NorCal CarciNet Community
- Company typePrivate
- Founded2011
- HeadquartersRipon, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What NorCal CarciNet Community does
NorCal CarciNet Community is a 501(c)-style nonprofit patient support organization founded in 2011 and based in Ripon, California, that serves individuals diagnosed with neuroendocrine tumors (NETs) and carcinoids, along with their caregivers and families. Its core offerings are community-based rather than technology-based: monthly in-person peer support meetings in the Northern California / Bay Area region, an annual Bay Area Neuroendocrine Patient Conference co-hosted with UCSF (now in its ninth year), and an extensive on-site resource library of 117 downloadable presentations, clinical trial finders, treatment guidelines, newsletters, and a yoga-for-NET-cancer wellness program. The organization does not build or sell any technology product; its "platform" is the combination of recurring meetings, an annual conference, and a curated content archive supported by partnerships with UCSF and Stanford medical faculty.
The organization's revenue model is donation-driven. It generates no commercial product or service revenue; funding comes from individual donations and peer-to-peer fundraising, most visibly through annual participation in the Oakland Running Festival. All services — meetings, conferences, educational content, and clinical trial navigation tools — are provided free of charge to patients and caregivers. Distribution occurs through direct community engagement (regional in-person meetings, annual conference at the UCSF Mission Bay Conference Center) and global self-serve online access (the norcalcarcinet.org website, YouTube recordings, and downloadable files). The organization is volunteer-driven with a small headcount of 1–10 employees, no disclosed funding rounds, no parent company, and no evidence of institutional or venture capital backing.
The organization's strategic posture is defensive maintenance of an established niche in rare-disease community support rather than aggressive commercial expansion. Its primary value to the NET patient community is the combination of lived-experience mentorship from long-term survivors (some living 25+ years with NETs) and access to leading NET specialists at UCSF and Stanford. The competitive moat — to the extent one exists in this non-commercial context — derives from a decade of sustained operation, institutional partnerships that would be costly for a new entrant to replicate, and a curated educational content library tailored specifically to NETs. There are no signals of geographic expansion beyond Northern California, no productization of services, and no adoption of digital-health or AI-driven capabilities.
NorCal CarciNet Community firmographics
Firmographics- Name
- NorCal CarciNet Community
- Legal name
- NorCal CarciNET Community
- Website
- https://norcalcarcinet.org
- Company type
- Private
- Founded year
- 2011
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Ownership category
- akta.pro rank
NorCal CarciNet Community industry classification
Industry- Product category
- Cancer Patient Support Services
- NAICS
- Individual and Family Services (6241)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Hospital-Integrated Cancer Centers (Acute Oncology Programs) (HLAFAAAM)
- akta.pro secondary industry
- Volunteer & Companion Support Services (Hospice Volunteer Programs) (HSABAFAO)
Keywords
Where NorCal CarciNet Community is headquartered
LocationHeadquarters
- HQ city
- Ripon
- HQ country
- United States
- HQ region
- North America
Offices2 records
Markets served
NorCal CarciNet Community business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Fundraising: Community organization funded through donations and fundraising activities such as the Oakland Running Festival event. No commercial revenue streams.
Go-to-market motion1 record
Distribution channels4 records
Marketing channels7 records
NorCal CarciNet Community product offering
Product offeringCore offering
NorCal CarciNet Community is a Northern California nonprofit that supports neuroendocrine tumor (NET) and carcinoid cancer patients, survivors, and caregivers through monthly peer support meetings, an annual educational conference featuring treating physicians, an online clinical trial finder, NET/cancer guideline resources, a community newsletter, and complementary wellness programming such as a yoga program. The organization serves as a regional hyper-local hub connecting a rare-cancer community to peers, research opportunities, and academic medical expertise in the Bay Area.
Product overview
NorCal CarciNet Community is a nonprofit patient support organization offering a collection of programs and resources for neuroendocrine tumor (NET) and carcinoid cancer patients. The organization provides monthly peer support group meetings, an annual Bay Area patient conference hosted with UCSF, archived educational presentations and conference materials, clinical trial finder tools, NET treatment guidelines, newsletters, yoga wellness programs, and resources specifically designed for newly diagnosed patients. These services operate as interconnected community programs designed to provide emotional support, education, and practical resources for patients and caregivers affected by these rare illnesses.
Differentiator
Problem solved
Functional benefit
Products and services
- Monthly NET/Carcinoid Support Meetings Recurring peer-led meetings in Northern California where NET/carcinoid patients, survivors, and caregivers gather to share experiences and receive community support. Open to individuals affected by neuroendocrine tumors or carcinoid cancer in the Bay Area and surrounding regions.
- Annual Educational Conference An annual educational conference featuring NET/carcinoid physicians and specialists who present research updates, treatment information, and educational content for patients and caregivers. Hosted in partnership with regional academic medical centers.
- Online Clinical Trial Finder An online resource that connects NET/carcinoid patients to active clinical trials and research studies, helping them identify research opportunities relevant to their diagnosis.
- NET/Carcinoid Guidelines and Educational Resources Disease guidelines and patient-facing educational materials about neuroendocrine tumors and carcinoid cancer published on the organization's website to inform patients and caregivers about treatment and care.
- Community Newsletter A regular email newsletter delivering community news, event announcements, educational updates, and outreach to NET/carcinoid patients, caregivers, and supporters.
- Yoga Program for Patients and Caregivers A complementary wellness program offering yoga sessions tailored for NET/carcinoid patients and caregivers to address physical and emotional wellbeing alongside medical care.
Quantifiable outcome
- Peer connections for newly diagnosed NET patients with survivors living 25+ years
Companies that use NorCal CarciNet Community
Customer profileSegments3 records
Ideal customer profiles1 record
NorCal CarciNet Community technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
NorCal CarciNet Community partnerships and signals
Strategic signalPartnerships
Two partnerships are on record, tiered core.
- UCSF Neuroendocrine Tumor ProgramcoreUCSF Neuroendocrine Tumor Program co-hosts the annual Bay Area Neuroendocrine Patient Conference with NorCal CarciNET Community. This is a flagship partnership featuring nationally renowned UCSF NET experts and serving as the primary annual educational event for the NET patient community in the Bay Area.
- StanfordcoreStanford medical experts participate in the annual Bay Area Neuroendocrine Patient Conference alongside UCSF experts, providing sessions on various NET topics and breakout sessions by disease type. Stanford represents a key institutional partner in the collaborative educational programming.
Scale indicators2 records
Expansion highlights3 records
NorCal CarciNet Community competitors and assessment
Company assessmentBroad incumbents
- Cancer Support Community: National nonprofit providing cancer support groups, educational resources, and patient navigation. Comparable in offering community-based psychosocial support, but across all cancer types rather than NET-specific.
- American Cancer Society: Large national cancer nonprofit delivering patient support, education, and research funding. Comparable as a peer-support and education provider for cancer patients, though at vastly broader scale and disease scope.
- Inspire: Large online patient community platform hosting disease-specific support groups including NET/cancer communities. Comparable as a digital infrastructure layer for the same kind of patient and caregiver communities NorCal CarciNet fosters.
Direct peers
- Cancer Hope Network: Nonprofit providing one-on-one peer support matches between cancer patients and trained survivors. Highly comparable peer-support model for patients facing rare and common cancers, including NETs.
- NET Research Foundation: Nonprofit funding scientific research into neuroendocrine tumors while supporting the patient community. Directly comparable disease and audience focus, but with a heavier research-funding mandate.
- The Healing NET Foundation: Nonprofit focused on NET patient advocacy, education, and quality-of-life programming. Comparable as a community-oriented NET support organization running complementary awareness and patient-engagement initiatives.
- Neuroendocrine Cancer Awareness Network (NCAN): Patient advocacy nonprofit dedicated to increasing awareness of NET cancers and supporting patients and caregivers. Directly comparable in mission, audience, and disease focus to NorCal CarciNet's neuroendocrine tumor support activities.
- Carcinoid Cancer Foundation: Long-standing national nonprofit focused on carcinoid/NET patient education, awareness, and research support. Highly comparable because it serves the same neuroendocrine tumor patient and caregiver population with educational content and community programming.
Others
- PAN Foundation: Nonprofit providing financial assistance to underinsured patients with serious illnesses, including cancer. Comparable as an adjacent patient-support nonprofit serving similar disease populations through complementary funding sources.
Emerging players
- Stupid Cancer: Nonprofit focused on the young adult cancer population, running support programs and educational events. Comparable in being a disease-segment-focused support nonprofit hosting community and conference-style programming.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat3 records
Key risks5 records
Key highlights5 records
Customer concentration
NorCal CarciNet Community social profiles
Digital presenceNorCal CarciNet Community financial estimates
Financial estimateRevenue estimate
Valuation estimate
NorCal CarciNet Community leadership team
Management profileNumber of profiles
NorCal CarciNet Community funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
NorCal CarciNet Community M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about NorCal CarciNet Community
What does NorCal CarciNet Community do?
NorCal CarciNet Community is a Northern California nonprofit that supports neuroendocrine tumor (NET) and carcinoid cancer patients, survivors, and caregivers through monthly peer support meetings, an annual educational conference featuring treating physicians, an online clinical trial finder, NET/cancer guideline resources, a community newsletter, and complementary wellness programming such as a yoga program. The organization serves as a regional hyper-local hub connecting a rare-cancer community to peers, research opportunities, and academic medical expertise in the Bay Area.
Is NorCal CarciNet Community a public or private company?
NorCal CarciNet Community is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was NorCal CarciNet Community founded?
NorCal CarciNet Community was founded in 2011. It employs 1 to 10 people.
Where is NorCal CarciNet Community based?
NorCal CarciNet Community is headquartered in Ripon, United States, in the North America region.
How does NorCal CarciNet Community make money?
One revenue line is on record: donations and Fundraising.
Who are NorCal CarciNet Community's main competitors?
Broad incumbents on record are Cancer Support Community, American Cancer Society and Inspire. Direct peers are Cancer Hope Network, NET Research Foundation, The Healing NET Foundation, Neuroendocrine Cancer Awareness Network (NCAN) and Carcinoid Cancer Foundation. PAN Foundation is listed as an others. Stupid Cancer is listed as an emerging player.
Does NorCal CarciNet Community have an API?
No public API is recorded for NorCal CarciNet Community.
What industry is NorCal CarciNet Community in?
NorCal CarciNet Community's product category is Cancer Patient Support Services. Its primary akta.pro industry code is HLAFAAAM, Hospital-Integrated Cancer Centers (Acute Oncology Programs), with a secondary code of HSABAFAO, Volunteer & Companion Support Services (Hospice Volunteer Programs). Its NAICS code is 6241 and its SIC code is 8300.