Neuropathy Action Foundation
The Neuropathy Action Foundation is a 501(c)(3) nonprofit patient advocacy organization founded in 2005 that provides education, resources, and policy advocacy to neuropathy patients, healthcare providers, and public officials across the United States, funded entirely by tax-deductible donations.
- Company typePrivate
- Founded2005
- HeadquartersSanta Ana, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Neuropathy Action Foundation does
The Neuropathy Action Foundation (NAF) is a 501(c)(3) nonprofit patient advocacy organization founded in 2005 and headquartered at 1950 Old Tustin Avenue, Santa Ana, California. Its mission is to ensure neuropathy patients obtain the resources, information, and tools needed to access individualized treatment — particularly immunoglobulin therapy (Ig) — and to raise awareness among providers, the public, and public policy officials that neuropathy can be a serious, widespread, and disabling condition. The organization serves three primary persona segments: neuropathy patients (including those with peripheral neuropathy, diabetic peripheral neuropathy, and multifocal motor neuropathy), healthcare providers, and public policy officials. It has helped thousands of patients nationwide and internationally, beginning as a California-focused nonprofit and growing into a national organization over a 20-year operating history.
NAF's core offerings are informational content and advocacy services rather than technology products. The product portfolio includes neuropathy education resources (brochures, white papers on AI, gene therapy, and clinical trials), MMN patient stories, the Patient Voice Newsletter (archived since 2014), an advocacy empowerment program covering letter writing, testimony, and media engagement, downloadable multilingual brochures, and the annual Neuropathy Action Awareness Day event. Distribution is multi-channel: website downloads, Twitter and Facebook, email newsletter, YouTube videos, educational webinars, and annual in-person events in Sacramento and Los Angeles. The organization maintains referral partnerships with Western Neuropathy Association, GBS/CIDP Foundation International, Foundation for Peripheral Neuropathy, UCSF Neuropathy Center, and the California Medical Association.
The business model is donation-funded: NAF is a 501(c)(3) with revenue from tax-deductible contributions from individuals, corporations, and foundations, and all patient-facing resources are provided free of charge. The organization is volunteer-governed by a Board of Directors and staffed by 1–10 employees, with operations supported by an Advisory Board that includes the 17th U.S. Surgeon General and senior faculty from Mayo Clinic, Johns Hopkins, Yale, USC Keck, UC Irvine, Cedars-Sinai, and SUNY Buffalo. No revenue figures are disclosed publicly.
Neuropathy Action Foundation firmographics
Firmographics- Name
- Neuropathy Action Foundation
- Legal name
- Neuropathy Action Foundation
- Website
- https://neuropathyaction.org
- Company type
- Private
- Founded year
- 2005
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- The Neuropathy Action Foundation is a 501(c)(3) nonprofit patient advocacy organization founded in 2005 that provides education, resources, and policy advocacy to neuropathy patients, healthcare providers, and public officials across the United States, funded entirely by tax-deductible donations.
- Ownership category
- akta.pro rank
Neuropathy Action Foundation industry classification
Industry- Product category
- Patient Advocacy
- NAICS
- Voluntary Health Organizations (813212), Social Advocacy Organizations (8133), Civic and Social Organizations (813410)
- SIC
- Services-Membership Organizations (8600), Services-Health Services (8000)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Neuromuscular Medicine (ALS, Myasthenia, Neuropathy) (HLAKAIAD), Neurogenetics & Rare Neurologic Diseases (HLAKAIAO), Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI)
Keywords
Where Neuropathy Action Foundation is headquartered
LocationHeadquarters
- HQ city
- Santa Ana
- HQ country
- United States
- HQ region
- North America
Offices2 records
Markets served
Neuropathy Action Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Marketing or Sales, Operations, Others
Revenue model
- Donations and Contributions: As a 501(c)(3) nonprofit organization, NAF is primarily funded through tax-deductible donations from individuals, corporations, and foundations who share the organization's goals of improving neuropathy patient care and access to treatment.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels7 records
Neuropathy Action Foundation product offering
Product offeringCore offering
The Neuropathy Action Foundation is a 501(c)(3) nonprofit patient advocacy organization that provides neuropathy patients with educational resources, advocacy training, downloadable brochures, newsletters, patient stories, and awareness events free of charge. It also conducts healthcare policy work aimed at improving access, equity, and outcomes for neuropathy patients, with a particular focus on immunoglobulin therapy (Ig) treatments.
Product overview
The Neuropathy Action Foundation (NAF) is a 501(c)(3) non-profit patient advocacy organization, not a technology product company. It provides educational resources, patient support materials, advocacy training programs, and awareness events for neuropathy patients. The organization's offerings consist of informational content including brochures, newsletters, patient stories, and advocacy guides rather than a technology platform or software products. Core offerings include neuropathy education resources, MMN patient stories, the Patient Voice Newsletter, advocacy empowerment programs, downloadable brochures, and annual Neuropathy Action Awareness Day events.
Differentiator
Problem solved
Functional benefit
Products and services
- Neuropathy Education Resources Comprehensive educational materials about neuropathy including MMN, DPN, causes, symptoms, diagnosis, and treatments available as brochures, PDFs, and downloadable resources for patients and caregivers.
- Patient Voice Newsletter Regular newsletter publication providing neuropathy news, updates, and resources to patients, with archives dating from 2014 to 2026.
- Advocacy Empowerment Program Patient advocacy training program including guidance on letter writing, phone calls, individual visits, group visits, testifying at hearings, patient coalitions, and media engagement for neuropathy patients.
- Brochures and Downloads Library Downloadable brochures covering IVIG for neuropathy, CAM treatments, MMN information, diabetic peripheral neuropathy in English and Spanish, healthcare rights, and clinical guidance documents.
- Neuropathy Action Awareness Day Annual awareness day events with recorded footage and presentations from annual conferences, including videos from 2013-2018 events, bringing together patients, doctors, and medical professionals.
- MMN Patient Stories Video testimonials and written stories from MMN patients including Deborah Zirpolo, Socorro King, Andy Klee, and others sharing their diagnosis and treatment experiences.
Quantifiable outcome
- Helped thousands of neuropathy patients nationwide and internationally access resources, information, and tools for individualized treatment
- +1 more outcomes
Companies that use Neuropathy Action Foundation
Customer profileNamed customers1 record
Segments3 records
Ideal customer profiles3 records
Neuropathy Action Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Neuropathy Action Foundation partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered minor.
- Western Neuropathy Association (WNA)minorWNA is a California non-profit that promotes organization of local support groups for people with peripheral neuropathy in California, Nevada, and Oregon. NAF refers patients to WNA for local support group connections.
- GBS/CIDP Foundation InternationalminorThe GBS/CIDP Foundation International is the only voluntary, nonprofit organization that provides support to patients of GBS/CIDP and their families, awards grants to researchers, and offers education to the public and professional communities. NAF has partnered with them on joint MMN awareness campaigns.
- Foundation for Peripheral NeuropathyminorA public charity foundation committed to fostering collaboration among neuroscientists and physicians to develop new and effective therapies for peripheral neuropathy. NAF refers patients to this foundation for support group connections in states outside California, Nevada, and Oregon.
- The UCSF Neuropathy CenterminorCoordinates education, support and outreach programs for patients suffering from peripheral neuropathy. Listed as a resource partner on NAF's website.
- California Medical Association (CMA)minorNAF Board member Dustin Corcoran serves as CEO of CMA. Organizations work together on healthcare advocacy issues affecting neuropathy patients in California.
- Los Angeles County Medical AssociationminorProduced joint brochure 'Your Healthcare Rights' to provide strategies for advocating for healthcare rights. Collaboration on patient education materials.
Scale indicators2 records
Recent moves6 records
Expansion highlights5 records
Neuropathy Action Foundation competitors and assessment
Company assessmentBroad incumbents
- American Diabetes Association: Large national health nonprofit focused on diabetes, a major cause of diabetic peripheral neuropathy. Shares NAF's interest in diabetic peripheral neuropathy patients and policy advocacy around treatment access, but at vastly greater scale and broader disease scope.
- ALS Association: Leading national advocacy organization for ALS, a neuromuscular disease. Shares NAF's neuromuscular focus, advocacy-training model, and research-funding approach, but at a much larger scale and broader public recognition.
- Muscular Dystrophy Association: Large, established neuromuscular disease advocacy organization covering many conditions, including peripheral neuropathies. Comparable to NAF in disease advocacy and research funding but operates at far greater scale and a broader portfolio.
- National Organization for Rare Disorders (NORD): Umbrella advocacy organization for rare diseases, including rare neuropathies. Comparable to NAF in advocating for treatment access and policy on behalf of patients with uncommon conditions, but operates at a portfolio level across hundreds of diseases.
- National Multiple Sclerosis Society: Large national advocacy organization for multiple sclerosis, a neurologic disease with overlapping patient-navigation and access challenges. Shares NAF's combination of research funding, patient education, and policy advocacy, but at far larger scale.
Direct peers
- Charcot-Marie-Tooth Association: National patient advocacy and research organization specifically for Charcot-Marie-Tooth disease, a hereditary peripheral neuropathy. Highly comparable to NAF in disease specificity, patient-education focus, and advocacy for access to emerging therapies.
- GBS/CIDP Foundation International: The only voluntary, nonprofit organization supporting patients with Guillain-Barré Syndrome, CIDP, and related variants such as MMN. NAF partnered with it on joint MMN awareness campaigns, making it a closely aligned peer in the same neuropathy patient-advocacy niche.
- Foundation for Peripheral Neuropathy: Public charity foundation focused on peripheral neuropathy that promotes collaboration among neuroscientists and physicians to develop new therapies. NAF refers patients to this organization for support groups outside California, Nevada, and Oregon, indicating direct functional overlap in patient education and research support.
- Western Neuropathy Association: California-based nonprofit promoting local support groups for peripheral neuropathy patients in California, Nevada, and Oregon. NAF refers patients to WNA for in-person support, making it a regional direct peer with overlapping mission and patient base.
Emerging players
- American Chronic Pain Association: Nonprofit providing peer support and education for people living with chronic pain, frequently overlapping with neuropathy symptomatology. Comparable to NAF as a patient-education and self-advocacy organization, though not disease-specific.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
Neuropathy Action Foundation social profiles
Digital presenceNeuropathy Action Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Neuropathy Action Foundation leadership team
Management profileNumber of profiles
Profiles18 records
Neuropathy Action Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
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Neuropathy Action Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Neuropathy Action Foundation
What does Neuropathy Action Foundation do?
The Neuropathy Action Foundation is a 501(c)(3) nonprofit patient advocacy organization that provides neuropathy patients with educational resources, advocacy training, downloadable brochures, newsletters, patient stories, and awareness events free of charge. It also conducts healthcare policy work aimed at improving access, equity, and outcomes for neuropathy patients, with a particular focus on immunoglobulin therapy (Ig) treatments.
Is Neuropathy Action Foundation a public or private company?
Neuropathy Action Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Neuropathy Action Foundation founded?
Neuropathy Action Foundation was founded in 2005. It employs 1 to 10 people.
Where is Neuropathy Action Foundation based?
Neuropathy Action Foundation is headquartered in Santa Ana, United States, in the North America region.
How does Neuropathy Action Foundation make money?
One revenue line is on record: donations and Contributions.
Who are Neuropathy Action Foundation's main competitors?
Broad incumbents on record are American Diabetes Association, ALS Association, Muscular Dystrophy Association, National Organization for Rare Disorders (NORD) and National Multiple Sclerosis Society. Direct peers are Charcot-Marie-Tooth Association, GBS/CIDP Foundation International, Foundation for Peripheral Neuropathy and Western Neuropathy Association. American Chronic Pain Association is listed as an emerging player.
Does Neuropathy Action Foundation have an API?
No public API is recorded for Neuropathy Action Foundation.
What industry is Neuropathy Action Foundation in?
Neuropathy Action Foundation's product category is Patient Advocacy. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of HLAKAIAD, Neuromuscular Medicine (ALS, Myasthenia, Neuropathy). Its NAICS code is 813212 and its SIC code is 8600.