Fondation René Touraine

What Fondation René Touraine does

Fondation René Touraine is a French foundation recognized of public utility (reconnue d'utilité publique), established in the early 1990s and headquartered at Hôpital Necker–Enfants Malades in Paris. It is dedicated to improving therapeutic care in dermatology by uniting dermatologists, researchers, patients, health authorities, and the pharmaceutical/cosmetic industries around two priorities: rare genetic skin diseases and chronic inflammatory skin conditions (psoriasis, atopic dermatitis, vitiligo, alopecia, hidradenitis suppurativa). The foundation develops and operates a portfolio of interconnected platforms and programs: SPIN (Skin Inflammation Network) for e-learning and chronic inflammatory disease collaboration; the Rare Skin Diseases Network, aligned with the EU-recognized ERN-Skin covering 56 expert centers across 20 countries; Thérapeutique Dermatologique, a free bilingual reference manual; the World Congress on Rare Skin Diseases (WCRSD); the Ma Peau Raconte international drawing contest; Science-FRT, an annual symposium held alongside ESDR and EADV; and European Fellowships (€4,500 short, €18,000 long) for young researchers. \n\nThe foundation's revenue model is donation- and grant-based rather than commercial. Funding comes from individual donations (tax-deductible at 66% / 75% in France), corporate partnerships (Grand Donateur €150,000 and Donateur €75,000 multi-year tiers, 60% deductible for French corporates), project-specific sponsorships, mobility grants funded by partners, and European Commission grant funding for ERN-Skin (renewed for 2023-2027). GTM is community- and event-driven: international scientific congresses (SPIN, WCRSD, ESDR, EADV), free e-learning and webinar programs, bilingual newsletters, social media, and awareness campaigns such as the Ma Peau Raconte contest, which has collected over 1,000 drawings from 34 countries. All primary services are delivered free of charge to healthcare professionals and patients, so growth in reach and influence is achieved through network participation and donor support rather than per-user monetization.

Name

Fondation René Touraine

Legal name

Fondation René Touraine

Website

https://fondation-r-touraine.org

Company type

Private

Founded year

1993

Operating status

Operating

Headcount range

1–10 employees

Short description

Fondation René Touraine is a French non-profit foundation of public utility that improves dermatology care by operating international professional networks (SPIN, Rare Skin Diseases Network, ERN-Skin), free e-learning platforms, scientific congresses, and research fellowships for clinicians, researchers, and patients with rare and chronic inflammatory skin diseases.

Ownership category

akta.pro rank

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Donations and Mécénat: The foundation operates primarily through donations from individuals and corporate sponsors. Pharmaceutical and cosmetic industry partners can become donors at 150,000€ (Grand donateur) or 75,000€ (Donateur) levels. 60% of donations are tax-deductible for French companies.
2. Partnership financing: Companies can participate in financing specific projects, sponsoring events, or funding scholarships and mobility grants for young researchers.

Pricing tiers

Go-to-market motion2 records

Distribution channels1 record

Marketing channels5 records

Core offering

Fondation René Touraine is a non-profit foundation of public utility that operates international networks, free digital e-learning platforms, scientific congresses, fellowships, and awareness programs dedicated to advancing therapeutic care in dermatology. Its core activities center on rare and chronic inflammatory skin diseases, connecting dermatologists, researchers, pharmaceutical/cosmetic industries, patient associations, and health authorities through training, prevention, research support, and cross-border collaboration.

Product overview

Fondation René Touraine is a foundation of public utility dedicated to therapeutic progress in dermatology. The organization operates a portfolio of interconnected digital platforms and programs: SPIN (Skin Inflammation Network) provides e-learning and international collaboration for chronic inflammatory skin diseases (psoriasis, atopic dermatitis, vitiligo, alopecia, hidradenitis suppurativa); the Rare Skin Diseases Network connects professionals and patients for rare genetic skin conditions; Thérapeutique Dermatologique serves as a free reference manual for skin treatment. Additional programs include the World Congress on Rare Skin Diseases (WCRSD), the Ma Peau Raconte international drawing contest, European Fellowships for young researchers, and the annual Science-FRT scientific symposium featuring the René Touraine Lecture.

Differentiator

Problem solved

Functional benefit

Brands

• SPIN: International network on chronic inflammatory skin diseases for professionals and patients
• Rare Skin Diseases Network
• Thérapeutique Dermatologique
• Science FRT
• Ma Peau Raconte
• WCRSD

Products and services

• SPIN (Skin Inflammation Network) International digital network dedicated to chronic inflammatory skin diseases (psoriasis, atopic dermatitis, vitiligo, alopecia, hidradenitis suppurativa), connecting healthcare professionals and patients worldwide through free accredited e-learning programs and collaboration tools.
• Rare Skin Diseases Network (RSDN) International digital network focused on rare genetic skin diseases, connecting professionals and patients. Coordinates with the ERN-Skin European Reference Network covering 56 expert centers across 20 countries.
• Thérapeutique Dermatologique Free online reference manual for managing pathological and healthy skin conditions, regularly updated with chapters for healthcare professionals. Available in both French and English.
• World Congress on Rare Skin Diseases (WCRSD) Annual international scientific congress bringing together medical teams, researchers, patient representatives, and therapeutic progress stakeholders focused on rare skin diseases. The first edition brought together 400 participants.
• European Fellowships Program Mobility grant program providing fellowships (€18,000 for long exchanges, €4,500 for short exchanges) for young researchers and dermatologists under 40 to encourage international collaborations between research laboratories, with at least one European laboratory required.
• Science-FRT Annual Scientific Meeting Annual scientific meeting and René Touraine Lecture held during ESDR and EADV congresses, featuring high-level international speakers.

Quantifiable outcome

• ERN-Skin network covers 56 expert centers across 20 countries
• +2 more outcomes

Named customers4 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Eight partnerships are on record, tiered notable, major and core.

• Brain Impact NeurosciencenotableGTM or Marketing Partner · 1 March 2026Charitable partnership using running/sport events to support dermatology research. Key events include Spa-Francorchamps Run (March 14, 2026), marathon in Lille (October 25, 2026), and solidarity runs in Brussels (May) and Paris (June). Includes coding workshop for young patients at Necker Hospital pediatric dermatology.
• Fondation Française de l'Ordre de MaltemajorStrategic or Co-development Partner · 1 February 2026Partnership to establish a treatment room for children with severe genodermatoses and burns at Al Azhar University Hospital in New Damietta, Egypt. Will also provide staff training and serve as national coordinating center for epidermolysis bullosa treatment in Egypt.
• ERN-Skin (European Reference Network on Rare Skin Diseases)coreStrategic or Co-development PartnerEuropean Reference Network on rare skin diseases connecting 56 expert centers across 20 countries and 15 patient associations. ERN-Skin received new European Commission funding for 2023-2027 after successful evaluation.
• FIMARAD (Filière Maladies Rares Dermatologiques)coreStrategic or Co-development PartnerFrench national network for rare dermatological diseases coordinated by Professor Christine Bodemer.
• Isabelle Decazes-de Noüe FoundationnotableStrategic or Co-development PartnerPartnership providing 5 scholarships of €2,000 each for young dermatologists from Egypt, Lebanon, Palestine, or Tunisia to attend World Congress on Rare Skin Diseases.
• Global DermatologynotableGTM or Marketing PartnerCo-organization of virtual symposium for World Psoriasis Day with IPC, STDV, and ASDV. Global event gathering 1158 dermatologists from 101 countries.
• International Psoriasis Council (IPC)notableGTM or Marketing PartnerPartner in World Psoriasis Day 2025 virtual symposium co-organized with Global Dermatology, STDV, and ASDV.
• SOLAPS+DI (Société Latino-Américaine du psoriasis et de la dermoimmunologie)notableGTM or Marketing PartnerSPIN organizing symposium in Rio de Janeiro in June with SOLAPS+DI and Brazilian Dermatology Society.

Scale indicators8 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Dermatology Foundation (US): US-based nonprofit that funds dermatology research through grants, fellowships, and career development awards. Comparable as a dermatology research foundation whose grant and fellowship programs mirror FRT's European Fellowship structure.
• British Skin Foundation: A UK-based charity funding skin disease research and providing patient education. Directly comparable as a national dermatology research foundation reliant on donations and corporate sponsorship, operating grants, fellowships, and awareness programs for skin conditions.
• International Psoriasis Council (IPC): A global nonprofit focused exclusively on psoriasis education, research, and advocacy. Directly comparable as a disease-specific dermatology foundation that partners with FRT on World Psoriasis Day symposia and operates international professional networks.
• Skin Cancer Foundation: A US-based nonprofit focused on skin cancer education, research grants, and public awareness. Comparable as a dermatology-focused foundation that funds research, runs awareness campaigns, and partners with corporate sponsors in the skin health space.
• Foundation for Atopic Dermatitis: A French foundation focused specifically on atopic dermatitis research and patient support. Comparable as a French non-profit dermatology foundation with research grants, fellowships, and public awareness programs targeting a specific inflammatory skin disease.

Broad incumbents

• American Academy of Dermatology (AAD): US-based professional dermatology association running major congresses, CME, and patient education. Comparable to the foundation as a dermatology convening body, though much larger and US-focused rather than European/rare-disease-focused.
• European Academy of Dermatology and Venereology (EADV): The largest European dermatology professional society, running congresses, education, and guidelines. Compares to Fondation René Touraine as a convening body for European dermatologists, but operates at much larger scale with full-time staff and corporate memberships.
• International League of Dermatological Societies (ILDS): A global umbrella body for dermatology societies organizing the World Congress of Dermatology. Comparable as a convening organization in international dermatology that partners with national and disease-specific foundations.
• European Society for Dermatological Research (ESDR): A European society focused on dermatological research with annual meetings and scientific programs. Comparable as a research-oriented dermatology body whose congress model overlaps with FRT's Science-FRT and WCRSD.

Others

• Orphanet: A reference portal for rare diseases and orphan drugs that catalogues expert centers and patient resources. Comparable as an enabling infrastructure for rare disease research and referral pathways, intersecting with FRT's Rare Skin Diseases Network and ERN-Skin programs.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/frtdermatology
• Facebookfacebook.com/fondationrenetouraine
• LinkedInlinkedin.com/company/2306798

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Fondation René Touraine