Schildklier Organisatie Nederland

What Schildklier Organisatie Nederland does

Schildklier Organisatie Nederland, operating as SchildklierNL, is a Dutch non-profit patient organization (Stichting) serving people affected by thyroid and parathyroid conditions in the Netherlands. It provides a curated ecosystem of evidence-based information, peer support, advocacy, and research promotion, underpinned by a Medical-Scientific Advisory Board drawn from professors at Erasmus MC, LUMC, Radboudumc, UMCG, and Amsterdam UMC. Core products include the quarterly Schild magazine, the Schildkliertelefoon telephone helpline, a comprehensive online knowledge base, webinars and podcasts, in-person and online peer support meetings, closed Facebook communities, a free online coaching program, and a webshop offering branded merchandise such as a €16 recognition pin. Recent additions include the 2025 Online Keuzehulp for Graves' disease and a College24 e-learning course for primary-care practice assistants.

The organization's business model is a hybrid non-profit funding stack: individual donor contributions at €36 per year from roughly 9,300 members form the recurring base, supplemented by an annual government subsidy from the Ministry of Health (VWS) that has been cut every year since 2010, plus corporate sponsorships (e.g., €10,000 from Takeda Nederland BV for patient research), one-off donations and bequests, and modest merchandise sales. Operations are lean: approximately 8-10 paid professionals supported by a volunteer board and ~120 annual volunteers, with financial and member administration outsourced to Non Profit Support in Leersum. Go-to-market is community-led, with acquisition through the website, social media (LinkedIn, X, YouTube, Instagram, Facebook), newsletter, and word-of-mouth, amplified by annual awareness initiatives such as the Week van de Schildklier. The organization holds ANBI status (RSIN 850577251), giving donors tax deductibility and conferring institutional legitimacy.

Name

Schildklier Organisatie Nederland

Legal name

Schildklier Organisatie Nederland

Website

https://schildklier.nl

Company type

Private

Founded year

2008

Operating status

Operating

Headcount range

51–100 employees

Short description

SchildklierNL is a Dutch non-profit patient organization serving roughly 9,300 donors with thyroid and parathyroid conditions via information, peer support, advocacy, and research, funded by €36/year memberships, government subsidy, and sponsorships.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Chronic Disease Support

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro industry

PRIMARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAM

Rare Disease & Special Needs Support Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

Keywords

• Patient advocacy services
• Thyroid health information
• Peer support services
• Nonprofit healthcare organization
• Disease awareness campaigns

Headquarters

HQ city

Amersfoort

HQ country

Netherlands

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donateurbijdragen (Donor Contributions): Annual membership fees and additional contributions from nearly 10,000 donors. The primary recurring revenue stream supporting the organization's activities.
2. Subsidie (Government Subsidy): Annual subsidy from the national government/VWS (Ministerie van Volksgezondheid, Welzijn en Sport). The subsidy has been reduced annually since 2010.
3. Schenkingen en Nalatenschappen (Gifts and Bequests): One-time donations and legacy bequests from supporters.
4. Sponsoring (Sponsorship): Corporate sponsorship, such as €10,000 from Takeda Nederland BV for quantitative patient research in 2021.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels8 records

Core offering

SchildklierNL is a Dutch non-profit patient organization that delivers information, peer support, advocacy, and community services for people living with thyroid and parathyroid conditions. Its core service stack includes the Schildkliertelefoon (telephone helpline), the Kennisbank online knowledge base, an online coaching program, peer support meetings and closed Facebook groups, and the quarterly Schild magazine. It also develops targeted digital tools such as an online decision aid for Graves' disease and an e-learning course for primary-care support staff.

Product overview

SchildklierNL (Schildklier Organisatie Nederland) is a Dutch patient organization for people with thyroid and parathyroid conditions. The organization offers a comprehensive ecosystem of information, support, and community services centered around its quarterly magazine Schild, the telephone helpline (Schildkliertelefoon), a comprehensive knowledge base, and digital tools including webinars, podcasts, and an online decision aid for Graves disease. Peer support is provided through in-person and online meetings, closed Facebook groups, and an online coaching program. The organization also provides educational resources including an e-learning course for healthcare professionals developed with College24. All activities are supported by approximately 9,300 donors and led by a professional team under director Marlies Mohr.

Differentiator

Problem solved

Functional benefit

Products and services

• Schild Magazine Quarterly magazine of approximately 30 pages for people with thyroid conditions, featuring news, tips, background articles, and personal stories; distributed free to donors.
• Schildkliertelefoon (Telephone Helpline) Telephone helpline (085-3001800) staffed by trained volunteer peers offering a listening ear, information, and answers to questions about thyroid conditions for patients and relatives.
• Kennisbank (Knowledge Base) Comprehensive online knowledge base with evidence-based information on thyroid conditions, treatments, medication, and living with thyroid disorders, reviewed by the Medical-Scientific Advisory Council (MAR).
• Webinars en Podcasts Educational webinar series and podcast featuring endocrinologists, specialists, and patient stories covering thyroid topics for patients and healthcare professionals.
• Lotgenotencontact en Bijeenkomsten (Peer Support & Information Meetings) Peer support and information meetings held in-person at various Dutch locations and online (via e-captain), featuring specialist presentations and peer-to-peer experience sharing.
• Besloten Facebookgroepen (Closed Facebook Communities) Private Facebook peer-support communities including general thyroid conditions, thyroid cancer, CHT for parents, and CHT for adults, moderated by the organization.
• Online Keuzehulp Graves (Graves' Disease Online Decision Aid) Free online decision aid helping people with Graves' disease understand and weigh treatment options, developed with internist-endocrinologists, ophthalmologists, surgeons, and patient representatives (SchildklierNL).
• E-learning Schildklieraandoeningen (Thyroid Disorders E-learning) E-learning course for practice assistants (POH) and doctor assistants on thyroid function, lab-value interpretation, medication monitoring, and lifestyle topics, developed with College24.
• Online Coaching Programma Online coaching program helping people with thyroid conditions maintain or improve quality of life through self-management, empowerment, and peer support, free for participants.
• Symbool van Herkenning Pin (Recognition Pin) Gold-colored recognition pin with card (€16 including shipping) sold as a symbol of recognition for people living with thyroid conditions; proceeds support the organization's work.
• SchildklierNL Webshop Online shop on schildklier-site.e-captain.nl selling the recognition pin, back issues of Schild magazine, and informational materials to support members and the broader public.

Quantifiable outcome

• Nearly 10,000 members/donors served annually with information and support services
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Erasmus MC - SchildkliercentrumcoreStrategic or Co-development PartnerErasmus MC serves as a key medical-scientific partner, with Prof. dr. E.W. Visser (internist-endocrinologist) as chair of the Medisch-wetenschappelijke Adviesraad (MAR). The organization also collaborates on webinars and research projects.
• Leids Universitair Medisch Centrum (LUMC)coreStrategic or Co-development PartnerProf. dr. J. Gussekloo, Professor of Primary Care Medicine, serves on the MAR. LUMC contributes expertise in primary care thyroid management.
• RadboudumccoreStrategic or Co-development PartnerProf. dr. R. Netea-Maier serves on the MAR, providing endocrinology expertise from the Radboud university medical center.
• Universitair Medisch Centrum Groningen (UMCG)coreStrategic or Co-development PartnerDr. W.T.P. Zandee serves on the MAR. The UMCG collaborated on information meetings and thyroid cancer events.
• Amsterdam UMC - Emma KinderziekenhuiscoreStrategic or Co-development PartnerDr. N. Zwaveling-Soonawala, pediatric endocrinologist, serves on the MAR. Collaborates on pediatric thyroid conditions and congenital hypothyroidism (CHT).
• Het Oogziekenhuis RotterdamcoreStrategic or Co-development PartnerDr. R.O.B. de Keizer, ophthalmologist and orbital surgeon, serves on the MAR, providing expertise on Graves' ophthalmopathy.
• Patiëntenfederatie NederlandcoreStrategic or Co-development PartnerSchildklierNL is a member of Patiëntenfederatie Nederland, collaborating on policy advocacy, healthcare research, and adherence to fundraising codes.
• ACTA (Academisch Centrum Tandheelkunde Amsterdam)minorStrategic or Co-development PartnerCollaboration on research into the relationship between thyroid conditions and oral health through patient questionnaires.
• Nederlandse Internisten VerenigingcoreStrategic or Co-development PartnerDeveloped the online choice aid for Graves' disease treatment in collaboration with SchildklierNL, endocrinologists, ophthalmologists, and other specialists.
• Nederlandse Vereniging voor Endocrinologie (NVE)coreStrategic or Co-development PartnerInvolved in the development of the Graves' disease choice aid and other guideline collaborations.
• Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK)coreStrategic or Co-development PartnerCollaboration on the ECZA procedure (expertise centers for rare conditions) and the 'schone lei' (clean slate) regulation for cancer survivors' insurance.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Hartstichting: Dutch Heart Foundation; large disease-specific advocacy and fundraising non-profit combining donor revenue, government grants, and research funding for cardiovascular patients - similar donor-funded ANBI model.
• Thyroid Federation International: International federation of national thyroid patient organizations; most direct mission-comparable peer, representing thyroid patients globally and a natural collaboration/scale partner for SchildklierNL.
• Longfonds: Dutch patient organization for lung disease with comparable ANBI-registered structure, member-funded revenue, awareness weeks, research funding partnerships, and policy advocacy.
• NFK (Nederlandse Federatie van Kankerpatiëntenorganisaties): Dutch federation of cancer patient organizations and an existing strategic partner of SchildklierNL; directly comparable member-driven federation model for patient advocacy and policy.
• Diabetesvereniging Nederland (DVN): Dutch non-profit patient organization for people with diabetes, using the same donor-funded, ANBI-status model with magazine, helpline, peer groups, and advocacy - directly comparable operating model to SchildklierNL.
• ReumaNederland: Dutch non-profit for rheumatic diseases; analogous community-led patient advocacy, donor contributions, research grants, and information services for a chronic-disease constituency.
• Hersenstichting: Dutch Brain Foundation; disease-specific non-profit with comparable donor model, awareness campaigns, peer information, research funding, and policy advocacy on neurological conditions.

Broad incumbents

• Patiëntenfederatie Nederland: Umbrella organization representing Dutch patient groups including SchildklierNL; broader scope across all conditions but overlapping on policy advocacy, collective funding codes, and shared member-benefit programs.
• KWF Kankerbestrijding: Major Dutch cancer charity with a much larger donor-funded model and research-funding apparatus; comparable in disease-specific advocacy and fundraising mechanics but operates at significantly greater scale across all cancer types.

Regional players

• British Thyroid Foundation: UK-based thyroid patient organization offering peer support, information, and helpline services; runs a comparable community-led model but operates primarily in the United Kingdom rather than competing directly in the Netherlands.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/schildklier
• YouTubeyoutube.com/@SchildklierNl
• Facebookfacebook.com/schildklier.nl
• LinkedInlinkedin.com/company/schildklier-organisatie-nederland
• Instagraminstagram.com/schildkliernl

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Schildklier Organisatie Nederland