Healthcare Data Institute

What Healthcare Data Institute does

Healthcare Data Institute (HDI) is a French non-profit think tank (association de loi 1901) founded in 2014-2015 by Orange Healthcare and headquartered in Boulogne-Billancourt, France. The organization is dedicated to the scientific and economic valorization of health data and the digital transformation of healthcare systems, serving as a neutral convening body for the French healthcare ecosystem. Its membership spans hundreds of organizations across pharmaceuticals (Roche, Sanofi), healthcare data and analytics (IQVIA, IMS Health, OpenHealth Company), medical devices (Medtronic), payers (AXA), technology providers (Intel, Orange Healthcare), healthcare providers (Kaiser Permanente as featured member), public health authorities, researchers, startups, and academics.

HDI's product surface is research- and convening-oriented rather than software-based. Core offerings include publications and white papers (e.g., 32 recommendations on hospital health data, 10 recommendations on AI in healthcare), the annual HDI Day conference (9th edition in 2023, 10th planned for December 2025), themed working groups (notably 'AI & Trust' launched with Medicen Paris Region and Polepharma, and 'European Panorama' with ESCP Business School), and the ODISS observatory on secondary health data usage. The organization produces no proprietary technology platform, app, or API.

Revenue is generated exclusively through membership fees on a recurring subscription basis, with no publicly disclosed pricing. Operating geographies are concentrated in France with stated European ambitions. Leadership has transitioned three times since founding — from Orange Healthcare's Thierry Zylberberg to Christian Deleuze, and most recently to Samantha Pasdeloup in 2025. The institute does not pursue fundraising, M&A, or external investment, consistent with its non-profit association governance structure.

Name

Healthcare Data Institute

Legal name

Healthcare Data Institute

Website

https://healthcaredatainstitute.com

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

Healthcare Data Institute is a French non-profit think tank founded in 2014-2015 that convenes hundreds of healthcare ecosystem organizations to advance health data valorization and AI adoption through research publications, annual conferences, and working groups.

Ownership category

akta.pro rank

Product category

Healthcare Research & Policy Think Tank

NAICS

Scientific Research and Development Services (5417)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Health Data, Vital Statistics & Population Health Informatics (BPAIAJAM)

akta.pro secondary industry

Healthcare Utilization, Claims & Administrative Data Analytics (HLAJAJAK)

Keywords

• Health data research
• Healthcare AI think tank
• Health data policy
• Medical data analytics
• Healthcare digital transformation

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Membership fees: Healthcare Data Institute operates as a membership-based association (association de loi 1910) that recruits organizations from the healthcare ecosystem. Members include healthcare professionals, pharmaceutical companies, medical device manufacturers, healthcare institutions, public health authorities, researchers, startups, and academics who pay membership fees to access the network, publications, events, and collaboration opportunities.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels8 records

Core offering

Healthcare Data Institute is a membership-based Think Tank (non-profit association under French law) that brings together healthcare ecosystem stakeholders to collectively address health data and AI challenges. It produces research publications, white papers, and position papers on health data valorization, organizes the annual HDI Day conference and working groups, and runs the ODISS observatory on secondary use of healthcare data. The institute does not sell commercial software products, but offers membership access to publications, networking, and collaboration opportunities.

Product overview

Healthcare Data Institute is a Think Tank (non-profit association under French law 1910) focused on transforming healthcare systems through scientific and economic valorization of health data. The organization operates through publications and reports on health data and AI topics, annual conferences (HDI Day), collaborative working groups, and research observatories. It does not offer commercial software products but serves as a convening body for healthcare stakeholders, producing white papers, studies, and position papers while organizing events and working groups to advance dialogue around health data and AI in France and Europe.

Differentiator

Problem solved

Functional benefit

Products and services

• Publications and Reports White papers, studies, and position papers on health data and AI topics, including reports on Big Data in healthcare, prevention, patient rights, and AI perception. Produced for healthcare ecosystem members and the broader public.
• HDI Day Annual Conference Annual reflection day bringing together members and healthcare ecosystem stakeholders to discuss health data and AI topics, featuring presentations, studies, and working group launches.
• Working Groups Collaborative research groups addressing specific healthcare topics such as 'IA et Confiance' (AI and Trust) and 'Panorama Européen' (European Panorama), bringing together industry, startups, and academics.
• ODISS - Observatoire des Données Secondaires pour l'Innovation Observatory for secondary data use in healthcare innovation, focused on real-world data exploitation for better patient care.

Quantifiable outcome

• Published landmark studies on AI perception in healthcare (2024 studies with OpinionWay and Mediscoop)
• +2 more outcomes

Named customers8 records

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered founding, core, supporting and key.

• Orange HealthcarefoundingStrategic or Co-development Partner · 1 January 2015Orange Healthcare led the creation of Healthcare Data Institute. Thierry Zylberberg, Director of Orange Healthcare, served as the founding President of HDI. Orange Healthcare enables members from across the healthcare industry to collectively generate ideas, co-develop big data strategies, and raise awareness around the benefits of big data in healthcare.
• Medicen Paris RegioncoreStrategic or Co-development PartnerMedicen Paris Region, a competitiveness cluster for innovative health technologies, has partnered with HDI and Polepharma to launch a joint working group on 'AI & Trust'. The group aims to raise awareness of best practices for industrializing AI with significant stakes, prepare for future European standards, and establish foundations for developing trustworthy AI scale-ups.
• PolepharmacoreStrategic or Co-development PartnerPolepharma, a pharmaceutical competitiveness cluster, has partnered with HDI and Medicen Paris Region to launch a joint working group on 'AI & Trust'. The initiative federates industrials, startups, and academics to address AI regulation, industrialization, and trust challenges in healthcare.
• ESCP Business School - MSc Biopharmaceutical ManagementsupportingStrategic or Co-development PartnerESCP MSc Biopharmaceutical Management has partnered with HDI to launch a European Panorama working group. The partnership aims to structure a clear vision of the European innovation ecosystem in health data, technologies, and future products, in connection with major ongoing European initiatives.
• AXAsupportingStrategic or Co-development PartnerHDI partnered with AXA to host a conference on using health data and indirect data for personalized and predictive health prevention. AXA shared its analysis alongside other organizations including Fédération Française des Diabétiques, IQVIA, and Veltys.
• Fédération Française des DiabétiquessupportingStrategic or Co-development PartnerPatient association federation partnered with HDI for a conference on health prevention through data, providing perspectives on patient needs and diabetes management.
• VeltyssupportingStrategic or Co-development PartnerHealthcare consulting firm partnered with HDI for AXA conference on health prevention, contributing analytical perspectives on data-driven prevention strategies.
• BIO-MODELING SYSTEMS (Manuel Gea, CEO)keyStrategic or Co-development PartnerManuel Gea, CEO of BIO-MODELING SYSTEMS, serves as president of the joint 'AI & Trust' working group launched by HDI, Medicen Paris Region, and Polepharma.

Scale indicators3 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• HIMSS (Healthcare Information and Management Systems Society): HIMSS is the largest global health IT membership organization, with a dedicated European presence, that convenes stakeholders, publishes maturity models, and runs industry events on digital health. Comparable to HDI as a broad incumbent with overlapping scope in digital health transformation and AI in healthcare, but at much larger scale and broader product mix.
• EIT Health: EIT Health is a large EU-funded partnership that convenes industry, academia, and public bodies to accelerate healthcare innovation, including on health data and AI. Comparable to HDI as a pan-European health innovation network with research outputs and policy influence, but with significantly larger resources and public co-funding.

Direct peers

• Health Data Hub (Hub de Données de Santé, France): The French Health Data Hub is the national platform (catalogue + services) created to facilitate secondary use of health data, with a strong policy mandate aligned to the European Health Data Space. Highly comparable in mission (health data valorization, multi-stakeholder governance) and in operating within the same French regulatory and ecosystem context as HDI.
• ECHAlliance (European Connected Health Alliance): ECHAlliance is a non-profit global connector of health innovation ecosystems, running working groups, events and reports across Europe on digital health and AI. Highly comparable to HDI's network/convening model and European footprint.
• Global Alliance for Genomics and Health (GA4GH): GA4GH is an international non-profit alliance developing frameworks and standards for responsible genomic and health data sharing across institutions. Comparable to HDI in convening model, working-group structure, and focus on health data governance and trustworthy reuse at policy level.
• Health Data Research UK (HDR UK): HDR UK is a national, membership-funded institute focused on uniting the UK's health data to enable research and innovation. Comparable to HDI as a member-driven body producing research outputs and convening public-private stakeholders on health data valorization.
• European Institute for Innovation through Health Data (i~HD): i~HD is a European non-profit that, like HDI, convenes healthcare stakeholders around secondary use of health data, runs working groups, and produces guidance for trustworthy data sharing and AI in health. It is the most direct functional peer in scope (Europe-wide health data innovation) and membership model.

Regional players

• Catel (Club des Acteurs de la e-Santé): Catel is a French association that brings together digital health stakeholders and produces publications, working groups, and events focused on e-health and telehealth adoption. Closely comparable to HDI in scope and French-only operating geography, more oriented to e-health/telehealth than to health data/AI per se.

Emerging players

• Foundation Brocher: Foundation Brocher is a Swiss non-profit that funds research on the ethical, legal, and social implications of health technologies, including data and AI. Comparable to HDI as a research-driven convening body influencing health data/AI policy debate in Europe, but smaller in scope and primarily a research-grant funder.

Others

• SNITEM (Syndicat National de l'Industrie des Technologies Médicales): SNITEM is the French trade association for medical device and digital health companies, focused on industry advocacy and policy dialogue. Related to HDI as a French industry-stakeholder convening voice in healthcare policy, but thematically narrower (devices) and primarily a lobbying body rather than a research-oriented think tank.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key highlights7 records

Customer concentration

• Xx.com/HCDataInstitute
• YouTubeyoutube.com/channel/UCHvykGYKVVep_HCK7rcOyzg
• LinkedInlinkedin.com/company/healthcare-data-institute

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Healthcare Data Institute