Hjerneskadeforeningen

What Hjerneskadeforeningen does

Hjerneskadeforeningen is a Danish non-profit patient organization (forening) founded in 1985 and headquartered in Copenhagen at Amagerfælledvej 56A, 2300 København S. It serves individuals with acquired brain injury (erhvervet hjerneskade) — including stroke, trauma, meningitis, encephalitis, hydrocephalus, and tumor — along with their families, relatives, and healthcare professionals, addressing a Danish population of 230,000+ affected individuals and 12,000 new stroke cases annually. The organization delivers a broad set of free and member-only services including telephone social-worker counseling on social and employment law, a quarterly member magazine (Hjernebladet), the Hjernecast podcast (14+ episodes), a member blog, condition- and age-segmented peer networks (Unge Hjerner 15-35, Forum for Yngre Ramte 30-65, Senhjerneskadede Seniorer 60+, Hydrofamilien), youth programs (BrainCamp, FYR den af), and an annual Hjerneugen (Brain Week, Uge 11). Local chapters (lokalafdelinger) operate nationwide as physical community hubs.

Revenue is generated through four channels: annual household memberships at 325 DKK (free first 12 months), with the fee split 100 DKK to local chapters, 25 DKK to nationwide activities, and 200 DKK to the national office; donations and testamentary bequests (the latter supported by partnerships with Dokument24 and LegalDesk for free will creation); a three-tier corporate membership program (Hjernepartner Basis, Plus, and Hjernehjælpspartner at 1,900 DKK/year) targeting hospitals, rehabilitation centers, and clinicians; and a webshop (Netbutik) selling books, posters, publications, and merchandise. The underlying technology stack is commodity: WordPress for the website, Cornerstone for member management, and social media platforms (Facebook, Instagram, LinkedIn, YouTube, TikTok) for outreach, with no proprietary AI or ML systems disclosed. The organization operates as an independent member-governed association without parent ownership, and all services are targeted exclusively at the Danish domestic market.

Name

Hjerneskadeforeningen

Legal name

Hjerneskadeforeningen

Website

https://hjerneskadet.dk

Company type

Private

Founded year

1985

Operating status

Operating

Headcount range

1–10 employees

Short description

Hjerneskadeforeningen is a Danish non-profit patient organization founded in 1985 that supports individuals with acquired brain injury and their families through telephone counseling, peer networks, local chapters, publications, and the annual Hjerneugen Brain Week, serving Denmark's 230,000+ affected population.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Brain Injury Support Services

NAICS

Voluntary Health Organizations (813212), Business, Professional, Labor, Political, and Similar Organizations (8139), Individual and Family Services (6241)

SIC

Services-Membership Organizations (8600), Services-Health Services (8000)

akta.pro primary industry

Maternal, Newborn, Child & Adolescent Health (MNCAH) NGOs (HLAJAKAG)

Keywords

• Brain injury support
• Patient advocacy services
• Social counseling services
• Peer support networks
• Community rehabilitation programs

Headquarters

HQ city

Amagerbro

HQ country

Denmark

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Membership fees: Annual household membership fee of 325 DKK per year. The membership covers the entire household at the registered address. Of this, 100 DKK goes to the local chapter for local activities, 25 DKK is earmarked for nationwide community activities, and 200 DKK is administered by the national office for counseling, information, operations, and statutory activities. First 12 months of membership are free.
2. Testamentary gifts and donations: The association receives testamentary bequests and one-time donations from individuals. The donation page accepts MobilePay (998 631) and bank transfers. Donors can also become recurring supporters with a fixed monthly amount.
3. Hjernepartner corporate memberships: Three tiers of institutional/business memberships: Hjernepartner Basis, Hjernepartner Plus, and Hjernehjælpspartner (1,900 DKK/year). These provide enterprise clients access to materials, counseling support, the Hjernehjælpskasse, and other resources.
4. Netbutik (webshop) sales: Sale of books, posters, publications, and information materials through the online shop (butik). Members receive a discount code for reduced prices.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels9 records

Core offering

Hjerneskadeforeningen is a Danish non-profit patient association that supports people with acquired brain injury (stroke, trauma, meningitis, encephalitis, hydrocephalus, tumor) and their families through a household membership model. The association delivers telephone counseling by social workers, peer support networks segmented by age and condition, a quarterly member magazine (Hjernebladet), a podcast series (Hjernecast), educational publications and webinars, nationwide local chapter activities, and tiered corporate partnerships (Hjernepartner Basis, Plus, Hjernehjælpspartner) for healthcare institutions.

Product overview

Hjerneskadeforeningen is a Danish non-profit brain injury association offering a comprehensive ecosystem of support services, information resources, and community programs for individuals with acquired brain injuries and their families. The organization's offerings include telephone counseling services staffed by social workers, quarterly member magazine (Hjerneblade), the Hjernecast podcast series, and the Hjerneskadebloggen blog platform. Member benefits include access to the Medlemsklub discount club, Dronningens Ferieby holiday discounts, and various online networks. Age-specific support groups include Unge Hjerner (15-35), Forum for Yngre Ramte (30-65), and Forum for Senhjerneskadede Seniorer (+60), plus condition-specific networks like Hydrofamilien. Youth programs include BrainCamp at Vejlefjord and FYR den af for children in brain-injured families. The Hjernepartner business partnership program offers three tiers (Basis, Plus, Hjernehjælpspartner) for organizations seeking to support the field. Educational offerings include DIY materials like Lav et neuron and hjernehatte, plus posters and publications. Legacy giving programs partner with LegalDesk and Dokument24 for free will creation.

Differentiator

Problem solved

Functional benefit

Brands

• Hjerneskadet: The main website and brand name used for the association's online presence and services
• Hjernepartner
• Hjernehjælpskassen
• BrainCamp
• Hjerneugen
• Hjernecast
• Hjernebladet
• Unge Hjerner
• Hydrofamilien

Products and services

• Annual Household Membership Annual subscription at 325 DKK covering the entire household at the registered address. Includes access to telephone counseling by social workers, the Hjernebladet quarterly magazine, peer networks, the Medlemsklub benefits club, and free first 12 months for new members. Of the fee, 100 DKK goes to the local chapter, 25 DKK to nationwide community activities, and 200 DKK to the national office for counseling, information, and operations.
• Hjernehjælpspartner (Premium Corporate Partnership) Premium corporate partnership at 1,900 DKK per year providing Hjernehjælpskassen distribution rights, an onboarding workshop, physical and digital welcome package, 4x10 copies of Hjernebladet annually, 3-4 special partner letters per year, annual report, promotion opportunities, and a 25% webshop discount with free shipping. Targeted at hospitals, rehabilitation centers, municipal training units, care homes, and clinical professionals.
• Hjernepartner Basis Entry-level Hjernepartner subscription for professionals and businesses wanting to support the association's work without ongoing personal contact requirements. Annual billing.
• Hjernepartner Plus Mid-tier Hjernepartner subscription offering product discounts, spar sessions, early access to new publications and materials, and closer collaboration opportunities with the association. Annual billing.
• Telefonrådgivning (Telephone Counseling) Free telephone counseling service staffed by social workers, providing guidance on social and employment-related legislation for members and their households. Contact line 4343 2433 and [email protected].
• Hjernebladet (Quarterly Member Magazine) Quarterly membership magazine featuring articles, knowledge, and strategies for living with brain injury. Distributed to members and bundled with Hjernehjælpspartner tier at 4x10 copies per year.
• Hjernecast Podcast Podcast series covering topics such as aphasia, youth with brain injury, PTSD, identity, hydrocephalus, physiotherapy, and neuropsychological examination. Free to access via Anchor.fm and major podcast platforms.
• Medlemsklub (Member Benefits Club) Member benefits club offering exclusive discounts on experiences and attractions across Denmark, accessible through the mit.hjerneskadet.dk member portal.
• Dronningens Ferieby Member Discount Program Discount program for members offering reduced rates on accessible holiday cottages at Dronningens Ferieby on Djursland, removing practical barriers to vacation for affected families.
• Unge Hjerner Network (15-35 years) Peer network group for young people aged 15-35 living with brain injury, offering peer support and activities.
• Forum for Yngre Ramte (30-65 years) Peer network forum for brain-injured individuals aged 30-65 to connect with peers facing similar life-stage challenges.
• Forum for Senhjerneskadede Seniorer (+60 years) Peer network forum for brain-injured seniors aged 60 and above, addressing age-specific challenges.
• Hydrofamilien Network Peer network for individuals and families affected by hydrocephalus, including blog content and social connections under the #hydrofamilien hashtag.
• BrainCamp Camp program for young people with brain injury held at Vejlefjord, offering peer support and activities.
• FYR den af (Children's Weekend Program) Weekend program providing support and activities for children in brain-injured families, regardless of whether the brain-injured person is a parent, sibling, grandparent, or other family member.
• Hjernehjælpskassen (Help Box) Physical help box containing information materials and resources for newly affected families in the acute phase, provided to Hjernehjælpspartners for distribution to patients and families.
• Hjerneskadeshop / Netbutik Publications Shop Online shop (netbutik) selling books, posters, guides, and merchandise such as the Hjernehjælpskasse, Handbook for Relatives, brain model kits, and informational flyers. Members receive a discount code; Hjernehjælpspartners receive 25% off with free shipping.
• Testamentary Giving Program Legacy giving program offering supporters free will creation through Dokument24 and LegalDesk when designating a share of their estate to the association. No minimum bequest amount required. Donation options also include MobilePay (998 631) and recurring monthly contributions.
• Zangger Fondens REHAB-legat (Rehabilitation Scholarship) Financial scholarship providing rehabilitation support to members, administered by Hjerneskadeforeningen with funding from Zangger Fonden. Eligibility requires active paying membership.
• Holberg Fenger Invest-legatet (Scholarship) Financial scholarship providing support to members requiring financial assistance, administered by Hjerneskadeforeningen and funded by Holberg Fenger Invest. Eligibility requires active paying membership.

Quantifiable outcome

• 230,000+ people in Denmark live with acquired brain injury (2020 data)
• +1 more outcomes

Named customers4 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Dansk Råd for Genoplivning (Danish Resuscitation Council)coreStrategic or Co-development Partner · 1 January 2018Dansk Råd for Genoplivning partnered with TrygFonden in 2018 on a multi-year initiative to increase Danish awareness of stroke symptoms and improve emergency response. Hjerneskadeforeningen is a participating organization in this national campaign, contributing to the RED HJERNEN (Save the Brain) campaign which uses the mnemonic Stræk-Snak-Smil (Stretch-Speak-Smile) to educate the public on stroke signs.
• Dansk Strokecenter (Danish Stroke Center)minorStrategic or Co-development Partner · 1 January 2018Dansk Strokecenter is represented in the steering group of the RED HJERNEN campaign, contributing clinical expertise on stroke diagnosis, treatment, and rehabilitation to the public awareness initiative.
• Dansk Selskab for Apopleksi (Danish Society for Apoplexy)minorStrategic or Co-development Partner · 1 January 2018Dansk Selskab for Apopleksi participates in the RED HJERNEN campaign steering group, providing professional medical society input on stroke care standards and patient advocacy.
• Dansk Neurologisk Selskab (Danish Neurological Society)minorStrategic or Co-development Partner · 1 January 2018Dansk Neurologisk Selskab participates in the RED HJERNEN campaign steering group, contributing neurology expertise to ensure the campaign messaging aligns with clinical best practices.
• Dansk Selskab for Akutmedicin (Danish Society for Emergency Medicine)minorStrategic or Co-development Partner · 1 January 2018Dansk Selskab for Akutmedicin participates in the RED HJERNEN campaign steering group, providing input from the emergency medicine perspective to ensure the campaign supports rapid response to stroke symptoms.
• Dokument24minorChannel Partner/ Reseller/ DistributorDokument24 offers a free online testamentary service to individuals who choose to donate a portion of their estate to Hjerneskadeforeningen. This partnership enables supporters to create a will at no cost while supporting the association through testamentary bequests. There is no minimum bequest amount required.
• LegalDeskminorChannel Partner/ Reseller/ DistributorLegalDesk offers free testamentary services to individuals who include a donation to Hjerneskadeforeningen in their will. LegalDesk has helped more than 170,000 Danes with legal documents and has a broad product range. This partnership supports the association's fundraising through legacy giving.
• Zangger Fondens REHAB-legatminorOthersHjerneskadeforeningen administers the Zangger Fondens REHAB-legat scholarship, which provides financial support to members for rehabilitation purposes. Members must have been paying members to be eligible.
• Holberg Fenger Invest-legatetminorOthersHjerneskadeforeningen administers the Holberg Fenger Invest-legatet, a scholarship for members requiring financial support. Eligibility requires active paying membership.
• Erhvervsklubben (Business Club)minorStrategic or Co-development PartnerHjerneskadeforeningen's Erhvervsklub (Business Club) is a corporate support group that includes companies such as CfH/Copenhagen Business School, DSV, Filadelfia, Forenede Care Neuro Ringstedhave (Ringstedhaven), Habro, One Office, PNP Byg, Rema 1000, Nyjfjordbo/Vejlefjord, Holberg Fenger, Mariehjem/Selma, Cervello, Møn Bakkeby, and Næstved Rygcenter. These employers support the association's work.
• Dronningens Ferieby (Queen's Holiday Village, Djursland)minorOthersMembers of Hjerneskadeforeningen receive discounts on stays at Dronningens Ferieby on Djursland, where holiday homes are accessible for people with disabilities, removing practical barriers to vacation for affected families.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Hjerteforeningen: Danish Heart Foundation — Denmark's largest patient/disease-focused membership non-profit. Directly comparable in form: household memberships, donations, corporate partnerships, webshop, local chapters, public-awareness campaigns, telephone counseling, and member magazine. Only the disease focus (cardiovascular vs. brain injury) differs.
• Kræftens Bekæmpelse: Danish Cancer Society — national patient advocacy non-profit with membership, donations, fundraising campaigns, research funding, local chapters, and patient-support services. Operates a near-identical GTM and revenue mix in the Danish market, though at much larger scale.
• Diabetesforeningen: Danish Diabetes Association — chronic-disease patient membership non-profit with household memberships, Hjernepartner-equivalent corporate partnerships, webshop, member magazine, local chapters, telephone counseling, and awareness campaigns. Direct comparable on business model.
• Parkinsonforeningen: Danish Parkinson's Association — neurological patient membership non-profit. Closest disease-area peer (neurodegenerative condition) with peer networks, local chapters, telephone counseling, awareness campaigns, and household memberships targeting a similar elderly-skewed chronic population.
• Scleroseforeningen: Danish Multiple Sclerosis Society — neurological patient membership non-profit. Directly comparable peer on brain/CNS condition focus, household memberships, donations, Hjerneskadeforeningen-style peer networks, and local chapters; larger scale and more developed research-funding arm.
• CP Danmark: Danish Cerebral Palsy Association — patient non-profit serving a brain-related disability population. Comparable in mission scope (lifelong brain/neurological support), member families, household memberships, and content-driven awareness, though CP is congenital vs. Hjerneskadeforeningen's acquired injuries.
• Epilepsiforeningen: Danish Epilepsy Association — neurological patient non-profit with membership, peer support, local chapters, and awareness campaigns. Direct brain-related peer; smaller in scale than Hjerneskadeforeningen but operates a near-identical model.
• Gigtforeningen: Danish Rheumatism Association — chronic-disease patient membership non-profit. Direct comparable on membership, donations, webshop, telephone counseling, and research funding structure; addresses a different (musculoskeletal) condition but uses the same patient-association playbook.
• Astma-Allergi Danmark: Danish Asthma & Allergy Association — chronic-disease patient membership non-profit. Direct comparable on household memberships, donations, awareness campaigns (RED HJERNEN-equivalent), local chapters, webshop, and member magazine, focused on a different chronic condition population.

Regional players

• Norsk Hjerneslagforening: Norwegian Stroke Association — Nordic peer with directly comparable mission (stroke/brain injury support), membership model, peer networks, and awareness campaigns. Operates in Norway rather than Denmark, so does not directly compete but serves as the closest cross-border functional equivalent.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/hjerneskadetdk
• Facebookfacebook.com/hjerneskadetdk
• LinkedInlinkedin.com/company/hjerneskadeforeningen
• Instagraminstagram.com/hjerneskadetdk
• TikToktiktok.com/@hjerneskadet.dk
• Xx.com/hjerneskadetdk

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Hjerneskadeforeningen