MPS SuperHero Foundation

What MPS SuperHero Foundation does

MPS SuperHero Foundation is a non-profit charitable organization founded in 2017 and headquartered in Hollywood, Florida, that supports families affected by Mucopolysaccharidoses (MPS) — a group of rare genetic disorders encompassing types I, II, III, IV, VI, and VII. The foundation was co-founded by Monica Anaya (President) and Avram Joseph (Vice President), parents of a child affected by MPS II (Hunter Syndrome), and operates with an 11–50 employee/volunteer base. It addresses the financial, emotional, and informational burdens borne by MPS families through a unified suite of programs.

The foundation's offerings span four pillars: a Family Assistance Program providing financial aid for medical bills and travel costs; Emotional Support Services including group, individual, and super-sibling therapy; a Resources and Education portal linking families to clinical trials (via NIH and ClinicalTrials.gov) and partner organizations (National MPS Society, Cure Sanfilippo Foundation); and community fundraising events such as the annual Superheroes of Love Walk, Kickin' for a Cure Kickball Tournament, and 5K runs. It also conducts advocacy to add MPS I and MPS II to the Recommended Uniform Screening Panel (RUSP).

The foundation is funded primarily through individual donations (processed via Stripe) and corporate sponsorships, and it has received content-based exposure through partnerships with rare-disease pharmaceutical companies such as Takeda. Its geographic operations are concentrated in Southeast Florida, and it has not publicly disclosed revenue or headcount. There is no proprietary technology platform; the digital footprint consists of a content website, email newsletter, and social media channels used to engage the MPS community.

Name

MPS SuperHero Foundation

Legal name

MPS SuperHero Foundation

Website

https://mpssuperhero.org

Company type

Private

Founded year

2017

Operating status

Operating

Headcount range

11–50 employees

Short description

MPS SuperHero Foundation is a Hollywood, Florida-based non-profit founded in 2017 that provides financial assistance, emotional support, and educational resources to families affected by Mucopolysaccharidoses (MPS) rare genetic disorders across the United States.

Ownership category

akta.pro rank

Product category

Rare Disease Patient Support Services

NAICS

Social Advocacy Organizations (8133), Grantmaking and Giving Services (8132)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industry

Mental Health & Crisis Support Services (BPAGACAD)

Keywords

• Rare disease support
• Patient advocacy services
• Financial assistance programs
• Family support services
• Community fundraising events

Headquarters

HQ city

Hollywood

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: Individual donations from supporters who contribute to the foundation's mission of supporting MPS-affected families. Donations are collected via Stripe payment processing.
2. Corporate Sponsorships: Partnerships with corporations who sponsor events and the foundation's operations in exchange for recognition and association with the cause.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels4 records

Core offering

MPS SuperHero Foundation is a 501(c)(3) nonprofit that provides financial assistance, emotional support, resources and education, and advocacy programs to families affected by MPS (Mucopolysaccharidosis), with emphasis on MPS II (Hunter Syndrome). It complements these direct services with community-building and fundraising events such as the Superheroes of Love Walk, Kickin' for a Cure kickball tournament, and 5K runs.

Product overview

MPS SuperHero Foundation is a non-profit charitable organization that provides a unified suite of support services for families affected by MPS (Mucopolysaccharidoses). The foundation's offerings center on four core pillars: a Family Assistance Program providing financial support for medical bills and travel; Emotional Support Services including group, individual, and sibling therapy; a Resources and Education portal connecting families with clinical trials and partner organizations; and community fundraising events including the Superheroes of Love Walk, Kickball Tournaments, and 5K runs. The organization also conducts advocacy efforts to advance MPS screening and treatment options.

Differentiator

Problem solved

Functional benefit

Products and services

• Financial Assistance Program

Named customers1 record

Segments3 records

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• National Institutes of Health (NIH)coreStrategic or Co-development PartnerProvides resources for families to learn about MPS studies and research. The foundation links to NIH search functionality for MPS-related clinical studies.
• ClinicalTrials.govcoreStrategic or Co-development PartnerProvides searchable database of MPS clinical trials, helping families connect with research opportunities and experimental treatments.
• National MPS SocietycoreStrategic or Co-development PartnerPartner organization providing community connection for MPS-affected families. Referenced as a resource for getting connected with the broader MPS community.
• Cure Sanfilippo FoundationcoreStrategic or Co-development PartnerPartner organization helping families connect with their community, particularly for families affected by MPS III (Sanfilippo Syndrome).
• Takeda PharmaceuticalsminorStrategic or Co-development PartnerFeatured in educational content about Hunter Syndrome (MPS II) through their 'Rarely Heard' video series. Takeda develops treatments for rare diseases including MPS.

Scale indicators1 record

Recent moves6 records

Expansion highlights5 records

Emerging players

• Jonah's Just Begun: Parent-founded nonprofit focused on Sanfilippo Syndrome (MPS III) research and family support. Comparable in founder background, disease focus subset, and emerging-player scale to MPS SuperHero Foundation.
• Remember the Girls: A rare-disease nonprofit supporting female carriers of X-linked genetic conditions including MPS II (Hunter Syndrome). Comparable in caregiver/sibling support and rare-disease mental-health focus to elements of MPS SuperHero Foundation's offering.
• Ryan's MPS Foundation: A parent-led nonprofit established in memory of a child lost to MPS, focused on raising awareness and supporting families. Comparable in size, parent-led structure, and disease-specific family-support mission to MPS SuperHero Foundation.

Broad incumbents

• National Organization for Rare Disorders (NORD): The largest U.S. rare-disease umbrella organization providing advocacy, research funding, and patient services across all rare conditions. Comparable as a broader incumbent offering overlapping advocacy and patient-navigation capabilities in the same end market (families with rare genetic conditions).
• Genetic Alliance: A nonprofit health advocacy organization serving individuals and families affected by genetic conditions. Operates broadly across rare and genetic diseases with similar advocacy and resource-navigation functions to MPS SuperHero Foundation.
• National Organization for Rare Disorders (NORD) Rare Caregiver Center: Same parent as NORD; specifically relevant because it addresses caregiver mental health — the same need MPS SuperHero Foundation's Emotional Support Services tackle at the disease-specific level.

Direct peers

• Project Alive: A nonprofit specifically focused on MPS II (Hunter Syndrome) — the same sub-type the MPS SuperHero Foundation was founded around. Operates with a similar parent-led, advocacy and clinical-trial-navigation model and represents a close direct peer.
• National MPS Society: The largest U.S. organization dedicated to all forms of MPS, providing family support, research funding, and advocacy. Directly comparable to MPS SuperHero Foundation in mission and target beneficiary (MPS-affected families), with broader disease-type coverage and national scale.
• Cure Sanfilippo Foundation: Parent-led nonprofit focused on MPS III (Sanfilippo Syndrome) — the same rare genetic disease space served by MPS SuperHero Foundation. Listed as a strategic partner on the foundation's resources page and competes for overlapping donor mindshare within the MPS community.

Regional players

• Akari Foundation: A nonprofit operating with regional presence focused on supporting families affected by rare genetic conditions, comparable to MPS SuperHero Foundation's regional operating model and family-assistance program structure.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/mpssuperhero
• Facebookfacebook.com/mpssuperhero
• LinkedInlinkedin.com/company/mps-superhero-foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about MPS SuperHero Foundation