FND Hope
FND Hope International is a nonprofit patient advocacy organization founded in 2012 that provides virtual peer support groups, educational resources, and research coordination for individuals diagnosed with Functional Neurological Disorder across the US, UK, Canada, and Australia.
- Company typePrivate
- Founded2012
- HeadquartersSalmon, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What FND Hope does
FND Hope International is a nonprofit patient advocacy organization founded in 2012 to serve individuals diagnosed with Functional Neurological Disorder (FND), a condition in which the brain cannot send and receive signals properly, producing neurological symptoms without structural disease. The organization operates an online platform delivering virtual peer support groups segmented by demographics (men, teens, young adults, LGBTQIA+, caregivers, functional seizure patients), an extensive educational library covering 12 symptom categories and multiple treatment modalities, downloadable resources including a patient booklet and magazine, a provider finder tool, webinars, and country-specific chapters in the US, UK, Canada, and Australia with localized support services and treatment directories. The technology base comprises a website with event calendar functionality and a white-labeled patient registry powered by Genetic Alliance, allowing patients to consent to research data sharing while controlling access. The organization also operates an FND Research Platform that curates studies, hosts a researcher directory, and surfaces clinical trial information including the CODES Trial.
Revenue is generated exclusively through donations, fundraising events, and volunteer-driven contributions; FND Hope does not sell products or services and discloses no pricing. The organization maintains an International Medical Advisory Board and country-level Medical Expert Committees to formalize clinical governance, and partners with academic institutions such as Swansea University on research initiatives. Core customers are FND patients, caregivers, medical professionals, and country-specific audiences across four English-speaking markets.
FND Hope firmographics
Firmographics- Name
- FND Hope
- Legal name
- FND Hope International
- Website
- https://fndhope.org
- Company type
- Private
- Founded year
- 2012
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- FND Hope International is a nonprofit patient advocacy organization founded in 2012 that provides virtual peer support groups, educational resources, and research coordination for individuals diagnosed with Functional Neurological Disorder across the US, UK, Canada, and Australia.
- Ownership category
- akta.pro rank
FND Hope industry classification
Industry- Product category
- Patient Advocacy and Chronic Disease Support
- NAICS
- Voluntary Health Organizations (813212), Grantmaking and Giving Services (81321)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
Keywords
Where FND Hope is headquartered
LocationHeadquarters
- HQ city
- Salmon
- HQ country
- United States
- HQ region
- North America
Markets served
FND Hope business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D
Distribution channels1 record
Marketing channels7 records
FND Hope product offering
Product offeringCore offering
FND Hope International is a nonprofit patient advocacy organization that provides free educational resources, virtual peer support groups, webinars, downloadable toolkits, and a healthcare provider finder for individuals affected by Functional Neurological Disorder (FND). The organization also operates a patient registry through Genetic Alliance to connect patients with FND research opportunities, with country-specific chapters in the US, UK, Canada, and Australia.
Product overview
FND Hope is a nonprofit organization providing a comprehensive suite of resources and services for individuals diagnosed with Functional Neurological Disorder (FND). The organization operates a platform centered on peer support and education, offering virtual peer support groups across multiple demographics (men, young adults, teens, functional seizure patients, caregivers), an extensive FND Guide covering symptoms and treatments, an event calendar with educational webinars, downloadable resources including patient booklets and magazines, a provider finder tool, and an FND research platform with patient registry. The organization maintains country-specific branches (US, UK, Canada, Australia) with localized support services. The core offering is free educational content and community support rather than a commercial software product.
Differentiator
Problem solved
Functional benefit
Products and services
- FND Guide / Educational Resources
Companies that use FND Hope
Customer profileSegments5 records
Ideal customer profiles3 records
FND Hope technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature1 record
FND Hope partnerships and signals
Strategic signalPartnerships
Two partnerships are on record, tiered core.
- Genetic AlliancecoreGenetic Alliance provides the white-labeled patient registry platform used by FND Hope. Patients can participate in research by sharing their health data, with full control over who accesses their information.
- Swansea UniversitycoreFND Hope International works in conjunction with Swansea University's Project Team for Wales-based research initiatives. The partnership organizes events like the Functional Seizures in Wales Research Results, bringing together researchers, healthcare professionals, and people with lived experience.
Scale indicators3 records
Recent moves6 records
Expansion highlights5 records
FND Hope competitors and assessment
Company assessmentBroad incumbents
- National Organization for Rare Disorders (NORD): Umbrella advocacy organization supporting patients with rare diseases, including many neurological conditions. Comparable in nonprofit advocacy and rare disease focus, though NORD operates across many conditions rather than a single disease.
- ALS Association: Major US-based disease-specific nonprofit for ALS with extensive research funding, care services, and advocacy. Larger and more established than FND Hope, but operates an analogous model — peer support, research grants, and clinical navigation — in the neurological disease space.
- National Multiple Sclerosis Society: Major US-based nonprofit supporting MS patients with peer networks, research funding, advocacy, and clinical resources. Comparable model to FND Hope but operating at far greater scale in a more recognized neurological condition.
- Parkinson's Foundation: Large-scale neurological disease nonprofit offering support, education, research grants, and clinician resources. Comparable in mission and structure but operates at significantly greater scale and resource depth than FND Hope.
Direct peers
- Tourette Association of America: Disease-specific neurological nonprofit providing education, support groups, research funding, and clinician resources for Tourette Syndrome. Directly comparable to FND Hope in mission, structure, and target audience (neurological patients and caregivers).
- National Ataxia Foundation: Nonprofit supporting patients with ataxia, offering peer networks, research advocacy, and clinical resources. Similar disease-specific neurological model with comparable support group infrastructure and research focus.
- Epilepsy Foundation: US-based nonprofit dedicated to epilepsy awareness, support, and research. Closely comparable as a disease-specific neurological patient advocacy organization operating peer support groups, research funding, provider resources, and country-level community building.
- Myasthenia Gravis Foundation of America: Patient advocacy organization for myasthenia gravis providing peer support, educational resources, and research funding. Directly comparable as a niche neurological disease-focused nonprofit with similar program mix.
Regional players
- Epilepsy Action: UK-based epilepsy advocacy nonprofit providing peer support, helpline, research funding, and clinician resources. Comparable disease-specific neurological model to FND Hope, with overlapping UK audience and a parallel chapter-style structure.
Others
- Genetic Alliance: Nonprofit operating a platform for disease-specific patient registries, including the white-labeled registry used by FND Hope. Relevant as both a technology partner and a peer operating in the disease-advocacy infrastructure layer.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights7 records
Customer concentration
FND Hope social profiles
Digital presenceFND Hope financial estimates
Financial estimateRevenue estimate
Valuation estimate
FND Hope leadership team
Management profileNumber of profiles
Profiles1 record
FND Hope funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
FND Hope M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about FND Hope
What does FND Hope do?
FND Hope International is a nonprofit patient advocacy organization that provides free educational resources, virtual peer support groups, webinars, downloadable toolkits, and a healthcare provider finder for individuals affected by Functional Neurological Disorder (FND). The organization also operates a patient registry through Genetic Alliance to connect patients with FND research opportunities, with country-specific chapters in the US, UK, Canada, and Australia.
Is FND Hope a public or private company?
FND Hope is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was FND Hope founded?
FND Hope was founded in 2012. It employs 1 to 10 people.
Where is FND Hope based?
FND Hope is headquartered in Salmon, United States, in the North America region.
Who are FND Hope's main competitors?
Broad incumbents on record are National Organization for Rare Disorders (NORD), ALS Association, National Multiple Sclerosis Society and Parkinson's Foundation. Direct peers are Tourette Association of America, National Ataxia Foundation, Epilepsy Foundation and Myasthenia Gravis Foundation of America. Epilepsy Action is listed as a regional player. Genetic Alliance is listed as an others.
Does FND Hope have an API?
No public API is recorded for FND Hope.
What industry is FND Hope in?
FND Hope's product category is Patient Advocacy and Chronic Disease Support. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212.