Lymevereniging
Lymevereniging is a Dutch nonprofit patient advocacy organization founded in 1994 that delivers information, peer support, and policy advocacy for Lyme disease patients and families in the Netherlands, funded by memberships, donations, and government subsidies.
- Company typePrivate
- Founded1994
- HeadquartersAmersfoort, Netherlands
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Lymevereniging does
Lymevereniging is a Dutch patient advocacy organization (vereniging) founded in 1994 and headquartered in Amersfoort, the Netherlands. It serves individuals affected by Lyme disease, including chronic and acute patients, families, and caregivers, by providing information, peer support, policy advocacy, and limited member services. The organization holds ANBI (public benefit organization) and CBF charity-recognition status and is led by a volunteer board with a small (1-10) staff complement.
The organization's product and service portfolio includes the quarterly Lyme Magazine editorial publication, the Symptomenlogboek (Symptom Logbook) mobile app relaunched in 2025, tick-removal cards (tekenverwijderkaart) sold at €3 each, segmented peer support groups (e.g., mothers, young adults 18-30, adults 30+), a two-day UWV training program supporting disability-benefit applications, and educational brochures. Technology infrastructure is deliberately lean: membership management, e-commerce, and donation processing are outsourced to the third-party platform Thiersupport.eu, while tick-bite monitoring data is hosted at TickRadar.nl. Research and policy activities are delivered in partnership with Amsterdam UMC and Radboud UMC via the Dutch Lyme Expertise Center (NLe), the NMCB biobank research consortium, the PAIS patient alliance, and the US-based Global Lyme Alliance.
The revenue model blends recurring individual membership fees (€26/year regular, €500 lifetime), small-ticket product sales, tax-deductible donations enabled by ANBI status, and Dutch government Patiëntenorganisaties subsidies used for organizational professionalization. Distribution occurs through the website, social channels, a member newsletter, the annual Week van de Teek awareness campaign, peer support meetings, and Annual General Meetings (ALV). The organization operates within an addressable patient market of approximately 25,000 new Dutch Lyme cases per year, of which an estimated 1,000-2,500 progress to persistent chronic symptoms.
Lymevereniging firmographics
Firmographics- Name
- Lymevereniging
- Legal name
- Lymevereniging
- Website
- https://lymevereniging.nl
- Company type
- Private
- Founded year
- 1994
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Lymevereniging is a Dutch nonprofit patient advocacy organization founded in 1994 that delivers information, peer support, and policy advocacy for Lyme disease patients and families in the Netherlands, funded by memberships, donations, and government subsidies.
- Ownership category
- akta.pro rank
Lymevereniging industry classification
Industry- Product category
- Nonprofit Patient Advocacy Services
- akta.pro primary industry
- Tick-Borne & Vector-Borne Diseases (HLAKAGAL)
Keywords
Where Lymevereniging is headquartered
LocationHeadquarters
- HQ city
- Amersfoort
- HQ country
- Netherlands
- HQ region
- Europe
Offices2 records
Markets served
Lymevereniging business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Membership Fees: Annual membership at €26 per year provides members with the Lyme Magazine (3 issues per year) and access to all association benefits. Lifetime membership available for a one-time payment of €500.
- Product Sales: Sale of tick removal cards (tekenkaarten) at €3 per card with a minimum order of 2 cards, plus shipping costs. The organization also sells books related to Lyme disease experiences.
- Donations: The organization accepts tax-deductible donations through bank transfer (NL21INGB0001430295) or iDEAL. The Lymevereniging holds ANBI status making donations tax-deductible for Dutch donors.
- Government Subsidies: The association receives subsidy funding for professionalization projects and general operations. The first subsidy round was spent, and a second round application was pending for the 2026 professionalization project.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Regular Membership - Annual subscription including Lyme Magazine |
| One time/ perpetual license | Pay-as-you-go | Lifetime Membership - One-time payment for perpetual membership |
| Unit Pricing | Pay-as-you-go | Tick Removal Cards - Physical product for tick extraction |
Go-to-market motion2 records
Distribution channels4 records
Marketing channels8 records
Lymevereniging product offering
Product offeringCore offering
Lymevereniging is a Dutch non-profit patient advocacy organization (belangenorganisatie) that supports Lyme disease patients through information provision, peer support, and policy advocacy. It sells a quarterly Lyme Magazine to members, distributes tick removal cards, and runs a symptom-tracking mobile app, with revenue from membership fees, donations, product sales, and government subsidies.
Product overview
Lymevereniging is a Dutch patient advocacy organization (belangenorganisatie) that provides information, peer support, and advocacy services for Lyme disease patients. The organization offers several products and services including: the Lyme Magazine (published quarterly), tick removal cards (tekenverwijderkaart) sold for €3, membership programs (regular at €26/year and lifetime at €500), a Symptomenlogboek (symptom tracking app), peer support groups (lotgenotencontact) for various age groups, a mother's support group, UWV training for disability benefits applications, and educational brochures and resources about Lyme disease prevention and treatment.
Differentiator
Problem solved
Functional benefit
Products and services
- Lidmaatschap (Membership) Membership program for Lyme disease patients and supporters in the Netherlands. Regular membership is €26 per year and includes three issues of the Lyme Magazine per year, with prorated pricing for mid-year sign-ups. Lifetime membership is a one-time payment of €500 and includes all regular membership benefits without renewal.
- Lyme Magazine Quarterly magazine (three issues per year) included with membership, featuring articles about Lyme disease, patient experiences, research updates, and association news. Distributed by postal mail to members.
- Tekenverwijderkaart (Tick Removal Card) A physical card designed to safely remove ticks from the skin. Sold at €3 per card with a minimum order of two cards, excluding shipping costs. Available for anyone in the general public who may encounter ticks, with purchase proceeds supporting the Lymevereniging.
- Symptomenlogboek (Symptom Logbook App) Mobile application for Lyme disease patients to log and track their symptoms over time. A new version was released in 2025 that is more user-friendly and presents information more clearly, developed using subsidy funding.
- Lotgenotencontact (Peer Support Groups) Facilitated peer support groups for Lyme disease patients and caregivers, including a mother's group for caregiving mothers, online groups for ages 18-30 and 30+, an in-person discussion group in Amsterdam, a pen pals program, and a 'Mama's en Papa's (to be)' group for those considering parenthood.
- UWV Training Two-day training program helping Lyme patients prepare for UWV (Dutch social security institute) conversations regarding disability benefits applications.
- Zorgeloos naar School Brochure Educational brochure for teachers about supporting children with Lyme disease and PAIS (Post Acute Infectious Syndromes) in school settings, provided through the Lymevereniging's children-and-Lyme dossier.
Quantifiable outcome
- 1,657 chronic Lyme patients documented their healthcare experiences in the 2019 Dutch Lyme Monitor, revealing that health, care, treatment, and quality of life for chronic Lyme patients are 'appalling'.
- +1 more outcomes
Companies that use Lymevereniging
Customer profileNamed customers1 record
Segments3 records
Ideal customer profiles3 records
Lymevereniging technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature1 record
Lymevereniging partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered minor and core.
- US Department of Health and Human Services (HHS)minorThe US HHS, led by Robert F. Kennedy Jr., announced new initiatives including a multi-million dollar pilot program for tick control and better Lyme treatments, and a collaboration program connecting patients with experienced healthcare providers. The Lymevereniging reported on these developments as they offer hope for Dutch Lyme patients.
- PAIS Alliance (Post-Acute Infection Syndromes)coreThe Lymevereniging is a member of the PAIS Alliance, a coalition advocating for patients with post-acute infection syndromes including long COVID, ME, Q-fever, Lyme disease, and post-sepsis. The alliance sends joint responses to the Dutch Minister of Health and Parliament on PAIS-related policy matters. Hans van Andel was nominated to serve on the PAIS board to represent Lyme disease interests.
- Nederlands Lymeziekte-expertisecentrum (NLe) / Dutch Lyme Expertise CentercoreThe NLe is a partnership between AmsterdamUMC and RadboudUMC, with the Lymevereniging as a member. The center conducts Lyme disease research, operates the NLe biobank for collecting patient biomaterials and questionnaires, and provides clinical occupational medicine consultations.
- RadboudUMCcoreOne of the two academic medical centers forming the Dutch Lyme Expertise Center (NLe). Dr. Hadewych ter Hofstede from RadboudUMC presents research developments to the Lymevereniging's Annual General Meeting and participates in the NMCB biobank research.
- AmsterdamUMCcoreOne of the two academic medical centers forming the Dutch Lyme Expertise Center (NLe). AmsterdamUMC stores the biomaterials and data collected by the NMCB (Netherlands ME/CFS Cohort & Biobank) research consortium. Researchers from AmsterdamUMC coordinate the NMCB study.
- NMCB Consortium (Netherlands ME/CFS Cohort & Biobank)coreA national collaboration of all University Medical Centers (UMCs), patient organizations, RIVM, and multiple universities researching ME/CFS and long-term symptoms following infections including Lyme disease. ZonMw funds the research. Currently includes approximately 200 PTLDS patients and 50 recovered Lyme patients.
- Global Lyme Alliance (GLA)minorInternational Lyme disease research organization. The GLA supported a new study from Tufts University on genetic factors influencing Lyme recovery outcomes, which the Lymevereniging reported on its news section.
- Belangenvereniging Intensieve Kindzorg (BVIKZ)minorThe Lymevereniging co-signed an open letter with BVIKZ and Oudervereniging Balans addressed to the VNG (municipality association) regarding problems faced by families with chronically ill children. Both organizations advocate together for children's rights in healthcare.
Scale indicators5 records
Recent moves7 records
Expansion highlights6 records
Lymevereniging competitors and assessment
Company assessmentMarket position
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Lymevereniging social profiles
Digital presenceLymevereniging compliance and trust
Trust signalCompliance2 records
Lymevereniging financial estimates
Financial estimateRevenue estimate
Valuation estimate
Lymevereniging leadership team
Management profileNumber of profiles
Profiles4 records
Lymevereniging funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Lymevereniging M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Lymevereniging
What does Lymevereniging do?
Lymevereniging is a Dutch non-profit patient advocacy organization (belangenorganisatie) that supports Lyme disease patients through information provision, peer support, and policy advocacy. It sells a quarterly Lyme Magazine to members, distributes tick removal cards, and runs a symptom-tracking mobile app, with revenue from membership fees, donations, product sales, and government subsidies.
Is Lymevereniging a public or private company?
Lymevereniging is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Lymevereniging founded?
Lymevereniging was founded in 1994. It employs 1 to 10 people.
Where is Lymevereniging based?
Lymevereniging is headquartered in Amersfoort, Netherlands, in the Europe region.
How does Lymevereniging make money?
Four revenue lines are on record. Membership Fees are the primary driver. The others are product Sales, donations and government Subsidies.
Does Lymevereniging have an API?
No public API is recorded for Lymevereniging.
What industry is Lymevereniging in?
Lymevereniging's product category is Nonprofit Patient Advocacy Services. Its primary akta.pro industry code is HLAKAGAL, Tick-Borne & Vector-Borne Diseases.