EndoFrance
EndoFrance is France's first non-profit association dedicated to endometriosis, founded in 2001 and entirely volunteer-run. It supports people with endometriosis and adenomyosis through a nationwide volunteer network, validated educational content, serious games, therapeutic patient education, and research co-funding, financed by membership dues and donations.
- Company typePrivate
- Founded2001
- HeadquartersTrésilley, France
- Headcount11–50
- GTM typeB2C
- OfferingServices
What EndoFrance does
EndoFrance (legal name Association Française de lutte contre l'Endométriose) is a French non-profit association under the loi 1901, founded on March 29, 2001 by Delphine Ludzay. It is the first and longest-running French association dedicated to endometriosis and adenomyosis, headquartered at 84 Avenue de la République, Paris 11th arrondissement. Its mission is to support, inform, and act on behalf of people affected by endometriosis — roughly 1–2 in 10 menstruating people in France, equating to approximately 3 million individuals — and their families. The association is entirely volunteer-run (no paid staff) and operates a nationwide network of regional volunteers who organize approximately 700 actions per year and respond to over 25,000 emails annually.
Its service portfolio is built on a WordPress website (endofrance.org), a member portal (adherents.endofrance.org), validated educational content co-authored with the HAS/CNGOF since 2017, two serious games (Endo'Travail for the workplace, "Parlons endométriose" with Cramif), therapeutic patient education (ETP) programs co-developed with CHU Montpellier (2016) and CHU Nîmes, downloadable patient booklets and printed posters distributed through healthcare waiting rooms, the EndoPank® physical bench awareness program, and biennial patient-experience surveys (EndoVie, 2020 and 2025). Scientific credibility is underpinned by a multidisciplinary Scientific Council and by EndoFrance's role as the sole patient author of the 2017 HAS/CNGOF clinical practice guidelines chapter and as a participant in ESHRE European guideline working groups since 2019.
EndoFrance is entirely self-financed through membership dues and individual donations, supplemented by earned-media fundraising (notably €109,186 raised since 2016 through godmother Laëtitia Milot's Fort Boyard appearances) and limited corporate/pharma collaboration (Gedeon Richter, Ipsos for EndoVie 2; Cramif for the Parlons endométriose game). All core services are free to users. The association holds a Ministry of Health approval (since 2018, renewed 2023 for five years) and a Ministry of Education approval (since January 2024), and is recognized as a key contributor to France's 2022–2025 National Endometriosis Strategy announced by President Macron. Since 2016 it has co-financed 43 research projects totaling over €375,000.
EndoFrance firmographics
Firmographics- Name
- EndoFrance
- Legal name
- Association Française de lutte contre l'Endométriose
- Website
- https://endofrance.org
- Company type
- Private
- Founded year
- 2001
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- EndoFrance is France's first non-profit association dedicated to endometriosis, founded in 2001 and entirely volunteer-run. It supports people with endometriosis and adenomyosis through a nationwide volunteer network, validated educational content, serious games, therapeutic patient education, and research co-funding, financed by membership dues and donations.
- Ownership category
- akta.pro rank
EndoFrance industry classification
Industry- Product category
- Patient Advocacy Services
- NAICS
- Voluntary Health Organizations (813212), Individual and Family Services (6241)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where EndoFrance is headquartered
LocationHeadquarters
- HQ city
- Trésilley
- HQ country
- France
- HQ region
- Europe
Offices1 record
Markets served
EndoFrance business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others, Technology or R&D
Revenue model
- Membership dues (Adhésions): EndoFrance is entirely self-financed through the membership dues of its supporters. Members pay annual contributions to support the association's mission of supporting, informing, and acting against endometriosis.
- Donations (Dons): EndoFrance receives donations from individuals and supporters. Donations help fund awareness materials, events, and research grants. The association does not accept third-party commercial data transfers or sell personal information.
- TV and media appearances: Laëtitia Milot, the association's godmother, has participated in Fort Boyard (France 2) three times, generating funds for endometriosis research. Since 2016, she has contributed a total of €109,186 to research through TV appearances and events.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Annual | Free membership and services — EndoFrance operates on voluntary contributions |
Go-to-market motion3 records
Distribution channels4 records
Marketing channels9 records
EndoFrance product offering
Product offeringCore offering
EndoFrance is a French non-profit patient association that supports, informs, and advocates for people affected by endometriosis and adenomyosis, as well as their families, healthcare professionals, and the general public. Through a nationwide network of regional volunteers, it delivers free personalized support (responding to over 25,000 emails per year), educational materials (posters, brochures, booklets), therapeutic patient education programs, awareness events, and research funding. It also conducts large-scale patient surveys and participates in national health policy and clinical guideline development.
Product overview
EndoFrance is a patient association (Association Française de lutte contre l'Endométriose) founded in 2001, offering informational resources and support services rather than a traditional software product. The core offering includes its main website (endofrance.org) providing comprehensive endometriosis information, the member portal (adherents.endofrance.org), and educational tools including the serious games Endo'Travail (workplace awareness) and Parlons endométriose (interactive online game). The association provides therapeutic patient education programs (ETP) including 'Mieux vivre avec l'endométriose' (2016) and 'Endo Talk' with CHU de Nîmes, downloadable patient information booklets, printed awareness materials (posters, brochures), and conducts research surveys including the EndoVie studies.
Differentiator
Problem solved
Functional benefit
Products and services
- EndoFrance Website (endofrance.org) Main public website of EndoFrance serving as the primary digital distribution channel for all information, educational content, event registration, volunteer contact, and membership/donation services related to endometriosis and adenomyosis.
- Espace Adhérents (adherents.endofrance.org) WordPress-based member portal providing exclusive content, resources, and communication channels for association members and donors.
- Programme ETP - Mieux vivre avec l'endométriose First therapeutic patient education program specifically dedicated to endometriosis, co-developed with CHU de Montpellier in 2016 and labeled by ARS Occitanie. It includes 10 specific workshops annually, engaging approximately 10 stakeholders with 90% positive evaluation from participants.
- Endo Talk - Parlons d'endométriose Therapeutic patient education program developed in partnership with CHU de Nîmes to expand the ETP model to a new region, helping patients understand endometriosis, improve quality of life, and regain autonomy.
- Endo'Travail Serious Game Pedagogical serious game designed to raise awareness among employees, managers, and leadership about the impact of endometriosis in the workplace, based on the white paper 'endométriose & emploi'.
- Parlons endométriose Interactive Game Free interactive online game developed with Cramif, following Clara's journey with endometriosis, designed to raise awareness about the disease's impact in professional settings.
- Livret 'Comprendre une endométriose' Patient information booklet derived from the CNGOF/HAS RPC endometriosis clinical practice guidelines, drafted by EndoFrance, available as free PDF download.
- Information Materials (Posters and Brochure Packs) Free information materials for healthcare professionals, including generic poster, Clara & endometriosis youth-focused A3 poster, and brochure packs distributed for display in waiting rooms and consultation spaces.
- EndoPank® Yellow Bench Awareness Project Yellow bench awareness project where municipalities install urban benches painted yellow with informational plaques about endometriosis, with 28 benches installed across French communes to date.
- EndoVie Patient Survey Large-scale patient survey conducted with Gedeon Richter, Ipsos, and Endomind to document lived experiences of people with endometriosis and adenomyosis. First edition in 2020 with 1,557 participants; EndoVie 2 in 2025 with over 2,400 respondents.
Companies that use EndoFrance
Customer profileNamed customers4 records
Segments5 records
Ideal customer profiles4 records
EndoFrance technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature2 records
EndoFrance partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered core and minor.
- Cramif (Caisse régionale d'assurance maladie d'Île-de-France)coreIn collaboration with the Cramif, EndoFrance participated in the design of an interactive online game that sensitizes to the impact of endometriosis and adenomyosis in the professional world. The game, developed as part of the 2025 National Health Insurance donation days (journées du don 2025), features Clara as the protagonist and is available for free online. The project is credited under the Cramif's Lab Innov' initiative.
- Gedeon RichtercoreEndoFrance collaborated with Gedeon Richter (a pharmaceutical company specializing in women's health), Ipsos (market research), and the association Endomind to conduct the EndoVie 2 survey in autumn 2025, gathering responses from over 2,400 participants to understand the lived experience of people with endometriosis and adenomyose.
- IpsoscoreEndoFrance partnered with Ipsos to conduct the EndoVie 2 survey in autumn 2025, which gathered over 2,400 responses to understand the care pathways, challenges, and quality of life of people with endometriosis and adenomyosis. Ipsos provided methodological expertise for this major patient survey.
- EndomindminorEndoFrance collaborated with the association Endomind alongside Gedeon Richter and Ipsos to conduct the EndoVie 2 survey, contributing to a comprehensive understanding of patient experiences with endometriosis and adenomyosis.
- Fédération Française de Rugby (French Rugby Federation)coreOn March 6, 2024, EndoFrance and the French Rugby Federation signed a national partnership convention. The partnership enables EndoFrance to sensitize players, coaches, and staff within the framework of sport-health initiatives. EndoFrance, with its volunteers, will support the FFR in promoting sport-health through rugby, particularly touch rugby (rugby à 5), which is mixed and played without tackles. This partnership builds on the longstanding relationship with godfather Thomas Ramos and extends awareness to a broad national sports audience.
- France Assos SantéminorEndoFrance is affiliated with France Assos Santé, the recognized association representing users of the health system in France. This affiliation supports EndoFrance's role in representing patients in hospital and ministerial commissions under its Ministry of Health approval.
- CHU de MontpelliercoreEndoFrance co-developed the first-ever patient education (Éducation thérapeutique du patient, ETP) program dedicated to endometriosis with CHU de Montpellier in 2016, which was labeled by ARS Occitanie. This pioneering program has engaged over 200 women and achieved a 90% positive evaluation from participants.
- CHU de NîmesminorEndoFrance partnered with CHU de Nîmes to develop the 'Endo Talk – Parlons d'endométriose' patient education program, expanding the ETP model to a new region and patient population.
Scale indicators7 records
Recent moves6 records
Expansion highlights6 records
EndoFrance competitors and assessment
Company assessmentEmerging players
- World Endometriosis Research Foundation (WERF): International research-focused foundation advancing endometriosis science through coordinated global studies. Less operational outreach than EndoFrance but a direct competitor for research funding attention and scientific credibility in the endometriosis space.
Regional players
- Endometriosis New Zealand: National endometriosis support organization in New Zealand providing information, advocacy, and community support. Mirrors EndoFrance's mission in a different geographic market with similar awareness and diagnostic-delay challenges.
Direct peers
- EndoActive: Australian endometriosis advocacy organization focused on patient support, awareness, and research. Directly comparable in mission, structure, and volunteer-driven model, operating in a different geography with similar diagnostic-delay challenges.
- Endometriosis Foundation of America: US-based nonprofit focused on endometriosis awareness, research funding, and patient advocacy. Operates at comparable scale with strong celebrity involvement, making it the closest international analog to EndoFrance's national-charity model.
- Endomind: French endometriosis patient association that partners with EndoFrance on initiatives like the EndoVie 2 survey. Operates a similar patient advocacy, awareness, and research-funding model in France, making it the most directly comparable organization and the most immediate source of competitive overlap.
- Endometriosis UK: The UK's leading endometriosis charity, providing information, support, and research funding through a national volunteer network. Closely mirrors EndoFrance's mission, volunteer-driven structure, and awareness approach in a different national market.
- Endometriosis.org: Global collaborative platform for endometriosis news, information, and research updates founded by patients and clinicians. Functions as EndoFrance's international peer in patient education, with a broader global rather than national remit.
Others
- AbbVie: Multinational pharmaceutical company that markets Orilissa (elagolix), one of the few approved endometriosis therapies globally. Industry incumbent whose commercial priorities around endometriosis treatment access interact directly with patient advocacy organizations like EndoFrance.
- France Assos Santé: The umbrella federation representing users of the French health system, of which EndoFrance is an affiliated member. Provides regulatory representation support and is structurally relevant to EndoFrance's policy positioning and agrément-backed role.
- Gedeon Richter: Women's health pharmaceutical company that partners with EndoFrance on the EndoVie 2 survey. Industry player in endometriosis therapeutics whose commercial interests intersect with EndoFrance's advocacy mission and may influence (positively or negatively) future collaboration.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
EndoFrance social profiles
Digital presenceEndoFrance compliance and trust
Trust signalCompliance3 records
EndoFrance financial estimates
Financial estimateRevenue estimate
Valuation estimate
EndoFrance leadership team
Management profileNumber of profiles
Profiles3 records
EndoFrance funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
EndoFrance M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about EndoFrance
What does EndoFrance do?
EndoFrance is a French non-profit patient association that supports, informs, and advocates for people affected by endometriosis and adenomyosis, as well as their families, healthcare professionals, and the general public. Through a nationwide network of regional volunteers, it delivers free personalized support (responding to over 25,000 emails per year), educational materials (posters, brochures, booklets), therapeutic patient education programs, awareness events, and research funding. It also conducts large-scale patient surveys and participates in national health policy and clinical guideline development.
Is EndoFrance a public or private company?
EndoFrance is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was EndoFrance founded?
EndoFrance was founded in 2001. It employs 11 to 50 people.
Where is EndoFrance based?
EndoFrance is headquartered in Trésilley, France, in the Europe region.
How does EndoFrance make money?
Three revenue lines are on record. Membership dues (Adhésions) is the primary driver. The others are donations (Dons) and TV and media appearances.
Who are EndoFrance's main competitors?
World Endometriosis Research Foundation (WERF) is listed as an emerging player. Endometriosis New Zealand is listed as a regional player. Direct peers are EndoActive, Endometriosis Foundation of America, Endomind, Endometriosis UK and Endometriosis.org. Others are AbbVie, France Assos Santé and Gedeon Richter.
Does EndoFrance have an API?
No public API is recorded for EndoFrance.
What industry is EndoFrance in?
EndoFrance's product category is Patient Advocacy Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212 and its SIC code is 8300.