American Neuromuscular Foundation

What American Neuromuscular Foundation does

The American Neuromuscular Foundation (ANF) is a Minnesota-incorporated 501(c)(3) nonprofit foundation, headquartered at 2621 Superior Drive NW in Rochester, MN, that funds neuromuscular disease research and education. It was formalized as the organizational sponsor of the Late-Onset Neuromuscular Disease Consortium (LONDC) in September 2022 and operates with administrative and staff support from the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM), enabling 100% of donations to flow directly to research and education.

ANF's core offerings are philanthropic programs rather than commercial products. These include Development Research Grants for early-career investigators and Neuromuscular Research Grants of up to $50,000 over two years for established researchers; an awards and scholarships portfolio (Golseth Young Investigator Award, Best Abstract Award, Surinderjit Singh Young Lectureship, Medical Student and Resident scholarships, and international physician scholarships of $1,000 plus complimentary registration for the AANEM Annual Meeting and UltraEMG); the LONDC consortium and its 2026-launched Clinical Recognition & Referral Tool and 'Why Behind Your Weakness' consumer campaign; the 'United' e-newsletter; patient resources; and the ANF Charity Team at the TCS New York City Marathon.

ANF's revenue model is donation-only: it raises funds through individual contributions, legacy gifts, and charity-runner fundraisers, with no products or services sold. The customer base spans three horizontal segments — researchers/clinicians who receive grants and scholarships, patients and advocacy organizations that benefit from funded research and awareness tools, and individual donors/supporters. ANF does not use proprietary technology and has no disclosed AI/ML capabilities; its technology footprint is limited to its website, e-newsletter, social channels, and the WhyBehindWeakness.org consumer platform.

Name

American Neuromuscular Foundation

Legal name

American Neuromuscular Foundation

Website

https://neuromuscularfoundation.org

Company type

Private

Founded year

2022

Operating status

Operating

Headcount range

11–50 employees

Short description

The American Neuromuscular Foundation is a 501(c)(3) nonprofit that funds neuromuscular disease research and education through grants, scholarships, and the LONDC consortium, serving researchers, patients, and donors with 100% of donations directed to programs.

Ownership category

akta.pro rank

Product category

Medical Research Nonprofit Foundation

NAICS

Grantmaking Foundations (813211), Voluntary Health Organizations (813212)

SIC

Services-Educational Services (8200), International Affairs (9721)

akta.pro industry

PRIMARYBPAGAKAL

Health & Medical Research Grantmaking Foundations

Business & Public Services/Nonprofit, NGO & Social Services/Philanthropy, Foundations & Grantmaking

SECONDARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGAKAH

International Grantmaking & Development Foundations

Business & Public Services/Nonprofit, NGO & Social Services/Philanthropy, Foundations & Grantmaking

Keywords

• Neuromuscular research funding
• Medical research grants
• Physician scholarships
• Disease awareness advocacy
• Nonprofit foundation

Headquarters

HQ city

Rochester

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: ANF raises funds through individual donations, charity team fundraising events, and legacy donations. 100% of donations go directly to funding research and researcher education. Administrative and staff assistance is provided by AANEM.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

ANF is a nonprofit 501(c)(3) foundation that raises donations to fund neuromuscular disease research and clinician/researcher education. It disburses funds through Development Research Grants, Neuromuscular Research Grants, Annual Meeting awards, and Medical Student/Resident/International Physician Scholarships. It also convenes the Late-Onset Neuromuscular Disease Consortium (LONDC), producing the Clinical Recognition & Referral Tool and the WhyBehindWeakness.org awareness campaign to accelerate diagnosis of late-onset neuromuscular diseases.

Product overview

The American Neuromuscular Foundation (ANF) is a nonprofit organization dedicated to advancing research, education, and patient care for neuromuscular diseases. Its product portfolio centers on grant funding programs (Development Research Grants for new researchers and Neuromuscular Research Grants for established researchers), a comprehensive awards and scholarships program supporting medical students, residents, fellows, and international physicians, and the Late-Onset Neuromuscular Disease Consortium (LONDC)—a collaborative initiative with clinical tools and awareness campaigns. Additional offerings include the 'United' e-newsletter, patient resources, and the ANF Charity Team marathon fundraising program. ANF does not offer a commercial technology product; its offerings are philanthropic programs funded by donations.

Differentiator

Problem solved

Functional benefit

Brands

• Late-Onset Neuromuscular Disease Consortium (LONDC): A consortium established by ANF to facilitate collaboration across advocacy organizations, academia, clinical practice, industry, and other stakeholders to improve care, education, and quality of life for those living with late-onset neuromuscular diseases.

Products and services

• Research Grants (Development & Neuromuscular) Funding programs supporting neuromuscular research, including Development Research Grants (seed money for promising new researchers) and Neuromuscular Research Grants (up to $50,000 over two years for mid-career/established researchers).
• Awards & Scholarships Program Financial awards and scholarships supporting medical students, residents, fellows, and early-career clinicians, including Annual Meeting Awards (Golseth Young Investigator Award, Best Abstract Award, Surinderjit Singh Young Lectureship, etc.) and Scholarships (Medical Student, Resident, International Physician).
• International Physician Scholarships - UltraEMG Scholarships for physicians from economically developing countries to attend the UltraEMG meeting, including complimentary registration and $1,000 USD stipend paid in cash at the meeting.
• International Physician Scholarships - Annual Meeting Scholarships for physicians practicing in economically developing countries to attend the AANEM Annual Meeting, providing $1,000 and free meeting registration.
• Late-Onset Neuromuscular Disease Consortium (LONDC) Collaborative consortium bringing together patient advocacy organizations, academia, clinical practice, industry, and other stakeholders to improve recognition and referral of late-onset neuromuscular diseases. Includes the Clinical Recognition & Referral Tool and the 'Why Behind Your Weakness' consumer awareness campaign.
• LONDC Clinical Recognition & Referral Tool Digital clinical tool that assists first-line healthcare providers in identifying potential late-onset neuromuscular disease symptoms and guiding appropriate referrals to neuromuscular specialists.
• "United" E-Newsletter Official e-newsletter of ANF providing inspiring journeys of individuals and families impacted by neuromuscular disease, updates on research progress, and opportunities to get involved.
• Patient Resources Resources for patients including information on muscle and nerve disorders, types of electrodiagnostic tests, FAQs before EDX testing, a specialist finder, healthcare costs navigation, and patient perspective stories.
• ANF Charity Team (TCS New York City Marathon) Official charity partner program for the TCS New York City Marathon, where runners raise funds for neuromuscular disease research and education, with guaranteed race entry, fundraising support, and team perks.

Quantifiable outcome

• 100% of donations go directly to research and education

Named customers11 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

17 partnerships are on record, tiered core and supporting.

• TCS New York City MarathoncoreGTM or Marketing Partner · 1 January 2026ANF is an official charity partner of the TCS New York City Marathon. Five runners join the ANF Charity Team each year, each raising $4,000 to fund critical research and education in neuromuscular medicine. This partnership enables ANF to raise awareness and funds through one of the world's most iconic marathons.
• ALS AssociationcoreStrategic or Co-development PartnerSteering Committee member of LONDC (Late-Onset Neuromuscular Disease Consortium). ANF founded LONDC to improve care for adults across neuromuscular conditions through collaboration among advocacy organizations, academia, clinical practice, and industry.
• FSHD SocietycoreStrategic or Co-development PartnerSteering Committee member of LONDC representing facioscapulohumeral muscular dystrophy community.
• GBS | CIDP Foundation InternationalcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing Guillain-Barré syndrome and CIDP community.
• Hereditary Neuropathy FoundationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing hereditary neuropathy conditions.
• Kennedy's Disease AssociationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing Kennedy's disease (SBMA) community.
• The Lambert-Eaton LEMS Family AssociationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing Lambert-Eaton myasthenic syndrome community.
• Muscular Dystrophy AssociationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing muscular dystrophy conditions including ALS, FSHD, and others.
• Myasthenia Gravis AssociationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing myasthenia gravis community.
• Myositis Support & UnderstandingcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing myositis conditions.
• Neuromuscular Disease FoundationcoreStrategic or Co-development PartnerSteering Committee member of LONDC representing GNE myopathy community.
• Pompe AlliancecoreStrategic or Co-development PartnerSteering Committee member of LONDC representing Pompe disease community.
• The Speak FoundationcoreStrategic or Co-development PartnerSteering Committee member of LONDC focused on advocacy for neuromuscular disease community.
• AANEM (American Association of Neuromuscular & Electrodiagnostic Medicine)coreStrategic or Co-development PartnerANF is affiliated with AANEM which provides administrative and staff assistance. AANEM Annual Meeting hosts ANF awards, scholarships, and grants. ANF supports AANEM's mission to advances neuromuscular and electrodiagnostic medicine.
• North American Chapter of International Federation of Clinical Neurophysiology (NAC IFCN)coreStrategic or Co-development PartnerCo-provides international scholarships with ANF for physicians from economically developing countries to attend AANEM meetings. Both ANF and NAC IFCN International Scholarships have same eligibility criteria and application process.
• The Foundation for Peripheral NeuropathysupportingStrategic or Co-development PartnerMichael Wright partners with this foundation to advocate for peripheral neuropathy patients. ANF is referenced as a resource for supporting neuropathy research education.
• Periodic Paralysis AssociationsupportingStrategic or Co-development PartnerCienna Ditri serves as president of PPA. PPA has presence at AANEM Annual Meeting where NM specialists and PPA collaborate, share resources, and learn about patient challenges.

Scale indicators6 records

Recent moves7 records

Expansion highlights5 records

Direct peers

• ALS Association: Leading U.S. nonprofit dedicated to ALS research, care, and advocacy. Comparable to ANF's neuromuscular grantmaking and patient-facing mission in a high-profile disease area, and sits on the LONDC Steering Committee.
• FSHD Society: Research and advocacy foundation for facioscapulohumeral muscular dystrophy. Comparable disease-specific peer, and a LONDC Steering Committee member.
• GBS | CIDP Foundation International: Global nonprofit supporting research and patient advocacy for Guillain-Barré syndrome and CIDP. Comparable disease-specific grantmaking and advocacy peer, and a current LONDC Steering Committee member.
• Muscular Dystrophy Association: The largest U.S. voluntary health organization funding neuromuscular disease research, care, and advocacy. Directly comparable to ANF as a grantmaking and advocacy nonprofit across overlapping neuromuscular conditions (ALS, FSHD, CMT, myasthenia gravis, etc.), and is itself a LONDC Steering Committee member.
• Parent Project Muscular Dystrophy: Nonprofit funding Duchenne muscular dystrophy research and care, relevant to ANF's recently funded development research grants in Duchenne and its broader neuromuscular research portfolio.
• Hereditary Neuropathy Foundation: Disease-focused nonprofit funding research and patient programs for inherited neuropathies. Directly comparable grantmaking and education model, and a LONDC Steering Committee member.
• Charcot-Marie-Tooth Association: Disease-specific research and patient support foundation for CMT, an inherited neuromuscular disease. Directly comparable grantmaking and patient-engagement model to ANF, including featured CMT advocate stories (e.g., Skyler Fisher) in ANF materials.
• Myasthenia Gravis Foundation of America: Patient-advocacy and research-funding nonprofit focused on myasthenia gravis. Comparable to ANF in grantmaking, patient education, and clinician engagement within a single neuromuscular disease.

Broad incumbents

• American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM): Professional medical society that hosts ANF's annual meeting, awards, and scholarships and provides ANF's administrative and staff backbone. Closest institutional peer in terms of neuromuscular community reach, though it is a membership society rather than a public-facing fundraising foundation.
• National Organization for Rare Disorders (NORD): U.S. umbrella organization for rare disease patient groups, with research grants and advocacy programs. Comparable as a grantmaking and convening body across many rare conditions, including many covered by ANF's LONDC stakeholder map.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/AmNmFoundation
• Facebookfacebook.com/NeuromuscularFoundation
• LinkedInlinkedin.com/company/american-neuromuscular-foundation
• Instagraminstagram.com/amnmfoundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Subsidiaries1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about American Neuromuscular Foundation