Foundation for Women & Girls With Blood Disorders

Name

Foundation for Women & Girls With Blood Disorders

Legal name

Foundation for Women & Girls with Blood Disorders

Website

https://fwgbd.org

Company type

Private

Founded year

2010

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Headquarters

HQ city

Montclair

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Charitable Donations: The organization accepts cash gifts, recurring gifts, and planned estate gifts from individual donors. Donors may make unrestricted gifts or designate funds to specific programs.
2. Corporate Grants: Pharmaceutical companies provide educational grants including Takeda (multiple research awards and ITP programs), Sanofi ($50,000 research grant), Johnson & Johnson (AIHA resource center), and Dova Pharmaceuticals (ITP webinar).
3. Membership Dues: 783 total FWGBD memberships processed to date, suggesting a membership program for healthcare professionals and supporters.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels11 records

Core offering

FWGBD is a 501(c)(3) educational foundation that delivers multidisciplinary provider education, clinical resources, and research grants focused on the diagnosis and management of blood disorders — including bleeding disorders and sickle cell disease — in women and girls. Its core offerings comprise the WGBD® and WGSCD™ Learning Action Networks, the biennial FWGBD conference, archived webinars/symposia, the 7-2-1 podcast, the Period Talk Toolkit, residency curricula, condition-specific resource centers (AIHA, ITP), the online Clinic Directory, and multiple research grant awards ($50,000 Research Grant, $20,000 Annual and Special Research Grants).

Product overview

FWGBD operates as a nonprofit 501(c)(3) educational foundation focused on healthcare provider education regarding blood disorders in women and girls. The organization offers a portfolio of educational products including the 7-2-1 Podcast, Period Talk Toolkit (with English and Spanish animations), and comprehensive education programs with webinars, symposia, and workshops. FWGBD facilitates two Learning Action Networks (WGBD® LAN and WGSCD™ LAN) that bring together healthcare professionals for collaboration and best practices sharing. The organization administers multiple research fellowship and grant award programs ($50,000, $20,000 Annual, and $20,000 Special Research Awards) to support junior faculty research in blood disorders affecting women and girls. Additional resources include the AIHA Resource Center, Immune Thrombocytopenia Resources, provider/patient handouts, a clinic directory, and the biennial FWGBD conference. The foundation does not offer a public API but processes donations through Authorize.Net with SSL encryption.

Differentiator

Problem solved

Functional benefit

Brands

• WGBD® (Women and Girls with Bleeding Disorders) LAN: A Learning Action Network exchange of key information and best practices in the care of women and girls with bleeding and other blood disorders.
• WGSCD™ (Women and Girls Sickle Cell Disease) LAN

Products and services

• FWGBD Biennial Conference Flagship biennial conference for healthcare professionals featuring education, networking, and presentation of research findings, with travel awards (Jeanette Doner Mann Travel Awards) available to attendees.
• Women and Girls Bleeding Disorders Learning Action Network (WGBD® LAN) Network membership for healthcare professionals and institutions committed to improving care for women and girls with bleeding disorders through peer education, best-practice sharing, and clinic development support.
• Women and Girls Sickle Cell Disease Learning Action Network (WGSCD™ LAN) Network membership for healthcare professionals and institutions focused on improving care for women and girls with sickle cell disease, including unique issues during pregnancy and across life stages.
• FWGBD $50,000 Research Grant Award Annual $50,000 research grant awarded to a junior faculty member or fellow conducting cross-disciplinary research in blood disorders affecting women and girls, with primary funding from corporate educational grants.
• FWGBD Annual Research Grant Award ($20,000) Annual $20,000 research grant for junior faculty or fellows pursuing basic, clinical, or translational research in blood disorders affecting women and girls.
• FWGBD Special Research Grant Awards ($20,000) Specialized $20,000 research awards with named focus areas (e.g., bleeding disorders in women and girls) requiring collaboration between Hematology and Women's Reproductive Health specialties.
• Autoimmune Hemolytic Anemia (AIHA) Resource Center Comprehensive resource center for healthcare professionals providing evidence-based information on AIHA recognition, diagnosis, treatment, and management with attention to issues affecting women and girls across lifespan stages.
• Immune Thrombocytopenia (ITP) Resources Curated provider resources based on ASH 2019 guidelines for optimal treatment and management of ITP patients, including diagnostic guidance and patient care support materials.
• Period Talk Toolkit Three-part toolkit consisting of an animation video (English and Spanish), an illustrated office poster, and a patient handout to facilitate provider-patient discussions about menstruation and heavy menstrual bleeding.
• 7-2-1 Podcast Educational conversation-style podcast titled 'All you need to know about periods' addressing heavy menstrual bleeding, with expert discussions on topics including IUDs, hormonal therapy, sickle cell disease, and iron deficiency.
• Clinics Directory of Services Online directory of services for women and girls with bleeding and blood disorders, including sickle cell disease, at federally funded hemophilia/thrombosis treatment centers and nationally recognized sickle cell disease centers across the country.
• Obstetrics and Gynecology Residency Reading Curriculum Comprehensive reading curriculum for OB/GYN residents covering heavy menstrual bleeding due to inherited blood disorders, including etiology, screening tools, diagnostic evaluation, and management guidelines.
• Education Programs (Webinars, Symposia, Workshops) Comprehensive educational programming including archived webinars, symposia, case conversation series, and clinical strategy learning modules for healthcare professionals managing blood disorders in women and girls.

Quantifiable outcome

• 13,000+ healthcare professionals educated
• +3 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature6 records

Partnerships

Four partnerships are on record, tiered flagship, core and foundational.

• HOW CollaborativeflagshipStrategic or Co-development Partner · 10 July 2026FWGBD co-hosts a special educational symposium with the HOW Collaborative in advance of the ISTH 2026 Congress in Paris, France. The symposium brings together global experts in thrombosis, hemostasis, and women's health to explore challenges and advances in bleeding and clotting disorders across the lifespan.
• Hemophilia of GeorgiacoreStrategic or Co-development PartnerFWGBD partnered with Hemophilia of Georgia to develop the Period Talk Toolkit, a three-part resource including an animation, illustrated office poster, and patient handout to assist providers in discussing menstruation with patients and identifying signs of heavy menstrual bleeding.
• World Federation of Hemophilia (WFH)flagshipStrategic or Co-development PartnerWFH awarded Dr. Roshni Kulkarni, FWGBD Co-Founder, the prestigious WFH President's Award at the 2026 World Congress, recognizing extraordinary impact on the global bleeding disorders community.
• Oregon Health and Science University (OHSU)foundationalStrategic or Co-development PartnerOHSU's Hemophilia/Thrombosis Treatment Center originally contacted FWGBD in 2013 to assist in creating a designated young women's clinic, which led to the establishment of the WGBD Learning Action Network model.

Scale indicators7 records

Direct peers

• National Hemophilia Foundation: Larger US-based nonprofit dedicated to bleeding disorders education, research, and advocacy. Highly comparable mission overlap with FWGBD's WGBD® LAN, sharing the same patient/provider community and competing for the same pharma grant pool.
• Hemophilia Federation of America: US nonprofit advocating for the bleeding disorders community through education, support, and policy. Directly comparable to FWGBD's bleeding-disorder education focus and target audience of providers and patients.
• Platelet Disorder Support Association: Nonprofit dedicated to immune thrombocytopenia (ITP) and other platelet disorders, a core condition in FWGBD's portfolio. Directly comparable in scope (ITP education), funding model (pharma grants), and audience.
• National Blood Clot Alliance: US nonprofit focused on blood clotting disorders (thrombosis), education and patient advocacy. Highly comparable disease-niche nonprofit model with overlapping provider education and pharma-funded programming approach.
• Sickle Cell Disease Association of America: National nonprofit focused on sickle cell disease education, research, and patient support. Closely comparable to FWGBD's WGSCD™ LAN and overlapping in provider education, patient resources, and pharma-funded programming.
• Foundation for Sickle Cell Disease Research: Smaller nonprofit focused on sickle cell disease research and education, particularly for adult patients. Comparable disease-niche focus with FWGBD's WGSCD™ LAN and similar pharma-funded operating model.

Broad incumbents

• American Society of Hematology (ASH): The world's largest professional society for hematologists, producing clinical guidelines (e.g., the ASH 2019 ITP guidelines referenced by FWGBD) and broad continuing medical education. A broader incumbent whose published guidelines and recognition confer credibility on FWGBD's niche work.
• American College of Obstetricians and Gynecologists (ACOG): Largest US professional society for OB/GYNs and a key audience for FWGBD's OB/GYN residency curriculum and Period Talk Toolkit. Overlaps in women's reproductive health education but covers the full OB/GYN scope rather than blood disorders specifically.
• World Federation of Hemophilia (WFH): Global umbrella organization for bleeding disorders; awarded the WFH President's Award to FWGBD's co-founder in 2026. Operates at greater scale internationally and overlaps with FWGBD in provider education and global bleeding-disorder community.

Emerging players

• American Thrombosis and Hemostasis Network (ATHN): Nonprofit coordinating hemophilia treatment center data and research infrastructure across the US. Overlaps with FWGBD's HTC-targeted programming and clinic directory, though ATHN is more infrastructure/data-focused and less education-driven.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UC5bMtw1kG2IQRX2BmCSPV4Q
• Xx.com/fwgbd
• Facebookfacebook.com/fwgbd

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Foundation for Women & Girls With Blood Disorders