (operated by UNOS) for organ allocation policy.
• Centers for Medicare & Medicaid Services (CMS)majorStrategic or Co-development PartnerUSRDS collaborates with CMS, sharing datasets and actively working to improve the accuracy of ESRD patient information. CMS data is used extensively in USRDS analyses.
• LifeSourcestrategicStrategic or Co-development PartnerCollaboration on NIH research grant (R01) to study methods to use national registry data from SRTR to develop equity-focused tools modeled after a Learning Health System approach. LifeSource is the OPO serving Minnesota, South Dakota, North Dakota, and parts of Wisconsin.
• Organ Procurement and Transplantation Network (OPTN)majorStrategic or Co-development PartnerSRTR provides analytic support to OPTN for purposes including the formulation and evaluation of organ allocation policies in the United States. CDRG operates SRTR which supports OPTN policymaking committees.
• ESRD NetworkssupportingTechnology or IntegrationUSRDS collaborates with ESRD networks, sharing datasets and actively working to improve the accuracy of information on patients with ESRD.

Scale indicators8 records

Recent moves9 records

Expansion highlights5 records

Broad incumbents

• Duke Clinical Research Institute: Large academic clinical research organization conducting NIH- and industry-funded clinical trials, registries, and health outcomes research. Comparable as a large-scale academic research enterprise with registry and biostatistics infrastructure.
• RAND Corporation: Large, diversified non-profit research institution with a healthcare division conducting federal contract research, health policy analysis, and epidemiology. Comparable in federal contract research model, though with much broader scope than CDRG.

Direct peers

• Mathematica: Research and data analytics firm with a substantial health division that conducts federal contract research on health system performance, ESRD, and CMS-related programs. Strongly comparable in federal health data analytic work.
• Westat: Employee-owned research corporation that performs large-scale data collection, statistical analysis, and clinical/epidemiological studies under federal contracts. Comparable in business model and federal contract orientation.
• NORC at the University of Chicago: Independent research organization affiliated with a major university that conducts large-scale federal survey, health, and epidemiology research. Direct peer in the federal-contract clinical research space.
• RTI International: Non-profit research institute that conducts large-scale federal contract research in epidemiology, health services, and clinical data analytics. Highly comparable as a federal-contractor research organization with biostatistics and population health expertise.
• Arbor Research Collaborative for Health: Non-profit research organization that has historically administered the SRTR (the same registry now run by CDRG) and conducts kidney disease and chronic disease outcomes research. The most direct functional peer to CDRG in nephrology epidemiology and federal registry work.

Others

• United Network for Organ Sharing (UNOS): Non-profit that operates OPTN under federal contract and is a key data-sharing partner with CDRG. Adjacent to CDRG's work rather than a competitor, but operates in the same transplant registry ecosystem.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/CDRGNews
• LinkedInlinkedin.com/company/3718513

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Chronic Disease Research Group