NVHP
NVHP is the Dutch patient association founded in 1971 for people with hereditary bleeding disorders, providing peer support, educational resources, and advocacy across the Netherlands in collaboration with hemophilia treatment centers.
- Company typePrivate
- Founded1971
- HeadquartersNijkerk, Netherlands
- Headcount1–10
- GTM typeB2C
- OfferingServices
What NVHP does
NVHP (Nederlandse Vereniging voor Hemofilie Patiënten), founded in 1971 and headquartered in Nijkerk, Netherlands, is a private patient association (vereniging) serving people with hereditary bleeding disorders, including hemophilia A and B, Von Willebrand disease, platelet disorders, and factor deficiencies. Its mission is to improve quality of life through three core functions: information provision, peer support (lotgenotencontact), and advocacy (belangenbehartiging). The association serves members across all life stages — from children aged 0–8 through older adults — and maintains formal relationships with all six hemophilia expertise centers (HBCs) across nine locations in the Netherlands, as well as affiliations with the European Haemophilia Consortium (EHC) and World Federation of Hemophilia (WFH).
The association's product surface centers on educational and support resources rather than technology: the Faktor quarterly magazine (print and digital), the Faktueel email newsletter, the VastePrik infusion-tracking app (integrated with the HemoNED registry), the Reisgids travel guide functioning as a multilingual medical passport, the 'Emma en het Speelhuis' children's book on Von Willebrand disease, the Samen in Gesprek conversation cards co-developed with Erasmus MC, and SOS-ID emergency medical identification products. Member events include the annual NVHP Ontmoet day, camping weekend (Kampeerweekend), and Von Willebrand Dag.
NVHP's revenue model is member- and donation-driven, supplemented by project-specific government subsidies (notably from the Ministry of VWS for women's health programs) and reimbursable membership fees under certain Dutch supplementary health insurance plans. The organization operates with 1–10 staff and is primarily volunteer-driven after 55 years of operation. Its go-to-market is community-led, reaching members through its website (nvhp.nl), Facebook channels, email, direct mail magazine, and event programming, with healthcare-professional partnerships providing institutional distribution.
NVHP firmographics
Firmographics- Name
- NVHP
- Legal name
- NVHP voor iedereen met een erfelijke stollingsstoornis
- Website
- https://nvhp.nl
- Company type
- Private
- Founded year
- 1971
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- NVHP is the Dutch patient association founded in 1971 for people with hereditary bleeding disorders, providing peer support, educational resources, and advocacy across the Netherlands in collaboration with hemophilia treatment centers.
- Ownership category
- akta.pro rank
NVHP industry classification
Industry- Product category
- Patient Association Services
- NAICS
- Voluntary Health Organizations (813212)
- SIC
- Services-Membership Organizations (8600)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where NVHP is headquartered
LocationHeadquarters
- HQ city
- Nijkerk
- HQ country
- Netherlands
- HQ region
- Europe
Offices1 record
Markets served
NVHP business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Membership dues: NVHP generates revenue through membership fees from (youth) members and donors. Some health insurers reimburse membership to patient associations under supplementary insurance.
- Donations: The organization accepts donations and has a 'Steun NVHP' (Support NVHP / Donate) section on their website.
- Government subsidies: NVHP received a subsidy from the Ministry of Health, Welfare and Sport (VWS) for the 'Meisjes en Vrouwen in de Hoofdrol' project to improve care for girls and women with hereditary bleeding disorders.
Go-to-market motion1 record
Distribution channels4 records
Marketing channels7 records
NVHP product offering
Product offeringCore offering
NVHP is a Dutch patient association (Nederlandse Vereniging voor Hemofilie Patiënten) that provides information, peer support, and advocacy for people with hereditary bleeding disorders including hemophilia A and B, Von Willebrand disease, platelet disorders, and factor deficiencies. The association distributes member-facing resources such as the Faktor magazine, the VastePrik infusion-tracking app, a multilingual travel guide, children's books, conversation cards, and SOS medical IDs, and runs member events including NVHP Ontmoet and the annual camping weekend.
Product overview
NVHP is a patient association (Nederlandse Vereniging voor Hemofilie Patienten) for people with hereditary bleeding disorders, offering information resources, community support, and educational materials rather than a unified technology product. The core offerings include the VastePrik App for treatment tracking, the Faktor member magazine, the Reisgids travel guide, children's books like 'Emma en het Speelhuis', the Gespreks- en praatkaarten conversation cards, and SOS-ID medical identification products. These services support patients across all life stages from childhood through aging, providing resources for treatment management, travel preparation, peer support, and healthcare coordination.
Differentiator
Problem solved
Functional benefit
Brands
- Faktor: Members' and relations magazine of NVHP
- Faktueel
- VastePrik
- Samen in Gesprek
Products and services
- VastePrik App
Companies that use NVHP
Customer profileNamed customers1 record
Segments5 records
Ideal customer profiles1 record
NVHP technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
NVHP partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered core and minor.
- Erasmus MCcoreErasmus MC collaborated with NVHP to develop 'Samen in Gesprek' conversation and talking cards for explaining hereditary bleeding disorders. These cards feature clear illustrations and understandable language to help patients discuss their condition with healthcare providers. The cards will be distributed to all hemophilia treatment centers in the Netherlands.
- Amsterdam UMCcoreAmsterdam UMC is collaborating with NVHP on the 'Meisjes en Vrouwen in de Hoofdrol' project funded by the Ministry of VWS, and on 'Ervaring als Kracht' project developing information materials about sexuality, intimacy, relationships, and family planning for women with bleeding disorders.
- EAHAD (European Association for Haemophilia and Allied Disorders)minorEAHAD is the international association of healthcare professionals for people with bleeding disorders. NVHP promotes EAHAD surveys and initiatives to Dutch patients, helping with data collection on rare factor deficiencies across Europe.
- Ministerie van Volksgezondheid, Welzijn en Sport (VWS)coreThe Dutch Ministry of Health, Welfare and Sport provides subsidy to NVHP for the 'Meisjes en Vrouwen in de Hoofdrol' project aimed at improving care for girls and women with hereditary bleeding disorders.
- Save One LifeminorSave One Life is an international organization supporting people with bleeding disorders in developing countries. NVHP promotes their documentary 'Mountains we carry, mountains we climb' which raised funds for Save One Life's programs including sponsorship, scholarships, and medication provision.
- Mijn Gezondheidsgids (Deci Medical Partners)minorNVHP collaborated with Mijn Gezondheidsgids (a health media company) to produce a podcast about the importance of a good medical history (anamnese) for diagnosing bleeding disorders, featuring NVHP chairman Arnoud Plat.
Scale indicators5 records
Recent moves6 records
Expansion highlights5 records
NVHP competitors and assessment
Company assessmentMarket position
Competitive moat4 records
Key risks5 records
Key highlights7 records
Customer concentration
NVHP social profiles
Digital presenceNVHP financial estimates
Financial estimateRevenue estimate
Valuation estimate
NVHP leadership team
Management profileNumber of profiles
Profiles6 records
NVHP funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
NVHP M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about NVHP
What does NVHP do?
NVHP is a Dutch patient association (Nederlandse Vereniging voor Hemofilie Patiënten) that provides information, peer support, and advocacy for people with hereditary bleeding disorders including hemophilia A and B, Von Willebrand disease, platelet disorders, and factor deficiencies. The association distributes member-facing resources such as the Faktor magazine, the VastePrik infusion-tracking app, a multilingual travel guide, children's books, conversation cards, and SOS medical IDs, and runs member events including NVHP Ontmoet and the annual camping weekend.
Is NVHP a public or private company?
NVHP is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was NVHP founded?
NVHP was founded in 1971. It employs 1 to 10 people.
Where is NVHP based?
NVHP is headquartered in Nijkerk, Netherlands, in the Europe region.
How does NVHP make money?
Three revenue lines are on record. Membership dues are the primary driver. The others are donations and government subsidies.
Does NVHP have an API?
No public API is recorded for NVHP.
What industry is NVHP in?
NVHP's product category is Patient Association Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212 and its SIC code is 8600.