IFPA

What IFPA does

The International Federation of Psoriasis Associations (IFPA) is a Sweden-based, non-profit patient advocacy organization founded in 1971 that serves as the global umbrella body for national psoriasis and psoriatic disease associations. Headquartered in Bromma, Stockholm, IFPA represents 66 member associations across world regions and an estimated 100+ million people living with psoriatic disease. The federation holds official relations with the World Health Organization as a non-state actor (status renewed through 2026) and consultative status with the United Nations Economic and Social Council, positioning it as the recognized multilateral voice of the global psoriasis community.

IFPA's core deliverables combine sustained awareness and policy work with member services and research infrastructure. Flagship programs include World Psoriasis Day, observed in 70+ countries annually; the IFPA Ambassador Program, which convenes clinicians, researchers, and patient advocates; the Breaking Barriers research initiative, a multi-year mapping of diagnostic and treatment obstacles; and the Global Psoriasis Atlas, a data-collection and publication effort to standardize epidemiological intelligence on psoriatic disease. The federation also convenes periodic global conferences, including the IFPA Conference 2027 in Stockholm. A February 2026 multi-year collaboration with the WHO Foundation extends the organization's surface into AI-driven diagnostic tools for under-served populations, and the inaugural IFPA Forum Africa (Nairobi, May 2026) formalizes regional engagement in Sub-Saharan Africa.

Revenue is generated through a diversified non-profit model: annual membership dues from 66 national associations, unrestricted project funding and event sponsorships from a disclosed set of pharmaceutical partners (Almirall, Amgen, Eli Lilly, Janssen, LEO Pharma, Novartis, Pfizer, and UCB), event and conference revenue, fees from advisory board services to industry sponsors, and donations. The organization operates with a small secretariat (1-10 employees) and does not publicly disclose financial results.

Name

IFPA

Legal name

IFPA

Website

https://ifpa-pso.com

Company type

Private

Founded year

1971

Operating status

Operating

Headcount range

1–10 employees

Short description

The International Federation of Psoriasis Associations (IFPA) is a Stockholm-based, non-profit umbrella organization founded in 1971 that represents 66 national psoriasis associations and over 100 million patients worldwide, delivering advocacy, research (Breaking Barriers, Global Psoriasis Atlas), and global awareness programs in partnership with WHO.

Ownership category

akta.pro rank

Product category

Patient Advocacy

NAICS

Social Advocacy Organizations (8133), Business, Professional, Labor, Political, and Similar Organizations (8139), Convention and Trade Show Organizers (561920)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Health Systems Strengthening & Universal Health Coverage (UHC) Partnerships (HLAJAOAL)

Keywords

• Patient advocacy services
• Psoriasis awareness campaigns
• Healthcare membership programs
• Patient education resources
• Medical conference services

Headquarters

HQ city

Stockholm

HQ country

Sweden

HQ region

Europe

Offices2 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Dues: IFPA brings together 66 member organizations worldwide who pay membership dues. National and regional patient associations join to access global resources, networking, and collective advocacy power.
2. Project Funding and Sponsorships: IFPA receives funding from pharmaceutical companies and healthcare organizations for specific projects. The Breaking Barriers project lists Almirall and Amgen as project sponsors. Project funding is strictly restricted to the designated project.
3. Event Revenue: The IFPA Conference generates revenue through registration fees. This leading international conference on psoriasis and psoriatic arthritis is held every three years, with the next scheduled for Stockholm in 2027.
4. Advisory Board Services: IFPA offers Advisory Board services to pharmaceutical companies, healthcare providers, and research organizations. IFPA is responsible for identifying participants, organizing meetings, handling agreements and payments, and providing IFPA representatives to support meetings. This creates a service revenue stream.
5. Donations: IFPA accepts donations from individuals and organizations supporting the fight against psoriatic disease, as indicated by the 'Donate' button on their website.

Go-to-market motion3 records

Distribution channels4 records

Marketing channels10 records

Core offering

IFPA (International Federation of Psoriasis Associations) is a global non-profit patient advocacy organization that unites 66 national and regional patient associations representing more than 100 million people living with psoriasis and psoriatic arthritis. Its core offerings include the triennial IFPA Conference, regional IFPA Forums, the IFPA Accelerator training program, World Psoriasis Day campaign, advisory board services for pharmaceutical companies, and projects such as Breaking Barriers and the Global Psoriasis Atlas.

Product overview

IFPA (International Federation of Psoriasis Associations) is a global patient advocacy organization rather than a software technology company. It operates a portfolio of awareness campaigns, educational programs, and community initiatives focused on psoriasis and psoriatic arthritis. The organization offers in-person and virtual conferences, regional forums, training programs, research initiatives, and digital resources including podcasts and downloadable toolkits.

Differentiator

Problem solved

Functional benefit

Brands

• IFPA Conference: The leading international scientific congress dedicated to frontline research in psoriasis, psoriatic arthritis and beyond.
• World Psoriasis Day
• IFPA Forum
• IFPA Accelerator
• Beyond The Flare
• Breaking Barriers

Products and services

• IFPA Conference A leading international scientific congress dedicated to frontline research in psoriasis, psoriatic arthritis and related conditions, bringing together physicians, researchers, and patient advocates every three years.
• IFPA Forum Regional meetings bringing together patients, healthcare professionals, policymakers, and civil society to identify local needs and solutions for psoriatic disease.
• IFPA Accelerator Training program for patient advocates to develop leadership skills and strengthen the global psoriatic disease community.
• World Psoriasis Day Annual global campaign observed on October 29 to raise awareness about psoriasis and psoriatic arthritis, celebrated in over 70 countries.
• Breaking Barriers Global initiative addressing gaps and reducing stigma in clinical research for psoriatic disease, focusing on underrepresented communities and diversity in clinical trials.
• Beyond The Flare Podcast Podcast series exploring real experiences of people living with psoriasis and connecting with the global psoriatic disease community, available on Spotify, Apple Podcasts, and YouTube.
• Ambassador Program Program recruiting and training individuals with personal experience of psoriatic disease to become strong advocates for the community.
• Advisory Boards B2B service connecting pharmaceutical companies, healthcare providers, and research organizations with patient experts and advisory board facilitation for clinical and strategic input.
• Family Wellbeing Program Initiative raising awareness of the impact of psoriatic disease on family members, partners, and caregivers, including webinars and educational resources.
• Global Psoriasis Atlas Dynamic, web-based atlas showing the global distribution of psoriasis, serving as a unique data resource for researchers and policymakers.

Quantifiable outcome

• World Psoriasis Day observed in 70+ countries
• +3 more outcomes

Named customers1 record

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

AI capability2 records

Partnerships

Five partnerships are on record, tiered flagship, minor and core.

• WHO FoundationflagshipStrategic or Co-development Partner · 10 February 2026IFPA and WHO Foundation signed a multi-year collaboration agreement in Geneva to strengthen global understanding, diagnosis, and care for psoriasis. The partnership focuses on revising the 2016 Global Report on Psoriasis, developing AI-driven diagnostic tools for low-resource settings, training healthcare professionals, and sharing evidence-based policy recommendations with member states. The collaboration addresses critical gaps in psoriasis data and care, particularly in low- and middle-income countries where most people lack proper diagnosis and access to treatment.
• PsorAfricaflagshipStrategic or Co-development PartnerCo-host of the first-ever Africa Forum on psoriasis (IFPA Forum Africa 2026), held May 7-9, 2026 in Nairobi, Kenya. This historic summit was the first continental event dedicated entirely to psoriasis in Africa, bringing together patient advocates, clinicians, researchers, and policymakers to address one of the region's most overlooked diseases.
• AlmirallminorOthersProject sponsor for the Family Wellbeing project, which addresses the impact of psoriatic disease on family members, partners, and caregivers. Almirall provides funding support for this initiative.
• AmgenminorOthersProject sponsor for the Family Wellbeing project. Amgen provides funding support for this initiative addressing family well-being in psoriatic disease.
• United NationscoreStrategic or Co-development PartnerIFPA engages in political processes related to human rights and equitable healthcare, contributing to UN work to strengthen global guidelines. This provides IFPA with unique access to international policy development.

Scale indicators7 records

Recent moves6 records

Expansion highlights5 records

Market position

Weaknesses4 records

Competitive moat5 records

Key risks4 records

Key highlights6 records

Customer concentration

• Xx.com/psoriasisifpa
• YouTubeyoutube.com/channel/UCwXkMxaHmFdhwbWGg-CKt1Q
• Facebookfacebook.com/psoriasisIFPA
• LinkedInlinkedin.com/company/psoriasisifpa
• Instagraminstagram.com/psoriasisIFPA
• TikToktiktok.com/@psoriasisifpa

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about IFPA