What BRAIN-TEAM does

BRAIN-TEAM is a French rare disease healthcare coordination network (Filière de Santé Maladies Rares) established in October 2016 and housed at the Centre Hospitalier Universitaire d'Angers (CHU d'Angers). It operates under the French Ministry of Health as one of 23 national filieres, coordinating 11 specialized Reference Centers (Centres de Référence Maladies Rares, CRMR) focused on rare diseases of the central nervous system. Disease coverage spans multiple system-atrophies, rare dementias, neuro-inflammatory diseases, Huntington's disease, leukodystrophies, rare cerebrovascular diseases, narcolepsy, neurogenetics, paraneoplastic syndromes, Tourette syndrome, and dystonias. The organization serves patients, families, and healthcare professionals across France.

The organization delivers a portfolio of patient-facing support programs and services rather than commercial technology products. Offerings include the AIDAN caregiver support program (7 video-conference modules), the Centre National de Ressources Psychologiques (national psychological resource center), a medico-social resource platform, a physiotherapy pole, the BRAIN'CAAT occupational therapy and assistive technology center, the BRAIN MOUV' online digital exercise platform, emergency and care cards for patients, and brain donation coordination with the Neuro-CEB biobank. It also coordinates multidisciplinary consultation meetings (RCPs), therapeutic patient education (ETP), and national protocols (PNDS), and participates in the European Reference Network for Rare Neurological Diseases (ERN-RDN).

BRAIN-TEAM is not a commercial entity; it is a non-profit public-sector network funded through French government healthcare allocations. Services are provided free of charge to patients, families, and healthcare professionals, with no pricing model. Leadership comprises Pr Christophe Verny as animateur de la filière (coordinator), project managers Sophie Bernichtein and Bénédicte Belloir, and communications officer Marie Berre. The organization was officially relabeled in July 2025 for a 5-year term through 2030 under DGOS decree, operating within the framework of Plan National Maladies Rares 4 (PNMR4).

Name

BRAIN-TEAM

Legal name

Filière de Santé Maladies Rares BRAIN-TEAM

Website

https://brain-team.fr

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

1–10 employees

Short description

BRAIN-TEAM is a French public-sector rare disease healthcare network (Filière de Santé Maladies Rares) coordinating 11 Reference Centers for rare neurological diseases under the French Ministry of Health. It delivers free patient support programs, caregiver resources, and rehabilitation services to patients, families, and clinicians nationwide.

Ownership category

akta.pro rank

Product category

Rare Disease Healthcare Coordination

NAICS

Professional Organizations (81392)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Neurogenetics & Rare Neurologic Diseases (HLAKAIAO)

akta.pro secondary industries

Neurologic Rehabilitation Centers (Stroke/TBI/SCI/MS/Parkinson’s) (HLADAJAH), Neurologic Rehabilitation (Stroke, TBI, Parkinson’s, MS) (HSADAIAC)

Keywords

• Rare disease care coordination
• Neurological reference centers
• Patient support programs
• Medico-social resource platform
• Public health network

Headquarters

HQ city

Angers

HQ country

France

HQ region

Europe

Offices3 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Distribution channels1 record

Marketing channels5 records

Core offering

BRAIN-TEAM is a French national healthcare coordination network for rare central nervous system diseases. It coordinates 11 Reference Centers (CRMR), patient associations, and competence networks, providing support programs such as caregiver support (AIDAN), psychological resources, medico-social guidance, physiotherapy, occupational therapy, digital rehabilitation exercises, emergency care cards, and brain donation coordination. All services are delivered free of charge under the French rare disease health framework.

Product overview

BRAIN-TEAM is a French rare disease healthcare coordination network (Filière de Santé Maladies Rares) that coordinates Reference Centers for rare diseases affecting the central nervous system. Rather than a unified technology product, BRAIN-TEAM offers a portfolio of patient support programs and services including: the AIDAN caregiver support program with video-based modules; a National Psychological Resources Center; a medico-social resource platform; a physiotherapy pole; the BRAIN'CAAT assistive technology center; the BRAIN MOUV' digital exercise platform; emergency care cards; and brain donation coordination with Neuro-CEB. These services work together to provide comprehensive support across the patient journey for those affected by rare neurological diseases.

Differentiator

Problem solved

Functional benefit

Products and services

• Programme AIDAN A caregiver support program for families of patients with rare neurological diseases, offering seven modules delivered via video conference to address the specific needs of caregivers.
• Centre National de Ressources Psychologiques A national psychological support center providing targeted guidance to help patients with rare neurological diseases and healthcare professionals find appropriate local psychological resources, managed by two reference psychologists.
• Plateforme de Ressources Médico-sociales A medico-social resource platform providing information on living arrangements, MDPH disability rights, respite care, and other social support services for patients with rare neurological diseases.
• Pôle kinésithérapie BRAIN-TEAM A physiotherapy resource center aimed at improving access to rehabilitation care, optimizing treatment by health professionals, and promoting self-rehabilitation for patients with rare neurological diseases.
• Pôle ergothérapie (BRAIN'CAAT) An occupational therapy and assistive technology center providing information about aids and adapted equipment for patients with rare neurological diseases.
• BRAIN MOUV' An online exercise platform (digital gym) providing rehabilitation exercises and physical activity resources for patients with rare neurological diseases.
• Cartes de soins et d'urgence Emergency and care cards for patients providing critical medical information to healthcare providers in emergency situations.
• Don de cerveau (Neuro-CEB) A brain and spinal cord donation program coordinated in partnership with the Neuro-CEB biobank to support rare disease research.

Segments1 record

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Four partnerships are on record, tiered core and supportive.

• European Reference Network for Rare Neurological Diseases (ERN-RDN)coreStrategic or Co-development PartnerBRAIN-TEAM participates in ERN-RDN, a European network of reference centers for rare neurological diseases, in partnership with ERN-NMD and supported by the European Academy of Neurology (EAN). The network facilitates cross-border healthcare and knowledge sharing for rare neurological conditions.
• Neuro-CEB (Biobank)coreStrategic or Co-development PartnerBRAIN-TEAM partners with Neuro-CEB, the biobank for brain and spinal cord donation. The organization supports and guides potential donors through the brain donation process for research purposes.
• Filières de Santé Maladies Rares (23 FSMR)coreStrategic or Co-development PartnerBRAIN-TEAM is part of the national network of 23 Filières de Santé Maladies Rares, coordinated by the DGOS (French Ministry of Health). These filiéres work together on shared initiatives including transition from pediatric to adult care, therapeutic patient education, and common information resources.
• Fondation GroupamasupportiveOthersFondation Groupama pour la Santé has recognized BRAIN MOUV' (an online rehabilitation exercise program) with awards including the Prix du Public and Prix de l'Innovation Sociale, providing funding support for the project's continued development.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• FAI2R: French Filière de Santé Maladies Rares for rare autoimmune/autoinflammatory diseases. Sister network with identical governance, DGOS oversight, and coordination mandate across reference centers and patient associations.
• FILNEMUS: French national Filière de Santé Maladies Rares for rare neuromuscular diseases. Same statutory structure (FSMR under DGOS), same parent framework, same coordination role across reference centers - making it the most directly comparable FSMR sister network.
• MHEMO: French Filière de Santé Maladies Rares for rare hematological diseases. Peer FSMR sharing the same national coordination structure, public funding model, and integrated patient support services approach as BRAIN-TEAM.
• FILFOIE: French Filière de Santé Maladies Rares for rare liver diseases. Sister FSMR with identical operating model, reference center network, and patient association integration, providing an apples-to-apples comparison for BRAIN-TEAM's coordination function.
• FILSLAN: French Filière de Santé Maladies Rares for rare diseases of the motor neuron, muscle, and peripheral nervous system. Sister FSMR with directly overlapping disease territory and identical public-health coordination structure.

Regional players

• NORD (National Organization for Rare Disorders): US-based umbrella organization for rare disease patient advocacy, research, and policy. Plays a role analogous to BRAIN-TEAM but at national level in the United States, providing a regional comparison of how rare-disease coordination is structured elsewhere.

Emerging players

• Orphanet: European reference portal and knowledge base for rare diseases, including nomenclature and epidemiology services. While not a coordination network for a specific disease group, it is a complementary ecosystem player central to rare-disease care pathways BRAIN-TEAM supports.

Broad incumbents

• Alliance Maladies Rares: French national alliance representing over 200 rare-disease patient associations, including those affiliated with BRAIN-TEAM. Plays a broader policy and advocacy role while BRAIN-TEAM handles clinical coordination - a complementary incumbent.
• EURORDIS - Rare Diseases Europe: European umbrella organization for rare disease patient associations and coordination bodies. Broader incumbent that aggregates and represents organizations like BRAIN-TEAM at EU level and influences cross-cutting rare-disease policy.
• ERN-RDN (European Reference Network for Rare Neurological Diseases): Pan-European reference network coordinating rare neurological disease expertise. BRAIN-TEAM actively partners with ERN-RDN; while BRAIN-TEAM focuses on national coordination, ERN-RDN plays the analogous role at the European level.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/channel/UCMt6pYiWIR7fMTVGsVSnZNQ
• Facebookfacebook.com/FSMRbrainteam
• LinkedInlinkedin.com/company/fsmr-brain-team
• Xx.com/brainteam_fsmr

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about BRAIN-TEAM