KidsCan Young Person's Advisory Group

What KidsCan Young Person's Advisory Group does

The KidsCan Young Person's Advisory Group is a youth advisory initiative operated under the Maternal Infant Child and Youth Research Network (MICYRN), a Canadian federal not-for-profit, charitable organization founded in 2006 and headquartered in Vancouver at BC Children's Hospital research institute. KidsCan YPAG consists of children and youth across Canada who provide consultation and youth perspectives to investigators conducting pediatric and maternal health studies; in 2021 the group assisted on seven studies spanning COVID-19, virtual care, mental health, gender identity, patient engagement platforms, and medical cannabis research.

MICYRN itself is the only national network in Canada representing maternal, child, and youth health research interests, linking 21 maternal and child health research organizations at academic health centres and affiliating with more than 20 practice-based research networks. Its core technology infrastructure comprises a Study Start-Up Repository of local institutional requirements, a Clinical Trials Unit readiness database, a COVID-19 study catalogue developed with IHDCYH, an expert investigator database of 180+ pediatric researchers, and CHEER ethics education modules. The organization offers Academic Research Organization (ARO) services — protocol development, Health Canada regulatory submissions, centralized ethics submissions, monitoring, quality assurance, data management, project management, biostatistical support, and knowledge translation — for multi-site pediatric and maternal clinical trials.

The business model combines annual membership fees from 21 member research organizations, cost-recovery fees for post-award ARO services, 50%-subsidized regulatory submission services for investigator-initiated multi-centre trials, participation in large funded grants (notably the $20 million CIHR RareKids-CAN grant and the 9.9 million Euro HORIZON EUROPE PRISM initiative), and charitable donations from $25. Pre-award services are provided free to investigators within the member network. Customer segments include academic researchers, clinical research coordinators, industry and biotech sponsors, and children/youth/pregnant individuals as research participants. The organization operates under national director Vivian Tsang and serves Canadian markets with expanding international partnerships through ECRIN, conect4children, I-ACT, and Enpr-EMA.

Name

KidsCan Young Person's Advisory Group

Legal name

Maternal Infant Child and Youth Research Network

Website

https://micyrn.ca

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

11–50 employees

Short description

The KidsCan Young Person's Advisory Group is a youth advisory initiative under MICYRN (Maternal Infant Child and Youth Research Network), a Canadian federal not-for-profit founded in 2006 that links 21 maternal and child health research organizations and provides ARO clinical trial services for pediatric and maternal studies across Canada.

Ownership category

akta.pro rank

Product category

Pediatric Research Advisory Services

NAICS

Child and Youth Services (62411), Child and Youth Services (624110)

SIC

Services-Social Services (8300)

akta.pro industry

PRIMARYHLAFACAL

Behavioral Health for Children & Adolescents (Youth Services)

Healthcare & Life Sciences/Healthcare Providers & Systems/Behavioral Health & Substance Use Treatment

Keywords

• Youth advisory services
• Pediatric patient engagement
• Research advisory groups
• Clinical trial consultation
• Patient advisory services

Headquarters

HQ city

Vancouver

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Others, Marketing or Sales

Revenue model

1. Member Organization Fees: A majority of MICYRN's funding comes from member research organizations who pay an annual membership fee to support core coordinating centre work.
2. ARO Services Cost-Recovery: Post-award services provided on a cost-recovery basis. Pre-award services offered at no cost to investigators within member network.
3. Subsidized Regulatory Services: Clinical Trial Application submissions subsidized at 50% of cost for investigator-initiated multi-centred clinical trials.
4. Donations: MICYRN is a federal not-for-profit society that accepts donations to support Canadian maternal and child health research institutes working together to generate evidence to improve health of mothers and children.
5. Funded Grant Participation: Revenue through participation in funded research applications, including $20 million CIHR grant for RareKids-CAN and PRISM 9.9 million euros HORIZON EUROPE initiative.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels6 records

Core offering

KidsCan Young Person's Advisory Group (KidsCan YPAG) is a Canadian network of children and youth who provide consultation and youth perspectives on pediatric and maternal health research studies. The group assists investigators with environmental scans, qualitative research, assessment surveys, and patient engagement platforms across multi-site clinical trials. The advisory service is delivered to investigators within the MICYRN member network.

Product overview

KidsCan Young Persons' Advisory Group is a youth advisory service rather than a product platform. It consists of children and youth across Canada who provide consultation and advisory services to researchers, offering youth perspectives on studies targeting pediatric and maternal health populations. The group assists investigators with various research activities including study design input, survey assessment, and patient engagement consultation.

Differentiator

Problem solved

Functional benefit

Brands

• Clinical Trials Consortium: A consortium that prioritizes areas of opportunity and develops scientific and operational directions for multi-centre clinical trials across Canada.
• KidsCan Young Persons' Advisory Group
• IMPaCT

Products and services

• KidsCan Young Persons' Advisory Group A national advisory service of children and youth across Canada who assist investigators by providing youth perspectives on pediatric and maternal health research studies. The group consults on environmental scans, qualitative research, assessment surveys, and patient engagement platforms. In 2021, it assisted on seven studies spanning COVID-19 research, mental health, gender identity, virtual care, and medical cannabis research.

Named customers5 records

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

14 partnerships are on record, tiered flagship, core and strategic.

• PRISM (Paediatric clinical Research Infrastructure Service Model)flagshipStrategic or Co-development Partner · 1 May 20269.9 Million Euros HORIZON EUROPE initiative bringing together 23 stakeholders from Europe and Canada. MICYRN joining forces with ECRIN, ENoLL, and ESHA to create coordinated transnational ecosystem for pediatric clinical research support tailored for children and young people.
• ECRIN (European Clinical Research Infrastructure Network)flagshipStrategic or Co-development Partner · 27 December 2024Memorandum of Understanding signed to better align collaboration and capacity to jointly provide operational support to international trials. Particularly significant as Government of Canada and European Commission signed agreement in July 2024 authorizing enhanced participation of Canada in Pillar 2 of Horizon Europe Programme.
• PregTrialcoreStrategic or Co-development PartnerCollaboration to enhance inclusion of pregnant and lactating individuals in clinical trials across Canada. PregTrial is a national group of researchers, knowledge users, NGOs, Indigenous community representatives, and individuals with lived experience dedicated to ensuring access to safe, evidence-based, and culturally sensitive pharmacological treatments.
• ACCESS (Accelerating Child Cancer Evidence Synergy System)coreStrategic or Co-development PartnerPartnership to support development of Canadian investigator-led clinical trials in pediatric hematology, oncology, and stem cell therapy through ACCESS Clinical Trials Incubatory (CTI). Provides centralized expertise, tools, and coordination for trial development from concepts to funding and implementation.
• KINDTrialscoreStrategic or Co-development PartnerFirst national clinical trials network in Canada dedicated to neurodevelopmental conditions. Launched in 2024 with 16 sites across Canada. MICYRN provides trial monitoring at eight Canadian sites and participates in Data Safety Monitoring Board for the CALM study.
• RareKids-CANcoreStrategic or Co-development PartnerPediatric Rare Disease Clinical Trials and Treatment Network. Subsidizes trial monitoring for pediatric rare disease studies. MICYRN secured $20 million CIHR grant to support this network.
• conect4children (c4c)strategicStrategic or Co-development PartnerEuropean collaborative network for clinical trials for children. MICYRN strengthening partnership to bring clinical trials for children to Canada, working towards implementing multinational pediatric clinical trials.
• I-ACT (Institute for Advanced Clinical Trials for Children)strategicStrategic or Co-development PartnerUS-based organization to bring clinical trials for children to Canada. MICYRN working with group to identify and harmonize key metrics and indicators for pediatric clinical trials.
• CAMCCO-LcoreStrategic or Co-development PartnerTraining curriculum for graduate students, postdoctoral fellows and early career researchers in therapeutic research in perinatal health, developmental/fetal toxicity, maternal-fetal/obstetric medicine. Five student bursaries from $8,000 to $20,000 awarded to trainees.
• POPCORNcoreStrategic or Co-development PartnerPediatric Oncology Privacy, Consent, and Outcomes Research Network. Works with MICYRN and RareKids-CAN to offer coordinated approach to supporting pediatric and maternal health research across Canada.
• KidsCan Young Persons' Advisory GroupcoreStrategic or Co-development PartnerChildren and youth across Canada who assist investigators by providing youth perspective on studies. In 2021 assisted on seven studies including COVID-19 research, virtual care, mental health, gender identity, and medical cannabis research.
• CHEER (Canadian Collaboration for Child Health: Efficiency and Excellence in Ethics Review)coreStrategic or Co-development PartnerCIHR-funded initiative dedicated to achieving streamlined ethics review for child health research in Canada. Developed ethics education modules now hosted by MICYRN covering participant recruitment, patient engagement, consent/assent, research data, and study design.
• Enpr-EMA (European Network for Paediatric Research)strategicStrategic or Co-development PartnerMICYRN participates in this international working group developing surveys to understand global requirements for clinical trial sites and developing high-quality pediatric clinical trials.
• ACT (Array of Community Trials) CanadacoreStrategic or Co-development PartnerACT Canada supports promoting innovative knowledge mobilization of clinical trial findings. MICYRN participates in ACT Canada Knowledge Mobilization Committee and webinars.

Scale indicators8 records

Recent moves6 records

Expansion highlights6 records

Others

• TransCelerate BioPharma: Industry-sponsored nonprofit organization focused on clinical trial collaboration and efficiency across pharmaceutical sponsors. Comparable as a nonprofit clinical trial collaboration platform, though industry-sponsor-led rather than academic-network-led.

Broad incumbents

• Children's Oncology Group (COG): Largest pediatric cancer research organization in the world, coordinating trials across 200+ North American institutions. Directly comparable as a pediatric multi-site trial coordination network, though much larger scale and disease-specific focus.
• Enpr-EMA (European Network for Paediatric Research): European network of research networks, investigators, and academic sites participating in pediatric drug development. Comparable as a coordinating pediatric research network operating at a supranational policy level, with MICYRN participating in its working groups.
• NORD (National Organization for Rare Disorders): US-based umbrella organization for rare disease patient advocacy and research infrastructure. Comparable as a coordinating network facilitating rare disease clinical research with similar Canadian parallels (e.g., RareKids-CAN funded via MICYRN's CIHR grant).
• National Cancer Institute (NCI) Cancer Trials Support Unit: US federal agency coordinating cancer clinical trials infrastructure. Comparable as a public-sector organization providing regulatory and operational support for clinical trials across multiple institutions, though much larger and disease-focused.

Direct peers

• ECRIN (European Clinical Research Infrastructure Network): Europe's primary multinational clinical research infrastructure network coordinating multi-country trials. Directly comparable as an academic clinical trial network serving similar investigator populations, with whom MICYRN has a formal MoU.
• conect4children (c4c): European collaborative network for pediatric clinical trials. Directly comparable as a pediatric-specific clinical trial network linking research institutions across multiple countries, with whom MICYRN partners on multinational trial execution.
• I-ACT (Institute for Advanced Clinical Trials for Children): US-based organization focused on bringing clinical trials to children through harmonized metrics and site coordination. Directly comparable as a pediatric trial infrastructure network with similar coordination-of-coordination role, with whom MICYRN collaborates.

Regional players

• Clinical Trials Ontario: Provincial clinical trials infrastructure organization in Ontario, Canada. Comparable as a Canadian clinical trial coordination body serving similar investigator and sponsor customers, though narrower geographic scope than MICYRN's national reach.
• Canadian Cancer Trials Group (CCTG): Canadian cooperative oncology group conducting multi-center cancer clinical trials. Comparable as a Canada-based academic clinical trials network providing protocol development, monitoring, and data management across sites, with similar member-based model.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/kidscanypag

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about KidsCan Young Person's Advisory Group