Long Covid Support

What Long Covid Support does

Long Covid Support is a UK-registered charity (Charity No. 1198938) and company limited by guarantee (Company No. 13422248), founded in 2020 during the Covid-19 pandemic to serve people affected by Long Covid. Its core offering is a network of moderated Facebook support groups totalling more than 67,000 members globally, supplemented by the Long Covid Choir (now a spun-out entity), downloadable information leaflets, symptom-management resources, and a webinar programme that includes the Long Covid Clinic series with Dr Binita Kane. The organisation also operates a Research Involvement Consultancy that advises academic and clinical researchers on structured patient engagement.

The charity is peer-led, governed by trustees and an advisory board that includes leading Long Covid researchers such as Professor Ziyad Al-Aly, Dr Nisreen Alwan MBE, and Professor Danny Altmann. It acts as Secretariat for the All-Party Parliamentary Group on Long Covid and is a Core Participant in the UK Covid-19 Inquiry, giving it a recognised role in UK health policy and the national Long Covid debate. It has built a wider ecosystem through partnerships with Long Covid Kids, Long Covid Scotland, Long Covid Wales, Long Covid Europe, the Long Covid Alliance, and the World Health Organization (highlighted by a 2025 joint statement with Director-General Dr Tedros Adhanom Ghebreyesus).

Long Covid Support generates income primarily through donations and community fundraising via JustGiving, supplemented by consultancy fees from its Research Involvement service. In-person support groups are being extended to additional UK cities such as Chester and Birmingham, complementing the global online community. The organisation's strategic position is anchored in being the most established patient-led Long Covid body in the UK, with institutional recognition that newer entrants would struggle to replicate.

Name

Long Covid Support

Legal name

Long Covid Support

Website

https://longcovid.org

Company type

Private

Founded year

2020

Operating status

Operating

Headcount range

1–10 employees

Short description

Long Covid Support is a UK-registered charity founded in 2020 that delivers peer-led support, advocacy, and research involvement services to people affected by Long Covid and their carers, reaching over 67,000 members globally through moderated Facebook groups and digital resources.

Ownership category

akta.pro rank

Headquarters

HQ city

London

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations and Fundraising: Long Covid Support generates revenue primarily through charitable donations via JustGiving platform and other fundraising initiatives. The organization runs fundraising events and accepts donations to continue supporting people with Long Covid.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels11 records

Core offering

Long Covid Support is a peer-led charity that provides moderated online peer support communities (Facebook groups with over 67,000 members), downloadable information leaflets on Long Covid symptoms and management, weekly online wellbeing sessions through the Long Covid Choir, and a Research Involvement Consultancy connecting researchers with patients. It also runs advocacy programmes including the Secretariat for the All-Party Parliamentary Group on Long Covid and engagement with the UK Covid-19 Inquiry.

Product overview

Long Covid Support is a peer-led charity organization offering a suite of support services for people with Long Covid and their carers. The organization provides online peer support communities via Facebook groups (with over 67,000 members), the Long Covid Choir (weekly online singing/wellbeing sessions), downloadable information leaflets, a Research Involvement Consultancy connecting patients with researchers, and comprehensive symptom management resources. Additional services include wellbeing events, the Long Covid Clinic webinar series, advocacy through the APPG on Long Covid Secretariat, and getting help resources for health appointments and financial support. The organization is also a Core Participant in the UK Covid-19 Inquiry.

Differentiator

Problem solved

Functional benefit

Brands

• Long Covid Choir: A separate initiative formed in March 2021 by people with Long Covid, providing weekly online singing sessions, breathing exercises, and peer support. It has its own privacy policy and social media presence.

Products and services

• Online Support Groups Private Facebook-based peer support communities for people with Long Covid and their carers, moderated by volunteers. Includes a general support group, a dedicated carers group, and a men's group.
• Long Covid Choir Weekly online singing and wellbeing sessions via Zoom, including breathing exercises, singing on mute, and optional chat. Open to people with Long Covid or their direct caregivers worldwide, with a free taster session and a suggested £5 contribution per session.
• Information Leaflets Downloadable PDF and JPEG leaflets providing information about Long Covid symptoms (200+ symptoms), diagnosis challenges, and management guidance. Includes leaflets for adults and children, available for digital sharing and printing.
• Research Involvement Consultancy Patient involvement services connecting researchers with people living with Long Covid, providing patient expertise, consultation, and participation opportunities for research studies.
• Symptom Management Resources Comprehensive educational resources covering symptom management including PEM/fatigue, ME/CFS, dysautonomia/POTS, cognitive dysfunction, pain, mental health, MCAS, breathing difficulties, and sensory issues.
• Wellbeing Events Online social and wellbeing activities including check-in chats, research events, podcasts, and fundraising events for people with Long Covid experience and their direct carers.
• Long Covid Clinic: What You CAN Do Webinar Series Educational webinar series hosted by Dr Binita Kane and Helen Oakleigh, providing information on potential treatments, sleep management, pacing, and living with Long Covid, available on YouTube.
• APPG on Long Covid Secretariat Secretariat services for the All-Party Parliamentary Group on Long Covid, working with MPs to ensure meaningful government action on prevention, awareness, support, and treatment for Long Covid.
• Getting Help Resources Resources to help people prepare for health appointments, understand their rights, access work, benefits, and financial support, and navigate healthcare systems.

Quantifiable outcome

• Over 67,000 members served through global online support groups
• +2 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and major.

• Long Covid KidscoreStrategic or Co-development PartnerLong Covid Kids is a parent-led charity focused on education, prevention, research and support for children with Long Covid. Long Covid Support works closely with this partner organization and Dr Binita Kane serves as both an advisor to Long Covid Support and an ambassador for Long Covid Kids.
• Long Covid ScotlandcoreStrategic or Co-development PartnerLong Covid Scotland is an action group focused on the specific issues facing people living in Scotland. The organizations collaborate on advocacy and support for their respective communities.
• Long Covid WalescoreStrategic or Co-development PartnerLong Covid Wales is a patient-led campaign group focused on the specific issues facing people living in Wales. Dr Ian Frayling, an advisor to Long Covid Support, is a founding member of Long Covid Wales.
• Long Covid PhysiocoreStrategic or Co-development PartnerLong Covid Physio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with Long Covid and their allies. They provide valuable resources on pacing, breathing pattern disorders, and ME/CFS connections.
• Long Covid EuropemajorStrategic or Co-development PartnerLong Covid Support is a member of Long Covid Europe, a European network of Long Covid patient organizations working together on advocacy and policy.
• Long Covid AlliancemajorStrategic or Co-development PartnerLong Covid Support is a member of the Long Covid Alliance, a coalition of organizations working together on Long Covid awareness, research, and advocacy.
• Covid-19 Research Involvement GroupcoreStrategic or Co-development PartnerAn associated Facebook group run by Margaret O'Hara that connects people who had a Covid infection with researchers who are studying Covid. Researchers and academics seeking to interact with people living with Long Covid are welcome to join.
• The Long Covid Clinic (Liverpool)coreStrategic or Co-development PartnerDr Binita Kane founded The Long Covid Clinic in Liverpool in 2022. Long Covid Support partners with Dr Kane on 'The Long Covid Clinic: What You CAN Do' YouTube series providing educational content for patients.
• World Health Organization (WHO)majorStrategic or Co-development PartnerDr Tedros Adhanom Ghebreyesus, Director General of WHO, stated 'The World Health Organization is honored to support the Long Covid Support Group and are committed to working side by side with you.'

Scale indicators4 records

Recent moves7 records

Expansion highlights5 records

Market position

Weaknesses4 records

Competitive moat5 records

Customer concentration

• Xx.com/long_covid
• YouTubeyoutube.com/channel/UCdNCh2327wKKmRHENIci6gw
• Facebookfacebook.com/groups/longcovid
• LinkedInlinkedin.com/company/long-covid-support
• Instagraminstagram.com/longcovid

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Long Covid Support