CSF
Bobby Jones CSF is a Staten Island-based nonprofit founded in 2007 that funds research and delivers patient, caregiver, and physician education and support resources for Chiari malformation, syringomyelia, and related disorders, funded by charitable donations.
- Company typePrivate
- Founded2007
- HeadquartersStaten Island, United States
- Headcount1–10
- GTM typeB2B and B2C
- OfferingServices
What CSF does
Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF) is a U.S.-based nonprofit headquartered in Staten Island, New York, founded in 2007 to advance research toward a cure for Chiari malformation, syringomyelia, and related disorders, while supporting patients and families affected by these conditions. The foundation operates a multi-surface programmatic platform: the unite4answers resource hub consolidates information for patients, families, and clinicians; the Consider Chiari program delivers medical education aimed at improving physician diagnosis and treatment; and a curated Video Library extends the content footprint. Patient and caregiver community engagement is delivered through an online support community hosted in partnership with Inspire.
The foundation's business model is donation-driven, with revenue derived from charitable contributions and grassroots fundraising events. It maintains top-tier third-party accountability credentials — a 100% Charity Navigator rating, Guidestar Platinum status, and BBB Wise Giving Alliance accreditation — which support donor confidence. Leadership comprises a Founder/Vice Chairman, a Chairman, an Executive Director, and a Marketing & Development Director, and the organization is staffed by 1-10 employees. The website includes multilingual translation capability, indicating an intent to serve international patient and caregiver populations beyond the U.S. market. The foundation does not operate commercial products, paid services, or a research grantmaking program as a paid customer offering; all outputs are mission-aligned and freely accessible.
CSF firmographics
Firmographics- Name
- CSF
- Legal name
- Bobby Jones Chiari & Syringomyelia Foundation
- Website
- https://csfinfo.org
- Company type
- Private
- Founded year
- 2007
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Bobby Jones CSF is a Staten Island-based nonprofit founded in 2007 that funds research and delivers patient, caregiver, and physician education and support resources for Chiari malformation, syringomyelia, and related disorders, funded by charitable donations.
- Ownership category
- akta.pro rank
CSF industry classification
Industry- Product category
- Patient Advocacy and Disease Research Foundation
- NAICS
- Voluntary Health Organizations (813212), Grantmaking and Giving Services (81321), Other Individual and Family Services (624190), Educational Support Services (61171)
- SIC
- Services-Misc Health & Allied Services, Nec (8090), Services-Social Services (8300), Services-Educational Services (8200)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
Keywords
Where CSF is headquartered
LocationHeadquarters
- HQ city
- Staten Island
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
CSF business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Marketing or Sales, Operations, Technology or R&D
Revenue model
- Donations and Fundraising: The foundation generates revenue primarily through donations from individuals, families, and supporters. This includes annual fund campaigns, online donations through their website portal, and general charitable contributions. The organization also mentions 'Ways to Give' on their website indicating multiple donation mechanisms.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels5 records
CSF product offering
Product offeringCore offering
Bobby Jones CSF is a nonprofit foundation that funds research and provides education, awareness, advocacy, and patient support services for people affected by Chiari malformation, syringomyelia, and related disorders such as Ehlers-Danlos syndrome. Its core offerings include the 'Consider Chiari' medical education program for healthcare professionals, the 'unite4answers' resource platform, an educational video library, and a peer support community hosted on Inspire. The foundation is funded primarily through charitable donations and fundraising campaigns.
Product overview
Bobby Jones CSF is a non-profit foundation that provides education, research funding, and patient support services for Chiari malformation, syringomyelia, and related disorders. The organization operates several interconnected programs: the 'Consider Chiari' medical education program for healthcare professionals, the 'unite4answers' resource platform for patient education, a video library with educational content, and a support community via Inspire for patient peer connections. The foundation serves patients, doctors, and researchers through these dedicated resource channels.
Differentiator
Problem solved
Functional benefit
Products and services
- Consider Chiari
Quantifiable outcome
- The only Chiari/syringomyelia charity with 100% Charity Navigator rating
Companies that use CSF
Customer profileSegments3 records
Ideal customer profiles3 records
CSF technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
CSF partnerships and signals
Strategic signalPartnerships
One partnership is on record.
- InspirecoreInspire hosts the Bobby Jones CSF Support Community, providing a platform for patients and families living with Chiari malformation, syringomyelia and related disorders to connect with one another. The community allows users to control their level of anonymity while engaging with others who share similar experiences.
Scale indicators2 records
Recent moves5 records
Expansion highlights4 records
CSF competitors and assessment
Company assessmentDirect peers
- National Multiple Sclerosis Society: Funds MS research and provides education and support for patients with a chronic neurological condition. Highly comparable as a neurological-disease nonprofit combining research funding, patient community, and clinical education programs.
- Hydrocephalus Association: Nonprofit focused on hydrocephalus research, education and support. Closely comparable as a neurological/neurosurgical condition-specific foundation with overlapping patient populations and research interests with Chiari malformation and syringomyelia.
- Ehlers-Danlos Society: Global nonprofit for Ehlers-Danlos syndromes — a related disorder explicitly named within Bobby Jones CSF's mission. Direct peer in connective-tissue/neurological overlap, with overlapping patient and research communities.
- ALS Association: Disease-specific nonprofit funding research, patient services, and advocacy for amyotrophic lateral sclerosis. Directly comparable as a neurology/disease-focused foundation combining research grants, patient support communities, and medical professional education.
- National Kidney Foundation: Disease-specific nonprofit funding kidney disease research, education, and patient support. Comparable as a condition-focused foundation combining research grantmaking, patient community, and clinician outreach.
- Muscular Dystrophy Association: Funds neuromuscular disease research and supports affected families. Directly comparable as a disease-specific nonprofit spanning research, patient services, and clinician education in the neuromuscular/neurological space.
- Parkinson's Foundation: Funds Parkinson's disease research and runs patient education and community programs. Directly comparable as a neurological-disease foundation combining research grants, patient support, and medical professional training.
- Cystic Fibrosis Foundation: Disease-specific nonprofit driving CF research, care, and patient support. Comparable as a leading rare-disease foundation with a strong research-grant model and deep patient community infrastructure.
Broad incumbents
- March of Dimes: Long-established nonprofit funding maternal and infant health research and education. Comparable structurally as a research-and-education foundation with donation-driven revenue and community programming, though at a much larger scale and broader mission.
- American Cancer Society: Large, established health nonprofit funding broad cancer research and patient support. Comparable at a structural level (research grants, patient community, donor-funded model) but operates at vastly greater scale across a much broader disease category.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
CSF social profiles
Digital presenceCSF financial estimates
Financial estimateRevenue estimate
Valuation estimate
CSF leadership team
Management profileNumber of profiles
Profiles4 records
CSF funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
CSF M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about CSF
What does CSF do?
Bobby Jones CSF is a nonprofit foundation that funds research and provides education, awareness, advocacy, and patient support services for people affected by Chiari malformation, syringomyelia, and related disorders such as Ehlers-Danlos syndrome. Its core offerings include the 'Consider Chiari' medical education program for healthcare professionals, the 'unite4answers' resource platform, an educational video library, and a peer support community hosted on Inspire. The foundation is funded primarily through charitable donations and fundraising campaigns.
Is CSF a public or private company?
CSF is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was CSF founded?
CSF was founded in 2007. It employs 1 to 10 people.
Where is CSF based?
CSF is headquartered in Staten Island, United States, in the North America region.
How does CSF make money?
One revenue line is on record: donations and Fundraising.
Who are CSF's main competitors?
Direct peers on record are National Multiple Sclerosis Society, Hydrocephalus Association, Ehlers-Danlos Society, ALS Association, National Kidney Foundation, Muscular Dystrophy Association, Parkinson's Foundation and Cystic Fibrosis Foundation. Broad incumbents are March of Dimes and American Cancer Society.
Does CSF have an API?
No public API is recorded for CSF.
What industry is CSF in?
CSF's product category is Patient Advocacy and Disease Research Foundation. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212 and its SIC code is 8090.