Ågrenska

What Ågrenska does

Ågrenska AB (svb) is a Swedish non-profit organization, 100% owned by the Stiftelsen Grosshandlare Axel H. Ågrens Donationsfond (a foundation with over 100 years of history), that delivers residential and outpatient support services for people with rare health conditions and disabilities — primarily children (0–18) and their families, as well as affected adults and siblings. Operations are anchored at a dedicated campus on Lilla Amundön island near Gothenburg (Hovås), comprising multiple named buildings (Stenhuset, Akademin, Gula huset, Villan, Hamnkontoret, Gråbo, Öbo, Vinga) that house week-long family stays, short-term respite care, sibling camps, neurodevelopmental support (ADHD/autism), daily activity programs for adults, and a course/training academy.

The core product mix comprises seven service lines — Family Stays (vistelser), Short-Term Care & Camps, Personal Assistance, Education & Training, Neurodevelopmental Support, Daily Activities, and the Information Centre for Rare Health Conditions — supplemented by digital channels: a diagnostic content library used as input to Socialstyrelsens national knowledge database, diagnosis-specific web pages, web-based courses, and an event calendar. There is no public API, no third-party integrations, and no documented AI or proprietary platform; the underlying "technology" is a conventional accessible web stack with the Paloma newsletter platform and an SEO-oriented information resource targeting families searching for rare-disease support.

Commercially, Ågrenska is funded through a blended non-profit revenue stack: charitable donations and monthly giving, recurring collaboration and public support from Swedish regions (notably Västra Götalandsregionen), membership fees, and ancillary conference/catering revenue generated from the campus facilities. Programs for families are free at the point of delivery, and pricing is not publicly disclosed. Distribution is community-led: healthcare system referrals, patient-organization referrals (Riksförbundet Sällsynta diagnoser), and direct regional outreach. Internationally, Ågrenska co-founded the NGO Committee for Rare Diseases with EURORDIS in 2016 and participates in the European RareResourceNet competence-center network (founded 2018); operations are also run through a sister organization in Estonia (Eesti Agrenska).

Name

Ågrenska

Legal name

Ågrenska AB (svb)

Website

https://agrenska.se

Company type

Private

Founded year

1914

Operating status

Operating

Headcount range

251–500 employees

Short description

Swedish non-profit (100% owned by a 100+ year-old foundation) providing family stays, respite care, sibling camps, personal assistance, training, and a rare-disease information centre on its Lilla Amundön campus for children, adults, and families affected by rare health conditions.

Ownership category

akta.pro rank

Product category

Disability and rare disease support services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Services for the Elderly and Persons with Disabilities (62412), Other Residential Care Facilities (62399), Residential Intellectual and Developmental Disability Facilities (62321), Nursing and Residential Care Facilities (623)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Nursing & Personal Care Facilities (8050), Services-Home Health Care Services (8082), Services-Specialty Outpatient Facilities, Nec (8093)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

akta.pro secondary industries

Chronic Care & Complex Care Management (HSABAIAD), Adult Day Nursing & Chronic Disease Management Programs (HLADAIAE), Housing Transition & Supported Living Navigation (EDAKANAK), Geriatric Rehabilitation Programs (HLADAJAL)

Keywords

• Rare disease support
• Disability family services
• Residential family stays
• Personal assistance care
• Diagnosis-specific education

Headquarters

HQ city

Hovås

HQ country

Sweden

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Infrastructure, Marketing or Sales, Technology or R&D

Revenue model

1. Donations and gifts: Ågrenska receives charitable donations from individuals and organizations. They have a gift shop and accept monthly donors.
2. Government and public funding: Operates in collaboration with Västra Götalandsregionen and other Swedish regions. Receives public support as a complement to healthcare and social services.
3. Membership fees: Offers membership options for supporters and families.
4. Conference and catering services: Generates revenue through conference facilities rental and catering services.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Ågrenska is a Swedish nonprofit that provides residential family stays, short-term care and camps, personal assistance, education, neurodevelopmental support, daily activities for adults, and an Information Centre for Rare Health Conditions for children and families affected by rare diagnoses and disabilities. These services are delivered at the Lilla Amundön campus near Gothenburg and supplemented by diagnosis-specific web pages, training courses, and an international advocacy program co-founded with EURORDIS.

Product overview

Ågrenska is a non-profit organization (owned by the Axel H. Ågren Foundation with over 100 years of history) offering a portfolio of support services for people with rare health conditions and disabilities, primarily children and their families. The core offerings consist of family stays, short-term care and camps, personal assistance, education, neurodevelopmental support, daily activities, and a specialized information centre for rare health conditions. These services are delivered at Ågrenska's facilities on Lilla Amundön near Gothenburg, Sweden, supplemented by an online presence that includes diagnosis-specific web pages, an event calendar, and a newsletter. Internationally, Ågrenska co-founded the NGO Committee for Rare Diseases and operates a sister organization in Estonia. The organization also runs sibling support programs, family counselling, and publishes educational materials. The overall architecture is a service-oriented non-profit model rather than a software product platform; there is no public API, no documented AI capabilities, and no third-party product integrations.

Differentiator

Problem solved

Functional benefit

Products and services

• Vistelser på Ågrenska (Family Stays) Week-long residential programs for families of children with rare health conditions, combining structured diagnosis-specific courses, medical lectures, peer support and exchange of experiences on the Lilla Amundön campus.
• Korttidsverksamhet och läger (Short-Term Care and Camps) Short-term care facilities and camps providing respite care, group activities and sibling camps for children with disabilities and their siblings.
• Personlig assistans (Personal Assistance) Personal assistance services for individuals with disabilities, providing support in daily life activities.
• Utbildning (Education and Training) Education and training programs including diagnosis-specific courses on request for parents, professionals, and siblings about rare health conditions and disabilities, available on-site and via streaming.
• Stöd vid neuropsykiatriska funktionsnedsättningar (Neurodevelopmental Support) Specialized support services for individuals with neurodevelopmental disabilities, including ADHD and autism.
• Daglig verksamhet (Daily Activities) Daily activity programs for adults with disabilities, offering structured daytime activities and social engagement.
• Informationscentrum för sällsynta hälsotillstånd (Information Centre for Rare Health Conditions) Information center that produces and quality-assures content on rare health conditions for Socialstyrelsen's knowledge database and operates a question function for the public.
• Ågrenskas diagnossidor (Diagnosis-Specific Web Pages) Structured web pages for specific rare diagnoses (e.g., Apert syndrome, childhood stroke, ultra-rare syndromes, childhood cancer) containing lecture summaries, personal stories, resources, and societal support information.
• Konferens, möten och catering (Conference, Meeting and Catering) Rental of conference and meeting facilities plus catering services at Ågrenska's Hovås campus, generating supplementary revenue to support the organization's mission.

Quantifiable outcome

• Over 6,000 rare diseases identified affecting up to 6% of world population (300 million people globally)
• +2 more outcomes

Named customers10 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

14 partnerships are on record, tiered core, major and minor.

• EURORDIS – Rare Diseases EuropecoreStrategic or Co-development Partner · 1 January 2016Ågrenska co-founded NGO Committee for Rare Diseases with EURORDIS in 2016. The committee works within the UN system to increase visibility and rights for people with rare diseases globally.
• Rare Disease InternationalcoreStrategic or Co-development PartnerInternational alliance of patient organizations working to improve quality of life for people with rare diseases globally.
• RareResourceNetmajorStrategic or Co-development PartnerEuropean network of competence centers for rare diseases established in 2018 to promote holistic, high-quality care and services.
• Eesti AgrenskacoreStrategic or Co-development PartnerÅgrenska's sister organization in Estonia operating national center for children, youth, and adults with disabilities and their families.
• Västra GötalandsregionencoreStrategic or Co-development PartnerRegional healthcare provider collaboration for Swedish rare disease support services.
• SocialstyrelsencoreStrategic or Co-development PartnerSwedish National Board of Health and Welfare. Ågrenska's Information Center produces content for Socialstyrelsens knowledge database on rare diseases.
• BarncancerfondencoreStrategic or Co-development PartnerSwedish Childhood Cancer Fund collaborates with Ågrenska on family stays for children treated for cancer and their families.
• Centrum för sällsynta diagnoser VästcoreStrategic or Co-development PartnerRegional competence center for rare diagnoses at Sahlgrenska University Hospital.
• Riksförbundet Sällsynta diagnosermajorStrategic or Co-development PartnerNational umbrella organization representing approximately 70 diagnosis associations and 16,000 members with over 100 different rare diagnoses.
• Karolinska InstitutetmajorStrategic or Co-development PartnerOngoing research collaboration with Karolinska Institutet.
• Göteborgs universitetmajorStrategic or Co-development PartnerAcademic partnership for research and knowledge development.
• Drottning Silvias barn- och ungdomssjukhusmajorStrategic or Co-development PartnerChildren's hospital collaboration for ongoing projects.
• Mun-H-CentermajorStrategic or Co-development PartnerNational orofacial knowledge center for rare diagnoses, documenting oral health and orofacial function.
• Nationellt kompetenscentrum anhörigaminorStrategic or Co-development PartnerNational center for family caregivers collaboration.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• RareResourceNet: European network of competence centers for rare diseases co-founded by Ågrenska in 2018. A peer organization promoting holistic, high-quality care and services for rare disease patients across Europe.
• National Organization for Rare Disorders (NORD): US-based rare disease umbrella organization providing patient/family support, advocacy, and research programs. Operates a comparable model to Ågrenska combining information, advocacy, and member services for rare disease communities.
• Rare Disease International: Global alliance of rare disease patient organizations that Ågrenska partners with. Operates a comparable advocacy and information mission at the international level, focused on rare disease policy and visibility.
• Genetic Alliance: US-based non-profit coalition representing thousands of genetic and rare disease organizations. Comparable to Ågrenska in providing family support, information, and advocacy for genetically-linked rare conditions.
• Riksförbundet Sällsynta diagnoser: Swedish national umbrella organization representing approximately 70 diagnosis associations and 16,000 members across 100+ rare diagnoses. Functions as a referral and advocacy partner serving the same populations Ågrenska supports.
• EURORDIS – Rare Diseases Europe: European umbrella for rare disease patient organizations and co-founder of the NGO Committee for Rare Diseases with Ågrenska. Both operate at the intersection of rare disease advocacy, information resources, and family support across Europe.
• Eesti Agrenska: Ågrenska's Estonian sister organization operating a national center for children, youth, and adults with disabilities and their families. Direct franchise model partner, offering the same family stay, assistance, and information services adapted for Estonia.

Regional players

• Canadian Organization for Rare Disorders (CORD): Canada's national network for rare disease patient organizations, providing advocacy, education, and research support. Operates a similar advocacy and information mission to Ågrenska but in the Canadian healthcare context.

Broad incumbents

• Orphanet: European reference portal for rare diseases and orphan drugs, providing an information database on rare conditions. Operates a broader public-good information role comparable to Ågrenska's Information Centre, but at a pan-European scale.

Emerging players

• CLIMB (Children Living with Inherited Metabolic Diseases): UK-based charity providing information, support, and conferences for families affected by metabolic diseases. Comparable to Ågrenska's family stay and information programs but focused on a narrower disease subset.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks4 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/agrenska
• Facebookfacebook.com/agrenska.se
• LinkedInlinkedin.com/company/agrenska
• Instagraminstagram.com/agrenska.se

Revenue estimate

Valuation estimate

Number of profiles

Profiles15 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Ågrenska