LMC France

What LMC France does

LMC France (Leucémie Myéloïde Chronique France) is a French non-profit patient association founded on February 5, 2010 by Mina Daban in Marseille, dedicated to serving individuals affected by Chronic Myeloid Leukemia (CML) and their families. The organization addresses the information gap and isolation faced by CML patients through a comprehensive suite of digitally delivered educational and support services. Its core product offerings include the e-université LMC France online educational platform (launched 2015), the LMCoach mobile coaching application for treatment adherence (launched 2014, nominated at the Festival de la Communication Santé de Deauville), a library of more than 100 educational videos, approximately 10 published books including two official White Books (Livres Blancs), the Observatoire LMC France patient-reported outcome collection system, a children's storybook (La Princesse des Coccinelles), and the annual World CML Day awareness initiative that LMC France originated in 2011.

The association operates a community-led go-to-market model reaching patients through regional relays (Relais LMC France), national patient days held across 12 French cities, in-person events at partner institutions including Institut Paoli-Calmettes and Hôpital de la Timone, and digital channels encompassing its website, Facebook, Instagram, YouTube, and email newsletters. All services are provided free of charge to patients and caregivers, with content validated by a Scientific Council chaired by hematologist Aude Charbonnier and composed of leading French hematology experts. The organization is an active member of the international CML Advocates Network and participates annually in the CML Horizons conference.

LMC France funds its operations through tax-deductible membership fees and donations, institutional grants from bodies such as ANSM and ARS, and pharmaceutical industry support (including Pfizer-backed adherence initiatives). The association also acts as a research funder, having awarded €20,000 in grants to French hematology researchers in 2016, and engages in patient-rights advocacy including successful lobbying for Besremi availability and the right-to-be-forgotten insurance petition. The association operates as an independent entity with no parent company or external investors.

Name

LMC France

Legal name

LMC France - Leucémie Myéloïde Chronique France

Website

http://www.lmc-france.fr/

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

11–50 employees

Short description

LMC France is a French non-profit patient association founded in 2010 that supports individuals affected by Chronic Myeloid Leukemia (CML) and their caregivers through expert-validated educational tools, mobile applications, white papers, community events, and patient-rights advocacy across France.

Ownership category

akta.pro rank

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Others

Revenue model

1. Membership fees and donations: LMC France is a non-profit patient association that operates through membership contributions and donations from supporters. Membership is open to patients, relatives, and supporters. Donations are tax-deductible in France.
2. Institutional support and grants: The association receives institutional support from healthcare organizations, public health agencies (ANSM, ARS), and healthcare foundations for specific programs and research initiatives.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

LMC France is a French non-profit patient association dedicated to Chronic Myeloid Leukemia (CML) that provides free, expert-validated medical information, educational content, peer support, and patient-advocacy services to CML patients and their families. Its core deliverables include the e-université online learning platform, the LMCoach mobile adherence app, an educational video library, white papers, patient surveys via the Observatoire, the annual World CML Day, and direct support through regional relays and events across France.

Product overview

LMC France is a patient association for Chronic Myeloid Leukemia (CML) that offers a comprehensive suite of digital and educational products and services. The core offerings include the e-université platform (online patient education), LMCoach mobile application, educational video library (100+ videos), patient tools (adherence kits, quizzes), white papers (Livres Blancs), and the annual World CML Day event. Additional services include patient surveys through the Observatoire, a dedicated forum, children's educational content (La Princesse des Coccinelles), and the Patient Journey video series. The association provides information validated by its Scientific Council and serves patients and caregivers throughout their care journey.

Differentiator

Problem solved

Functional benefit

Brands

• LMCoach: Mobile coaching application for LMC patients providing tools and support for managing their condition.

Products and services

• E-université LMC France Online educational platform providing validated training courses on Chronic Myeloid Leukemia for patients and caregivers, with content approved by the Scientific Council of hematology experts.
• LMCoach Mobile Application Mobile coaching application for CML patients providing daily support, treatment reminders, and educational content to help with self-management.
• Livres Blancs (White Books on LMC) Comprehensive white papers providing recommendations and guidance on CML for patients and healthcare professionals, with official handover ceremonies.
• Educational Videos Library Library of educational videos on CML topics including disease history, diagnosis, treatments, side effects, adherence, clinical trials, quality of life, and supportive care.
• Observatoire LMC France Patient-reported outcome observatory that conducts surveys and collects patient experiences on topics such as confinement during health crises and fatigue management.
• La Princesse des Coccinelles Illustrated educational storybook for children whose parents or relatives are affected by CML, explaining the disease in simple language and visual format.
• World CML Day (Journée Mondiale de la LMC) Annual international awareness day initiated by LMC France in 2011, featuring conferences, patient meetings, and educational events held on September 22 each year.
• Le Parcours Patient LMC (Patient Journey Film) Video series documenting the complete CML patient journey, from diagnosis through treatment and follow-up care.

Quantifiable outcome

• Successfully advocated for availability of alternative interferon medication (Besremi) to address Pegasys shortage affecting LMC and SMP patients
• +1 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

Twelve partnerships are on record, tiered core, major and minor.

• Fi-LMC (France Intergroupe de la Leucémie Myéloïde Chronique)coreStrategic or Co-development PartnerFi-LMC is a non-profit association created April 21, 2000, bringing together physicians, biologists, pharmacists, biostatisticians and other health professionals interested in improving scientific knowledge and treatment of CML. LMC France collaborates with Fi-LMC on patient days, scientific information, and research initiatives.
• ICMLF (International CML Learning Forum)majorStrategic or Co-development PartnerInternational collaborative forum for CML education and information sharing, working with Fi-LMC to provide information to LMC patients.
• ANSM (Agence Nationale de Sécurité du Médicament)majorStrategic or Co-development PartnerFrench National Agency for Medicines and Health Products Safety. LMC France participates in ANSM meetings and collaborates on drug safety and patient representation.
• Institut Paoli-Calmettes (IPC)coreStrategic or Co-development PartnerComprehensive cancer center in Marseille. IPC hosts LMC France events, patient days, and collaborates on research and patient education programs.
• AP-HM (Assistance Publique - Hôpitaux de Marseille)coreStrategic or Co-development PartnerPublic hospital system in Marseille. LMC France collaborates with Hôpital de la Timone for conferences, patient education events, and the ERI (Espace de Rencontres et d'Information).
• CML Advocates NetworkcoreStrategic or Co-development PartnerInternational patient advocacy network for CML. LMC France is a member and participates in CML Horizons annual conferences, sharing experiences and best practices with patient organizations worldwide.
• CML HorizonscoreStrategic or Co-development PartnerInternational conference for CML patient advocates. LMC France actively participates annually, presenting their initiatives and learning from global community.
• Alliance Maladies RaresminorStrategic or Co-development PartnerFrench alliance for rare diseases. Bernadette Marchand, LMC France relay, represents the association at rare disease events and information days.
• AVNIR (Associations VacciNation Immunodéprimées Réalité)minorStrategic or Co-development PartnerVaccination advocacy group for immunocompromised patients. LMC France is a member and participates in annual colloquia at the French Senate.
• PfizerminorGTM or Marketing PartnerPharmaceutical company providing institutional support for patient education initiatives including the national adherence survey 'Vos traitements et vous'.
• OMS (Etablissement Français du Sang)minorStrategic or Co-development PartnerFrench Blood Agency. LMC France participates in annual meetings promoting bone marrow donation awareness.
• ARS (Agences Régionales de Santé)majorStrategic or Co-development PartnerRegional Health Agencies in France. LMC France collaborates with regional health authorities on patient support and healthcare initiatives.

Scale indicators7 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• CML Advocates Network: Global umbrella network of CML patient organizations of which LMC France is an active member. Direct peer in the CML patient advocacy space, sharing the same disease focus, audience (CML patients worldwide), and mission of patient education and policy advocacy.
• Association Laurette Fugain: French non-profit patient association fighting leukemia and other blood cancers. Direct peer serving the same French patient population with peer support, research funding, and advocacy, although LMC France is narrower in focus (CML only).
• Alliance Maladies Rares: French rare disease alliance of which LMC France is a member. Comparable in advocacy mission and French footprint, focused on rare disease policy and patient rights including the right-to-be-forgotten, which is also a key LMC France priority.
• France Lymphome Espoir: French patient association for lymphoma and related blood cancers. Direct peer in the French blood cancer patient-association space, sharing similar education, advocacy, and patient-support activities, though targeted to a different but adjacent patient population.

Broad incumbents

• Leukemia & Lymphoma Society (LLS): Large US-based blood cancer advocacy organization funding research and providing patient education and support. Comparable to LMC France in mission (leukemia patient support, research grants, educational content) but covers all blood cancers and serves a much larger market.
• Ligue contre le Cancer: France's largest cancer patient advocacy umbrella organization. Highly comparable in mission (patient education, advocacy, research funding) and French footprint, but operates across all cancer types with a much larger scale and broader portfolio.
• European Cancer Patient Coalition (ECPC): Europe-wide umbrella for cancer patient organizations. Comparable in advocacy and policy mission but built at a pan-European scale, whereas LMC France operates nationally in France.
• Macmillan Cancer Support: Large UK cancer support charity offering patient information, financial guidance, and peer support. Comparable mission and educational content library approach, but operates at a much larger scale and across all cancer types.

Regional players

• AIL — Associazione Italiana contro le Leucemie, i Linfomi e il Mieloma: Italian blood cancer patient association focused on leukemia, lymphomas, and myeloma. Highly comparable in mission (patient education, research grants, peer support) and structure as a non-profit, but serves Italian patients rather than French patients.

Emerging players

• DKMS (bone marrow donor registry): International blood stem cell and bone marrow donor registry. LMC France partners with the French Blood Agency (Établissement Français du Sang) on bone marrow donation awareness, making DKMS a thematically and partially-overlapping peer in the CML transplant pathway.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/lmcfrance
• YouTubeyoutube.com/user/lmcfrance
• Instagraminstagram.com/lmc_france
• LinkedInlinkedin.com/company/lmcfrance

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about LMC France