Learning Health Community

What Learning Health Community does

Learning Health Community (LHC) is a 501(c)(3) nonprofit organization founded in 2012 that operates as a multi-stakeholder grassroots movement rather than a commercial product company. Its mission is to convene, align, and mobilize healthcare stakeholders around the Learning Health System (LHS) vision — a framework in which digitally-captured real-world patient experiences are aggregated into actionable knowledge that clinicians, patients, researchers, and public health professionals can use to inform decisions, shorten the 17-year gap between knowledge generation and application, and enable continuous improvement in care delivery. The organization does not sell products or services; participation is free and resources are openly available through learninghealth.org.

LHC's core product is the LHS Vision Framework, anchored by ten collaboratively-developed Core Values (Person-Focused, Privacy, Inclusiveness, Transparency, Accessibility, Adaptability, Governance, Cooperative and Participatory Leadership, Scientific Integrity, Value) that have been formally endorsed by 100+ organizations including HIMSS, AMIA, AHIMA, HL7, CDISC, Epic, Cerner, Geisinger, Intermountain Healthcare, and the Veterans Health Administration. Supporting initiatives include the LHS Maturity Model (2019, with AcademyHealth), the Global Collaboration for Public Health Transformation / GIPHT (2020), the LHS Technology Forum (2020), the eSource Symposium (2020), the LHS Toolkit (2021), the Essential Standards to Enable Learning (ESTEL) initiative, and the Vaccine Administration Standard V1.0 (co-developed with CDISC). The organization relies on donations and philanthropic support, with the Joseph H. Kanter Family Foundation serving as the original convener and a reported $10 million funder over 20 years.

LHC is led by CEO Joshua C. Rubin (also a Program Officer at the University of Michigan Medical School's Department of Learning Health Sciences) and Founder Charles P. Friedman (Chair of that department and former Deputy Director and Chief Scientific Officer at the U.S. Office of the National Coordinator for Health IT). The organization operates with a lean staff structure, leveraging the distributed labor of 1,500-2,000+ individuals and partner organizations across global jurisdictions including the United States, United Kingdom, Italy, and Spain. Its go-to-market approach is community-led, anchored by biennial summits, working meetings, conference presence across health IT, public health, health law, and patient advocacy events, and a peer-to-peer endorsement program. Revenue mechanics are donation-based with no commercial pricing model, making traditional commercial metrics inapplicable.

Name

Learning Health Community

Legal name

Learning Health Community

Website

https://learninghealth.org

Company type

Private

Founded year

2012

Operating status

Operating

Short description

Learning Health Community is a 501(c)(3) nonprofit founded in 2012 that convenes 100+ healthcare organizations and 1,500+ individuals around the Learning Health System vision — a framework for transforming digitally-captured patient experiences into actionable knowledge to improve clinical and public health decisions.

Ownership category

akta.pro rank

Product category

Health Informatics Advocacy

NAICS

Voluntary Health Organizations (813212), Social Advocacy Organizations (8133), Business Associations (813910)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Membership Organizations (8600)

akta.pro primary industry

Health Systems Strengthening & Primary Care Development (HLAJAKAJ)

akta.pro secondary industries

Global Health Advocacy, Policy & Rights Organizations (HLAJAKAO), Global Health Research, Evidence & Technical Assistance Organizations (HLAJAKAN), Health Systems Strengthening & Global Health Technical Assistance (BPADAEAH)

Keywords

• Health informatics advocacy
• Learning health systems
• Health data interoperability
• Clinical data standards
• Healthcare collaboration

Headquarters

HQ city

San Francisco

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Philanthropic/Fundraising: The Learning Health Community operates as a 501(c)(3) nonprofit organization relying on donations and participation from individuals and organizations. The Joseph H. Kanter Family Foundation has funded LHS initiatives with $10 million over 20 years.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

Learning Health Community operates as the coordinating nonprofit center for a multi-stakeholder grassroots movement advancing Learning Health Systems (LHS). It convenes healthcare organizations, EHR vendors, government agencies, patient advocates, and researchers to achieve consensus on frameworks, standards, and Core Values that enable digitally-captured real-world patient experiences to generate actionable knowledge for clinicians, patients, and public health. The organization delivers free frameworks (LHS Core Values, LHS Maturity Model), tools (LHS Toolkit), and global initiatives (GIPHT, ESTEL, Vaccine Administration Standard, LHS Technology Forum).

Product overview

Learning Health Community is a nonprofit organization (501(c)(3)) that operates as a multi-stakeholder grassroots movement rather than a commercial product company. Its core offering is the Learning Health System (LHS) Vision Framework — a conceptual approach to transforming healthcare through data-driven knowledge generation. The organization provides several supporting modules and initiatives: the LHS Toolkit (2021-) offers implementation guidance; the LHS Maturity Model (2019-) provides assessment tools via partnership with AcademyHealth; the LHS Technology Forum (2020-) facilitates technology discussions; the Global Initiative for Public Health Transformation (GIPHT, 2020-) addresses pandemic response through vaccine standards; and ESTEL focuses on interoperability standards. Additional resources include the Practical Guide, Synthetic Patient Data Dataverse, and eSource Symposium. The LHS is fundamentally about generating actionable knowledge from digitally captured real-world patient experiences to improve health outcomes.

Differentiator

Problem solved

Functional benefit

Brands

• Global Initiative for Public Health Transformation (GIPHT): A global collaboration initiative addressing COVID-19 pandemic and future public health challenges through data-driven systems approach
• LHS Technology Forum
• LHS Maturity Model

Products and services

• LHS Maturity Model
• Vaccine Administration Standard V1.0
• LHS Toolkit
• Essential Standards to Enable Learning (ESTEL)

Named customers12 records

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Eleven partnerships are on record, tiered core, major and minor.

• CDISC (Clinical Data Interchange Standards Consortium)coreStrategic or Co-development Partner · 1 March 2020Partnership between the Global Initiative for Public Health Transformation (GIPHT) and CDISC to develop the V1.0 Vaccine Administration Standard for digital proof of COVID-19 vaccination. Published June 2021, the standard harmonizes data structures from WHO, European Commission, CDC, and other bodies into a single universal format.
• AcademyHealthcoreStrategic or Co-development Partner · 1 January 2019Formal partnership between AcademyHealth and the Learning Health Community to develop the LHS Maturity Model initiative launched January 2019. The model serves as a tool to evaluate the extent to which healthcare delivery organizations are functioning as Learning Health Systems.
• World Health Organization (WHO)majorTechnology or IntegrationGIPHT Initiative references WHO Interim Guidance for Developing a Smart Vaccine Certificate (SVC) in development of the Vaccine Administration Standard. WHO vaccination data structures were used as foundation for the standard.
• European CommissionmajorTechnology or IntegrationEU Digital Green Certificate documentation was referenced in developing the Vaccine Administration Standard V1.0, ensuring interoperability with European vaccination certification systems.
• HIMSS (Healthcare Information and Management Systems Society)majorGTM or Marketing PartnerEarly endorser of LHS Core Values. HIMSS and Learning Health Community co-organized the Third LHS Technology Forum in June 2021 on the topic of new interoperability regulations transforming Learning Health Systems.
• Office of the National Coordinator for Health IT (ONC)majorStrategic or Co-development PartnerONC's Shared Nationwide Interoperability Roadmap references the LHS Core Values. Multiple ONC representatives have participated in LHS Summits and presentations, including Steve Posnack, Vindell Washington, and Jon White presenting at the 2016 Second LHS Summit.
• American Society of Clinical Oncology (ASCO)majorGTM or Marketing PartnerASCO provided venue and support for the December 2016 Second LHS Summit at their conference center in Alexandria, VA. ASCO is an endorser of the LHS Core Values.
• Health Level Seven International (HL7)majorTechnology or IntegrationHL7 standards were referenced and mapped in the Vaccine Administration Standard V1.0 development. HL7 is an endorser of the LHS Core Values.
• U.S. National Vaccine Advisory Committee (NVAC)minorStrategic or Co-development PartnerPresentation on Vaccine Administration Standard was given at the NVAC meeting on February 11, 2022, sharing the GIPHT/CDISC collaboration on global vaccine data standards.
• e-Patient Dave deBronkartminorOthersPatient activist and cancer survivor who presented at the 2012 LHS Summit. Known for advocacy for patient access to medical data and patient engagement in healthcare.
• Regina HollidayminorOthersPatient activist who painted the LHS Movement and advocated for health data accessibility. Created painting 'What We Wish for' for the Second LHS Summit.

Scale indicators5 records

Recent moves14 records

Expansion highlights6 records

Direct peers

• HIMSS (Healthcare Information and Management Systems Society): Early endorser of LHS Core Values and co-organizer of the Third LHS Technology Forum. HIMSS is the largest health IT membership and convener organization, with overlapping mission in advancing interoperability, digital health transformation, and multi-stakeholder consensus-building.
• HL7 International (Health Level Seven): Endorser of LHS Core Values and a referenced standards body in the Vaccine Administration Standard V1.0. HL7 develops interoperability standards foundational to the LHS vision, making it a core peer in the health data standards ecosystem.
• AcademyHealth: Formal partner on the LHS Maturity Model initiative. AcademyHealth is the leading health services research organization in the US, sharing LHC's focus on evidence-based learning, policy translation, and convening multi-stakeholder health research communities.
• CDISC (Clinical Data Interchange Standards Consortium): Active collaborator on the Vaccine Administration Standard under the GIPHT initiative. CDISC develops clinical research data standards and shares LHC's mission of harmonizing health data structures for interoperability across global research and care delivery.
• AHIMA (American Health Information Management Association): Endorser of LHS Core Values focused on health information management. AHIMA advances the profession of health information management and shares LHC's focus on data quality, governance, and standards in healthcare data.
• AMIA (American Medical Informatics Association): Endorser of LHS Core Values and an academic informatics community organization. AMIA focuses on clinical informatics research and education, directly overlapping with LHC's Learning Health Sciences focus and serving similar researcher, clinician, and informaticist audiences.

Emerging players

• eHealth Initiative (eHI): Nonprofit coalition advocating for health information technology adoption and data exchange. eHI convenes stakeholders to drive health IT policy and interoperability, partially overlapping with LHC's consensus-building and advocacy work though focused more narrowly on adoption policy.
• Catalysis (formerly CDISC Foundation affiliate): Led by Rebecca Kush (LHC board director and former CDISC founder), Catalysis focuses on healthcare data standards and research innovation. It is a peer organization with overlapping leadership and mission in advancing learning health systems through data standardization.

Broad incumbents

• Office of the National Coordinator for Health IT (ONC): Federal agency whose Shared Nationwide Interoperability Roadmap references LHS Core Values, with senior officials presenting at LHC summits. ONC is the primary federal regulator of health IT and a critical stakeholder/peer in shaping national interoperability and learning health system policy.
• National Academy of Medicine (NAM): Influential health policy and science organization that has published foundational reports on Learning Health Systems. NAM shares LHC's evidence-based, systems-level orientation to healthcare improvement and operates as a broader convener across biomedical science and policy.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks4 records

Key highlights6 records

Customer concentration

• Xtwitter.com/LearnHealthCmty
• YouTubeyoutube.com/watch?v=BA_mdGpEmK4
• LinkedInlinkedin.com/groups/10532735

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Learning Health Community