ILAE

What ILAE does

The International League Against Epilepsy (ILAE) is a non-profit medical and scientific organization founded in 1909 and headquartered in Washington, D.C., with governance spanning more than 120 national chapters across 150+ countries and over 26,000 members worldwide. It is structured into six global regions (Africa, Asia & Oceania, Eastern Mediterranean, Europe, Latin America, North America) and serves neurologists, epileptologists, neurosurgeons, nurses, pharmacists, researchers, and allied health professionals working in epilepsy care, with secondary audiences of patients, caregivers, and government health ministries. Its core outputs are peer-reviewed journals (Epilepsia, Epilepsia Open, Epileptic Disorders), clinical practice guidelines and classification systems that set global standards, online diagnostic and educational platforms (EpilepsyDiagnosis.org, ILAE Academy, Virtual Epilepsy Academy/VIREPA), an annual congress cycle comprising the International Epilepsy Congress and five regional congresses, and policy advocacy through formal WHO and PAHO partnerships.

ILAE's business model is a non-dues-plus-fees hybrid rather than a commercial product model. Revenue is generated through membership fees paid by national chapters and individual affiliates, journal subscriptions distributed by Wiley, registration and sponsorship fees from international and regional congresses, and charitable donations from individuals and corporate sponsors supporting epilepsy awareness and research. Distribution is primarily through the national-chapter network and digital channels (the ILAE website, e-learning platforms, webinars, multilingual content in over 20 languages, and social media). The technology footprint is web-based content delivery and publishing infrastructure rather than proprietary software; there is no API platform, no SDK, and no disclosed AI or machine learning capability.

As a 115-year-old mission-driven association rather than a venture-backed company, ILAE's strategic posture is defined by institutional continuity: sustaining journal quality, maintaining WHO-level policy relevance, and extending educational reach into underserved regions through VIREPA and multilingual content. Its primary forward-looking risk is that medical authority erodes if digital-first competitors or AI-native diagnostic platforms outpace its pace of technology adoption.

Name

ILAE

Legal name

International League Against Epilepsy

Website

https://ilae.org

Company type

Private

Founded year

1909

Operating status

Operating

Headcount range

11–50 employees

Short description

The International League Against Epilepsy (ILAE), founded in 1909, is a non-profit medical association serving over 26,000 healthcare professionals across 150+ countries through peer-reviewed journals, clinical guidelines, diagnostic tools, online education platforms, and advocacy partnerships with the WHO and PAHO.

Ownership category

akta.pro rank

Product category

Medical Professional Association Services

NAICS

Business Associations (813910)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

Keywords

• Epilepsy professional association
• Medical journal publishing
• Clinical practice guidelines
• Healthcare professional education
• Neurology research advocacy

Headquarters

HQ city

Mound

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Membership fees: ILAE is funded from membership fees collected from national chapters and individual affiliates
2. Journal subscriptions: Revenue from Epilepsia journal subscriptions published by Wiley
3. Congress revenue: Revenue generated from organizing international and regional epilepsy congresses including the International Epilepsy Congress and regional congresses (European, Asian & Oceanian, Latin American, African, East Mediterranean)
4. Sponsorships and charitable donations: Funding from corporate sponsorships and charitable donations from individuals and organizations supporting epilepsy awareness and research

Distribution channels5 records

Marketing channels9 records

Core offering

ILAE is a non-profit medical and scientific organization that advances epilepsy care globally through peer-reviewed journals (Epilepsia, Epilepsia Open, Epileptic Disorders), clinical practice guidelines and classification systems, international and regional congresses, online education platforms (ILAE Academy, VIREPA), diagnostic resources (EpilepsyDiagnosis.org), and advocacy partnerships with WHO and IBE. The organization operates through more than 120 national chapters serving over 26,000 healthcare professional members across more than 150 countries.

Product overview

ILAE operates as a multi-platform educational and research organization rather than a single product company. The organization offers a portfolio of peer-reviewed journals (Epilepsia, Epilepsia Open, Epileptic Disorders), diagnostic tools (EpilepsyDiagnosis.org), online education platforms (ILAE Academy, Virtual Epilepsy Academy/VIREPA), member resources (ILAE Gateway), virtual event series (ILAE e-Forum Series), and communication channels (ILAE Newsletter, Epigraph publication with Sharp Waves Podcast). These products and services collectively serve healthcare professionals, researchers, and patients through education, research dissemination, and professional development.

Differentiator

Problem solved

Functional benefit

Products and services

• Epilepsia ILAE's official peer-reviewed journal publishing original research findings and breakthroughs in epilepsy and related seizure disorders, targeting healthcare professionals and researchers.
• Epilepsia Open Open access peer-reviewed journal disseminating the latest original research findings and breakthroughs in the cure for epilepsy and related seizure disorders.
• Epileptic Disorders Peer-reviewed journal focused on epilepsy research and clinical practice, targeting epileptologists and neurologists.
• EpilepsyDiagnosis.org Online diagnostic resource for epilepsy diagnosis supporting healthcare professionals worldwide in applying ILAE classification and diagnostic criteria.
• ILAE Academy Online education platform providing courses, webinars, and educational resources for healthcare professionals worldwide.
• Virtual Epilepsy Academy (VIREPA) Distance learning program offering specialized epilepsy education for professionals in regions with limited access to in-person training.
• International Epilepsy Congress Biennial international congress providing education, networking, and research dissemination for healthcare professionals working in epilepsy, organized jointly with the International Bureau for Epilepsy.
• ILAE Gateway Online member portal providing ILAE members with access to resources, community features, and organizational services.
• ILAE e-Forum Series Annual virtual educational forum series offering online education and workshops for the global epilepsy professional community.
• ILAE Curriculum Structured educational curriculum for epilepsy training and professional development of healthcare professionals.
• ILAE Diagnostic Manual Comprehensive manual supporting diagnostic procedures for epilepsy aligned with ILAE classification standards.
• Regional Epilepsy Congresses Regional congresses including European, Asian & Oceanian, Latin American, African, and East Mediterranean Epilepsy Congresses providing education and networking for regional epilepsy professionals.
• ILAE National Chapter Membership Program Network of more than 120 national chapters representing healthcare professionals working in epilepsy across more than 150 countries and territories.

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered core and regional.

• International Bureau for Epilepsy (IBE)coreStrategic or Co-development PartnerILAE maintains a close partnership with the International Bureau for Epilepsy (IBE), the leading non-governmental organization representing the epilepsy community. Together they form the Global International Epilepsy Congress and collaborate on joint awards (ILAE-IBE awards), advocacy initiatives including the WHO Resolution on Epilepsy, and joint statements on important issues such as racism and medical neutrality.
• World Health Organization (WHO)coreStrategic or Co-development PartnerILAE works closely with WHO on international epilepsy policy, including the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders (IGAP). The organization advocates for epilepsy to be recognized as a public health priority and contributes to WHO resolutions and global health initiatives.
• Pan American Health Organization (PAHO)regionalStrategic or Co-development PartnerILAE collaborates with PAHO on regional advocacy initiatives in the Americas, including programs for governments to create epilepsy care programs and public health policy development for epilepsy.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• World Federation of Neurology (WFN): Global umbrella organization for neurology with national society members worldwide; the broadest global counterpart to ILAE in mission and structure, providing overlapping policy and education infrastructure in the neurological disorders space.
• International Bureau for Epilepsy (IBE): Global non-governmental organization representing people with epilepsy and their families; ILAE's closest partner and structural peer in the epilepsy ecosystem, jointly running the International Epilepsy Congress and co-developing advocacy initiatives with WHO.
• American Epilepsy Society (AES): Professional medical society for clinicians and researchers in epilepsy in the United States; most direct peer to ILAE, sharing the epilepsy-only focus, journal portfolio, guideline development, and congress model, though operating regionally rather than globally.
• International Society of Nephrology (ISN): Global professional society for kidney specialists with national chapters across 150+ countries; structurally near-identical to ILAE in operating model (membership, journals, World Congress of Nephrology, WHO collaboration, regional committees) outside the neurology space.

Broad incumbents

• American Academy of Neurology (AAN): Largest U.S. neurology professional society with broader scope across all neurological disorders; comparable to ILAE in operating model (membership, journal Neurology, annual meeting, CME, guidelines) but serves general neurology rather than specializing in epilepsy.
• European Academy of Neurology (EAN): Pan-European neurology society representing 45,000+ neurologists; structurally similar to ILAE in governance, congresses, journals (European Journal of Neurology), and guideline development, though covering all neurology rather than epilepsy-only.
• American Heart Association (AHA): Largest U.S. voluntary health organization with journals (Circulation, Stroke), guidelines, and advocacy; useful benchmark for ILAE on nonprofit medical society scale, sponsorship model, and policy influence though cardiology-focused.

Emerging players

• International Parkinson and Movement Disorder Society (MDS): International professional society for movement disorders; mirrors ILAE's structure with a flagship journal (Movement Disorders), international congress, regional sections, and clinical classification systems, serving an adjacent neurological subspecialty.
• Alzheimer's Disease International (ADI): Global federation of Alzheimer's and dementia associations with national member associations; comparable to ILAE in mission, advocacy with WHO, global chapters, and congress model, focused on dementia rather than epilepsy.
• International Headache Society (IHS): International professional society focused on headache and migraine; closely comparable to ILAE in operating model (national chapters, Cephalalgia journal, international congress, classification systems like ICHD) but addressing an adjacent neurological subspecialty.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/IlaeWeb
• YouTubeyoutube.com/channel/ILAE
• Facebookfacebook.com/InternationalLeagueAgainstEpilepsy
• LinkedInlinkedin.com/company/international-league-against-epilepsy

Revenue estimate

Valuation estimate

Number of profiles

Profiles19 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ILAE