AISF ODV

What AISF ODV does

AISF ODV (Associazione Italiana Sindrome Fibromialgica ODV) is an Italian non-profit volunteer organization headquartered in Milan at Via Vincenzo Monti 7, dedicated to raising awareness of fibromyalgia and supporting the approximately 1.5-2 million Italians affected by the syndrome, of whom roughly 90% are women with peak incidence in the 40-60 age group. Founded with documented governance activity by March 2006 and operating as an ODV (Organizzazione di Volontariato) since the 2021 transition from the prior ONLUS status, the association runs approximately 25 regional sections across Italy that deliver local patient support, information desks, and in-person events. Its mission centers on guiding patients through the difficult diagnostic and treatment journey, executing programs that improve quality of life, advocating for formal recognition of fibromyalgia, and pushing for pharmacological therapies to be covered by Italy's Servizio Sanitario Nazionale.

The organization's core product is FibroMyApp, a web-app providing clinical and management information on fibromyalgia, complemented by an extensive content portfolio including the Il Caleidoscopio newsletter, Fibromialgia La Rivista Italiana magazine, a 133-page Instant Book (developed with 11 clinicians and editorial support from PharmaStar and Alfasigma), and an illustrated family-oriented book. Go-to-market is community-led: members and supporters are acquired through the website (sindromefibialgica.it), regional sections, awareness campaigns such as the annual World Fibromyalgia Day on 12 May (with illuminated monuments and purple bench installations), the Fibromialgia in Tour roadshow, and the Veleggiata per AISF sailing initiative. ECM-accredited courses target healthcare professionals as a secondary segment.

Revenue is generated through individual membership dues (annual soci fees), private donations (with preset tiers from 5 to 250 euros and custom amounts via PayPal or bank transfer), the Italian 5 per mille tax designation (with transparency reports published for 2017-2024), and Otto per Mille allocations from Chiesa Battista funding specific online patient courses. The organization is privately funded through these mission-aligned streams, does not have external investors or a parent entity, and is governed by a Board of Directors and supported by a Scientific Committee of clinicians.

Name

AISF ODV

Legal name

ASSOCIAZIONE ITALIANA SINDROME FIBROMIALGICA ODV

Website

https://sindromefibromialgica.it

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

51–100 employees

Short description

AISF ODV is an Italian non-profit organization founded in 2006 and headquartered in Milan that raises awareness and provides support for fibromyalgia patients across Italy through ~25 regional sections, the FibroMyApp digital tool, publications, awareness campaigns, and patient/professional education programs.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Health Services (8000)

akta.pro industry

PRIMARYHLALADAD

Chronic Condition Management & Remote Monitoring (e.g., diabetes, HTN)

Healthcare & Life Sciences/Telehealth Platforms/Employer-Sponsored Virtual Care Platforms

Keywords

• Fibromyalgia patient association
• Chronic disease advocacy
• Patient support organization
• Non-profit healthcare association
• Disease awareness campaigns

Headquarters

HQ city

Milano

HQ country

Italy

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Dues: Individuals can become members (soci) of AISF ODV by paying an annual membership fee. This is a recurring revenue stream from individual supporters.
2. Donations and Liberal Contributions: The organization accepts charitable donations from individuals and organizations. The website features multiple donation pages with preset amounts (5, 10, 15, 20, 25, 50, 100, 250 euros) and custom amounts, with payment via PayPal or bank transfer.
3. 5 per Mille (Tax Designation): AISF ODV receives funding through the Italian 5 per mille tax designation mechanism. The organization publishes transparency reports (Rendiconti 5 per mille) for each year, covering contributions received from 2017 through 2024.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels12 records

Core offering

AISF ODV is an Italian non-profit volunteer organization that raises awareness of fibromyalgia and provides information, educational resources, and community support to patients through a network of approximately 25 regional sections across Italy, a web-app (FibroMyApp), publications (newsletter, magazine, illustrated book, Instant Book), and patient engagement events. It also advocates for official recognition of fibromyalgia and access to pharmacological therapies through Italy's National Health Service (Servizio Sanitario Nazionale), and runs continuing medical education (ECM) courses for healthcare professionals.

Product overview

AISF ODV offers a portfolio of digital and educational resources for fibromyalgia patients in Italy. The core digital product is FibroMyApp, a web-app providing clinical and management information about fibromyalgia. Supporting the mission are multiple publications including Il Caleidoscopio newsletter, Fibromialgia La Rivista Italiana magazine, and an Instant Book (133-page interactive PDF). The association also publishes an illustrated book for families and runs the Officina Giovani project for young patients. These products work together to provide comprehensive support, education, and awareness for fibromyalgia patients.

Differentiator

Problem solved

Functional benefit

Brands

• FibroMyApp: Web application providing clinical and management information about fibromyalgia
• Fibromialgia in Tour
• Il Caleidoscopio
• Officina Giovani
• Il Paziente Fibromialgico a Tavola
• Fibro...che?
• Instant Book
• Fibromialgia La Rivista Italiana

Products and services

• FibroMyApp (FibroMiApp) A web application (also referred to as FibroMyApp / FibroMiApp) that provides answers to clinical and management questions related to fibromyalgia for patients and caregivers.
• Il Caleidoscopio Periodic newsletter and publication by AISF ODV covering fibromyalgia-related topics, news, and updates for members and the wider patient community.
• Fibromialgia La Rivista Italiana Italian magazine dedicated to fibromyalgia, providing articles and clinical information for patients and healthcare professionals.
• Instant Book An interactive 133-page PDF (Instant Book) on fibromyalgia developed with 11 qualified clinicians and produced with editorial support from PharmaStar and unconditional educational support from Alfasigma.
• La mia mamma non è solo una principessa Illustrated book for families and children explaining fibromyalgia in accessible language to help families communicate about the condition.
• Officina Giovani con FM Project and program dedicated to young people with fibromyalgia offering workshops, fundraising campaigns, and support activities.
• AISF ODV Membership (Quota associativa) Annual membership subscription (diventa socio) open to individuals, providing member benefits including access to partner conventions and organizational resources.

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Two partnerships are on record, tiered minor.

• Lega Navale Italiana (LNI)minorStrategic or Co-development PartnerAISF ODV partners with Lega Navale Italiana for the 'Vela & Salute 2026' project and the 'Veleggiata per AISF' sailing event held across 10 Italian cities on 9-10 May 2026, as part of the Mare di Legalità program. The collaboration raises awareness about fibromyalgia through water sports.
• PharmaStarminorGTM or Marketing PartnerPharmaStar, a pharmaceutical journalism outlet, collaborated with AISF ODV on the editorial initiative for the Instant Book about fibromyalgia, contributing journalistic and editorial content.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Cittadinanzattiva: Long-established Italian civic advocacy organization with a strong health-rights agenda (Tribunale per i Diritti del Malato), campaigning for patient rights within the SSN. Comparable in operating model (national non-profit, 5 per mille funding, regional assembly structure) and in advocacy focus on Italian healthcare-system access — directly overlapping AISF ODV's mission to secure SSN recognition for fibromyalgia.
• ANMAR - Associazione Nazionale Malati Reumatici: National Italian association for rheumatic disease patients, covering conditions including fibromyalgia, arthritis, and lupus. Directly comparable in condition category (rheumatic/musculoskeletal), patient-advocacy mission, and Italian non-profit operating model with regional representation.
• European Fibromyalgia Alliance: Pan-European umbrella body coordinating national fibromyalgia patient associations across EU member states. Comparable as a fibromyalgia-specific advocacy organization and a potential partner for AISF ODV in pursuing EU-level recognition and cross-border research collaboration.
• AISM - Associazione Italiana Sclerosi Multipla: Italy's largest patient advocacy non-profit, supporting people with multiple sclerosis through a national section network, scientific research funding, and 5 per mille tax-designation fundraising. Directly comparable to AISF ODV in mission (chronic-condition patient support), legal form (Italian non-profit/ODV-equivalent), funding model (5 per mille + donations), and operating structure (national HQ + regional sections).
• Lega Italiana Fibrosi Cistica Onlus: Italian cystic fibrosis patient and research foundation operating regional sections, scientific committee, and 5 per mille fundraising. Directly comparable as a single-condition Italian patient non-profit with the same combination of regional network, scientific committee, awareness events, and reliance on tax-designation revenue.
• UNIAMO Federazione Italiana Malattie Rare: Federation of Italian rare-disease patient associations, advocating for recognition, research funding, and SSN access for rare conditions. Comparable as a national umbrella patient-advocacy structure pursuing policy recognition and healthcare-system integration — a parallel mission to AISF ODV's SSN recognition goal for fibromyalgia.

Broad incumbents

• Fondazione Telethon: Major Italian biomedical research foundation funded through donations and 5 per mille. Comparable as a large-scale Italian health non-profit competing for the same donor and 5 per mille pool, and as a model for institutional fundraising and scientific-committee-driven programming that AISF ODV could emulate at smaller scale.
• AIRC - Associazione Italiana per la Ricerca sul Cancro: Italy's largest cancer-research charity, dominant in 5 per mille allocations and a benchmark for Italian non-profit patient/health fundraising. Not a fibromyalgia peer, but a structural comparable: a much larger Italian health non-profit that competes with AISF ODV for taxpayer 5 per mille designations and sets operational benchmarks in donor engagement and transparency reporting.

Regional players

• National Fibromyalgia Association (US): Leading US-based fibromyalgia patient advocacy organization focused on awareness, education, and healthcare-provider training. Directly comparable in single-condition focus (fibromyalgia), patient-advocacy mission, and content-led ecosystem (magazine, app, educational resources), but operates in a different geographic and regulatory context (US payer system vs Italian SSN).
• Fibromyalgia Association UK: UK-based fibromyalgia patient charity providing information, helpline services, and regional support groups. Comparable in single-condition patient-advocacy mission and support-network model, but operates under the NHS framework rather than the Italian SSN.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks7 records

Key highlights6 records

Customer concentration

• Xx.com/AisfOdv
• YouTubeyoutube.com/channel/UCO84s1rOldYdWAh-sqLdCsg/videos
• Facebookfacebook.com/AssociazioneAisfODV
• LinkedInlinkedin.com/company/aisf-odv-associazione-italiana-sindrome-fibromialgica
• Instagraminstagram.com/aisfodv_official

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about AISF ODV