DGKCH

What DGKCH does

The society also operates the KiRaFe (KinderRegister für angeborene Fehlbildungen) registry — a multidisciplinary, multicenter clinical registry for rare congenital malformations including esophageal atresia, intestinal atresia, anorectal malformation, Hirschsprung's disease, NEC/FIP, diaphragmatic hernia, abdominal wall defects, and spina bifida. KiRaFe is operated by Goethe-Universität Frankfurt and uses the open-source OSSE (Open Source-Registersystem für seltene Erkrankungen) registry platform, technically implemented by the Medical Informatics Group Frankfurt and funded by the Sanitätsrat Dr. Emil Alexander Huebner und Gemahlin-Stiftung. The registry is registered with the European Directory of Registries (EU-RD Platform) and accepts participation from facilities in EU GDPR-compliant countries. Digital assets include the main website (dgkjch.de), the separate KiRaFe portal (fehlbildungsregister.dgkch.de), the KiWI web-based training platform, the Akademie, the member forum, and the Stellenmarkt.

Revenue mechanics are not publicly disclosed and DGKJCH does not publish financials; funding flows from membership dues, congress and event fees, and project-specific grants from foundations such as the Huebner-Stiftung. The society is governed by an elected Vorstand and Präsidium led by President Prof. Guido Seitz. DGKJCH is embedded in a broad ecosystem of 18+ partner organizations including DGCH, DGKJ, DGU, APS, AWMF, BNKD, EUPSA, and WOFAPS, and conducts active policy advocacy, including recent Bundestag engagement on hospital reform (Krankenhausreform) affecting pediatric surgical care.

Name

DGKCH

Legal name

Deutsche Gesellschaft für Kinder- und Jugendchirurgie e.V.

Website

https://dgkch.de

Company type

Private

Operating status

Operating

Short description

The Deutsche Gesellschaft für Kinder- und Jugendchirurgie e.V. (DGKJCH) is the official German professional society for pediatric and adolescent surgeons, representing the specialty through membership services, continuing education, clinical guidelines, and the KiRaFe rare-disease registry.

Ownership category

akta.pro rank

Headquarters

HQ city

Berlin

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Distribution channels3 records

Marketing channels4 records

Core offering

DGKCH is a registered nonprofit professional society that represents pediatric and adolescent surgery (Kinder- und Jugendchirurgie) in Germany across scientific, professional, and occupational matters. It delivers membership services, scientific congresses, continuing education programs (KiWI, Akademie für Kinder- und Jugendchirurgie), clinical guidelines, advocacy in healthcare policy, and operates the KiRaFe multicenter registry for congenital malformations. The organization is funded through membership dues and external foundation grants rather than commercial product sales.

Product overview

DGKJCH operates a professional society website as its primary offering, supplemented by KiRaFe, a dedicated clinical registry for congenital malformations. The website serves as a unified platform for member services, scientific resources, continuing education (including KiWI and the Akademie), clinical guidelines, job listings, and member communications. KiRaFe functions as a separate research registry integrated under the DGKJCH scientific umbrella, enabling multicenter data collection on rare congenital conditions.

Differentiator

Problem solved

Functional benefit

Products and services

• KiRaFe (KinderRegister für angeborene Fehlbildungen) A multidisciplinary, multicenter clinical registry collecting data on congenital malformations and rare diseases in pediatric surgery, including esophageal atresia, duodenal/intestinal atresia, anorectal malformation, Hirschsprung's disease, NEC/FIP, diaphragmatic hernia, abdominal wall defects (gastroschisis, omphalocele), and spina bifida (MMC). Participation is open to medical facilities in EU GDPR-compliant countries and is overseen by a DGKJCH scientific advisory board.
• KiWI (Kinderchirurgische Weiterbildung im Internet) Web-based continuing education platform providing specialist training resources for pediatric and adolescent surgeons, accessible via the DGKJCH website.
• Akademie für Kinder- und Jugendchirurgie Academy offering structured training, professional development, and specialist education pathways (Facharztweiterbildung) for pediatric and adolescent surgeons in Germany.
• DGKJCH Professional Membership Membership-based access to the DGKJCH professional society, including entry to the member forum, Stellenmarkt job marketplace, scientific congresses, eligibility for scientific prizes and scholarships, and representation in scientific, professional, and occupational matters concerning pediatric and adolescent surgery.

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

21 partnerships are on record, tiered minor and core.

• Arbeitsgemeinschaft Tumorzentren (ADT)minorOthersPartner organization in the DGKJCH network for cancer-related matters.
• Aktionsbündnis Patientensicherheit (APS)minorOthersPatient safety initiative partner organization.
• AWMF onlineminorOthersAssociation of Scientific Medical Societies in Germany - partner for guidelines and standards.
• KindersicherheitminorOthersChild safety initiative partner organization.
• Berufsverband der niedergelassenen Kinderchirurgen Deutschlands e.V. (BNKD)minorOthersProfessional association of pediatric surgeons in private practice.
• Bündnis Kinder- und Jugendgesundheit e.V.minorOthersAlliance for child and youth health.
• Deutsche Gesellschaft für Chirurgie (DGCH)minorOthersGerman Society of Surgery - umbrella organization for surgical specialties.
• Deutsche Gesellschaft für Kinder- und Jugendmedizin (DGfKUJ)minorOthersGerman Society for Pediatric and Adolescent Medicine - related medical specialty society.
• Deutsche Gesellschaft für Unfallchirurgie (DGU)minorOthersGerman Society for Trauma Surgery - related surgical specialty.
• Divi (Deutsche Interdisziplinäre Vereinigung für Intensiv- und Notfallmedizin)minorOthersGerman Interdisciplinary Association for Intensive Care and Emergency Medicine.
• Deutsche Liga für das KindminorOthersGerman League for the Child - child welfare organization.
• Deutsches Netzwerk Versorgungsforschung (DNVF)minorOthersGerman Network for Health Services Research.
• European Paediatric Surgeons Association (EUPSA)minorStrategic or Co-development PartnerEuropean umbrella organization for pediatric surgery societies.
• GKind (Gesellschaft für Kinderschutz in der Kinderchirurgie)minorOthersSociety for child protection in pediatric surgery.
• Netzwerk zur Umsetzung der UN-KinderrechtskonventionminorOthersNetwork for implementation of UN Convention on the Rights of the Child.
• U.E.M.S. (Union Européenne des Médecins Spécialistes)minorOthersEuropean Union of Medical Specialists - European professional organization.
• VLKKD (Verein für länderübergreifende Krankenhaus-Kommunikation und -Datenverarbeitung)minorOthersAssociation for cross-border hospital communication and data processing.
• WOFAPS (World Federation of Associations of Pediatric Surgeons)minorStrategic or Co-development PartnerWorld Federation of Pediatric Surgery associations - international umbrella organization.
• Medical Informatics Group Frankfurt (MIG)coreTechnology or IntegrationTechnical implementation of KiRaFe registry using Open Source Registry System for Rare Diseases (OSSE). MIG Frankfurt provides the technical infrastructure and development.
• Goethe-Universität FrankfurtcoreTechnology or IntegrationThe KiRaFe registry is operated by Goethe-Universität Frankfurt. The university hosts and maintains the registry infrastructure.
• European Directory of Registries (EU-RD Platform)minorOthersKiRaFe is registered with the European Directory of Registries for rare disease research.

Scale indicators2 records

Recent moves5 records

Expansion highlights5 records

Emerging players

• European Society for Paediatric Urology (ESPU): European society for pediatric urology. A subspecialty adjacent to pediatric surgery with overlapping physician members and similar society structure; addresses a narrower organ-system scope.

Broad incumbents

• Deutsche Gesellschaft für Kinder- und Jugendmedizin (DGKJ): German Society for Pediatric and Adolescent Medicine, covering broader general pediatrics. A larger German medical society that overlaps with DGKJCH on pediatric patient care and is an explicit partner organization.
• Deutsche Gesellschaft für Chirurgie (DGCH): German Society of Surgery, the umbrella organization for all surgical specialties. Partners with DGKJCH as the broader parent specialty; much larger in scope but less pediatric-specific.

Regional players

• Pacific Association of Pediatric Surgeons (PAPS): Pacific-region pediatric surgery society for Asia-Pacific membership. Comparable in specialty focus but serves a different geographic catchment than DGKJCH.

Direct peers

• American Pediatric Surgical Association (APSA): US national society for pediatric surgeons providing member education, advocacy, and research infrastructure. Comparable in function and offerings to DGKJCH but US-based with a larger membership base.
• British Association of Paediatric Surgeons (BAPS): National professional society for pediatric surgeons in the UK. Directly comparable to DGKJCH in mission (specialty representation, education, guidelines) and structure (membership-based nonprofit), differing only by geography.
• World Federation of Associations of Pediatric Surgeons (WOFAPS): Global federation of national pediatric surgery societies. Operates at the international level over DGKJCH's national scope; DGKJCH is identified as a national member organization.
• European Paediatric Surgeons Association (EUPSA): European umbrella organization for pediatric surgery societies. Identical mission scope to DGKJCH but at the European level rather than the German national level; DGKJCH is listed as an EUPSA partner.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about DGKCH