Cushing's Support & Research Foundation

Name

Cushing's Support & Research Foundation

Legal name

Cushing's Support & Research Foundation

Website

https://csrf.net

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Headquarters

HQ city

Lilburn

HQ country

United States

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Donations: The organization accepts donations through its website to support operations, patient support programs, and research initiatives.
2. Membership: Offers membership program for patients and supporters to join the organization and receive ongoing support and updates.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels7 records

Core offering

CSRF is a nonprofit patient support organization that provides Cushing's syndrome patients and caregivers with educational resources, peer support, and a curated doctor referral directory. Core offerings include monthly virtual patient and caregiver support calls, stage-specific educational materials across the patient journey (pre-diagnosis through life after Cushing's), multilingual patient pamphlets, a bimonthly e-newsletter, patient stories, and the Danielle Reszenski Memorial Scholarship program, all delivered primarily through its website (csrf.net), email, and virtual meetings.

Product overview

The Cushing's Support & Research Foundation (CSRF) operates as a nonprofit patient support organization offering a comprehensive suite of resources and services for Cushing's syndrome patients and their caregivers. The core offerings include monthly virtual support calls (patient and caregiver-specific), stage-specific educational resources (pre-diagnosis through life after Cushing's), medical education content (Doctor's Articles and Q&A), Find a Doctor referral service, patient stories platform, Cushing's awareness events, and annual conferences including the Cortisol Summit and Cushing's Patient Journey Summit. The organization also publishes bimonthly and monthly e-newsletters, offers patient pamphlets in multiple languages, administers the Danielle Reszenski Memorial Scholarship, and facilitates local support groups. All services are designed to support patients through every stage of the Cushing's journey from symptoms through recovery.

Differentiator

Problem solved

Functional benefit

Brands

• Danielle Reszenski Memorial Scholarship: Scholarship program for Cushing's patients to support education and awareness.

Products and services

• Patient Support Services Monthly virtual patient support Zoom calls providing guidance, medical Q&A, and community connection for individuals with Cushing's syndrome.
• Caregiver Support Services Monthly patient-free virtual caregiver support Zoom calls providing resources, peer support, and guidance for those caring for Cushing's patients.
• Find a Doctor Service Online directory of medical professionals and specialists with experience diagnosing and treating Cushing's patients, organized by US state and international country.
• Danielle Reszenski Memorial Scholarship Scholarship program supporting Cushing's patients in their educational pursuits.

Quantifiable outcome

• Recovery and remission reported by patient stories - normalized blood pressure, blood sugar, weight loss, return to normal activities
• +1 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

One partnership is on record.

• National Organization for Rare Disorders (NORD)coreOthersCSRF is a member of NORD, a nonprofit organization representing the rare disease community. This membership provides CSRF with resources, advocacy support, and connection to the broader rare disease ecosystem.

Scale indicators1 record

Recent moves5 records

Regional players

• Pituitary Foundation (UK): UK-based pituitary-disorder patient support charity with similar doctor referrals, helpline, support groups, and educational resources. Comparable operating model and disease focus but geographically anchored to the United Kingdom, whereas CSRF serves US + global reach.
• Child Growth Foundation: UK charity supporting children with growth and endocrine disorders including pediatric Cushing's. Comparable as a small rare-endocrine pediatric-focused nonprofit with patient-education and family-support services, but UK-anchored geographically.

Emerging players

• Cushing's Disease News (BioNews): Digital patient-news outlet covering Cushing's disease research, treatment, and patient stories. Comparable in disease-specific content production and patient-education mission, but operates as a media property rather than a support community — partial overlap with CSRF's patient-stories and doctor's-articles products.

Direct peers

• Pituitary Network Association: Direct peer in pituitary-disorder patient support, education, and doctor referrals. Cushing's disease (pituitary-dependent) is a major condition within PNA's scope, making it the closest like-for-like patient advocacy competitor — same disease-area focus, similar doctor-finder service, similar support-group model.
• The MAGIC Foundation: Nonprofit supporting children with growth disorders and related endocrine conditions including pediatric Cushing's. Directly comparable as a rare endocrine-disease patient-advocacy nonprofit with similar patient-stories, education, and doctor-finder services. CSRF's customer_segments field includes a Pediatric Cushing's segment, making MAGIC a partial-overlap peer.
• World Alliance of Pituitary Organizations (WAPO): International umbrella of pituitary patient organizations with similar mission, patient-support programs, and educational resources. WAPO's member organizations serve overlapping Cushing's patient populations globally and represent a comparable peer at the international rare-disease-advocacy layer.
• Adrenal Insufficiency United: Direct peer in adrenal-related patient advocacy. CSRF co-hosted the 2023 Patient Conference with AIU in Portland (per product_launches field), confirming operational partnership. AIU serves adrenal-insufficient patients including post-Cushing's patients who develop adrenal insufficiency after surgery, creating a directly overlapping patient population.

Broad incumbents

• National Organization for Rare Disorders (NORD): NORD is the US umbrella organization for ~300 rare-disease patient advocacy groups, of which CSRF is a Platinum member. It is comparable as the parent ecosystem of which CSRF is a member-organization, sharing rare-disease advocacy mission, policy engagement, and patient-support program models, but operating at much larger scale across all rare diseases rather than Cushing's specifically.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/csrfnet
• LinkedInlinkedin.com/company/connect-with-csrf

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Cushing's Support & Research Foundation