HeartKids
HeartKids Limited is Australia's only national charity dedicated to lifelong support for people impacted by childhood-onset heart disease, serving roughly 250,000 Australians through helpline services, teen transition programs, mental health support, hospital-based coordinators, and digital resources funded by donations, corporate partnerships, and government grants.
- Company typePrivate
- Founded1976
- HeadquartersParramatta, Australia
- Headcount11–50
- GTM typeB2C
- OfferingServices
What HeartKids does
HeartKids Limited is an Australian nonprofit charitable organization (company limited by guarantee) and the only national charity dedicated to supporting people impacted by childhood-onset heart disease (CoHD). Founded in 1976 and headquartered in Kent Town, South Australia, the organization serves an estimated 250,000 Australians living with CoHD and approximately one million people directly or indirectly affected, including families and carers. Its core services include a national helpline, early childhood programs, mental health support, teen transition programs, peer support camps, and bereavement support, delivered through Family Support Coordinators embedded with all major Australian children's hospitals under renewed MOUs.
The organization operates a digital ecosystem comprising a resource library, the HeartKids Podcast, the CoHD Real Talk video series, the UpBeat teen transition smartphone application (which stores all information locally on-device for privacy), and the CoHD Directory connecting healthcare professionals with referral pathways. HeartKids runs recurring national campaigns including Sweethearts for HeartKids, Hero for HeartKids, Race to Remember, and the Two Feet & A Heartbeat memorial walk held across 30+ locations. It also sells branded merchandise via its online shop, with all proceeds directed back into programs.
HeartKids is funded through a mix of individual donations, regular giving, workplace giving, bequests, merchandise sales, corporate partnerships (Drakes Supermarkets, Supercheap Auto, Netball NSW), philanthropic foundation grants (Stan Perron Charitable Foundation), and government funding tied to the National Plan for Childhood Heart Disease. The current CEO, Sami Glastonbury, and Chair, Rohan Geddes, both bring lived CoHD experience, the first such leadership pairing in the organization's history. The charity is governed by a Board of Directors, has no parent company or external investors, and is currently navigating a period of funding pressure that has required operational restructuring despite an expanding partnership footprint.
HeartKids firmographics
Firmographics- Name
- HeartKids
- Legal name
- HeartKids Limited
- Website
- https://heartkids.org.au
- Company type
- Private
- Founded year
- 1976
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- HeartKids Limited is Australia's only national charity dedicated to lifelong support for people impacted by childhood-onset heart disease, serving roughly 250,000 Australians through helpline services, teen transition programs, mental health support, hospital-based coordinators, and digital resources funded by donations, corporate partnerships, and government grants.
- Ownership category
- akta.pro rank
HeartKids industry classification
Industry- Product category
- Charitable Health Support Services
- NAICS
- Child and Youth Services (62411), Other Individual and Family Services (624190), Voluntary Health Organizations (813212)
- SIC
- Services-Social Services (8300), Services-Health Services (8000)
- akta.pro primary industry
- Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK)
- akta.pro secondary industries
- Cardiac Rehabilitation & Secondary Prevention (HLAKABAJ), Bereavement, Grief & Family Support Services (Hospice-Linked) (HLAFAEAO)
Keywords
Where HeartKids is headquartered
LocationHeadquarters
- HQ city
- Parramatta
- HQ country
- Australia
- HQ region
- Oceania
Offices1 record
Markets served
HeartKids business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations and Giving: HeartKids relies on individual donations, regular giving programs, workplace giving, and bequests. The organization runs annual fundraising campaigns including Sweethearts for HeartKids, Hero for HeartKids, and community fundraising initiatives.
- Merchandise Sales: Online shop selling branded merchandise including apparel, accessories, jewelry, and books. All proceeds support HeartKids programs and families.
- Corporate Partnerships: Partnerships with corporate sponsors including Drakes Supermarkets, Supercheap Auto, Netball NSW, and others who provide financial support, in-store donations, and workplace fundraising.
- Government Funding: Receives government funding for specific programs including RHD prevention initiatives and support services, alongside philanthropic foundation grants.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Unit Pricing | Pay-as-you-go | Apparel items including t-shirts, caps, bucket hats |
| Unit Pricing | Pay-as-you-go | Accessories including wristbands, pens, charms |
| Unit Pricing | Pay-as-you-go | Jewelry including pendants, bracelets, earrings |
| Unit Pricing | Pay-as-you-go | Books including Echo and Heart Hero Book |
| Other | One time/ perpetual license | Donation campaigns |
Go-to-market motion1 record
Distribution channels5 records
Marketing channels9 records
HeartKids product offering
Product offeringCore offering
HeartKids is an Australian nonprofit charitable organization that provides lifelong emotional, practical, and informational support to children, teenagers, adults, and families impacted by childhood-onset heart disease (CoHD). Core offerings include the HeartKids Helpline, family support coordination, early childhood programs, mental health support, teen transition resources via the UpBeat app, healthcare professional referrals through the CoHD Directory, and a national community of peer support, fundraising campaigns, and advocacy. Supplementary offerings include branded merchandise sales and educational resources like podcasts and video series.
Product overview
HeartKids is an Australian charity providing lifelong support, resources, and advocacy for people impacted by childhood-onset heart disease (CoHD). The organization operates as a charity with multiple support programs and merchandise offerings rather than a traditional technology product. Core support services include the HeartKids Helpline, Early Childhood Programs, Mental Health Support Service, and the CoHD Real Talk video series. The organization offers the UpBeat teen transition smartphone app for young people managing CoHD, along with educational resources including podcasts, videos, and a Resource Library. HeartKids also sells official merchandise including apparel, accessories, and books through its online shop. Major campaigns include Sweethearts for HeartKids, Hero for HeartKids, Two Feet & A Heartbeat Walk, and Race to Remember.
Differentiator
Problem solved
Functional benefit
Brands
- UpBeat: Teen transition smartphone application developed by HeartKids to support young people moving from pediatric to adult cardiac care.
- Strong Hearts Strong Mob
- Sweethearts for HeartKids
- Hero for HeartKids
- Two Feet & A Heartbeat
- Race to Remember
Products and services
- HeartKids Support Services Lifelong emotional and practical support for families and individuals impacted by childhood-onset heart disease (CoHD), delivered by family support coordinators and lived-experience staff across Australia.
- HeartKids Helpline (1800 432 785) Phone-based support service (1800 432 785) offering guidance and connection for families and individuals navigating a CoHD diagnosis, treatment, and ongoing care.
- Early Childhood Programs Programs designed for families with young children impacted by CoHD, focusing on early intervention and developmental support during the critical early years.
- Mental Health Support Service Dedicated mental health and emotional support service for individuals, siblings, parents, and families affected by childhood-onset heart disease.
- UpBeat Teen Transition App Smartphone application for teenagers and young adults with CoHD that supports transition from paediatric to adult cardiac care, with information stored locally on the user's device for privacy.
- CoHD Directory Online directory that connects healthcare professionals and families with CoHD-related services, specialists, and referral pathways across Australia.
- Resource Library Digital hub providing factsheets, videos, podcast episodes, and animations designed to help families and professionals understand CoHD and its impacts.
- CoHD Real Talk Video Series Video series featuring candid conversations with adults, young people, parents, and siblings sharing their lived experience with CoHD, covering identity, diagnosis, body image, mental health, surgery preparation, and bereavement.
- HeartKids Podcast Fortnightly podcast featuring cardiologists, clinical experts, and community members sharing stories and clinical insight about CoHD.
- HeartKids Shop Merchandise Official HeartKids merchandise including apparel (t-shirts, caps, bucket hats, socks), accessories (bracelets, earrings, pendants, charms, wristbands, pens), and books sold online with all proceeds supporting HeartKids programs.
- The Heart Hero Book Book by Heart Mum Hollie Tran following the journey of Noah, a young boy with a heart surgery scar, as he navigates self-acceptance and compassion.
- Echo Book Book by Lisa Van Der Wielen and illustrated by Anne Farrell, combining the bond between a boy and his dog with the message to wear scars with pride.
Quantifiable outcome
- 250,000 Australians supported with CoHD services
- +2 more outcomes
Companies that use HeartKids
Customer profileNamed customers3 records
Segments7 records
Ideal customer profiles4 records
HeartKids technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature3 records
HeartKids partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered core and minor.
- Heartbeat of Football FoundationcoreHeartKids and Heartbeat of Football partnership supports Australians with heart disease, particularly teens, adults, and Aboriginal and Torres Strait Islander communities. Collaboration includes expanding heart health awareness, delivering heart health checks, CPR/defibrillator training, free screening programs, and joint education campaigns. Andy Paschalidis serves as Founder and CEO.
- Siblings AustraliacoreHeartKids and Siblings Australia entered into a partnership via signed Memorandum of Understanding (MoU) to improve support for siblings of children impacted by CoHD, with particular focus on those experiencing grief following sibling loss. Partnership includes mutual promotion, referral processes, and joint collaboration on research, forums, and campaigns.
- Heart Support AustraliaminorStrategic partnership to strengthen patient and carer support across all ages for those impacted by cardiovascular disease. Both organizations join to provide comprehensive support services.
- Netball NSWcoreHeartKids Cup established as official pre-season competition for Netball NSW Premier League. All 10 franchises compete for the cup at Netball Central, with Celebrity Charity Match featuring netball stars. Partnership has raised thousands since 2012 and expanded nationally in 2025.
- Heart FoundationcoreLandmark partnership between two leading Australian heart charities to accelerate work towards improving outcomes for those impacted by CoHD. Joint efforts in advocacy, support, innovation, community awareness campaigns, research programs, and reducing RHD in First Nations communities.
- Deadly Heart TrekcoreHeartKids is a proud sponsor of the Deadly Heart Trek, founded by cardiologists Dr Bo Remenyi and Dr Gavin Wheaton. The initiative travels to remote communities to screen, diagnose, and treat RHD before it progresses. HeartKids supports families affected by RHD during hospital stays and in the community.
- Children's GroundminorCollaboration on Gemma's Bicillin Day animation to help young people prepare for RHD treatment. Children's Ground facilitated creation of music supporting heart health education in Northern Territory communities.
- Children's Hospitals (National)coreHeartKids has renewed Memorandums of Understanding with all major children's hospitals around Australia, including partnerships with paediatric cardiology clinics for coordinated family support.
Scale indicators10 records
Recent moves6 records
Expansion highlights6 records
HeartKids competitors and assessment
Company assessmentRegional players
- Children's Heart Federation: UK federation of congenital heart disease charities providing information, research funding, and family support. Direct thematic peer to HeartKids — same disease (CoHD/CHD), same family-support mission — but operating in the UK rather than Australia.
- Cure Kids: New Zealand's leading child health research and support charity, funding research into conditions affecting children including cardiac and rheumatic heart disease. Same disease-focused pediatric charity model as HeartKids but operating across the Tasman rather than within Australia.
Direct peers
- Make-A-Wish Australia: Australian branch of the global wish-granting charity for children with critical illnesses, including heart conditions. Operates the same large-scale donation, corporate partnership, and volunteer-driven fundraising model as HeartKids.
- Heart Support Australia: Australian nonprofit providing patient and carer support across all ages for cardiovascular disease. Recent HeartKids partner; operates a near-identical support-services model (peer connection, advocacy, community programs) but for adult cardiac patients rather than CoHD.
- Redkite: Australia's leading childhood cancer support charity, providing financial, emotional, and educational support to families of children with cancer. Closely comparable operating model to HeartKids: disease-specific pediatric charity delivering family support services, hospital partnerships, and community fundraising in Australia.
- Starlight Children's Foundation Australia: Australian charity brightening the lives of seriously ill children via hospital visits, wish granting, and Starlight Express Rooms in pediatric hospitals. Highly comparable fundraising, hospital-MOU, and family-support operating model to HeartKids, but focused on pediatric oncology and other serious illnesses rather than CoHD.
- Siblings Australia: Australian nonprofit supporting siblings of children with disability, chronic illness, or bereavement, including children impacted by CoHD. Recent HeartKids partner via MoU; operates a comparable counseling and peer-support model but focused specifically on the sibling cohort.
- Variety – the Children's Charity (Australia): Australian children's charity providing grants, equipment, and experiences for children who are sick, disadvantaged, or have special needs. Closely matches HeartKids' fundraising model (corporate partnerships, workplace giving, community events) while serving a broader pediatric population.
Broad incumbents
- Heart Foundation (Australia): Australia's largest heart-health charity, covering all cardiovascular disease in adults and children. Operates in the same disease category as HeartKids (heart disease) but with a much broader scope, larger donor base, and research-funding mandate; HeartKids now partners with them, indicating overlapping mission.
Others
- Children's Ground: Australian nonprofit working with First Nations children and families across remote communities on health, education, and cultural wellbeing. HeartKids partner for RHD education materials (e.g., Gemma's Bicillin Day animation) but its core operating model and mission differ from HeartKids'.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights8 records
Customer concentration
HeartKids social profiles
Digital presenceHeartKids financial estimates
Financial estimateRevenue estimate
Valuation estimate
HeartKids leadership team
Management profileNumber of profiles
Profiles2 records
HeartKids funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
HeartKids M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about HeartKids
What does HeartKids do?
HeartKids is an Australian nonprofit charitable organization that provides lifelong emotional, practical, and informational support to children, teenagers, adults, and families impacted by childhood-onset heart disease (CoHD). Core offerings include the HeartKids Helpline, family support coordination, early childhood programs, mental health support, teen transition resources via the UpBeat app, healthcare professional referrals through the CoHD Directory, and a national community of peer support, fundraising campaigns, and advocacy. Supplementary offerings include branded merchandise sales and educational resources like podcasts and video series.
Is HeartKids a public or private company?
HeartKids is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was HeartKids founded?
HeartKids was founded in 1976. It employs 11 to 50 people.
Where is HeartKids based?
HeartKids is headquartered in Parramatta, Australia, in the Oceania region.
How does HeartKids make money?
Four revenue lines are on record. Donations and Giving is the primary driver. The others are merchandise Sales, corporate Partnerships and government Funding.
Who are HeartKids's main competitors?
Regional players on record are Children's Heart Federation and Cure Kids. Direct peers are Make-A-Wish Australia, Heart Support Australia, Redkite, Starlight Children's Foundation Australia, Siblings Australia and Variety – the Children's Charity (Australia). Heart Foundation (Australia) is listed as a broad incumbent. Children's Ground is listed as an others.
Does HeartKids have an API?
No public API is recorded for HeartKids.
What industry is HeartKids in?
HeartKids's product category is Charitable Health Support Services. Its primary akta.pro industry code is BPAGADAK, Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits, with a secondary code of HLAKABAJ, Cardiac Rehabilitation & Secondary Prevention. Its NAICS code is 62411 and its SIC code is 8300.