Epilepsy Action

What Epilepsy Action does

Epilepsy Action operates a hybrid freemium business model: core support services (helpline, support groups, information resources, peer befriending) are provided free of charge to people affected by epilepsy, while revenue is generated through five streams — individual donations and fundraising (including a weekly lottery, gifts in wills, and running/cycling/walking challenges), an online shop selling merchandise (including Olivia Colman collaboration products), fee-based professional training courses for schools, the care sector, and parents, corporate partnerships, and grants from trusts and foundations. Its go-to-market is community-led, combining top-of-funnel content marketing (website, social channels including Instagram/Facebook/YouTube/TikTok, email newsletters), mid-funnel online events and webinars, and bottom-of-funnel channels — community/peer programs, healthcare professional referrals via a formal referral form, and fundraising events. Customer segments span people with epilepsy, parents and carers, healthcare professionals (epilepsy specialist nurses, GPs, neurologists, midwives, care-sector staff), schools and educators, employers, young people, and family/friends. Strategic partnerships with the Epilepsy Specialist Nurses Association (ESNA) and law firm Slater and Gordon (free 45-minute employment consultations) extend service reach via third-party ecosystems.

Name

Epilepsy Action

Legal name

British Epilepsy Association

Website

https://www.epilepsy.org.uk

Company type

Private

Founded year

1950

Operating status

Operating

Short description

Epilepsy Action is the UK's premier member-led epilepsy charity, offering information and support to anybody affected by epilepsy.

Ownership category

akta.pro rank

Product category

Epilepsy Support Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

akta.pro secondary industry

Mental Health Counseling & Therapy Services (K–12) (EDAJALAG)

Keywords

• Epilepsy support services
• Health information resources
• Epilepsy training courses
• Peer support programs
• Charity fundraising services

Headquarters

HQ city

Yeadon

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations and Fundraising: Epilepsy Action generates revenue through individual donations, regular giving, leave-a-gift-in-will bequests, and participation in fundraising events including running, cycling, walking, and trekking challenges. The organization runs a weekly lottery as a fundraising mechanism.
2. Online Shop Sales: The organization operates an e-commerce shop selling merchandise including clothing (t-shirts, beanies, bucket hats), accessories (wristbands, badges, lanyards), greeting cards, and co-branded items such as Olivia Colman collaboration products.
3. Professional Training and Courses: Online epilepsy training and learning courses are offered through dedicated training platforms, including courses for schools, care sector staff, parents, and individuals with epilepsy. Some courses may be free while others are paid.
4. Corporate Partnerships: The organization engages in corporate partnerships as a revenue stream, with dedicated pages for businesses to support the charity's work.
5. Trusts and Foundations: Donations from trusts and foundations are described as a vital source of income to help people affected by epilepsy.

Pricing tiers

Go-to-market motion1 record

Distribution channels7 records

Marketing channels7 records

Core offering

Epilepsy Action is a UK-wide charity providing information, advice, and support to people affected by epilepsy. Its core offerings include a national helpline, online training courses for professionals and schools, virtual and local support groups, one-to-one peer befriending, a PIF TICK-certified health information library, an Epilepsy Technology Guide, and a merchandise shop. Services are primarily free at the point of use, funded by donations, fundraising, and grants.

Product overview

Epilepsy Action is a UK charity organization offering a unified service portfolio centered on epilepsy support and education. The core offerings include a helpline (0808 800 5050), online training courses through learn.epilepsy.org.uk and training.epilepsy.org.uk, virtual and local support groups, and 1:1 peer support. The organization provides comprehensive epilepsy information resources covering diagnosis, treatments, seizure types, and living with epilepsy. Additional services include an Epilepsy Technology Guide with user-rated safety device reviews, a seizure diary tool, a merchandise shop, professional membership for healthcare/education workers, and community resources including a Discord channel. These services work together to provide holistic support from diagnosis through daily living management.

Differentiator

Problem solved

Functional benefit

Products and services

• Epilepsy Action Helpline A free national telephone, email, and live chat helpline (0808 800 5050) providing advice, support, and information for people with epilepsy and their families, staffed by trained advisors.
• Online Epilepsy Training and Learning Courses Paid and free online courses covering basic epilepsy awareness, advanced epilepsy for schools, caring for people with epilepsy, and wellbeing, delivered via dedicated training platforms.
• Epilepsy Information and Resources Library Comprehensive, PIF TICK-certified health information library covering what epilepsy is, seizure types, diagnosis, treatments, first aid, and living with epilepsy, for people with epilepsy, families, and professionals.
• Talk and Support Virtual Groups Virtual support groups connecting people affected by epilepsy for peer support and community interaction.
• 1:1 Peer Support (Befriending) One-to-one peer support service pairing individuals with trained befrienders who have personal experience with epilepsy.
• Seizure Diary Interactive PDF and downloadable tool for tracking and managing epilepsy by recording seizures, triggers, and medication.
• Epilepsy Technology Guide User-rated reviews and information about epilepsy safety technology including anti-suffocation pillows, apps, bed alarms, monitors, and wearable devices.
• Epilepsy Shop Online shop selling epilepsy awareness merchandise including Purple Bucket Hats, T-shirts, wristbands, lanyards, greeting cards, and branded items.
• Safety Equipment Information Service Information and guidance on safety equipment for people with epilepsy including seizure alarms, monitors, medical ID products, and protective gear.
• Professional Membership Membership programme for health, social care, and education professionals, as well as those with academic interest in epilepsy, offering resources and networking access.
• Your Epilepsy Booklet Downloadable brochure providing an overview of epilepsy, living with epilepsy, and available support from Epilepsy Action.

Quantifiable outcome

• 630,000 people affected by epilepsy in the UK served by the organization
• +1 more outcomes

Named customers6 records

Segments7 records

Ideal customer profiles7 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Four partnerships are on record, tiered core and minor.

• Epilepsy Specialist Nurses Association (ESNA)coreStrategic or Co-development PartnerEpilepsy Action offers joint membership with ESNA for nurses. The organizations collaborate to provide resources, professional network access, ESN Induction Days, Refresher Sessions, and Professional Network Events for epilepsy specialist nurses across the UK.
• Slater and GordoncoreStrategic or Co-development PartnerEpilepsy Action has partnered with legal firm Slater and Gordon to support people with epilepsy facing unfair treatment at work. Through this partnership, individuals can receive a free 45-minute consultation with an employment law specialist to discuss their situation.
• International Bureau for Epilepsy (IBE)minorOthersAn organization of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. Listed as an international epilepsy organization for further reading.
• International League Against Epilepsy (ILAE)minorOthersA global professional non-profit international organization and non-governmental organization in official relations with the World Health Organisation. Listed as an international epilepsy organization for further reading.

Scale indicators4 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Epilepsy Society: UK-based epilepsy charity offering information, support, and research funding. The most direct peer to Epilepsy Action in terms of mission, beneficiary population, and national helpline/community service model.
• Young Epilepsy: UK charity focused specifically on children and young people with epilepsy, providing education, health, and research services. Direct peer in the epilepsy support space, particularly overlapping on school-based and family-facing services.
• SUDEP Action: UK charity dedicated to raising awareness of sudden unexpected death in epilepsy (SUDEP) and supporting affected families. Overlaps with Epilepsy Action's SUDEP information, bereavement support, and safety guidance offerings.
• Epilepsy Research UK: UK charity funding epilepsy research and connecting researchers with patient communities. Comparable mission-adjacent peer with overlapping donor pool and a research support service similar to Epilepsy Action's researcher support offering.
• Epilepsy Foundation: US-based national epilepsy nonprofit providing information, advocacy, and research support. International direct peer with the same disease-specific nonprofit model — community-led information, helpline-equivalent services, and training programs.

Broad incumbents

• National Autistic Society: Large UK disability-focused charity offering information, helpline, training, and advocacy. Comparable operating model — multi-channel community support, PIF-style information standards, and professional training — applied to a different but similarly long-term condition community.
• Mind: Major UK mental health charity providing information, helpline, peer support groups, and local services. Closely analogous operating model to Epilepsy Action — freemium helpline + local support groups + training + fundraising — at significantly larger scale.
• Alzheimer's Society: Large UK health charity delivering information, helpline, peer support and professional training for people affected by dementia. Highly comparable operating structure and revenue mix (donations, legacies, retail, training) to Epilepsy Action.
• Cancer Research UK: UK's largest health charity, combining research funding with information and supporter services. Comparable scale charity in the same disease-condition nonprofit space, with similar diversified income model and training/professional engagement programs.

Others

• International Bureau for Epilepsy (IBE): International umbrella association of laypersons and professionals concerned with medical and non-medical aspects of epilepsy. Listed by Epilepsy Action as an international epilepsy organization; functions as an ecosystem/network peer rather than a direct service competitor.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/epilepsyaction
• Facebookfacebook.com/epilepsyaction
• Instagraminstagram.com/epilepsyaction
• TikToktiktok.com/@epilepsyaction
• Xx.com/epilepsyaction
• LinkedInlinkedin.com/company/epilepsyaction

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Subsidiaries2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Action